DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 147 of 237
weight
Posted by wwat1213
Last Reply November 7, 2010 at 23:44
Started November 6, 2010 at 06:04
Does being overweight affect the way coumadin works in your body. I'm out of shape, but working hard to get back to good physical condition. I am doing cardio and strength training 3 days a week without fail. I stopped playing sports many times because if I got hurt, I would not be able to do anything for many weeks. It is so frustrating not being able to exercise. Anyone have any ideas on this.

1 replies...

Lower Back Pain
Posted by Mike
Last Reply November 6, 2010 at 14:22
Started January 18, 2010 at 16:43
I was diagnosed with severe DVT from my Kidneys to my ankles 2 years ago. I was in the hospital for close to a month and had Thrombolysis to dissolve the clots as well as a stent placed in my upper thigh. At the time the DR told me that my inferiror Vena cava was complelty blocked and they were unsuccessful at dissolving the clot and that it must have been at least partially blocked for some time because other veins had grown around it to compensate for the blockage. Over the last week I have dveloped lower back pain to the point that I cannot stand up straight or bend down. I have to walk partially hunched over or the pain is pretty severe. I was just looking and came across an article that said that blockage of the IVC could cause lower back pain but I don't see how I would just develop the pain now after 2 years. Any thoughts??

5 replies...

leg shape
Posted by Ludmila
Last Reply November 6, 2010 at 08:49
Started November 24, 2008 at 20:35
Does anybory have a problem of different legs shape after having DVT . mine is stil a little bit bigger than the other one after almost 3 months. How long it usually takes for the leg to get back to it's natural shape? I'm very concern about that. I'm only 23 and don't want to spend the rest of my life with different legs shapes.

18 replies...

DVT and PE, scared to death
Posted by Stephanie
Last Reply November 4, 2010 at 20:26
Started October 28, 2010 at 23:09
I am a 28 year old female, and I was just diagnosed with a clot in my
left thigh (about 5 inches long) and two clots in my right lung. I
have been taking Warfarin since being released from the hospital
earlier this month.

The dr's told me that they thought it was the birth control pills I
was on, but after a blood test came back that they did while I was in
the hospital, it turns out that I have a blood disorder. This
disorder pretty much means my blood clots internally. I meet with a
specialist in about a week to see what he has to say.

I'm pretty much a mess. The thought of potentially being on an
anticoagulant for the rest of my life is terrifying. Add in the fact
that every time I feel a pain in my DVT leg, I automatically think I
am about to die. I guess I'm not taking this well, considering I was
sent into a panic attack when I had a pinching feeling in the dvt leg.

A friend of mine, that is in med school, suggested that I do some
rese... read more

13 replies...

Protein C Deficiency with DVT
Posted by Bonnie
Last Reply November 4, 2010 at 18:30
Started February 24, 2009 at 04:14
I am so happy to have found this sight. I have a DVT and after extensive testing discovered I also have a protein C Deficiency. This means I must be on life long warfarin therapy. Does anyone else have this issue and if so, are you seeing a hemotologist? I have been dealing with my family doc and I feel like it is time for me to move onto a specialist. I have been on warfarin for about 8 months now and I am having so many side effects Ex: tired all the time, achy joints, trouble standing up after sitting for more than 10 minutes, weight gain,I feel like my mind is in a fog all the time, plus others. If you have had these same issues with the protein C Deficiency and have had success overcoming them please tell me how you did it.

3 replies...

lupus anticoagulant?
Posted by stephanie
Last Reply November 4, 2010 at 18:17
Started November 4, 2010 at 17:51
So I just met with the specialist and he told me that I have lupus anticoagulant. This means that
I will be living on coumadin for the. rest of my life, unless this decides to go away on its own.
He said that if I get two negative tests in a row, tests are once every six months, then I can get
Off this medication. I'm not hopeful though, I feel like a poster child
for Murphy's law.

Have any of you been diagnosed with this? Anyone ever have it "go away"?

2 replies...

2nd LA test Borderline
Posted by susanna
Last Reply November 4, 2010 at 13:13
Started October 27, 2010 at 20:52
Hi, My first test was positive for Lupus anticoagulant and 2nd test has come back borderline. (Had DVT at 29 back in January) Just wondered what this means and if borderline tends towards one way or the other. I have to go back in 3 months and test again but that seems like a long time to wait again. I have been a bit anxious waiting for this second test because obviously I am not on any coagulation.

9 replies...

