DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 117 of 237
INR not therapeutic - how often to check?
Posted by Marie
Last Reply September 26, 2011 at 03:00
Started February 14, 2010 at 23:02
Hi! I've learned a lot from this forum - I'm so glad I found it! I have a question for you all: how often should my INR be checked while it's *not* in therapeutic range?

Here's my situation: I'm 27, female, and was dx w/DVT & PE last December - the docs and still trying to figure out if it's from my Crohn's disease or something else (will hopefully have the results of more clotting disorder/lupus tests tomorrow). After 8 days in December of lovenox and warfarin I'm now just on warfarin for the clots (I am taking other meds for the Crohn's). I understand warfarin is a difficult drug to manage, but it's been over 2 months and my INR hasn't been in therapeutic range for two weeks in a row since the end of December. Since January my INR has been down to 1.1, gradually up to 2.5, spiked to 3.6, back down to 1.7... Argh! (I am very careful about keeping my diet consistant and taking the warfarin at the same time each evening.)

Last Monday my INR was 1.8, so my gp increased the warfa... read more

6 replies...

Dizziness and nausa
Posted by William
Last Reply September 26, 2011 at 02:46
Started September 26, 2011 at 02:46
I experienced dizziness and nausea to the extent that I could not walk after taking Pardaxa for 2 days. Went to the VA and the doctor there did not think Pardaxa was a good medication. I have stopped the drug and am feeling some better. Not nausea but still dizziness, but not as bad. Has anyone had this problem. My wife and I also take Nattocanaise and I am back on it. My wife had an ablation but still has some arrhythmia. She does not tolerate the arrhythmia med so is off and doing okay. When we have the attacks. Research cayenne liquid, magnesium,CoQ10 and potassium. Also the trace minerals are great. This is what we do when we get an attach. I am 76 and my wife is 73. She beat reoccurring breast cancer using natural treatments.If she can help feel free to email her at nsearch1@att.net.

0 replies...

May-Thurner
Posted by Kristin
Last Reply September 25, 2011 at 22:47
Started August 24, 2011 at 03:24
Hi Everyone...I'm happy to have found this site. I can't believe it but after a year and a half of recurrent DVTs, warfarin "for life" I finally have an answer. I got my first DVT in March of 2010 for no apparent reason...I was 39 at the time. I was in the hospital for about a week, sent home with Lovenox shots and warfarin, remained on the warfarin for about 4 months. About a month after being off the meds I got a 2nd DVT, repeated the blood screening tests, had a abdominal CT scan and nothing was found. I was told my vein is probably compromised now and so now I need to stay on the med for life. Something just kept telling me there had to be an answer...so after pushing and pushing my doctor she finally referred me to a university hospital near by (UofM) and maybe they could find something. Two visits later and voila...I was just diagnosed with May-Thurner Syndrome. What gets me is what about all the people who don't challenge and don't accept their GP's responses. I coul... read more

2 replies...

What to expect now?
Posted by Mandy
Last Reply September 25, 2011 at 22:01
Started September 22, 2011 at 23:14
I live abroad and was diagnosed 2 weeks ago with a severe DVT in my left leg,
just below my knee. After spending a week in the hospital, I was allowed to go
home. I have been getting my blood tested every day this week trying to find
the right combination to maintain the right level.

I am not sure what to expect coming up in the next 3 months. With the
language barrier, it is difficult to fully understand my doctors.

I haven't had pain since about 5 days, but today the pain is back and I an
freaking out that I did something our that maybe the thrombosis got bigger? A
friend thought maybe since my level has been too low the part 3 days, that this
is the reason for the pain.

Any advice is welcome, I am looking for advice on what to expect from here on
out. What are some of the side effects to Lovonex and Sintrom (not sure of
spelling).

In two weeks I am getting married and dont want to over react with this and
wind up back in the hospital because th... read more

3 replies...

DVT and work
Posted by Rob
Last Reply September 24, 2011 at 23:11
Started June 19, 2010 at 15:27
I was diagnosed with a DVT behind my right knee back in January this year.However, my ability to do my job is now declining- I work as a Customer Service Manager and drive approx 50k miles per year, with a round-trip commute to the office of 140 miles. Because my calf and the back of my leg are now painful if I sit too long, I am no longer able to sit in the car for more than 45 minutes without having to stop and walk around for 10 minutes.
So, I was wondering if any of you have approached your employers to ask for flexible working? The initial response from my HR dept. was not too positive, so I will refrain from taking this further until I have looked at the options open to me.I suppose my fear is that I will lose my job, but realistically my time is now limited beacuse I cannot now sit still for too long.
Is there any financial assistance I can obtain from the state? Is DVT classed as a disability? I would appreciate your advice and comments please.
Many thanks.

19 replies...

New drug. Pradaxa
Posted by Aaron
Last Reply September 23, 2011 at 03:23
Started September 22, 2011 at 21:28
Hi all,

Just a quick question.....

How would I get on Pradaxa?

I am currently on warfarin, i have recently just started another 6
month course as i developed another DVT in each leg. I asked about
about the new drug Pradaxa and wondered if i could take that instead
of the warfarin, but the doc at the hospital around and said that they
wasn't licensed to give it out....

