DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Still in pain after 3 weeks
Posted by Anne
Last Reply November 18, 2010 at 01:18
Started October 31, 2010 at 15:15
My husband was hospitalized with a DVT in his thigh 3 weeks ago. He received Heparin. After two days, he came home with Lovanox and Coumadin. He is still in pain and walking with a cane after three weeks. His age is 58.

5 replies...

aortic thrombosis
Posted by ronnie
Last Reply November 17, 2010 at 23:39
Started November 5, 2010 at 22:54
hi all i had a pe 18 months ago,had multiple clots in lungs resulting in severely swollen right heart was given clot busting treatment.In march this year was told i had a new clot in my aorta.After seeing heart,blood and lung consultants over last 6 months they say they just don't know why i keep clotting,also had fresh clotting left leg a couple of months ago.Am currently on 12m of warfarin and 120 clexane jabs daily,blood tests fortnightly and inr still up and down yet all my medical notes always say reason for clots unknown.18 months of jabs and no end in site any advice at all would be greatly appreciated many thanks

4 replies...

Spasms and little red dots..
Posted by Naomi
Last Reply November 17, 2010 at 14:51
Started November 17, 2010 at 14:51
I was diagnosed with my second DVT March 2010 in my right thigh. It was more painful and more clotted than the first one I had in 1994. I will have permanent damage and am considered high risk for clotting and thus will be on warfarin for life.

Anyhow, for the past 3-4 months now, I've had the oddest symptoms and I wanted to see if anyone else has experienced the same things.

1) Little pin prick red dots on my chest, arms and legs. They are incredibly small, looks like someone has stabbed me with a thumb tack but they are becoming more and they are blood red. My DR said it was from the warfarin and prescribed me hydracortizone to put on them three times a day, it seems to have no effect.

2) When I take off the compression stocking, I have this constant spasm in the arch of my foot just below the beginning of my big toe. The spasms are decently violent and is strong enough to actually cause my big toe to move and stay to one side for a few seconds before releasing. It ... read more

0 replies...

dvt left arm
Posted by claire
Last Reply November 17, 2010 at 06:47
Started November 13, 2010 at 07:41
hi to cut a long story short i broke my humerus bone in july 2010 after op got dvt.i have been having phisio since then.but when i went to see consultant on 10 11 2010 he said my mobility in my arm will not improve any more i was so upset because i cant even grip anything simple things like opening doors,picking things up he said sqeese a ball in your hand to strenghten it i am 58 female is there anyone else with this problem let me know.i would be very greatful thanks claire

6 replies...

Leg Cramps
Posted by Anita
Last Reply November 17, 2010 at 01:23
Started October 21, 2010 at 22:30
I was diagnosed with a DVT in January, did 6 months on Coumadin and have been off of it since July. I've been wearing a 30-40 compression stocking since March. About a month after I went off of the coumadin, I was having cramping in my leg, so they did an ultrasound and found it was clear. I was embarrassed, and decided I really needed to calm down and not be afraid of every little twinge.

I started experiencing charlie-horse type cramps in my DVT leg earlier this week. It was extremely painful at night, especially when I was sitting or lying down. As the week has progressed, the cramping is much more prevalent and, although it's worse when I'm not standing, it is happening while I'm standing/walking.

I am somewhat concerned that it is another DVT (as I think most people who have had one are), but I'm not convinced since it's worse when I'm down instead of up. Many people have posted a similar experience on this site and have been given the all-clear sign. My question... read more

3 replies...

Should I discontinue support hose?
Posted by Diane G
Last Reply November 16, 2010 at 23:54
Started October 14, 2008 at 18:51
I am now two years post-DVT. The clot was likely caused by the combination of Factor V Leiden, birth control pills, and a long driving trip. I have quit the pills and was only on warfarin for six months. I have continued with the support hose because I read a study that said wearin support hose for 2 years post-DVD greatly reduced the chances of post-thrombotic syndrome.

My question: do I now stop wearing the support hose and get back to treating my leg as "normal"? I've had times I thought perhaps I had another clot, but the D-Dimer has been normal. Wearing the support hose keeps me thinking of my leg as damaged goods, and I think I am a little bit of a hypochondriac about it. I keep thinking I should quit wearing it and perhaps I'll quit worrying about my leg so much.

My doctor had told me I only needed to wear the hose one year, but I stuck with the advice from the studies. Now I'd like the forum's advice.

22 replies...

Is it DVT or Muscle knot? . .
Posted by Casey Jones
Last Reply November 16, 2010 at 23:11
Started November 12, 2010 at 01:44
Hi all, im new here but need some advice, after trawling the internet for a hours and unable to find the answer.

