DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 127 of 237
Pain Killers
Posted by Kristen
Last Reply May 14, 2011 at 15:22
Started May 14, 2011
I have bi-lateral DVT in legs, diagnosed 10 months ago. The pain is excruciating and i have to admit to crying in pain occasionally. The pain relief i have been given is Co-codamol 30/500mg, and i take it every 4 hrs. It eases the pain a little, but i wondered if there is a better alternative?
I believe that warfarin interacts negatively with some analgesics, so what experiences do others have to share please?
Regards
Kris

1 replies...

tea
Posted by muthoni
Last Reply May 14, 2011 at 13:58
Started May 14, 2011 at 13:58
when itake tea i feel pain on the calf where i have Dvt i also feel pain on the left bottom side of my stomach i wonder how this is related.

0 replies...

Bilateral Blood Clots
Posted by Ventura
Last Reply May 14, 2011 at 03:11
Started May 12, 2011 at 15:42
Hi, my Mom was diagnosed last week with bilateral superficial blood
clots in her legs. She's been on coumandin for 8 days now. Her Vascular
specialist asked to see her in 2 weeks after he diagnosed the clots.
What could possibly have caused these bilateral clots in her legs? 4
years ago she had a DVT in her leg. Her lower legs do swell often and
she's supposed to wear compression stockings all the time but she never
does. Any thoughts?

2 replies...

DROP IN INP
Posted by DONNA
Last Reply May 13, 2011 at 11:02
Started November 24, 2009 at 17:35
I HAVE BEEN ON TREATMENT 4 A WEEK AND MY BLOOD RESULTS WERE GOING OK STARTED AT 1.0 THEN 1.1, 1.5 AND THEN JUMPED 2 2.2 SO DIDNT HAVE TO GO SUN MON BUT WENT TO DAY 4 MY BLOOD AND THEY PHONED ME MUCH LATER AND I HAD 2 GO BACK IN CUZ IT DROPED TO 1.4.
IS THIS NORMAL AND SHOULD I BE WORRIED

26 replies...

Homozygous Factor v
Posted by Nathan
Last Reply May 12, 2011 at 22:50
Started May 12, 2011 at 22:50
Hi,

well bascially i have ben diagnosed with the double gene of factor v leiden and im just after some facts after ive heard lots of horror stories from people.

i am 21 years old and i have a active job i cycle to work everyday now the bad things, i smoke about 10 cigarettes a week, i drink now and again probably 2/3 times a month and i do eat junk food once a week.

i have read about people having clots in their arms at my age and having a DVT, to be honest i am getting rather scared.

is there anyone out there who can shed some light and give me some guidance and advice

Many thanks

Nathan

0 replies...

FVL DVT & PE Warfarin lifelong
Posted by Lisa E (Warwickshire, UK)
Last Reply May 12, 2011 at 21:55
Started May 12, 2011 at 21:10
Hi, I have just been diagnosed with a number of clots lining the bottom of both lungs. I was also diagnosed in 2007 with an extensive proximal DVT. I was tested and have Factor V Leiden... I'm now on Warfarin for life @ the grand old age of 26 :(
Can anyone tell me if they have FVL and were confirmed on life long warfarin but also have had a baby since? I am worried that two clotting episodes both resulting in hospitalisation could result in putting mine or a baby at risk?!
If you have were there any complications and what were they....
Thanks all, Lisa

1 replies...

natto (the food), anyone?
Posted by J
Last Reply May 12, 2011 at 05:21
Started May 12, 2011 at 05:21
Hi there, I developed an extremely large DVT in October 2010 (ankle to groin, related to birth control/ankle fracture) and still have residual clot in the femoral and popiteal veins, no change since December 2010. I am currently on Lovenox instead of Coumadin for a few months because Lovenox has really helped decrease swelling and has slightly decreased pain.

The nicest thing about being on Lovenox instead of Coumadin/warfarin is that I can eat natto (not the supplement nattokinase, the actual fermented soybean food). I used to eat it daily a couple of years ago, then fell off. Boy how I wish I had kept it up. I know there have been no widespread studies of natto on people with DVT and very scant human trials on thrombus lysing/eradication, but given its other health benefits and that I'm anticoagulated anyway, I figure I will eat it until the next ultrasound and see if any decrease of the clot occurs.

Is anyone else on here eating natto to try to shrink existing clot or prev... read more

0 replies...

natto (the food), anyone?
Posted by J
Last Reply May 12, 2011 at 05:10
Started May 12, 2011 at 05:10
Hi there, I developed an extremely large DVT in October 2010 (ankle to groin, related to birth control/ankle fracture) and still have residual clot in the femoral and popiteal veins, no change since December 2010. I am currently on Lovenox instead of Coumadin for a few months because Lovenox has really helped decrease swelling and has slightly decreased pain.

