DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 148 of 237
DVT Treatment
Posted by DVT in GA
Last Reply October 24, 2010 at 23:17
Started November 16, 2005 at 14:59
To all:
After suffering a DVT in March '05 and not having much luck in the thing improving while on Coumadin, I began looking for more aggressive treatment options. I was tired of not being able to exercise, play sports, etc. and gaining weight as a result. I stumbled across an article that linked me to The Society of Interventional Radiologists (http://www.sirweb.org/patPub/DVTOverview.shtml) and looked for a doctor that could help. I found one and we scheduled a procedure called an "arteriogram". Basically, the doc goes in and tries to break up the clot and vacuum it out via a catheter type device. (Yes, you'll be asleep while this is done). The doc then pumps a highly concentrated blood thinner into the vein to help clear up any debris. My leg feels tons better, but because of lack of treatment follow-up by my internist, the clot could not be removed because of the time frame between its onset and the ... read more

3 replies...

Clexane Overdose?
Posted by Leanne
Last Reply October 24, 2010 at 22:57
Started October 16, 2010
I was diagnosed with DVT at 37 weeks pregnant and immediately started on 120mg Clexane Forte injections.

My dose has never been altered since I gave birth 8 weeks ago and I am currently breastfeeding.

Yesterday I went for a blood test. Today I had an urgent phone call to say that the dose I am on is far to high and I must stop taking it immediately. Tomorrow I have to go and get a prescription for a lower dose.

Could this have done me or my baby any harm? Has this happened to anyone else?

3 replies...

Aching leg after DVT
Posted by Kristi from Michigan
Last Reply October 24, 2010 at 20:36
Started October 23, 2010 at 01:54
Hey! I was wondering if any of you have experienced your leg aching after a DVT. I was diagnosed with my second DVT on August 31 of this year (my first one having been 5 years ago). I've had two ultra sounds on my leg and both have shown my clot to be in one steady spot with no new clots. The pain and swelling have both gone down, but now I seem to have an aching feeling from hip to foot. It's not constant and I only seem to have it towards the end of the night when I stretch out to relax. I have a dr appointment early next week but wanted to know if anyone else has experienced this?

2 replies...

poor circulation in feet
Posted by donna
Last Reply October 24, 2010 at 17:28
Started October 24, 2010 at 04:50
Hi i dislocated my knee at netball now require a full knee construction, while waiting for a MRI i developed a DVT in my right leg calf area. I cannot get my leg operated on until the clots are stabalised. It has been 10 weeks, is it normal to have very poor circulation to the foot. My foot can be ice cold and numb one minute then buring hot the next.

1 replies...

Breast Augmentation Surgery
Posted by Sandra
Last Reply October 23, 2010 at 20:59
Started October 23, 2010 at 20:59
I was wondering if anyone has had a breast augmentation on this forum. I had a DVT in 1997 unprovoked by anythign the doctors can find. I have also had a couple of superficial blood clots that resolved quickly. Most of the plastic surgeons and hematologist's suggests Lovenox post surgery but I am concerned about developing a hematoma related to taking the same med. Has anyone had BA without Lovenox or with it and done ok with the surgery? All my blood work from hematologist came back normalBTW.

0 replies...

Herbs and Warfarin
Posted by Eve
Last Reply October 22, 2010 at 23:27
Started August 23, 2010 at 20:13
I would like to ask what you think about drinking tea of herbs after deep vein trhrombosis. Should I avoid the consumption of herbs because of the illness or because of warfarin. Do you know if there is any negative reaction?? Some people say that until the clots disappear surely should not take these. What have you heard about it?

4 replies...

Second blood clot after a thrombectomy
Posted by Barbara
Last Reply October 22, 2010 at 15:23
Started October 1, 2010 at 04:10
I am 23 years old and had been on a plane on 8/5. I had a blood clot
8/10 (I remember distinctly when it happened) and my doctors couldn't
figure it out until 9/7 (they actually decided I had sprained my leg
while sleeping and gave me a walking boot, smart!). When they found
the blood clot 9/7 it was from my groin to my knee and they decided to
do a thrombectomy. They got the entire clot out and I felt 100%. I
had been on lovenox shots and coumadin since 9/8 but developed another
blood clot on 9/15 that went from my groin to my calf and I had a
Pulmonary embolism. I'm just curious if anyone has developed a blood
clot five days after a flight and gotten another blood clot while on
lovenox. I really don't think they can blame my flight and birth
control for the blood clots if I developed another one months after
being on medication.

