DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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DVT and bleeding
Posted by Emily
Last Reply December 16, 2010 at 01:03
Started December 16, 2010 at 01:03
Hi,
I'm 28 years old and recently was diagnosed with DVT in my right leg and multiple, bi-lateral pulmonary embolisms. I'm now on Coumadin. I recently had a bladder infection and some subsequent bleeding, that my doctor said was normal with a bladder infection. However, the bleeding has continued now for 2 weeks. My last INR was fine and my last blood tests showed I was less anemic than the week before. Has anyone else had this issue, should I be concerned about the bleeding???

0 replies...

Just Diagnosed...Need Advise
Posted by Mike N
Last Reply December 15, 2010 at 23:56
Started December 15, 2010 at 23:56
I broke my third metatarsal in my left foot at mile eight of my first
half marathon. 600 training miles and I only needed five more miles
to reach my goal. My podiatrist put me in a walking boot and crutches.
It was about five days after the break when I noticed a soreness in my
calf. I initially thought is was muscle pain from lack of use but
something just didn't feel right. After enduring it for three days, I
decided to call the doctors office to be on the safe side. Luckily,
they advised me to immediately get an ultrasound. As it turns out, I
had a clot just above my calf and behind the knee. My doctor thinks
it may have been caused by the boot. I was admitted to the hospital
for one night and was immediately given an injection of Lovenox and
started taking the coumadin. Today is my first day home. I feel fine
as long as my left leg is propped up. When I need to get around, the
pain is real intense. I am not sure what to do about driving or
... read more

0 replies...

recovering from dvt
Posted by chris
Last Reply December 15, 2010 at 19:58
Started October 17, 2009 at 10:43
Hi,
I was a healthy fit 35 yr old in england running half marathons and developed an extensive dvt in my left leg. Despite test after test after test no one knows why it happened. I did my 6 months on warfarin and am now a year on and recovering well. I wear a knee high white stocking from medi uk which does not bother me at all and am running again now and back to normal life. I guess the reason i write this is to encourage people to stay positive, i got very down for a few months and thought the world was ending. There is no doubt that since i changed my outlook on it all i seem to have recovered quicker. good luck everyone, hope all recover well

8 replies...

Do I Have DVT?
Posted by Crystal
Last Reply December 14, 2010 at 15:54
Started December 9, 2010 at 18:54
Monday I started having sharp pain in my right upper leg/thigh and now I started haing pain on the side of my leg in the groin area and sometimes I can feel warmth in my upper leg/thigh area, is this a blood clot? I had blood drawn last week wouldn't it have shown if I had a clot?

5 replies...

Excercise after a DVT
Posted by Jim
Last Reply December 14, 2010 at 09:30
Started December 13, 2010 at 11:15
Hi All,

I had a minor operation 2 weeks ago on my knee after a sports injury, I am very acive and fit. I am 46 and not had any signs of DVT. However, 11 days after my operation I was diagnoised as having a DVT in my calf. I am on warferin tablet 7mg but not getting any advice other than to rest.

My leg hurts when I walk for a short distance and I am getting out of breath just going up and down 1 flight of stairs.

Does anyonce who was fit prior to a minor op have any experience and offer me a few words of advice and comfort?

I am starting to worry a bit as my calf is still feeling tight and sore and is slightly swollen. I am wearing compression socks on both legs and waiting for my blood levels to reach what the docs want currently 1.2.

I want to excercise to see what happens but not sure whether I should even try?

Anyone who can offer help or advice?

6 replies...

superficial clot
Posted by Abby
Last Reply December 14, 2010 at 01:25
Started December 5, 2010
I know that the major topic of discussion in this forum is DVT. I had one earlier this year, but have been off the coumadin since July. I am now experiencing another superficial clot in my larger saphenous vein, right below the knee. (I had a couple of them prior to the DVT in my upper thigh.) I had an ultrasound last Monday that confirmed that there was nothing in a deep vein. However, the pain has doubled and so has my leg...especially from about halfway down my leg to my ankle. It is red and warm to the touch. I'm currently taking vicadin for pain, and using heat compresses at night. I can't take the vicadin during the day, as I'm a high school teacher. Can anyone give me an idea of when this should clear up? Is this something that I should contact my doctor (my primary care doctor)about again, or is this normal (I saw him last Monday...and I hate to bug him if it's normal)? I have the name of a vascular surgeon in my area, and I plan to call on Monday, but I have a fe... read more

7 replies...

A male problem!
Posted by Rob, UK
Last Reply December 13, 2010 at 20:35
Started November 25, 2010 at 14:34
A very personal issue, but I have noticed that my 'love juice' is very fluid and not far of the consistency of water! My wife thinks I must fancy her rotten - which, of course, I do- to seemingly produce so much!
I realise that I am open to all sorts of wisecracks by logging this message, but this has only occurred since being on the warfarin. So, sensible answers only please!
Take care,
Rob

3 replies...

