DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Re clotting
Posted by andrea
Last Reply April 1, 2012 at 11:05
Started April 1, 2012 at 02:31
How to tell if you're re-clotting? I did a very strenuous water aerobic class last
Tuesday. Since then, my leg has been swelling and hurting. Doppler showed no
new clot but still very clotted popliteal. Dr. Thinks exercise has caused blood to
pool in clot leg causing pain. Pressure hose DOES make pain and swelling go
away. Should I still worry? Went off Coumadin 3 weeks ago ( after 5 months of
treatment). Any advice?

3 replies...

Posted by JACOB
Last Reply March 30, 2012 at 22:36
Started March 30, 2012 at 19:18
Hi everyone. Im new to warfarin... it goes up to 2 right now, and It is
for a life-time for me. I was just wondering - is that safe to play
paintball or is it forbidden for me ? Has anyone tried that ?

3 replies...

Weight loss and DVT
Posted by AJD
Last Reply March 30, 2012 at 20:08
Started March 30, 2012 at 20:08
I just read an interesting article that a study in the UK found that overweight women
are slightly more susceptible to blood clots, especially after surgery. What I found
surprising about this is my situation which seems to be the exact opposite! Last spring
after years of being between 20 and 30 pounds overweight, I started running nightly
for exercise. I dropped about 40 pounds in 6 months. I'm now a perfectly healthy
weight for my height and build, and I feel and look much better. The ironic thing is
that the middle of last December I developed a DVT in my left leg. I'm 35 so when I
went to the doctor for excruciating pain in my leg (it felt like a huge cramp, worse than
labor pains and I have 3 kids) he didn't see any discoloration or swelling and doubted it
was a DVT. He was going to give me muscle relaxants thinking it was a cramp but I
insisted on an ultrasound since I was on birth control. The ultrasound found the clot
and the doctor said he was... read more

0 replies...

Scar tissue around DVT
Posted by Alex
Last Reply March 30, 2012 at 08:15
Started March 30, 2012 at 08:15
My fiance developed a clot in her calf after childbirth over 10 years ago. The vein developed scar tissue all around the clot basically closing it off, requiring the rest of the veins in her leg to take over causing her leg to swell. She's been on warfarin ever since it happened and I want her to be well again. I've read about experimental surgeries but is there any way a stent can be inserted in the vein to open up the flow permanently? or is there even such thing as a vein transplant, where the blocked section of vein cut out and a new vein reattached in its place? thanks for any advice.

0 replies...

Blood clot
Posted by Jen
Last Reply March 29, 2012 at 21:51
Started March 20, 2012 at 16:14
Hi, I had a blood clot in my right calf and due off warfarin next month. I am now getting pain in my other leg, has anyone else had the same problem?

5 replies...

Coaguchek INR tests
Posted by lee
Last Reply March 29, 2012 at 13:10
Started March 7, 2009 at 23:10
Does anyone have any experience of monitoring your own INR using Coaguchek system?
I have mutliple DVT's over years and it looks like Warfarin for life. I am interested in how
I can avoid keep going to Hospital for blood tests.

11 replies...

swollen ankles
Posted by christel
Last Reply March 28, 2012 at 17:02
Started March 28, 2012 at 17:02
My ankles are both very swollen. I have had 3
months of warfarin and another 3 to go. Can
warfarin cause this? Dvt behind left knee.
Has anyone else experienced this? My doc
just said to elevate them as much as possible
and not to worry as it will settle. I am not
convinced as elevation makes little
difference. They are quite painful when I
walk even a short distance .
Has anyone else experienced this? Should I
be concerned? Would appreciate any
Many thanks

0 replies...

IVC Problems
Posted by Liz
Last Reply March 26, 2012 at 17:47
Started March 26, 2012 at 17:47
I had the same back pain after they tried to remove the filter. I could not pick
something off the floor or sleep on my one side. I went to get the filter removed
because I experience very swollen legs and back pain.

