DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Difference between occlusive and non occlusive
Posted by Amy B
Last Reply January 27, 2011 at 14:18
Started January 27, 2011 at 13:15

My notes say 'extensive occlusive clotting of common femoral vein'. I just wondered what it means by occlusive? Is that a good or bad thing? And if it just says it's the common femoral vein does that mean I don't have clotting in any other veins? The sonographer only scanned my groin area and said he didn't need to go any further down.

1 replies...

Type 1 Diabeties and dvt
Posted by Sal from Aus.
Last Reply January 27, 2011 at 02:10
Started January 26, 2011 at 23:27
Hi, I have just discovered this forum after researching dvt on the internet and by far found it the most informative.
My husband (37 year old type 1 diabetic) was diagnosed with a 22cm blood clot in his right calf on Monday after having an ultra sound. We thought it was just his new boots making his calf ache, but luckily his mum advised him to go to the doctors to get it checked.
Hubby has been on clexane since Sat (from when he first saw dr) and warfarin since Tues. He is going to get his INR levals checked for the first time today.
So far he is still in shock and is is scared witless that he will die any moment. Friends reactions and the doctors casual comment that "these are the real killer types of clots" have not made it any better. Also all my research seems to also indicate that death is a very strong possibilty. Which is why I'm happy to have come along this forum, reading peoples positive attitudes and experiences has really helped.
I'm pretty sure it his diabeties w... read more

2 replies...

blood tests
Posted by marie in Frankfurt
Last Reply January 26, 2011 at 21:30
Started January 26, 2011 at 13:29
Could someone tell me whether I can have blood tests to check for Factor 5 Leiden etc whilst on Clexane.I have just switched from Warfarin to Clexane and was told by someone that it is possible to test without going off bloodthinners.
Until now I am unsure of the reason for my DVT and am afraid to come off the bloodthinners.
Any advice would be welcome.

1 replies...

When to take clexane before flight ?
Posted by Nic
Last Reply January 26, 2011 at 20:28
Started January 26, 2011 at 18:09

I'm flying for the first time next week, since having a clot last year. I've been prescribed Clexane and told to inject before I fly and the next day, out and return. This is fine, but I've not been given any indication when to do the 'pre-flight' one. Do people normally do just before they get on the plane, a few hours before ? Any seasoned advice much appreciated !

2 replies...

On warafirin but leg still swelling
Posted by Alison
Last Reply January 26, 2011 at 18:42
Started October 16, 2010 at 15:02
I was diagnosed with a 24cm clot in my left calf at the end of August. After 2 weeks rest i started training again and am hoping to do my first ironman in December. I spend 12 hours a day sitting at my desk at work and even with warafrin my legs still swell up. does anyone have any tips - should i be worried? i'm so worried about post thrombotic syndrome as well.
Finally - where can i buy compression stockings from and how do you stop them losing their tightness - i'm sick of my hospital ted stockings and they only seem to last a week before becoming too loose.
thanks in advance for any help.

6 replies...

Warfarin Necrosis - Hospital Responsibility?
Posted by PDE UK
Last Reply January 26, 2011
Started November 9, 2008 at 01:14
Hi, I'm just writing to see if anyone else has been in my situtation, or has any advice to offer. I reside in the UK. In May 2007, when I was 24, I was diagnosed with a spontaneous dvt in my right calf. Despite having no known risk factors or previous traumas, other than long dormant ulcerative colitis, I received no blood work other than the INR/D- Dimer tests necessary for diagnosis. I was quickly placed on Kelaxin, then Warfarin, 5mg for 6 months. I received no follow up with a hospital consultant or haemotologist Throughout this time, my INRs remained stable between 2-3. However, I began to develop red streaks, swellings and inflammations in both legs, which usually resolved themselves quickly, and discomfort and tightness in my waist and side area. My GP had no idea, suggesting possible phlebitis but cautioning that as my INR was stable, it was unlikely to be anything serious.

In November 2007, I stopped warfarin treatment. 3 weeks later I was diagnosed with 3 more clo... read more

24 replies...

What happens if clot doesn't disperse
Posted by MartinR
Last Reply January 25, 2011 at 21:43
Started January 14, 2011 at 18:48
I've just been rescanned 2 months after starting warfarin and my clot is still oclusive. Consultant said that he would have hoped to see some flow by now, and that as time passes, the likelihood of the clot dispersing becomes much less.
So what happens if it doesn't disperse? I appreciate other vessels try to compensate but will ther be any long term detrimental effects?

