DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 121 of 237
Info needed
Posted by Mike
Last Reply August 3, 2011
Started August 3, 2011
I was diagnoised with a DVT in May been on warfarin since then and told it would be for 6mths (Nov) I'm due to have a prostate op on the 16th Aug so told to come off 5 days before and stay off for two weeks, however haematologist now states NHS policy is only 3mths so asks if I can move op to September when course of warfarin finished. No problem except I also need my hips replaced and that consultant wants me to stay on Warfarin , so question is once my 3mth course is finished for the DVT and after the two weeks do I just go back on the same dose of warfarin 12mg (coming off 5 days before each op) as a precaution against another DVT or do I need to do the whole Clexin/daily blood test malarky for the whole period when off/on.
The spanner is that the ops all private and the Warfarin monitoring NHS and get the feeling that once 3mths is up will be discharged from clinic and they will say up to private hospital to deal with my anticogulation .
Lastly calf still swollen how do I kn... read more

0 replies...

swelling of leg
Posted by Jes
Last Reply August 2, 2011 at 08:56
Started July 21, 2011 at 02:07
Hello all,
I have three blood clots on my left leg. I have been on warfarin for
about 3 weeks. However, I'm having a lot of swelling on my leg. My
doctor said to elevate my leg, however this has not helped. I feel like
the swelling increased after he recommended I use ace bandages around my
leg. I would appreciate any feedback. What have you all noticed works
best for swelling? Also, is this normal that the swelling is
persistant?

6 replies...

DVT or Worry
Posted by Andy
Last Reply August 2, 2011 at 08:33
Started July 28, 2011 at 17:11
So I am a 31 year old male that is a little overweight and smokes. I tend to also be a hypochondriac. I have been most recently busy convincing myself I have a DVT mostly due to my mortal enemy Google searchs lol. Anyway i have some dis comfort from in my right leg. It is light pain probably a 1 or 2 out of ten. It seems to move a bit in the calf area. The more constant irritation is behind my knee and in my lower leg 4 inches above the heel. The knee and ankle feel like a slightly burning tightness. I have no discoloration and if their is any swelling it is minimal. I also have been streching and wiggling my foot ever since i noticed this a week ago. Like i said it comes and goes but i am always over monitoring it.


Help does this sound like DVT or Paranoia

3 replies...

Regaine & Warfarin?
Posted by Rob
Last Reply August 1, 2011 at 17:51
Started April 22, 2011 at 20:03
I am permanent user of Warfarin as a result of being diagnosed with Leiden factor V, following a DVT about 7 years ago at the age of 34. My INR target range was set at 2-3 and this has been maintained fairly steadily over the years by taking between 5 and 6mg daily.
I think my hair had been thinning to some degree, in the usual male
pattern, since my early 30's before I started on the warfarin.
My wife recently bought me some Regaine (Rogaine in USA etc) extra strength 5% foam for me to give it a go. I started using it somewhat sceptically just over a month ago and in the last week I have noticed the start of some regrowth (hooray!)
However when I went for my INR check a couple of days ago my INR was down at 1.4 an unexpected personal all time low. At the time I didn't attribute the drop with the Regaine and so came away with my Warfarin dosage increased to 6 & 7mg on alternate days and self administered Heparin injections for a week to thin my blood down quickly.
I've searched... read more

1 replies...

Left calf cramping. Any ideas?
Posted by Jennie
Last Reply August 1, 2011
Started July 29, 2011 at 15:31
Calf cramp since tuesday. Please help!?
So I took a two hour plane ride and a two hour car ride with breaks in between
each trip to walk around. Later in the day Tuesday I started freaking myself out
about blood clots. I have a weird phobia of them. Well my calf has been crampy.
Its not anything terrible and I did go walking form two miles yesterday. I figured
if I had a clot I wouldn't have been able to walk two miles. And the pain hasn't
gotten any worse and no new symptoms.