Swollen leg
Posted by Christina
Last Reply December 13, 2010 at 17:55
Started December 1, 2010 at 02:14
Hi my story is I'm 23 years old fit nothing wrong not a smoker but I was on Nuva
ring(birth control) I got a dvt and was in the hospital for 4 days now I'm on
warfarin for at least 6 months my question is my leg with the dvt is bigger than
my other leg. Doctors say it will go down how long does this take and what
could speed up the process. I'm young and I now have this excess fat/bulge in
my upper thigh and my leg over all is much bigger. Thanks so much.

4 replies...

My treatment is over - hope for you all!!!!
Posted by Carl
Last Reply December 13, 2010 at 17:35
Started November 26, 2010 at 19:04
I developed an extensive dvt in May 2007 from calf to halfway thigh - please see my earlier posts - I did my warfarin and have been told today that the treatment is over and that I'm done! I was scared like you all are but please just keep on taking the warfarin and AVOID green veggies!! It's that simple! Don't worry about the alcohol, I drank as much as I wanted and it actually helped thin my blood, I'm not encouraging anyone to drink, but all I am saying is you don't have to become boring and change your lifestyle dramatically. the doctors and the nurses know what they are doing. Just do what they say by keeping the stockings on, avoid the greens, take the warfarin and elevate your leg when resting and don't over do the usage of your leg!
I am just concerned now that I may develop another clot as I am off the medication so I have made an appt with the doctor to discuss my risks and what precautions I should take.
Please don't worry, just heed the advice you are given.
I wish y... read more

5 replies...

what shall i do?
Posted by suzanne
Last Reply December 13, 2010 at 11:06
Started December 12, 2010 at 18:08
Hi all 2 years ago i had dvt in my left leg,anyway last tues i started with like twinges and cramp in my right leg,i notice it more when i walk on it,its not really hurting me but i know its their,their is no swelling either,how long shall i wait until going to doctors.

2 replies...

Researchers Uncover Culprits
Posted by N
Last Reply December 10, 2010 at 19:51
Started December 9, 2010 at 23:09
Researchers Uncover Culprits in Life-Threatening Clotting Disorder

ScienceDaily (Dec. 4, 2010) Thanks to findings by UT Southwestern Medical Center researchers, individuals with a potentially life-threatening condition predisposing them to blood clots, or thrombosis, might someday receive therapy to prevent the condition,

The findings, available online and in a future issue of The Journal of Clinical Investigation, offer new clues into the mechanisms underlying antiphospholipid syndrome (APS).

"Patients with APS have circulating antibodies that cause exaggerated thrombosis. The longstanding mystery has been how these antibodies initiate the clotting," said Dr. Philip Shaul, professor of pediatrics and senior co-author of the study.

For the study, the researchers first examined the direct actions of APS antibodies on cultured endothelial cells, which line the inside of blood vessels.

They discovered that the thrombosis-inducing antibodies recognize a protein calle... read more

2 replies...

Should leg pain return
Posted by Tammy
Last Reply December 10, 2010 at 18:51
Started December 10, 2010 at 15:00
I'll keep it brief. Diagnosed w/ DVT almost 2 weeks ago. I have a occluded vein in the calf, just below my knee. I was in a lot of pain a couple of weeks ago but zero pain for about 10 days now. Yesterday I woke up to find the pain has returned. I can't walk w/ out limping and at times the pain is quite intense. Should I be concerned? I was on Lovenox injections and Warafin until Saturday, just the Warafin since. My last INR was Monday and it was at 2.2. Thanks in advance for replies. This is a great forum!

1 replies...

Danger of Combining Warfarin With Supplements
Posted by N
Last Reply December 9, 2010 at 23:15
Started December 9, 2010 at 23:15
Danger of Combining Warfarin With Herbal and Dietary Supplements Revealed

"This is an alarming finding," said T. Jared Bunch, MD, a study author and heart rhythm specialist at the Intermountain Medical Center Heart Institute.

Warfarin and herbal and dietary supplements "compete" in the liver. This competition changes the way the blood thinner works -- either intensifying its active ingredients, thereby increasing the risk of bleeding, or by reducing its effectiveness, increasing the risk of stroke, he said.

"This data is important because it demonstrates how important it is for physicians to understand our patients' knowledge about and use of these products," said Dr. Bunch. "We need to do a better job of teaching our patients about the dangers of mixing warfarin with these products."
Those taking herbal and dietary supplements often experienced worse outcomes, possibly attributable to drug interaction, said Dr. Bunch. For example, those who take supplements reported hi... read more

0 replies...

