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Arm DVT now extremem calf pain
Started by Deanna
Posted: January 9, 2012 at 16:26
I developed a superficial clot in my left Cephalic vein after donating blood. After 3 weeks of hospitals ignoring my pain my entire vein became occluded and the clot traveled into my subcalvian vein making it a dvt at that point. I was only given a 12 hour dose of Heparin, 3 Lovenox shots and released with 2.5mg of Warafin a day. My INR ranges in between 2.5 and 3. It has now been 3 weeks and I am having an excruiating pain behind my knee and in my calf. I can not put any pressure on my left foot. I have a low grade fever but no swelling. Can an upper extremity clot move into my leg or can a new clot develop while on Warafin. I have not done anything to pull a muscle.My doctor said it is impossible and if I see swelling or have chest pains to call him. I am scared and need advice since none of the health care professionals that I have seen take me serious. Thanks!

Re: Arm DVT now extremem calf pain
Reply #1 by Diane
Posted: January 9, 2012 at 17:23

Sorry you have had such a bad time after donating blood.

It is possible for you to get another DVT whilst on warfarin. I had my range increased as it is possible my DVT extended whilst on warfarin and I developed superficial clots in my arm from the drips I had in hospital for the DVT in my leg. I felt all my veins were sensitive at the time.

If your arm DVT had moved, it would go to your heart/lungs, not your leg, but there could be a different DVT. I'd visit a different doctor. There is obviously something going on, DVT or not, or go to A&E. There must be a reason why you had this reaction to donating blood in the first place and it can take your body a while to settle.

Hope you feel better soon.

Re: Arm DVT now extremem calf pain
Reply #2 by Deanna
Posted: January 9, 2012 at 18:52
Thanks Diane. This calf pain is getting worse. I think it is time to see another
doctor. It took 3 doctors before the 3rd one found my Subclavian DVT. The first 2
doctors ignored my pain because I didn't have any redness, warmth and only
minor swelling.
Re: Arm DVT now extremem calf pain
Reply #3 by Diane
Posted: January 9, 2012 at 21:47
It would be nice if we all presented like the textbooks say, but we don't. I had a swollen, blue leg and pain on exertion only. I woke up with a swollen foot and didn't think anything of it until I nearly passed out while I was walking the dogs. Not exactly typical.

A&E's follow a protocal, including a blood test and scan. You might be one of us who are prone to clotting at times, and this needs to be managed properly.

Good Luck!
Re: Arm DVT now extremem calf pain
Reply #4 by Tracey
Posted: January 10, 2012 at 10:11
Hi Deanna
I would be going straight to the doctors or the emergency room.
I ignored the pain and ended up in A & E via an ambulance with DVT and pulmonery embolism through my lungs. 3 years later I am still on warfarin. It is a very dangerous issue your could be dealing with and you need an ultrasound ASAP. We should always listen to our bodies and jump up and down until someone helps you.
All the best.
Re: Arm DVT now extremem calf pain
Reply #5 by Helen
Posted: January 10, 2012 at 16:16
I agree with the others. A new clot is possible on warfarin, I know as I clotted
again with an inr of 2.8.
Go back to the hospital and insist on a d dimer and Doppler.
Take care x
Re: Arm DVT now extremem calf pain
Reply #6 by Deanna
Posted: January 10, 2012 at 21:01
Thank you everyone. I ended up spending 9 hours in the ER and they did an ultrasound of my thigh and ankle but refused to ultrasound my calf where all the pain was. I asked numerous times and the doctor said if I had a clot it could be detected by checking the thigh and ankle. They said I did not have a clot but couldn't explain my pain. Today I went to my vascular doctor because the pain was worse and guess what??? My entire LSV is clotted from the back of my knee to my ankle. Yes, thank God it is superficial but it can become a DVT. My INR is at therapeutic levels so I am being referred to a hematologist. This is insane. All because I donated blood and something went wrong!
Re: Arm DVT now extremem calf pain
Reply #7 by Diane
Posted: January 11, 2012 at 09:25
I don't know why they don't do the knee. It seems to me if just ankle and groin are scanned, there needs to be a rather large DVT before they find it. It's not like it would take very long to do! From my personal experiences, never under-estimate the superficial vein clotting. That's how both my DVT'started! I'm sure it would have been 3, but one doctor treated with 3 days of clexane, whilst I waited for a scan.

I'm sorry you are having a rough time, but if it's any consolation, my clotting seemed to start to settle after 6-8 weeks, and then I could start dealing with it properly. I had my INR target increased and as long as it stays above 3 I'm fine. I'm also getting the followup I wouldn't have got if things had been straight forward.

I hope that you find out why you had such a reaction. It helps manage risks in the future. I found out previously, I have factor v leiden and a possible protein S deficiency.
Re: Arm DVT now extremem calf pain
Reply #8 by sharon brown
Posted: January 12, 2012 at 02:20
i had the worst swelling and pain ever in my left leg went for a scan they didnt find it nothing 2 days later still was in the worst pain ever and swelling bad all up my leg to rescaned me and bingo there it was a massive blood clot in my groan area and some had allready broke of and travelled to my lungs causing me gasping for air and so so short of breath to plus my tropolin heart blood test was up showing a strain to my heart to so had daily injections of fondaparinux and warfarin tablets to am still on them now but just glad im alive to tell the tail t so now attending dvt clinic for inr blood checks
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