Oh and I've had several negative ultrasounds in the past as well as negative d
dimers

I'm 23 no family history, and my last ultrasound was two weeks ago due to thigh
pain after a long haul car trip. Am I just being paranoid?

4 replies...

What is the best thing to do?
Posted by Kathy
Last Reply August 1, 2011
Started July 31, 2011 at 16:49
I was diagnosed with DVT a month ago. I have a clot in my groin and one behind
my knee. These have happened since I have chemotherapy and radiotherapy for
cervical cancer - which I am now in remission for. I am on daily injections of
tinzaparine. The day I was diagnosed the doctor told me that it was important to
keep moving and not have complete bedrest. We were due to go capmping that
weekend and the doctor said he saw no reason why instill couldn't go. At this
point my entire leg was swallon. The day after I nipped into town for some last
minute bits. I really struggled getting back to the car and when I got home my
ankle and foot had swollen. I rang the DVT clinc who said that I had to keep my
leg elevated when seated and not to do too much just to potter around the
house. Over a few weeks my thigh went down but my foot, ankle and calf were
still swollen. I have just got back from camping with the kids again (4 days in
the caravan ) before I went away the... read more

1 replies...

NATTO
Posted by Tavo
Last Reply July 31, 2011 at 08:42
Started July 31, 2011 at 08:42
Hello guys. Has anyone tried or heard about Natto (Nattokinasse)? I´ve
been told it is a powerful clot dissolver. What do you know about it?

0 replies...

DVT Removal & Stenting in Canada
Posted by Dharma
Last Reply July 29, 2011 at 14:08
Started July 29, 2011 at 14:08
I posted this on another form I'm part of however I thought the information might be helpful to someone here as well.

I thought I'd post an update in case any fellow Canadians are looking for a hospital to have a dvt removed and/or stenting done for stenting.

I went in yesterday for what I thought would be a routine ultrasound of my chronic DVT at the University of Alberta Hospital. My haematologist wanted to see what was left of the dvt in my left leg since a year has passed. After the ultrasound the internal radiologist said I need to go to emergency because he thought I had more acute clot over the chronic clot. I panic because this meant I was re-clotting for no reason. Anyway I went down to emergency and my haematologist was there and told me I had to go in for an Angiojet (tpa) to have the new clot removed and the old one stented. In my nativity I said "you mean we do this in Canada." He said yes we've been doing it at the U of A Hospital for years. I saw 3 doctor... read more

0 replies...

DVT or Worry
Posted by Andy
Last Reply July 28, 2011 at 23:45
Started July 28, 2011 at 17:12
So I am a 31 year old male that is a little overweight and smokes. I tend to also be a hypochondriac. I have been most recently busy convincing myself I have a DVT mostly due to my mortal enemy Google searchs lol. Anyway i have some dis comfort from in my right leg. It is light pain probably a 1 or 2 out of ten. It seems to move a bit in the calf area. The more constant irritation is behind my knee and in my lower leg 4 inches above the heel. The knee and ankle feel like a slightly burning tightness. I have no discoloration and if their is any swelling it is minimal. I also have been streching and wiggling my foot ever since i noticed this a week ago. Like i said it comes and goes but i am always over monitoring it.


Help does this sound like DVT or Paranoia

2 replies...

Coumadin miligrams
Posted by Connie
Last Reply July 28, 2011 at 23:36
Started July 27, 2011 at 19:36
I was diagnosed with DVT/PE on June 21. I was hospitalized and released four days later. I started Lovenox injections supposedly until the coumadin started to work. It's now over a month later and I'm still taking the injections twice a day. I started at 5 milligram tablets and was moved up to 15 yesterday because my INR has not moved up...its currently at 1.3. I have been following my does and don't s to the letter. I have not eaten any of the foods from my don't list and I don't think my doctor believes me when I tell her I am following the diet. I'm going for blood work twice and week. Has anyone else experienced these problems? If so what helped?

4 replies...