LOVENOX REST OF LIFE!PROTEIN S DEF AND NURSING
Posted by MICHELLE H.
Last Reply December 9, 2010 at 05:58
Started December 6, 2010 at 22:28
HI- IF ANYONE HAS ANY ANSWERS THAT WOULD BE GREAT!I AM 30 YRS OLD AND HAVE 3 CHILDREN.I HAD NO PROBLEMS WITH MY THE FIRST TWO PREGNANCIES.I JUST HAD A SON 3 MON AGO AND WHEN I WAS PREGNANT I HAD ALOT OF COMPLICATIONS.IT STARTED OUT WHEN I WAS A COUPLE MON PREGNANT I HAD BLURY VISION IN ONE EYE AND NUMBNESS IN LEFT ARM,LIP,FACE,TEETH.THIS HAPPEND 3X IN ONE DAY THEY THOUGHT WAS A TIA ATTACK BUT FOLLOWED UOP WITH NEUROLIGIST HE SAID PROB MIGRANE AURA.NEXT I WAS DRIVING ABOUT A MON LATER AND GOT VERY DIZZY AS I WAS GOING TO PASS OUT.I WENT TO DOC THEY RAN TESTS SAID I NEED TO SEE HEMATOLIGIST CAUSE CAN BE AT RISK FOR BLOOD CLOT.MY PROTEIN S LEVEL WAS LOW HE SAID NO WORRIES I WILL BE OK BECAUSE I WAS PREGNANT THAT WILL MAKE MY LEVELS BE LOW.WELL SURE ENOUGH ABOUT 2 MON LATER I GOT A DVT IN MY FEMORIAL VEIN IN MY LEFT LEG AND GOT PUT ON LOVENOX 2X DAILY.DOC SAID I WOULD STAY ON FOR A TOTAL OF 6 MON AND GET MY LEVELS TESTED TO MAKE SURE WAS OK TO COME OFF.WELL THIS MONTH DECEMBER IS MY 6 M... read more

4 replies...

17 year old with DVT
Posted by Erin, Australia
Last Reply December 9, 2010 at 05:48
Started July 23, 2010 at 06:28
Hey
Just wondering if there is many other people out there my age who are girls with DVT's.
Its really crap, im not looking forward to summer, compresson stockings and a bikini, not to sexy i dont think.
Just looking for some people to talk to.
XX

18 replies...

PE
Posted by Kerri
Last Reply December 8, 2010 at 20:09
Started December 7, 2010 at 21:50
Can you get a PE at anytime after diagnosis of a dvt?
I know that the risk is high when you first have a dvt, but what about 2, 3 or so months after initial diagnosis?
Is it a higher risk if your INR is unstable?
Thanks in advance
xo

6 replies...

what next
Posted by gill bainbridge
Last Reply December 8, 2010 at 16:17
Started December 8, 2010 at 14:07
i started with breathlessness in june that was treated as asthma (no it wasn't) and then acute bronchitis then I had swelling of the ankles treated first as water retention (no it wasn't) then they tried fat retention (no it wasn't but I lost two stone whoopee) by then I had developed my "crocodile skin" so was treated for an infection. It wasnt until I went away with my husband and grandchildren that the pain became intolerable and Grimaby hospital-many thanks diagnosed DVT gave me heparin and wolferin to get me home to Nottingham. distirct nurse was arranged as was anticoag, and my GP put me on 19 painkillers a day paracetamol, tramadol, and gavapentin, a GP partner then increased the doseage of gavapentin to 300mg and sent me to physio which has helped slightly but pain is still intolerable and being a well and healthy individual I went back to my GP and he gave me more - now up to 25 a day with ibruprofen and diazapan which he stoppe a week later and the pain is still there so... read more

3 replies...

dvt and ultrasound accuracy
Posted by terry
Last Reply December 8, 2010 at 10:44
Started December 8, 2010 at 10:44
i suffered a dvt in seotember 2010.a recent ultra sound revealed the clot had disappeared in the calf but was still present behind the knee
and 13 cm up the femoral vein.the radiographer was unable to tell me
why it could dissolve in the calf but still be present in the femoral vein and the doctor just said to stay on the rat poison for a considerable length of time.iam confused can anyone offer an alternative to coumdin and the reason why my clot has only disappeared in the calf.

0 replies...

Superficial thrombophlebitis, Chronic?
Posted by Susytwoshoes
Last Reply December 8, 2010 at 07:09
Started December 6, 2010 at 13:40
Hi,

Had DVT Last January and was having pain last week very much like that I had back in Jan,so went to my Dr who put me on Clexane until today when I had a doppler. The scan showed evidence of the previous clot and a superficial plebitis which on the letter says `chronic rather than new'

Does anyone know what this means?

They just told me to go back if it got worse.

Didnt ask questions as my 1 years old was getting irritable.

3 replies...

bad diagnosis
Posted by DP
Last Reply December 7, 2010 at 18:12
Started December 7, 2010 at 14:35
Heres my story to share.

I went to an emergency room because i fly very often (4times a week) and my wife was scared because she saw a small spider vein on my lower left leg. The Urgent care doc said its a baker's cyst, the ER doc said its nothing but lets do a doppler "just to be safe" afterwards be says you have a DVT in common femoral vein. start heparin and warfarin immediately.

Go to my PC doc next day and he says im "lucky because that spider vein doesnt look like dvt symptoms" Go to a hemo he says the same thing...

Fats Forward 3 weeks of coumadin and injections andno pain or swelling. My mom encourages me to see a "specialist" or vascular surgeon/doc. On a whim i go see him and he says "no thats a spider vein and the previous image looks like its somethingold but not a dvt" I go to a room next door where he has a Radiologist and all types of machines for another full color doppler. Turns out that acording to the vascular doctor "I see no signs of a dvt, evidenc... read more

3 replies...

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