Thanks for your help, I haven't gotten my blood test results back and
I'm just so worried.

2 replies...

Factor V & problems with insurance
Posted by sharonrn320
Last Reply October 22, 2010 at 02:14
Started October 21, 2010 at 03:51
New to forum. 43 year old, currently recovering from my second DVT/PE. First DVT occurred at age 30 and was presumed to be related to birth control pills. In the 13 years from my first DVT, I have had several relatives diagnosised positive for Factor V. The Dr. wants me to be tested for the Factor V gene but I am hesitant to do so as I am worried about be denied insurance somewhere down the road due to having a pre-existing condition. At least with this acute DVT after a year it would no longer be "pre-existing"...but would the Factor V be different?

Second question...how long is this going to ache so bad. Scheduled to go back to work as a nurse next week and can't imagine standing for 8 hours in just a few short days.

3 replies...

multiple dvt unknown cause
Posted by lexie
Last Reply October 21, 2010 at 16:54
Started October 21, 2010 at 10:41
I lost my right femoral head from Avascular Necrosis of unkown cause. Last year I had my hip replaced and post surgery found my leg clotted from goin to below knee. There was several clots in my calf as well. Subsequently doctors found a clot in my left internal jugular that had caused it to disappear below clot. And an old clot in my left arm. I have none of the tested clotting factors and my vascular physcian is at a loss to explain why my inr can be 3 but I throw new clots all the time. I have now been diagnosed with multiple micro pulmonary embolisms causing pulmonary hypertension. Itake 10 mg Warfarin a day and still struggle to stop new clots forming. Is there anyone out there with a similar problem. the uncontrolled pe is causing heart failure now. Any ideas


1 replies...

Is my case as rare as I've been told?
Posted by Lila
Last Reply October 20, 2010 at 05:22
Started October 20, 2010 at 05:22
When I was 31, I had a single blood clot that nearly completely occluded my mesenteric, portal, and splenic veins. I also had a pulmonary embolism. Before being diagnosed and spending two weeks in the hospital, I had horrific amounts of pain and nausea (went to a few emergency rooms over the course of a month but never got anywhere, even as the pain grew increasingly unbearable). Two different hospitals tested me for every known blood clotting disorder, genetic mutation, etc. and found nothing. They do believe I have something that science has yet to discover (not just within me, but within anyone) that, combined with three months of hormonal birth control use, caused the DVT and PE. I took warfarin (my only treatment) for about two years but was taken off because the doctor felt the risk of a spontaneous hemmorage outweighed the benefit (given that we couldn't find anything physically wrong with me and I know never to take hormones again). I'm healthy and haven't had any prob... read more

0 replies...

NO damaged veins
Posted by Emily
Last Reply October 19, 2010 at 18:07
Started October 19, 2010 at 18:07

Hi!

I would like to hear positive stories here.

Pls write here and tell to the others if you are someone who has no popping out veins and varicose veins after DVT.

I would like to hear that it is not impossible!

Thank you

0 replies...

Lump
Posted by Dave
Last Reply October 18, 2010 at 03:48
Started October 17, 2010 at 11:15
4 years ago I had a bilateral PE (and lived to tell about it). Yesterday I noticed a small lump, about 1 - 1 1/2 inch across on my left leg (same as the one that had the DVT). It is tender but not red or warm. The cause of the original DVT was unknown. Could this be a SVT or celuitis or ????

1 replies...

Numbness
Posted by Linda
Last Reply October 18, 2010 at 03:44
Started October 17, 2010 at 21:26
I have a pulmonary embolism and have been on coumadin for 2 weeks. I'm noticing a
numbness in my left cheek bone. Has anyone else experienced this on coumadin? I
also suffer from anxiety...could this be from that?

2 replies...