The nicest thing about being on Lovenox instead of Coumadin/warfarin is that I can eat natto (not the supplement nattokinase, the actual fermented soybean food). I used to eat it daily a couple of years ago, then fell off. Boy how I wish I had kept it up. I know there have been no widespread studies of natto on people with DVT and very scant human trials on thrombus lysing/eradication, but given its other health benefits and that I'm anticoagulated anyway, I figure I will eat it until the next ultrasound and see if any decrease of the clot occurs.

Is anyone else on here eating natto regularly to try to shrink existing cl... read more

0 replies...

natto (the food), anyone?
Posted by J
Last Reply May 12, 2011 at 05:07
Started May 12, 2011 at 05:07
Hi there, I developed an extremely large DVT in October 2010 (ankle to groin, related to birth control/ankle fracture) and still have residual clot in the femoral and popiteal veins, no change since December 2010. I am currently on Lovenox instead of Coumadin for a few months because Lovenox has really helped decrease swelling and has slightly decreased pain.

The nicest thing about being on Lovenox instead of Coumadin/warfarin is that I can eat natto (not the supplement nattokinase, the actual fermented soybean food). I used to eat it daily a couple of years ago, then fell off. Boy how I wish I had kept it up. I know there have been no widespread studies of natto on people with DVT and very scant human trials on thrombus lysing/eradication, but given its other health benefits and that I'm anticoagulated anyway, I figure I will eat it until the next ultrasound and see if any decrease of the clot occurs.

Is anyone else on here eating natto regularly to try to shrink existing cl... read more

0 replies...

warfarin
Posted by sue
Last Reply May 11, 2011 at 22:17
Started May 11, 2011 at 22:17
do you regain hair loss after stopping warfarin

0 replies...

DVT Diet
Posted by N
Last Reply May 11, 2011 at 10:05
Started March 4, 2010 at 22:45

Diet Research

1. Understand the research behind DVT diets to better grasp the steps you will need to fulfill to insulate yourself against this condition. According to a study conducted at the University of Minnesota School of Public Health and published online at PubMed in January 2007, diet is correlated directly to the risk of developing DVT. In the study, diets that were higher in saturated fat and other forms of processed meat conveyed up to a 200 percent chance of developing DVT. On the other hand, diets rich in veggies, fruits and seafood provided some measure of insulation against developing the condition.

DVT Diet

2. Consume a diet in accordance with the aforementioned recommendations to reduce the impact of DVT on your life. To increase your consumption of fruits and vegetables, make it a point to eat at least one serving of fruits or veggies with every meal, without fail. Wherever possible, substitute red meats with meats lower in saturated fats... read more

3 replies...

INR levels keep going down :(
Posted by Aoife
Last Reply May 11, 2011 at 06:31
Started May 9, 2011 at 23:57
Hey dere
I'm 25v and suffered from a DVT about 6/7 weeks ago, they explained how they would have to get my INR levels between 2-3, this is a problem to me right now as for weeks INR was slowly going up, highest i had got it was 1.9 but last few weeks INR crashing, now at 1.3 and on 11mg of Warfin.
Anyone have/had the same problem??

Also due to go on holidays in 2 weeks, could i really fly with INR this low??? :(

Alcohol dey say can make INR go up, i do drink, could it be having opposite affect on me??

Anyone ave any info would b greatful, ThankS

2 replies...

low inr
Posted by jess
Last Reply May 10, 2011 at 13:33
Started April 29, 2011 at 21:08
I have been on Warfarin for 6 months and my inr levels have been up and down but not too out of range. The last 2 months they have been consistanly low, the highest I got was 2.1 and that was only for 12 hrs! I have been on enoxaparin constantly now and my inr was checked wednesday and was 0.9 this was after a week off as I have been going to clinic 3 times a week with warfarin being increased but no effect. I have felt rubbish and put it down to my clots (Had large pe's) but after the weeks break and the end of it I felt not too bad but after going back on it feel pants again! I am worried about going on Monday to see what is happening, it was only 0.7 when diagnosed so what if it drops below 0.9 am I at risk even though taking heparin?

1 replies...

Missed DVT with ultrasound?
Posted by aquachic
Last Reply May 10, 2011 at 07:14
Started May 5, 2011 at 20:52
Hi there, I'm hoping someone on here might be able to help me. I have been having calf pain for the last six weeks. I'm young and take birth control, and travel a lot between the UK and US, but no major health problems. I have had 3 ultrasounds, 2 in a row, and 1 two weeks later, all negative. I have also had a CT of pelvis and chest, negative. My d-dimer was slightly elevated, (average at their lab was .5 max and mine was .6). I have literally seen 10 doctors in the last 6 weeks and they all initially think DVT, but then see the negative ultrasounds and say it's not.