Left arm/muscle pain?
Posted by Rachael Hall
Last Reply July 28, 2011 at 03:00
Started July 28, 2011 at 03:00
Hi I have been on warfarin since I was 16 (Large blood clot, from belly button to eft
ankle + factor v leiden) I had a baby about 5 months ago so through pregnancy I
was on Clexane injection instead.

Anyway before I feel pregnant I used to get horrible left arm pain in my muscles it
would feel like it was burning and very heavy I had gone to the hospital for scans
on my arms and chests and there was never anything wrong, and today my arm
pain has come back i'm reluctant to go to the Drs as they will more than likely just
rush me to hospital for a scan that will show nothing and send me home without
trying to figure out what is causing it. Has anyone else has this before? Please tell
me i'm not the only one! and does anyone know what could be causing it?
Thanks.

0 replies...

It's all about the money - new anticoagulants
Posted by Ken
Last Reply July 25, 2011 at 22:53
Started July 24, 2011 at 19:19
Introduction and Purpose of this Report

I believe that the anti-coagulant drug market is poised to become the next blockbuster category in cardiovascular disease, following the path of hypertension and cholesterol drugs. This could mean that sales would reach several billions of dollars arising from several individual blockbuster products. If I am correct, there is a significant commercial potential for three new anti-coagulant drugs that are in the early stages of commercial development.

The first of these new products to reach the U.S. market is Boehrringer Ingleheim’s Pradaxa (dabigatran), which was approved in October of 2010 for the indication of preventing blood clots forming due to atrial fibrillation not stemming from valve damage. The next drug in the development timeline is Johnson & Johnson (JNJ) / Bayer’s Xarelto (rivaroxaban). It received approval for preventing deep vein thrombosis following knee and hip replacement surgery on July 1, 2011. Pradaxa is not approv... read more

1 replies...

Diet on warfarin
Posted by Abby
Last Reply July 25, 2011 at 13:10
Started September 27, 2010 at 11:23
Can anyone suggest any websites on 'do's and dont's for dietary intake whilst
on warfarin? Thanks :)

6 replies...

Low body temperature (freezing continually)
Posted by Daniela
Last Reply July 25, 2011 at 13:08
Started July 25, 2011 at 13:08
I don't know if anyone else, who take warfarin, experience a endless freeze and a low body temperature. At first I thought OK my hormones must be kicking in with all the strange happenings (two DVT's in right ankle & leg plus 2 lovenox shots a day for 5 days combined with warfarin) with my body. Now I'm strictly on warfarin but I can't shake this crazy non-stop coldness.

I live in Hawai'i for crying out loud & I shouldn't be bundled up to my ears in clothing with 2 pairs of socks on and about 5 blankets in bed. Geez! I'm going nuts with this cold. I understand that the medicine is to help dissolve the clots but nothing in the description of the medication said anything about this "freeze-a-rama" here.

Anyone else experiencing this?

0 replies...

Compression Stockings Help
Posted by Adam
Last Reply July 24, 2011 at 19:49
Started July 24, 2011 at 19:49
Alright so about a year ago I had an extensive dvt from the lower calf to my mid/lower thigh. I have Factor V Leiden and I am currently still suffering from PTS symptoms. My GP has told me that I need to wear my compression stockings (thigh+waist high) forever. I usually wear Truform/Jobst/Ames Walker styles 20-30/30-40mmgh. I currently live in south part region of Texas and I am finding a hard time to wear them because of the heat. When it gets up to 105+ degrees they just feel so uncomfortable. I really don't mind wearing them when it is a little bit cooler though.

I am not gonna lie, the stockings really do help with the pain. So I would rather wear them than not wearing.

Does anybody else have this problem? What are some tips to help me feel cooler with these on? Has anyone tried the Therafirm brand -which advertises the "Micro-cool" technology? Do they keep you cool?

What other brands are good?


BTW, I am a male (age 24)...

0 replies...