Factor 5 Leiden
Posted by Barbara
Last Reply October 16, 2010 at 07:01
Started October 10, 2010 at 01:05
I have been wondering if anyone can talk to me about living with Factor
V Leiden. I have just been diagnosed with it and I'm not quite sure
what to expect.

5 replies...

Vitamins
Posted by Tim in Minnesota
Last Reply October 15, 2010 at 14:10
Started October 11, 2010 at 19:16
Does anyone take vitamins currently while on warfarin? I am starting to think about a vitamin regimin (currently take none) but am concerned about the affects on my INR.

9 replies...

Suspected dvt
Posted by Boggle
Last Reply October 14, 2010 at 01:19
Started October 13, 2010 at 12:34
Recently i've had pain in one of my calf muscles. I'm far from being in agony-the pain is more of a numb ache which occasionally throbs and feels very heavy. It is worse when sitting still for long periods. I have no swelling or redness in the leg, the only visible changes are that some very fine surface veins have appeared at the top of my calf, just below the back of my knee. At times my lower leg feels tight, but you wouldn't know it by looking at it.

I have spoken to a doctor who advised me to get to a&e, but being the hospitalphobe that I am, I never made it. Those that suspect I have a dvt say that I am in a high risk group as I have been an IV drug user for many years. The swelling and hotness that was in my groin (around my injecting site) has gone down, leaving only a hard lump. I dont really want to waste medic's time with this as compared to the unfortunate plight of others, this is kinda self inflicted as a result of my own drug use.

I suppose what i'm asking is, ... read more

4 replies...

Do you know of a great DVT/PTS Doctor?
Posted by Meeyah
Last Reply October 12, 2010 at 14:07
Started October 10, 2010 at 14:22
I have suffered many years with PTS after having a DVT. It seems to me
there is a limited number of good doctors who really understand DVTS and
PTS and they are not very easy to find. I am willing to travel anywhere
to see a doctor once and for all who can evaluate and diagnosis and
perhaps give accurate and thorough medical device on DVT and PTS. I
also am using a Venowave and although my obstetrician supports it, I
would like an opinion from another doc...perhaps one who specializes in
PTS? Can anyone suggest a doctor that knows what they are doing?

2 replies...

No advice
Posted by Rhona
Last Reply October 12, 2010 at 07:36
Started October 12, 2010 at 02:25
I was diagnosed with Multiple PE'S in August. Im now having excruciating pain in my left leg all the way up and down, at it sorest on the back of my thigh justnow. Went to the Dr today who is sending me for further scans, she has put me on herparin again as well as warfarin 5,5. I am really scared and feel i havent been given any advice about things and i am really struggling to cope with this. Does anyone have simular stories or any advice. Im freaking out here.
Im 34. United Kingdom

2 replies...

Complete Blockage of Common Iliac Vein
Posted by Essie
Last Reply October 11, 2010 at 19:32
Started October 11, 2010 at 19:32
Hi all

I have posted before about the complete occlusion of my common iliac vein following massive femoral DVT in 2007.

I was wonerding how many people have had further scanning (doppler/MRI) following a massive DVT because of ongoing PTS symptoms? My occlusion was only discovered via an MRI Venogram because I got a referral to a vascular surgeon about my PTS symptoms.

I wonder how many of us suffering daily pain & thinking it is PTS, when really it is more serious?

Many thanks :)

0 replies...

Auto-immune ?
Posted by Rob, UK
Last Reply October 11, 2010 at 19:15
Started October 10, 2010 at 11:28
Hi to you all.
When I saw the Haematologist last week re.blood/genetic testing once I have totally come off warfarin, he seemed very interested in a possible auto-immune connection. You see, I have had the skin condition Vitiligo since puberty, and it it now generally accepted that this has an auto-immune cause. Vitiligo results from the body's defences recognising melanin as a foreign body and reacts accordingly- resulting in patches of skin devoid of pigment.
The consultant believes there may be a connection between this and my body's inability to prevent clotting. I must admit that I wasn't too sure what to make of this, so I was just wondering if anyone out there has had any similar experiences?
Take care,
Rob

5 replies...

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