Has Anyone Noticed Weight Gain From Arixtra ?
Posted by Claire
Last Reply November 3, 2010 at 18:55
Started November 3, 2010 at 18:55
Just wondered if anyone on Arixtra has noticed weight gain ?, I've been on Coumadin for 15 months now, and staedily gaining weight, although I am more active now than I've ever been, eating less etc, etc.
I am considereing asking my Dr to switch me to Arixtra shots as my insurance pays for it.

I appreciate any advice.

0 replies...

DVT - poor circulation
Posted by donnab
Last Reply November 1, 2010 at 13:54
Started October 30, 2010 at 05:35
Hi I was diagnoised with DVT right lower leg after a knee injury it has been 6 weeks, my leg throbs after being down for a while and turns bluish/red. It feels as though all the blood is rushing to the foot. As soon as I eleviate then colour turns back to normal. It seems to be worse at night and hour or two before I take my warfrin tablets. I also have strange circulation problems, my foot can seem really cold to touch at times through the day. I was just wondering if anyone else has any of these problems. I am 40 and I cannot believe how much dVT changes normal life, it is so frightning and no doctor seems to act to concern as they just seem to say you are on blood thinners thats all we can do. I am in a rural area in central Australia and good doctors are hard to fine. I love this site as it is the only place I have been able to find out about DVT's.

3 replies...

Dvt diagnosed 4 days ago
Posted by Jan
Last Reply November 1, 2010 at 09:30
Started May 3, 2010 at 14:56
Hello all,

As mentioned DVT was diagnosed 4 days ago, which was exactly 1 week after gallbladder surgery. DVT is in left calf.
Had my first INR test today and came back at 1.6
Was on 6mg Warferin and 2 times 80mg klexane injections daily.
Doctor has today reduced my Warferin dose to 3mg /4.5mg/3mg for the next 3 days but still the 2 klexane injections.

Is this normal?

I have a headache that is killing me but I think that is from all the stress of this.
Am terrified that this clot is gonna move.
Does anyone have any encouraging words for me on how to cope the next 6 months, also another problem is I am supposed to be flying to the UK 9.5.2010 (live in Finland) short haul on 2.45 minutes but waiting on Doc to give me the permission to fly

Great sight have been reading it a lot.


77 replies...

Could it be DVT; confused and worried
Posted by shelley h.
Last Reply October 30, 2010 at 07:44
Started September 24, 2010 at 07:32
Never had leg pain before. Noticed aching, just severe aching in both calves about 2 (3?) mos ago. Went to internist. She didn't see anything on exam, chalked it up to deconditioning (which is true, also). However, this persistent HEAVY, aching feeling, which can be present for days on end, or disappear for days, or come and go willy nilly hourly, just feels wrong. In May, switched to a different HRT, and thought maybe that was triggering something. Got GYN to okay a Doppler ultrasound on both legs. Exam shows things are flowing fine. Great, I think, Legs still hurt, but my concern is abated some. Another month or so goes by, symptoms continue on & off. Then, about 2-3 weeks ago, weirdest sensation of pulse in right calf. I look, and see a large-ish vein at surface, looking kind of fat, and beating in sync with heartbeat. This lasted about 20 minutes. Odd, I think. Mention to internist at next visit. She posits it may be because of weight loss (I'm underweight), loss of fat, muscle ... read more

5 replies...

Australian experiences, treatment and support
Posted by Kira from Oz
Last Reply October 29, 2010 at 09:02
Started October 29, 2010 at 09:02
I have started this thread for others from Australia to find out others experiences in Australia

I am 42 and recently suffered my 2nd PE in 12 months and are now on coumadin for life. My last DVT was found to be in the subclavian vein the day before I suffered my 2nd PE. I have since found out I have Thoracic Outlet Syndrome in both arms and also have FVL Heterozygous.

I am coping fairly well considering all of the above happening over the past year.





0 replies...

UK DVT experiences, treatment and support
Posted by NB
Last Reply October 29, 2010 at 08:05
Started February 2, 2007 at 13:51
I thought I would start a new thread on this to try and guage how many of you out there are UK based in order to discuss UK-specific experiences as there seems to be quite a variation in what goes on in the UK, to the US, and maybe other countries.

I think part of the differences are clearly due to being in the main treated under the NHS rather than the private sector and this clearly impacts on policy for treatment and follow up.

My experience so far (single clot in thigh, no obvious risk factors and no symptoms) is that any follow-up after my 6 month warfarin course, is looking unlikely. Despite there being published research on the merits of repeat d-dimers, risks of recurrence etc, there seems to be no policy to do any follow up following a single DVT episode.

I guess I would be interested to know if anyone has had more success than me on discussing future screening with their GP/consultant and any other comments to make about whether the private sector is the way to go ?

543 replies...