November 2009 I began experiencing an odd pain in my right calf. At the time I was in my last year of university, stressing with the amount of work to complete. I had experienced a lot of tension and stress throughout the 3 yrs, so I just put the pain down to that. The pain came and went throughout the year, until September 2010. I went to America and whilst on the flight home I noticed the pain again, very painful and I did my upmost best to try and ease it until it settled by itself. Again I thought nothing more of it. The end of October 2010, beginning of November I began experiencing the same pain again. This time the pain lasted for 7days+. By this time I tried applying heat, massaging = nothing worked, so I took myself off to the GP.

I explained to the GP what had been happening and I was given a blood test. One of the tests requested was for possible DVT, wh... read more

12 replies...

Birth Control Pill
Posted by JK
Last Reply November 16, 2010 at 18:56
Started October 5, 2007 at 22:49
Hi there -- I had a blood clot in my leg about 7 months ago; they're still not sure whether or not it was due to the birth control pill, a fall that I had, or just random chance. I recently had my 6 month ultrasound and it showed that almost half the vein is permanently blocked. My leg is almost back to it's normal size, but I still have pain after about 5 minutes of running and I can't really do stairs without pain. I'm 23 years old, non-smoker, thin and healthy otherwise. The doctors are trying to determine whether or not I need to be on warfarin for life, given how the vein looks. SO, here's the thought/question: I've been off estrogen (birth control pill) since the clot, and I've been told only to go on progesterone if I want to resume the pill. I understand why, having been researching this for months, but I am wondering -- has anyone out there resumed the estrogen birth control pill, after (perhaps) a similar situation? I wonder because, since the blood thinners signif... read more

13 replies...

Forgetfullness and tiredness on anticoagulants
Posted by Kim UK
Last Reply November 15, 2010 at 19:56
Started November 15, 2010 at 19:56
Just wondering if anyone else has suffered from forgetfullness and tiredness on anticoagulant tablets? I was on warfarin for a while and now on Sinthrome which is similar to warfarin but I've been constantly tired and so forgetfull recently. I was on warfarin four years ago and never had any problems but this time round have had so many side effects. Have been doing the same job for four years and been making such basic school boy mistakes in the last month since my DVT my boss is understanding but not sure how long that will last. The only thing I can put it down to is the tablets but the doctor said this isn't a side effect of the medication. I'm constantly tired and exhausted by the end of the day so that could be effecting my memory so their doing blood tests to find out if there is another reason. I'm sure I've read on posts on here people have felt foggy headed and tired from their tablets but can't remember (funny that!!)

0 replies...

Grasping at straws
Posted by Julie
Last Reply November 15, 2010 at 15:54
Started September 27, 2010 at 15:17
Hi Don't know if anyone on here has had or even heard of an extensive cerebral venus sinus thrombosis I'm told by the doc's it similar to a dvt in the leg but in the brain instead. If anyone has could you please point me in the right direction to get some more info on as I had back in February but I'm still getting minor discomfort even though the clot has gone. I'm due to come off my warfrin in a couple of weeks and to say my family are panicking it will come back again is an understatement


4 replies...

Holidays and compression stockings
Posted by C
Last Reply November 13, 2010 at 21:25
Started November 12, 2010 at 23:27
I had a dvt in June (well thats when it was found) I think I had it starting in March. Anyways, I was pregnant with twins and was released (my babies were born and are healthy 5 month olds now) after 2 weeks on coumadin
Anyways, my dvt was right leg (illiac, femoral and poppiliteal. Compression stockings were talked about (I had many docs in the hospital) but the stockings were never given to me, and nothing about them was ever explained to me. I was just told to take my coumadin and do my inr checks. Well its been 5 months now, and I am still on the coumadin but have never wore compression stockings
I am about to fly next week (1st time since dvt) and again am hearing wear compression stockings. But I dont know the reasoning behind it? Is it for the comfort of PTS? Or because of the blood flow? Am I in more danger if I dont wear them? I am on coumadin.
Please help

4 replies...

Flecainide Acetate Side Effects
Posted by Liz
Last Reply November 13, 2010 at 20:57
Started November 13, 2010 at 20:57
I am interested in hearing from anyone who feels that this drug caused a facial breakout or hair loss. I started it at the same time as Warfarin and have been blaming the Warfarin for them. I have read many comments about the hair loss but nothing about facial breakout.

0 replies...

heparin injection ??
Posted by SCHOW
Last Reply November 12, 2010 at 05:17
Started October 2, 2010 at 15:57
My brother had been diagnosed with DVT 9 days back and since then he has been given heparin injection twice daily. His INR was 1.0 when started, two days back it raised to 1.5 but today again it dropped to 1.3. Is it common to give these many shots of heparin? Is it common that INR drops even after being on medication?