1 replies...

Support Stockings
Posted by John
Last Reply January 25, 2011 at 21:31
Started January 16, 2011 at 03:37
I am 60; had 2 DVTs since 11/08; very active; play Senior Softball from March till November every year; also Pump Iron; work outside all the time.

I was taken off of coumadin (4.5 daily) on 1.06.11; have a varicose vein in the area of the original blood clot that has been there for some time; showed this to my Primary Car Phys & the Hematologist & neither gave a negative comment. Both told me to remain active & keep Pumping Iron.

While you are on or when you were taken off of Coumadin; did the Doc tell you to wear a stocking? I was not instructed to do so; but since reading this forum will check tomorrow!!

Thanks John

5 replies...

pulmonary embolism
Posted by Dave
Last Reply January 24, 2011 at 19:58
Started January 20, 2010 at 23:53
Three months ago I was in the hospital with Pulmonary Embolism. Blood clots in both lungs and my left leg.They did a filter to stop the clots from moving up. Today the doctor did an ultra sound and said I have blood clots in three places in my left leg. He said they might have been able to suck the blood clot out, but he didn't think it would work now. The blood clots are embedded in.
What does that mean. Am I going to die if the leg gets bigger. They said there isn't much more they can do?
Has anyone out there had this problem?

6 replies...

swollen abdomen and legs
Posted by lexie
Last Reply January 24, 2011 at 11:28
Started November 17, 2010 at 23:46
hi just looking for a little advice. My abdomen has swollen from a size 12 last month to a size 16 and growing. I am not pregnant. I have 6 clots in left leg, 1 inferior jugular vein, 2 in left arm. I am on long term warfarin therapy and still throw clots. I went to the gp who did blood tests that showed normal liver and kidney function. I left without a lot of answers. My belly is swollen and painful and my legs are swelling. In the mornings I can have put on 5 kgs of fluid over night. Gp said because bllod tests normal it cant be clots. But I have read that you can normal liver function tests but clots in portal vein. Im also extremely fatigued and short of breath but no pain in lungs ( have had past pe in both lungs). Has anyone had experience with this. Should I be adgitating for further investigation. bcos I know look 6 months pregnant.

3 replies...

Blood clot in the Arm
Posted by Bev
Last Reply January 23, 2011 at 21:13
Started January 23, 2011 at 21:13
I live in the UK and I have to go into a clinic tomorrow to have a dye injected into me to see if I have blood clots in my arm. I have had to wait since Friday and it is very uncomfortable and very worrying.
Is the dye the best way of checking or would doppler or ultrasound be better?
I worry that I am being palmed off with a qick cheap test, not necessarily the best.
Also how do they do the dye test thing? Although my arm is sore and full of bloody bruises what if they dont find anything? Do I ask them to do it again or what?

0 replies...

Posted by ANNE
Last Reply January 23, 2011 at 17:30
Started January 22, 2011 at 12:30
Hi Im due to have a hip replacement (avascular necrosis)while waiting for op I developed a dvt and small pe in lung, vascular doc and hemotologist said it was fine to go ahead, but the anaethetist said I should go to the mainland and have a IVC filter inserted, he has said he would not do the op. I am so worried. I have lost all confidence in them, the anethestist feels I should be in a hospital that has everything at hand.dont know what to do, I have no private insurance, so it is NHS.

2 replies...

OFF Blood Thinners
Posted by FC
Last Reply January 22, 2011 at 19:23
Started January 20, 2011 at 22:15
ok, so i posted previously that i was diagnosed with DVT 2 weeks ago after a trip to the Emergency Room for leg pain. They ultrasounded me and found rather large blood clots in my leg below the knee. They sent me home with shots and pill blood thinners. 3days later i went to my regular DR who then took me off the thinners and said they dont make a difference in my case. I went to two more ulatrasounds, last being today. So the DVT is in a vein called the gastrocnious or something like and the clots are rather big. I was told that there is still a chance of the blood clot getting into the popetiel vein and going upward into my lungs, but that would happen anyways with or without blood thinners.. Still scared as hell... Anyone have any info or similar experiences? thanks...

3 replies...

Post Thrombotic Syndrome
Posted by Rose
Last Reply January 22, 2011 at 17:46
Started August 17, 2009 at 13:11
How long after being diagnosed with a DVT should you worry about PTS? It has been 1 week and I"m still having agognizing pain in my leg. I've been seeing my regular doctor for pain issues and a pharmacist for monitoring my blood levels.