Good News!! I went to Stanford University hospital in California and their is a
specialist Dr. Kuo that successfully removed my filter. He also uses a laser if he has
to. I am so glad that I went to him because he said that doctors do more damage
when they try to remove them. He perfected the procedure. My doctor told me
afterwards that I would have to learn to live with it.

It only took a couple of days and the hospital staff was terrific. The took care of
talking to my insurance company and everything.

After surgery pain due to filter is totally gone!!! Before I figured out the back pain
was caused by the filter I got septic shock and almost died but not sure if the filter
caused it.

Good Luck, I am so glad that I did it.

0 replies...

Slow to stablise INR
Posted by Kay
Last Reply March 26, 2012 at 12:48
Started March 22, 2012 at 18:57

I was diagnosed with a large DVT (below knee to mid thigh) 9 days ago. I have been on injections (lovely bruised stomach!) and daily blood tests to gauge my INR then toldto take a varying number of Warfarin tablets each evening.

My concern is that my INR is at 1.9, progress feels slow - am I being impatient? They are increasing my warfarin dose steadily

Is there something else I should be doing? I am avoiding vit K foods as best I can, no booze and as I am housebound I am only pottering or resting. I am overwieght but an active outdoors person normally - the mental aspects of being stuck indoors is tough

Any advice very welcomingly recieved. It is quite a shock to be faced with all this



5 replies...

Just Freaking myself out?
Posted by Andy
Last Reply March 26, 2012 at 04:42
Started March 15, 2012 at 20:31
How obvious are the DVT symptoms? I had knee surgery a couple of weeks ago, which I know increases the risk of blood clots. There is an area of my shin that is particularly painful when I stand. The swelling is minimal, there is no real discoloration (unless I look really closely), and while the whole knee/shin area is a little warmer to the touch than my other (non-surgery) leg, I don't know if that's just normal because of the stress of the surgery.

All I know is that I got it into my head that I might have a clot, and now I can't shake it. I really just want to know if there is any ambiguity about it, or if it's the kind of thing where you know for damn sure that something is wrong.

8 replies...

socks rolling down
Posted by cookalina
Last Reply March 25, 2012 at 20:39
Started March 24, 2012 at 13:28
Hi does any one know of a tried and tested product that will prevent my comp socks falling/rolling down? I have been remeasured but still not happy with fit.I know my legs are big-50cm round knee-but I cant go on like this Please help and all take care of yourselves Thanks

3 replies...

is this cause for concern?
Posted by ryan
Last Reply March 25, 2012 at 18:56
Started March 25, 2012 at 18:56
Hi everyone,
27 year old healthy male, not any major risk factors from what my doctor told me, I
don't smoke, not overweight etc. no family history

I have had ongoing calf pain for well over 2 months, I might be somewhat imagining it
at this point because I am worried about DVT, I have slight groin pain also now. I
received a doppler from my groin all the way to my foot and it was negative. Is there
any chance that this could have been missed as a DVT?

Thank you for reading

0 replies...

Posted by Jen
Last Reply March 25, 2012 at 17:46
Started March 25, 2012 at 17:07

Can anyone help, have a DVT in my right calf in January this year and due to come off warfarin next month but I am now getting pain in my other calf. The pain is not as bad as last time, but seems to be there most of the day. Cramping pain and throbing, but with no swelling. Please help not sure if I should be worried.

1 replies...

Posted by Jen
Last Reply March 25, 2012 at 17:06
Started March 25, 2012 at 17:06

Can anyone help, have a DVT in my right calf in January this year and due to come off warfarin next month but I am now getting pain in my other calf. The pain is not as bad as last time, but seems to be there most of the day. Cramping pain and throbing, but with know swelling. Please help not sure if I should be worried.

0 replies...

Don't forget to remmember!
Posted by Georgia
Last Reply March 24, 2012 at 14:22
Started March 24, 2012 at 14:22
After all these years of the warfarin tango I forgot to mention that I'd run out of vitamins a week ago and spiked a 7.5 DUH!!! For the last 10 years they've been accomodting for the 25 mcg of vitamin k in my vitamins.