7 replies...

DVT - Collateral Circulation
Posted by Amish
Last Reply November 12, 2010 at 04:59
Started November 10, 2010 at 10:14
hey guys i was diagnosed with DVT at age 16, my case first started with swelling and it was dismissed as a tigh muscle rupture, after 1 and half months it got worse and grew and finally had it checked and the CT scan discovered the clot covered an area from above the ankle to aout 10cm away from the lungs.

they say it was very rare for a 16yr old and got all sorts of tests done and found i had a PROTEIN S deficiency that was most like the cause but till today havent determined what triggered it. i am 24 now and still get reguler pain and swelling but not as bad as when i first had it.

however i excercise often and have been noticing my veins keep popping out more and more veins become visible over time (collateral circulation). i have been told i'll be on warfarin for life and worried on its long term effect, its been 6yrs but i have been improving slowly but my clot has not fully dissolved however there's a thin stream of blood flow through te clot.

anyone having trouble w... read more

3 replies...

IVC Filter
Posted by Judy
Last Reply November 12, 2010 at 01:07
Started October 27, 2010 at 20:55
They tried to remove my IVC filter today, but couldn't get it out due to it sitting at a funny angle. Apparently its not uncommon.
Anyone had any experience of this? Why do I need it out anyway?

5 replies...

Are vibro plates safe?
Posted by Miriam
Last Reply November 10, 2010 at 20:37
Started November 3, 2010 at 21:43
I had a DVT while pregnant in July 09. I have recovered pretty well from this and I dont have too much trouble with my leg (still wearing stockings!)
My husband is thinking of hiring one of those vibro power plate things and I would love to use it too. I have no idea though if they are safe if you have had a DVT. I looked into it on the internet and anything I've found has said theyre not safe if you have a DVT for fear of the clot breaking off. But what about a year or more after the event, when the clot is gone or no longer a risk?
I would love it if anyone could give me any advice on this or point me towards any information on it.
I'm heterozygous factor V leiden, not on any anti coagulants.
Thanks guys.

1 replies...

DVT diagnosed yesterday
Posted by Kevin
Last Reply November 10, 2010 at 17:50
Started November 6, 2010 at 06:25
I have lyphoedema in both legs and have had a painful right calf for about 12 days. The leg is also more swollen than usual. My doctor thought it could be phlebitis as I have had that it the passed. The leg was getting no better and I have a lot of pain.

Yesterday I was at the local hospital for a colonoscopy. The consultant noticed my toes were going purple and referred me to the dvt clinic.

I was given a scan and dvt diagnosed. I'm now on tablets and injections.

The treatment at the Royal Derby was fantastic and full marks to the consultant and his team for spotting the dvt.

1 replies...

any Vein Support forums out there?
Posted by Isambard
Last Reply November 10, 2010 at 17:04
Started November 8, 2010 at 14:51
Hello. My situation is slightly off topic from this forum but relevant
enough that I hope some of the posters here might be able to help.

I am a 26 year old male who has been unlucky enough to develop early
onset varicose veins. This has required surgery recently and I am
still dealing with complications from this condition. I seem to have
suddenly developed prominent/sore veins in parts of my body where they
were not prominent before, including my arms, face and seat. I also
have difficulty bending over as blood rushes to my head not to mention
the constant pain I continue to feel in my legs. As of yet I have not
had a DVT. This situation has severely disrupted all aspects of my
life and I have had little luck with vascular doctors and the (4)
other specialists I have seen for my condition. I AM WONDERING IF
CHRONIC VENO... read more

2 replies...

why red leg?
Posted by yvonne
Last Reply November 9, 2010
Started November 8, 2010 at 20:40
When I was first diagnosed with DVT (2 months ago) my leg was swollen but not red. Recently my ankle has been swollen and red. Can anyone tell me why it has turned red?

1 replies...

INR not rising?
Posted by Llin
Last Reply November 8, 2010 at 03:39
Started October 18, 2010 at 18:17
Hi i am a 41 yr old mum and I was diagnosed with an Internal jugular / Subclavien clots on 9th Sept otherwise very fit, active no previous health issues. Been told clots were "just bad luck" ! Finding this all very worrying and frustrating as to be expected , but have been injecting 80 mg clexane for almost 6 wks now and am up to 9 and 10 mg Warfarin (im also very careful about Vit K comsumption ) so why is my inr still only 1.5 ? and is it ok to still be injecting clexane for this lenght of time? Also consultant says i will be able to come off everything by xmas but is this safe if inr doesnt stabalize ? Any advice gratefully received!!!

2 replies...

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