New clot? or extension of the old clot
Posted by ariellec
Last Reply July 24, 2011 at 15:55
Started July 14, 2011 at 02:12
I'm not sure about the advice from my doctor. He's wanting me to give up taking Warfarin, and I'm just not sure. In March this year I developed a DVT while pregnant and with gestational diabetes in the 9th week, and then miscarried. I was put on Clexane (heparin) and about a month later moved onto warfarin (Coumadin). I was keen to get off the warfarin, so went back and had another ultrasound of my leg.

The results of the first scan were that there was an occlusive thrombus in the distal popliteal vein, extending into the tibial veins.

This follow up scan has found a 6 cm long non-occlusive thrombus in a peroneal vein.

From what I understand of vein anatomy, the peroneal veins drain into the tibial veins, which in turn drain into the popliteal vein.

The first scans were taken at a hospital, so we don't have anything other than the report.

So is the 6cm clot in the peroneal vein the tail end of the original clot, or is it a new one? My doctor believes that its the ... read more

2 replies...

Are stockings really the solution?
Posted by Alan Butterworth
Last Reply July 24, 2011 at 15:39
Started July 16, 2011 at 10:54
Short resume, DVT in 2007 after bad advice on mobilisation following a torn calf muscle. DVT remained undiagnosed for 5 weeks. Warfarin for 6 months. Calf-length stockings prescribed after 4 weeks following start of Warfarin. After 12 months of constant stocking wearing went back to hospital because of PTS. Told to keep wearing stockings and see in another year what it's like. Fast forward to Sept 2010, returned to GP because of PTS higher in my leg (thigh region now). Referred to see a NHS Vascular Surgeon in Manchester. Another ultrasound done, confirmed valve damage and abnormal veins in thigh. Recommended to try full-length stockings. Did this, no change....if anything sometimes the pain seemed worse. Went to see a private consultancy in Nottingham (Veincare). Had another ultrasound done and told the valves in the thigh look ok, most of the reflux coming from damage in popliteal vein. Also scar tissue in popliteal vein probably stopping blood flowing back up leg. Surgeon suggest... read more

6 replies...

Airlines and DVT
Posted by Speedyturtle
Last Reply July 24, 2011 at 15:26
Started October 21, 2009
For those of you that have flown post DVT diagnosis.....how have you found the airlines?

Do they not let you fly if they know you have / had a DVT?

Are there any out there that help you out by making sure you are able to stay hydrated, or not giving you too much grief if you walk around?

Or do you not let them know at all?

Cheers,

ST

12 replies...

DVT & PREGNANCY
Posted by Zam
Last Reply July 23, 2011 at 13:47
Started July 23, 2011 at 13:47
i am 29 years old and my problem is i had DVT after a miscarriage then i was put on waferin for about six months. two years later i got pregnant. i never experience any leg pain during my pregnancy.i gave birth without any problem.when my baby was ten months i had a severe leg pain.i had to stop breastfeeding, and take waferin.now its nearly two years going on with waferin and facing problems with my periods.once in three months i am getting my period and its very heavy with big clots and i had D and c twice.should i go on doing d and c? is there any solution for this? can any body answer to this pls?

0 replies...

Pulmonary Embolism
Posted by Tyler
Last Reply July 23, 2011 at 13:22
Started June 28, 2011 at 18:14
I had bi-lateral pulmonary embolisms 5 months ago post-op and was
hospitalized for a few days. My symptoms were 9/10 pain, could not
move due to pain, shortness of breath, low sats, tachycardia, etc...
The Doc said the pain should go away within 4-6 weeks. Since then, I
have had the usual "zingers" of extreme pain which only last for a few
seconds, and an ache of about 2-3/10 pain which comes and goes almost
on a daily basis. But I have also occasionally been having signs of
new PE's as well. This has happened about 3-4 times over the last 5
months, each time getting worse. Yesterday I had the *exact* same
symptoms as my original PE with 9/10 pain, dyspnea, shortness of
breath, etc... and But here is the kicker. These "attacks" are
temporary and yesterdays episode only lasted about 10 minutes or so
and left as quickly as it came. These are debilitating and cannot move
or breath while I have them. I have to sit in a semi-tripod position
and take very short... read more

4 replies...

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