I just don't know what is normal anymore and feel I should be gradually feeling less pain which isn't happening. Everything I've read about PTS is that is is very debilitating.

Should I ask for a referral to some type of specialist? Should someone be prescribing me compression stockings to help with the pain? I just want to feel normal again.

10 replies...

May Thurner's Syndrome My DVT and PE Story
Posted by Deeny
Last Reply January 21, 2011 at 18:37
Started January 21, 2011 at 18:28
May Thurner's Syndrome My DVT and PE Story
( My Blog-http://deenyssimplejoys.blogspot.com )

Back in August I ended up in the hospital for 7 days with an occlusive DVT (Deep
Vein Thrombosis which in layman's terms is a blood clot in the deep veins) From
my groin (maybe abdomen too can't remember now exactly all they said) all the way
down my left leg which then caused a pulmonary embolism.
The last week in August started I guess as normal. A few days earlier in the
middle of the night I tripped and smashed my knee into the tiled garden tub. It was
late at night and dark . I didn't think nothing of it. It was sore. I noticed the next day
the knee was swollen. It didn't really hurt all that much. I did a web search that said
there are a lot of veins around the knee and when knees get hurt they tend to swell
then veins just reroute. It was minimally sore and I could walk on it. I really di... read more

2 replies...

testing for clotting disorders
Posted by Anita
Last Reply January 20, 2011 at 19:38
Started January 15, 2011 at 23:49
My clotting issues started out with superficial clots in the greater saphenous vein in my left leg in 2003. I was on birth control pills, which I stopped immediately (and 12 months later welcomed my fifth child into the world). I saw a vascular surgeon and was told that there is nothing that they can do, that the reflux in the veins was only minor. I sought out a 2nd opinion, and he came to the same conclusion.

Last year I had a DVT in my popliteal vein, but was fortunate that I caught it before it became a PE..ever since the superficial clots, I've been hyper-vigilant with leg pain. I did 6 months of coumadin, which concluded in July.

At the end of November, I had another superficial clot, which produced symptoms almost identical to the DVT (talk about being scared to death). I once again consulted a vascular surgeon (different than the original 2). He repeated what they had said, but reported back to my doctor that he felt that a hematological consult may be called for... read more

6 replies...

Stopping Coumadin
Posted by John
Last Reply January 20, 2011 at 18:32
Started January 20, 2011 at 18:32
So this is day 1 of many I hope not taking any sort of blood thinner. I had a DVT in July 2009 and have been on coumadin with regular INR checks since. I am one of the ones where the DVT came from nothing and has not returned, I blame smoking which I have quit since. Both my family MD and the hemo specialist advises I get off the coumadin as I am 41 yrs old, active, high metabolism...so I stopped the thinners yesterday. Does anyone have any advice with regards to diet, excersise or over the counter drugs to help prevent a reoccurance???

0 replies...

Posted by donna
Last Reply January 20, 2011 at 01:49
Started November 19, 2009 at 18:25
i have recently just found out i have dvt. does any1 no if u have to take time out off work why on the treatment.

8 replies...

Length of time to return to normal
Posted by Kimi
Last Reply January 19, 2011 at 22:23
Started January 19, 2011 at 15:39

I have just been diagnosed with a blood clot in my hand. I have been placed on Warfarin(sp). My hand and forearm are currently very swollen and look terrible and I have been told even after the clot is gone my hand and forearm may still look the same if the veins have been too damaged! What is the likelihood of something like that happening? And is there any recourse if that is the case?

1 replies...

Factor v leiden awareness
Posted by Ashley
Last Reply January 19, 2011 at 14:35
Started January 18, 2011 at 06:15
I was diagnosed with factor v leiden about a year ago. My mom and older sister also have it along with a few more of my relatives. I have not had complications with it this far and hopefully it will stay that way. However my loved ones have. My mom was a pioneer of sorts as she was one of the first to be diagnosed with it in the city we live in in the 80s and it has been an up hill battle ever since getting the treatment and attention needed. She has been hospitalized many times and has almost lost her leg. It has come to my attention that there is very little awareness out side of the people who have it or have loved ones that do. As a result not much has progressed since the mid 80s. I was just wondering if anyone knows of any major organizations promoting awareness or raising money towards the issue other then lifeblood.

3 replies...

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