Is there any way I could get still hold of it?

Any replies would be much appreciated :)

1 replies...

What to expect now?
Posted by mandy
Last Reply September 22, 2011 at 23:11
Started September 22, 2011 at 23:11
I live abroad and was diagnosed 2 weeks ago with a severe DVT in my left leg,
just below my knee. After spending a week in the hospital, I was allowed to go
home. I have been getting my blood tested every day this week trying to find
the right combination to maintain the right level.

I am not sure what to expect coming up in the next 3 months. With the
language barrier, it is difficult to fully understand my doctors.

I haven't had pain since about 5 days, but today the pain is back and I an
freaking out that I did something our that maybe the thrombosis got bigger? A
friend thought maybe since my level has been too low the part 3 days, that this
is the reason for the pain.

Any advice is welcome, I am looking for advice on what to expect from here on
out. What are some of the side effects to Lovonex and Sintrom (not sure of
spelling).

In two weeks I am getting married and dont want to over react with this and
wind up back in the hospital because th... read more

0 replies...

Does compression stockings works?
Posted by Kathy
Last Reply September 22, 2011 at 10:45
Started September 8, 2011 at 07:48
I am 41 years old and I've never been diagnosed with any form of illness
all my life. After a career change a year ago from being on the filed as
a sales person, I now work in the office as an admin assistant for a
young CEO, which entails long hours of accounting and computing. A month
ago, I noticed that my leg is feeling heavy and shows a bit of swelling.
I heard about compression stockings, how does this help me?

7 replies...

Tingling leg - DVT & PE 5 yrs ago
Posted by Michelle
Last Reply September 22, 2011 at 02:51
Started September 22, 2011 at 02:51
I have permanent damage in my left leg, knee to groin from a DVT that occured 5 yrs ago as a result of birth control pills and a knee injury / leg brace. I had no symptoms and it resulted in multiple PE's. I was 26 at the time. Luckily for me I've fully recovered although I still wear compression stockings (full leg).

About 2 wks ago I noticed occasional tingling in this leg that would make its way to my foot. Particularly when going DOWN the stairs (we have lots of stairs in our house) - when my leg is mid air it sends a strange tingling sensation to my foot. Sometimes just when sitting. I have never had this before. I'm going to go to a Dr tomorrow but I was wondering if anyone else has had this years after a clot, and what that might mean?

I found this site so helpful years ago.. but haven't been back 'til now!

0 replies...

Tingling leg - DVT & PE 5 yrs ago
Posted by Michelle
Last Reply September 22, 2011 at 02:50
Started September 22, 2011 at 02:50
I have permanent damage in my left leg, knee to groin from a DVT that occured 5 yrs ago as a result of birth control pills and a knee injury / leg brace. I had no symptoms and it resulted in multiple PE's. I was 26 at the time. Luckily for me I've fully recovered although I still wear compression stockings (full leg).

About 2 wks ago I noticed occasional tingling in this leg that would make its way to my foot. Particularly when going DOWN the stairs (we have lots of stairs in our house) - when my leg is mid air it sends a strange tingling sensation to my foot. Sometimes just when sitting. I have never had this before. I'm going to go to a Dr tomorrow but I was wondering if anyone else has had this years after a clot, and what that might mean?

I found this site so helpful years ago.. but haven't been back 'til now!

0 replies...

tiredness
Posted by sue
Last Reply September 21, 2011 at 20:36
Started September 21, 2011 at 18:01
my boyfriend is recovering slowly from a dvt he suffered last year, hes now off warfarin and is back at work, but can anyone help me with advice on how to combat the tiredness he suffers, has anyone taken any vitamins or something that they have done that may help him many thanks

1 replies...

DVT and work
Posted by Rob, UK
Last Reply September 21, 2011 at 18:33
Started September 9, 2011 at 15:55
Hi to you all.
The dvt behind my right knee (extending some 10cm up the back of my leg) was diagnosed some 20 months ago now, and I am pleased to say that the clot has now totally dispersed with no arterial or valve damage. However, I have been left with 'uncomfortable' PTS which will probably remain with me. But my company have, in my opinion, been awful during this time and have refused to assist me in any way- despite letters from my haematologist, vascular surgeon and GP! It has come to the point where I am contemplating taking legal advise, as I believe the company have failed in their duty of care to me, as well as contravening the Disabilities Discrimation Act. I have always received the full backing of the Occupational Nurse, but the HR dept. and my managers are just not interested. Until a satisfactory compromise is reached, I've been told to remain on the warfarin regime.
Have any of you been through a similar situation, what action did you take and what was the outcome?... read more

6 replies...

Working with a dvt
Posted by Gavin
Last Reply September 21, 2011 at 12:20
Started September 21, 2011 at 12:20
Been off "sick" now with a dvt in left leg and clots behind left knee.
Doing wafrin and fragmin injections every night as warfrin not kicked
in yet.

Docs and Hospital every monday tues and friday for tests

My problem is im self employed window cleaner and have been to
not to work esp climb ladders (which is my only choice).
Any ideas how long i will be off work for?

