DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 122 of 237
pregnant!
Posted by Cooper
Last Reply July 22, 2011 at 16:54
Started July 21, 2011 at 14:11
hi, im 26 and was diagnosed with a large blood clot in my groin about 3wks ago i stayed in hospital for tests for 4days while being treated with warfarin, it was all abit of a shock. But to make matters worse last sunday i found out i was preg, i stopped the warfarin and started heperin in the hope it hasnt caused any feotal abnormalities. I have worked out i am about 7wks and im sooo worried, i dont have an appointment for the midwife or OBS yet, im not sure what happens during pregnancy with DVT. Fingers crossed everything is ok. Me and my husband have been trying to conceive for over 2yrs so i WANT to be excited but its difficult until i know everything is ok. :)

5 replies...

Postthrombotic syndrome
Posted by Bill from Rhode Island
Last Reply July 21, 2011 at 12:59
Started July 21, 2011 at 12:59
For those who are suffering from Postthrombotic syndrome

http://clotconnect.wordpress.com/2011/07/21/dvt-long-term-damage-post-thrombotic-syndrome/#comment-422



0 replies...

Vascular surgeon
Posted by Rob, UK
Last Reply July 21, 2011 at 05:18
Started June 22, 2011 at 18:06
Hi to you all. I have an appointment later this week to see a Vascular Surgeon, after being referred by my doctor. My dvt (behind my right knee, extending up the back of my leg) was first diagnosed some 18 months ago, and I was discharged from the care of my Haematologist 6 months ago. My INR levels are stable.
However, I have since developed severe pain/discomfort whenever I sit for more than 20 minutes, and any prolonged exercise leaves my calf painful to touch and with a feeling similar to cramp (is this PTS?). So I just want to find out if anything further can be done to improve my lot- hence the forthcoming appointment. I suppose it's my last shot at trying to get some sort of normality back to my leg.Have any of you guys/girls had beneficial treatment from a vascular specialist this long after diagnosis? Any info will be gratefully received, and any advise on what questions need to be answered would also help.
Thankyou and take care,
Rob

8 replies...

coumadin side effects
Posted by taylor
Last Reply July 21, 2011 at 03:42
Started August 27, 2009
I'm on coumadin 4 a PE. My inr is really high 6.5. I am having bad pain in stomach and pulling feeling. Also right after I eat I have watery diarhea. Anyone else eva have this prob?

9 replies...

Quitting Warfarin four months early...
Posted by Brittany
Last Reply July 21, 2011
Started January 16, 2010 at 07:08
or...2 months late, depending on how you want to look at it!

I was originally put on a 6 month regimen of warfarin starting early June of last year. However, after deciding to study abroad for a year and after meeting with a hematologist, my warfarin time was extended for a year, mostly because it wold provide a sort of safety net while I was away in another country.

Long story short, I dropped out of my study abroad program at semester, partly because I was unable to maintain a normal INR.

I will have been on Warfarin 8 months on the 2 of february and I am sick of it. Of the 8 months...I have maybe enjoyed a two month span of a normal INR. At this point, the stress levels and frustration with this drug I feel are stronger than the therapeutic benefit of Warfarin.

Since I am home from Spain...I want to check into alternative (NATURAL!) ways to maintain my blood.

I have Factor V Leiden, and a stent placed from MTS. I will get a D-Dimer and the complete blood work ... read more

5 replies...

New pain after clot cleared
Posted by Dee
Last Reply July 20, 2011 at 05:00
Started July 12, 2011 at 16:49
Hi everyone. I just got released from the hospital a week ago after
being there a week for a blood clot in my upper left thigh. They used
clot busting meds to get it out and when I left the clot was completely
gone. The swelling subsided and my leg is almost back to normal. I
thought everything was okay. Then, I wake up this morning with a
familiar burning pain right where my clot was. I am really freaking out.
Is this normal pain to experience afterwards? Could I have developed a
new clot so soon? I would appreciate it if anyone with a similar
experience could help me out. Thanks.

2 replies...

CVI or varicose veins
Posted by AlexMarie
Last Reply July 19, 2011
Started July 19, 2011
I had a dvt in my left leg 5 years ago. I continued to have pain in my left leg and wear compression stockings. Then 2 years ago I went to my GP and he diagnosed Post Thrombotic syndrome.