Don't be like me and don't forget to remmember to tell them of ANYTHING you put in your mouth that is different (even if it's just a brand change). :-))

0 replies...

Cramping in Legs
Posted by Leot
Last Reply March 24, 2012 at 13:48
Started February 4, 2012 at 21:33
Hello all. I am a 29 year old police officer who underwent a major muscle/nerve reconstruction surgery on my Right Arm in December of 2011. Three weeks ago I followed up with my surgeon and he expressed concern over the change of color and the amount of swelling in my arm. He ordered a Stat ultrasound of my arm which turned out to be a fairly large DVT in the triceps region. The pain at times is really bad and sometimes just a normal pain. I am on pain killers (can't see how people can stand them) warfarin 5mg, and just recently stopped the lovenox injections. I've been following up with an anticouagulation clinic to monitor my INR (2.7). I just started experiencing legs cramps in both of my up calf region. The pain of cramps just started and I am worried if this will add to what has already been an painful recovery from surgery. Is the cramps normal or is it something to be cause for concern? I hate that I need to ask such a question from being healthy and in shape to no... read more

3 replies...

advice on dvt needed!
Posted by Rachel
Last Reply March 23, 2012 at 18:49
Started March 22, 2012 at 15:19
Hi I was taken into hospital last weekend and diagnosed with dvt and
was started on the injections and was told that after 5 days I would
go onto warferin and should rest as much as possible. I was sent for a
scan monday morning where the nurse confirmed that I had dvt but told
me that I should stop the injections immediately and that I won't be
getting warferin, she told me this was the old fashioned way and
didn't work and that the modern way was to put a 4 layer bandage on
with no medication and to exercise as much as possible. I told her
that the dr had warned me that if I didnt have the medication then the
clot can go to your heart, brain or lungs and she said this was
rubbish and told me that warferin doesnt stop this. After coming home
I spent 2 days in more pain that ever, after constant phone calls to
the nurse she agreed that I could come in and go on the injections and
warferin again and that she would take the bandage off. She told me
that be... read more

4 replies...

Alcohol and Coumadin
Posted by Rob
Last Reply March 23, 2012 at 15:40
Started March 23, 2012 at 13:38
I just got my first and hopefully LAST blood clot in my leg a week ago. I have been told not to overindulge in alcohol while on coumadin. I am going to do everything I need to, to get off Coumadin as fast as possible. HOWEVER, I have a very good friend of mine's wedding coming up in a couple of weeks. Has anyone found themselves drinking way more than they should have while on coumadin? And if so, were there any problems with blood levels???

2 replies...

Natto power
Posted by N
Last Reply March 22, 2012 at 19:27
Started February 17, 2010 at 03:05
[...] Despite the problems, after seven months on Coumadin, Neithammer’s clots were gone. His doctor then suggested a daily aspirin as a preventive. But Neithammer’s troubles weren’t over. Five years later, the clots returned, and along with them, an ulcer in his esophagus, which he suspects the aspirin triggered. The ulcer ruled out Coumadin, because of possible bleeding in the esophagus. So after a course of heparin, Neithammer turned to a different remedy: 200 mg a day of nattokinase, an enzyme found in soy shown to help dissolve blood clots.

His doctors, says Neithammer, “were literally horrified,” that he was taking dietary supplements for something as serious as a blood clot. But for Neithammer, the proof was in the results. After more than a year on nattokinase, an ultrasound showed no sign of clots. The veins, according to his radiologist, were “clear and pliable.”

The early research on nattokinase and clots appears to echo Neithammer’s experience. Several studies sugg... read more

11 replies...

relapse of DVT
Posted by pk
Last Reply March 22, 2012 at 02:14
Started March 20, 2012 at 14:23
I had DVT abt two years back...was fully recovered and back to
normal....absolute normal.....two months back i shifted to a city on
hills...last ten days or so my leg is swollen and sometimes pains
also...is there a possibility of the revisit of DVT....if so how to
avoid it?...i have been n the office but keeps walking on regular
intervals?...will appreciate a quick response as i am quite worried...

2 replies...

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