0 replies...

Suspected DVT?
Posted by Katie
Last Reply September 20, 2011 at 17:18
Started September 19, 2011 at 02:46
Hi All,
I has an Arthroscopy on my Right knee 10 days ago and 4 days after that i developed a sharp pain in my right calf muscle which felt like id had a leg cramp and a dull cnstant pain in the side of my thigh behing my swollen quadricep (from the op), i spoke to my physio about this an he give me some stretches and eased my mind that it could have affected my surrounding muscles, yesterday ( 9 days on) i have developed brusing of the calf muscle and a massive purple bruise on the side of my thigh where the pain was and it is still very sore. I also have random spot brusies behind my knee, I thought it could have been from my leg being in a stirup or something in surgery but the brusing woud have come out before now as the bruises around the incision sites are almost gone now... I was wondering if perhaps these could have been DVT's and they have bursted the veins or bled out someway... your opinions would be much appreciated guys.
Thanks Kate


2 replies...

DVT Before Surgery
Posted by Nicole Z
Last Reply September 19, 2011 at 23:17
Started September 19, 2011 at 23:17
Hi, I'm 49 years old. In February I was hospitalized with kidney stones and after a three week stay developed DVTs in both legs. I have been on Warfarin/Coumadin since early March. I just had a scan done on both legs and my left leg is clear but the technician said I still have chronic DVT in the right leg - one place behind my right knee.

I am scheduled for surgery in two days. Abdominal surgery that could last 8 hours. I'm scared to death that the clot will break free. I stopped Coumadin seven days before surgery and went on Lovenox (one injection per day), per the surgeon's request. Looking for advice or others with similar experience to share what they know.

Thanks.

0 replies...

mens. has stopped suddenly with warfarin 10
Posted by Layan
Last Reply September 19, 2011 at 17:25
Started September 19, 2011 at 17:25
Hi,
Im 22 years old and i have DVT after my dilvery by one week....im on warfarin for 4 months..my mesnrtual used to be so heavy, i was on fligh yesterday with INR 2.3 and suddenly my menstrual has stopped suddenly in its 4th day.. do i have to worry??

0 replies...

Trellis Peripheral Infusion
Posted by Steve
Last Reply September 19, 2011 at 01:31
Started September 19, 2011 at 01:31
I was diagnosed with DVT in my right leg about 6 weeks ago. I am still experiencing
pain and discomfort, not to mention always worrying about P.E. I was prescribed the
same old treatment that has been prescribed for 1/2 a century: BLOOD THINNERS! My
Primary Dr. won't discuss other options and my Hematologist won't return my calls. I
am going to contact St. Joseph Hospital Monday and ask about this procedure. Has
anyone else received this or asked about the Trellis Peripheral Infusion Procedure?
Please watch: http://www.youtube.com/watch?v=inXR0d69KgQ&feature=related

0 replies...

pain
Posted by Anita
Last Reply September 18, 2011 at 15:50
Started September 10, 2011 at 17:40
I am 18 months post-dvt. The new school year started about 4 weeks ago (I'm a high school math teacher) and the past two weeks I have been experiencing pain that seems to be getting worse and worse..to the point where it's waking me up and keeping me up at night. At first taking Ibuprofen PM was helping, but it seems that it's starting to lose its effectiveness. I have been wearing my compression stocking religiously, but I was wondering if anyone had any other suggestions I can try. I have been off of coumadin for 14 months and I am on my feet pretty much non-stop from 6:30 to 3:00 each day.


6 replies...

Cost of treatment in Melbourne, Australia (Oz)
Posted by Raj
Last Reply September 17, 2011 at 15:36
Started June 2, 2010 at 05:32
Hi,

I've DVT since last 5 months or so. By the grace of GOD and proper treatment it is much better now. I'm slated to travel to Melbourne, Australia for a while.

I'd like to know what is the cost of:
1. Doctor Consultation (generally)
2. Doppler Test
3. PT INR test
4. Acitrom tablets

If you know any hospitals specialized in DVT or similar in Melbourne, please let me know.

3 replies...

Switching from Warfarin to Heparin?
Posted by Hels
Last Reply September 16, 2011 at 12:36
Started May 13, 2011 at 04:19
I am thinking about switching from warfarin (7mg daily for 6 weeks
now) to daily heparin/clexane injections. I live in Australia.

I am not handling the warfarin very well. The biggest concern is pain
in my joints, in particular my feet and toes which causes excruciating
pain when I walk. I have DVT in my right leg, 3 clots all the way to
my groin and the foot on that leg will swell up if I remove my
compression stocking. I even sleep with a lighter weight stocking at
the moment. I can hardly drive the car and I have to hobble around
which makes exercise a problem. I also have headaches, numbness, pins
and needles, hair loss etc and just generally feel unwell on this
drug.

I am seeing my specialist this coming tuesday and I have to decide if
I want to come off the warfarin as they have said I can do the daily
injections instead. I am thinking I should give this a try, even if
it's just for a few weeks to see if things improve with my general
well being... read more

6 replies...

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