I saw the haemotologist last week as have been having varicose vein pain in my right leg and in my groin. She said I dont have PTS in my left leg. She diagnosed chronic venous insufficiency and agreed for me to have a referal to the vascular surgeon.

The pain is quite bad and my anxiety is high. I may have to wait up to 18 wks for the vascular appt.Does anyone have any advise or experience with varicose veins, vein surgery or CVI?

Thanks for your help x


2 replies...

CVI or varicose veins
Posted by AlexMarie
Last Reply July 19, 2011
Started July 19, 2011
I had a dvt in my left leg 5 years ago. I continued to have pain in my left leg and wear compression stockings. Then 2 years ago I went to my GP and he diagnosed Post Thrombotic syndrome.

I saw the haemotologist last week as have been having varicose vein pain in my right leg and in my groin. She said I dont have PTS in my left leg. She diagnosed chronic venous insufficiency and agreed for me to have a referal to the vascular surgeon.

The pain is quite bad and my anxiety is high. I may have to wait up to 18 wks for the vascular appt.Does anyone have any advise or experience with varicose veins, vein surgery or CVI?

Thanks for your help x


0 replies...

Panic Attack and DVT
Posted by Tavo
Last Reply July 18, 2011 at 23:35
Started July 16, 2011 at 21:11
Hello guys. My name is Tavo and i`m from Mexico, please excuse me if
my english is not that good. I had a DVT on April of 2010, i spent 15
day at the hospital and after that i was on treatment for one year.
One month ago i was diagnosed with Anxiety. It`s a terrible disease,
worst than DVT because it`s on my mind. I have two questions, first,
how can i tell the difference between a PE and the symptoms of a panic
attack (short breath, pain in my chest)??? Second, my DVT was on my
left calf, i play basketball and i got a bruise on my left thigh
because of a tackle, should i be worried about this? Doc told me i
should take one aspirin every night to keep my blood healthy. Thanks
for your help :)

3 replies...

DVT in leg and just went off coumadin
Posted by Kim
Last Reply July 18, 2011 at 16:58
Started May 14, 2011 at 20:42
Hello. I was wondering if any of you had some advice. I had a DVT in my left leg that was diagnosed Jan 17th. I am 41 and it was caused by a combonation of my birht control pill and high doses of steriods for several months due to a massive breathing issue. I had awful side effects to the coumadin and they decided to take me off and do asprin therapy (325 daily) since I had been on it for 4 months. I am really worried and have been checking my leg alot. No more swelling or redness but I do have this bizarre sensation of it feels hot to me but not to the touch. I have only been off coumadin for 5 days now... should I be worried? or is it normal?

3 replies...

another dvt story
Posted by Steve
Last Reply July 18, 2011 at 03:45
Started July 18, 2011 at 03:45
I'm 57 ,fell off roof - broke medial coller bone right at the brestbone and had a cracked top rib , not bad at all and hardly any pain. Two weeks later arm was so swollen and painful I went back to hospital with a quite large dvt . The clavical had pushed down and damaged the vein , so now on warfarn after the 14 shots in stomach by myself . Just waiting for this thing to heal alittle and we will see ?


0 replies...

New Sufferer
Posted by Richeal
Last Reply July 18, 2011 at 01:33
Started July 18, 2011 at 01:33
Hi, Iam only new to this world of blood clots, I was only recently told that i have DVT and mutilple bilateral PEs, all due to being immobile after surgery, this forum has been a wealth of info for me, and i am interested in talking to people, i suffer more from Anxiety about these blood clots than the clots themselves, i only have some swelling and get tired easily, the docter told me that my lungs must be very healthy, as i only had one slight short of breath episode..i am afraid to just exhale and feel like all is going to be ok..i know from reading here that a lot of people deal with this anxiety, my question i guess is can we ever feel like life is going to be ok and that we will get better, i know that i have been very lucky and even dealing with evrything i am lucky not to have to many problems, i just want to feel like life will get back to some kind of normality. my email is felixdaisy@hotmail.com if anyone would like to chat

0 replies...