No one seems to know what is causing this. My leg is achy in calf, kind of like a pulled muscle, and has in the last week started hurting behind my knee as well. I also get pain on the inside of my thigh. The pain in general is fairly mild to moderate. My leg is only mildly swollen...1cm larger than the other, but no redness or tenderness. Also walking, etc. doesn't seem to make it worse. Anti-inflammat... read more

1 replies...

Post Thrombotic Syndrome?
Posted by Kelli
Last Reply May 10, 2011 at 05:59
Started April 21, 2011 at 20:40
I am hetero Factor V and 1.5 months post diagnosis of clots 3 & 4 of the right leg. One behind the knee and other in calf. Last clots were 2005-2006, behind knee and above knee in thigh. I should mention that the thigh clot formed 1 month after the first while I was on the coumadin. I was off the coumadin since 2006 with no issues other than occasional swelling and mild pain in the calf.
This time around, I didn't have swelling or redness (or insurance) just constant cramping in my right calf. I put off going to the doctors for a few months because of the lack of insurance until the second clot in the calf brought on minor swelling and lots of pain. So now the behind the knee clot is chronic and there forever according to the doc ...great. Problem is that my leg seemed to be feeling better but the last few weeks it has gotten more painful and I can't stand or sit in one place longer than 10 minutes without cramping and swelling. It's "pinching" and cramping from my foot all the w... read more

3 replies...

"no" to compression stockings
Posted by andrea
Last Reply May 9, 2011 at 22:36
Started January 11, 2009 at 22:15
Despite numerous phone calls to dvt clinic and gp surgery, they both say that theres no need for me to wear compression stockings other than going on a long car journey or on a plane.It has been 5 long months since my dvt and i would like to hear from anyone who has not worn these and if they have had any problems. My dvt was in the popliteal vein, i have no pain and no swelling. Appreciate any replies. Thanks.

20 replies...

Is this a sign of dvt?
Posted by Pete
Last Reply May 9, 2011 at 02:38
Started May 9, 2011 at 02:38
Here is a little background. I am 27, type 1 diabetic. My job requires standing
still for hours. Last month I woke up with a bad groin pain. But I didn't do
anything to pull a groin muscle. It hurts most when moving my leg a certain way.
I am now having pain in both calves. Not constant but when they do they throb,
and feel tight and the pain is sharp. Feels warm to touch. Not hot, just warm.
Also when I'm standing or walking both my legs feel like they are under pressure
ready to explode. They feel like they are swelling up but there is no visible
swelling or redness. But when I do feel the pressure I feel sharp pains in my
shins. I am going tomorrow to see my doctor to schedule an ultrasound.

Is this a start to a dvt? I know I am more prone to them being a diabetic, and a
few family members has had them too so there is a little history of dvt I
suppose.
Thanks!!

0 replies...

Elevated D-Dimer: causes
Posted by Ashley
Last Reply May 8, 2011 at 11:57
Started May 7, 2011 at 20:56
I have been evaluated for DVT 4 times in the last month. Each time the D-dimer is slightly elevated (249, when 230 is normal), but the ultrasound is negative. I'm still having DVT symptoms in my leg though, and the doctors are still trying to find a cause. So I have two questions:

1) What can cause a slightly elevated D-dimer test? Everything I read about it lists things like cancer, etc. as a cause. So what could cause it in a healthy individual? Could something as simple as a bruised do it, or should I be worried that there is some serious underlying condition causing it?

2) How accurate are the ultrasounds. Should I be worried that the doctors are missing a DVT? I've also had a CT of chest and pelvis, both negative.

Thanks for any input you may have!!

2 replies...

Dark Circles around/under eyes from Warfarin?
Posted by DanainSeattle
Last Reply May 7, 2011 at 21:30
Started May 7, 2011 at 21:00
Ever since I started warfarin 2 months ago, it seems that the dark rings around my eyes have gotten much more pronounced. Anyone else seen this?

thanks,

Dana

1 replies...

bloated feeling, and (shh!) intimacy
Posted by imateacherofmusic
Last Reply May 6, 2011 at 22:58
Started December 27, 2009 at 06:11
Hi. Question number 1: I never had such a bloaty feeling until I began coumadin. I feel like I have an enormous burst of gas inside me, and it won't go away. I also have sharp, intermittent pains. When I do "toot" I feel much better. How do I feel all the way better?

Question 2: Is intimacy a scary and dangerous thing when you are treating your DVT's? What do people do to get around it? (sub question is after my gallbladder removal and hernia repairs, AND tons of mesh stuffed into my belly, are we to work around that, or is it perfectly safe?).

Thanks. Blush.

4 replies...

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