Greenfield Filter
Posted by Tom
Last Reply October 29, 2010 at 02:31
Started October 29, 2010 at 02:31
I had a Greenfield Filter implanted about 7 years ago after a PE and positive results
from genetic blood clotting disorders. Does anyone know if the filter should stay in
for the rest of my life? Can it, or should it, ever be taken out? If I'm on Coumadin for
the rest of my life, is it really necessary to have a permanent Greenfield filter? Thanks
in advance

0 replies...

can clot break off after 2 months
Posted by michelle
Last Reply October 28, 2010 at 22:01
Started October 28, 2010 at 17:11
I took my daughter off lovenoux after two months because doc. said she was born with two femoral veins and because of the reduced blood flow in the unused one it eventually will form a clot, but the other is full functional. He says she can stop meds. because this type of clot usually does not break off, and that risk is over anyway after a month, however am going for second opinion in children's hospital in Philly, they say she should still be on it, because even though she has a fully functional femoral vein, there is still a clot in the other,I decided to follow the first doctor because she desperately wanted to play basketball- she is only 11 and extremely athletic, and sports helps get the blood flowing. i just worry if i made the right decision because she does get alittle foot pain after playing for awhile, the leg is still about 1/2-1 inch bigger thanthe other, but the doctor says these type of clots tend to remain, because of the limited blood flow, so she might always have... read more

1 replies...

sitting after DVT
Posted by Steve
Last Reply October 28, 2010 at 08:31
Started August 23, 2010 at 02:52
What happens if someones job requires sitting at an office after they
have a DVT? Is it still safe to sit down daily as long as I get up every
hour and walk around or would I have to find something else to do? I
also wear a compression stocking and play around with my feet to get the
blood flowing when I am sitting.

11 replies...

It's not all bad
Posted by Kenem
Last Reply October 27, 2010 at 11:28
Started October 26, 2010 at 19:57
I've read a lot of the posts on the forum and I'd like to give a more positive
message.
After a hernia repair, knee surgery and some oversights by the medics, I developed
a DVT in my leg, had a PE and went through the usual emergency process -
Heparin injections, Warfarin and I now have a stable INR. I paid to see a vascular
surgeon who referred me for a duplex scan which showed that my deep veins are
completely blocked and will never open or work again.
The good news is that other veins are widening and taking more flow, I can walk
normally and have improved day on day - I have even had a few rides on my
beloved bikes! OK, so I have to wear a tight stocking, take Warfarin for life and my
leg swells and hurts at times - so what! I'm alive, functioning, have no side effects
at all from the Warfarin.
I feel sympathy for those who have the same problem, with more complications, but
my message is that there is life after a DVT!

2 replies...

Recouperating
Posted by Peggy
Last Reply October 26, 2010 at 19:34
Started October 25, 2010 at 16:53
I had a PE episode about 5 weeks ago. My doctors tell me I am fine, but much of the time I don't feel well. Trouble breathing, minor leg swelling, some pain in my leg, sometimes my chest hurts, my heart palpitates. How long did it take any of you to recover? My largest clot was dislodged when my filter was put in...but I had many other clots in both lungs. I am antsy trying to feel "normal"...but I really don't.


2 replies...

Thankyou for this forum
Posted by Kim - UK
Last Reply October 25, 2010 at 23:11
Started October 22, 2010 at 15:47
I just wanted to say how amazing this site is and has really put my mind at rest about a lot of concerns I've had recently and think the final straw today was my hair falling out. I stumbled over this site and reading the posts has really helped me calm down a little.
I had a pulminary embolism in May 2006 and was on Warfarin for 6 months.I was diagnosed with Prothrombin 20210A(Heterozygous) and my INR was never stable and after 6 months I stopped the warfarin. I was put on Clexane in 2008 during my pregnancy due to my gene but still had a DVT in my leg even though the medication should have prevented this. I was supposed to have special care and labour induced but my son was in such a rush to arrive this never happened so I didn't have anything during or after labour. I didn't have any further medication despite two blood clots after I had my son. I saw the consultant a week after he was born and further blood tests were taken in August 2008 but I never heard anything about the... read more

4 replies...

Flying short haul
Posted by Mandybeebee
Last Reply October 24, 2010 at 23:35
Started October 24, 2010 at 23:28
I had a knee replacement 7 weeks ago and have recentley developed a DVT in my lower leg,
I am aged 49 and normally very fit.
I am taking Warfrin tablets and last week my IRN was 2.3 do you know will i be able to fly short haul to France apox 1.5 hours .
I have been told I can not fly for three months while on my tratment but want to know if this is true.

1 replies...

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