Multi Vitamins
Posted by Daisy_UK
Last Reply July 17, 2011 at 21:59
Started July 15, 2011 at 13:12
Hello everyone.
Does anyone have any advice to share about multi vits? Apart from the obvious vitamin K?
I asked the nurse at the anti-coag clinic this week. She said I had to be careful also with vitamins A & E + magnesium. Has anyone else had this advice?
Any UK brands to recommend?
My INR is never constant over 4 months; I had a couple of weeks at 2.5, but mostly my INR has been too low.
Thanks

3 replies...

could this be causing a clot?
Posted by pc
Last Reply July 17, 2011 at 13:15
Started July 17, 2011 at 13:15
a lady i work 4 uses a catheter and the straps they use were put on far
to tight one day they left really bad marks in her leg when i got there
her leg was blue between the straps. as soon as i got if off it returned
to its normal colour. she is a wheelchair user or she stay in her bed.

any advice on weather this could off caused a dvt.


0 replies...

New clot? or extension of the old clot
Posted by ariellec
Last Reply July 17, 2011 at 09:53
Started July 14, 2011 at 02:20
I'm not sure about the advice from my doctor. He's wanting me to give up taking Warfarin, and I'm just not sure. In March this year I developed a DVT while pregnant and with gestational diabetes in the 9th week, and then miscarried. I was put on Clexane (heparin) and about a month later moved onto warfarin (Coumadin). I was keen to get off the warfarin, so went back and had another ultrasound of my leg.

The results of the first scan were that there was an occlusive thrombus in the distal popliteal vein, extending into the tibial veins.

This follow up scan has found a 6 cm long non-occlusive thrombus in a peroneal vein.

From what I understand of vein anatomy, the peroneal veins drain into the tibial veins, which in turn drain into the popliteal vein.

The first scans were taken at a hospital, so we don't have anything other than the report.

So is the 6cm clot in the peroneal vein the tail end of the original clot, or is it a new one? My doctor believes that its the ... read more

4 replies...

Excercise at desk
Posted by KC
Last Reply July 16, 2011 at 10:26
Started June 7, 2011 at 18:01
Does anyone recommend those under desk pedal bikes where you can keep you legs moving while you are sitting? I have a job where i need to be at a desk a lot. I am getting up a lot more since getting my dvt. However, I am looking to keep things going while sitting. Any other ideas?

3 replies...

Newly Diagnosed
Posted by David Smith
Last Reply July 15, 2011 at 13:21
Started July 6, 2011 at 20:20
Hi,
After 11 months I have been diagnosed with Post Thrombotic syndrome in the calf. The duplex scanner did not pick up owing to the DVT taking place in the small veins.
I was enquiring apart from the compression stocking is their any other treatment that can improve mobility/calf pump muscle action.
Thank you in advance of your response.
Kind regards
David

11 replies...

Newly Diagnosed
Posted by David Smith
Last Reply July 14, 2011 at 21:11
Started July 6, 2011 at 20:19
Hi,
After 11 months I have been diagnosed with Post Thrombotic syndrome in the calf. The duplex scanner did not pick up owing to the DVT taking place in the small veins.
I was enquiring apart from the compression stocking is their any other treatment that can improve mobility/calf pump muscle action.
Thank you in advance of your response.
Kind regards
David

2 replies...

review
Posted by karl
Last Reply July 13, 2011 at 02:55
Started July 8, 2011 at 23:04
coming to the end of 6 months on warfarin for above the knee dvt,no
apparant cause for getting it,have a review in 2 weeks can you tell me
what decides if you are kept on warfarin or not?
thanks in advance

5 replies...

Yasmin Birth Control
Posted by Christie
Last Reply July 12, 2011 at 18:02
Started April 13, 2007 at 22:25
I know that majority of females on here have been on Yasmin. I find it kind of ironic how many have had clots with this birh control. Have any of you checked into this? I know that the little brochures say that you can have blood clots, stroke, heart attack,etc. BUT I'm beginning to think this drug needs to be checked out and maybe even removed from the market if it's prone to causing clots. I am amazed at the number of users with clots on this board. How many other females has this affected and no one knows about it? Since my case is a legal matter I am bringing this up as well as I feel this needs to be researched a little bit more. If this drug is indeed a culprit it needs to be removed off the market before people are dying from it or have long term damage. I was just wondering if anyone else had questioned it?

11 replies...

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