DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Coumadin Safe Vegetable Recipes
Posted by Kristi
Last Reply October 11, 2010 at 17:31
Started October 11, 2010 at 17:31
I was searching online for vegetable dishes that are low in Vitamin K and I found a site with a list of Vitamin K Values and recipes. I figured I would share!!

http://www.drgourmet.com/warfarin/vegetables.shtml

Another site with values:
http://www.vaughns-1-pagers.com/food/vitamin-k-foods.htm

0 replies...

DVT + now PTS
Posted by Kristi
Last Reply October 10, 2010 at 14:17
Started September 22, 2010 at 19:33
So pleased to have found this forum..
After several days of severe pain, last June, my calf swelled and i couldnt walk. Emergency trip to GP, transfer to hospital clinic for blood tests and scan (all same day) and i was diagnosed with DVT above and below knee. 2 days later, a clot found in other leg too. Besides driving quite long distances in my automatic car i'm not in any high risk groups, although i know i do have quite narrow veins. I was immediately put on heparin injections, then given warfarin, which i'm still taking. I've had pelvic & abdominal scans, but not given the results yet, so i'm assuming they were okay.
The pain in my legs eased a little initially but has gradually increased and now i am in great discomfort most of the time. Its a kind of pain where i just dont know where to put my legs, its awful, co-codomol helps very little. I have bought a wedge cushion and sit with my feet raised as often as i can. Walking leaves me in terrible pain after just a few minute... read more

6 replies...

NO more sex WITHOUT stockings??????
Posted by Sandra
Last Reply October 10, 2010 at 13:46
Started September 30, 2010 at 16:32

Hi!

Maybe it is a quite opened question, but I am wondering how your sexual life changed after dvt???

Presently, my leg can't bear pressure in a vertical position..I wear the stockings the whole day, before sleeping or when I have time to lay down and lifting my legs by some pillows, I take off.

How could I have an exciting sexual life when I should avoid moving and direct pressure on legs?????

Always in stockings?? :((((((((( I find it a little bit awful...

3 replies...

Swelling behind ankle
Posted by vjminpa
Last Reply October 10, 2010 at 04:40
Started September 25, 2010 at 21:44
I have been recently diagnosed with dvt in my left leg with pulmonary embolism. I have been having a burning and pain in my left achilles tendon area with a puffy swelling behing my ankle bones. Should this be something to be concerned about, it really is making walking painful. I am taking warfarin 5 mg for about 3 to 4 weeks now.
Thanks for any help!

2 replies...

help
Posted by dc
Last Reply October 9, 2010 at 22:32
Started October 6, 2010 at 21:58
i had a dvt last year in november and i was took of warfrin in feb cuz it didnt do my inr any favs and was put on the injections till may. i reactley had the same problems with my leg and had it scaned and they found another clot does this mean i am likely to suffer from them


7 replies...

anxiety and Citalopram
Posted by andrea
Last Reply October 9, 2010 at 22:16
Started October 4, 2010 at 17:12
Having recovered from a dvt in 2008 i am suffering really badly with anxiety, on Mirtazapine for 2 years but put so much weight on i decided to come off them, that was 2 weeks ago. Just wondered if anyone was on Citalopram after dvt and how did they feel on them. Not taking any other medication. Just need something to calm me down, tried Bachs and Kalms but wasnt that effective. Any replies would be grateful

2 replies...

Nattokinase+Gambe Slim+Kurkuma tablets=MIRACLE
Posted by Eve
Last Reply October 9, 2010 at 22:03
Started October 9, 2010 at 22:03

Hi Everyone!

I suggest these 3 products to anyone who had DVT!
I had 3 months ago. These products are amazing!! Take all the three.

SOME HELP::

http://www.szeplabak.com/ampulla.html -->gambe slim

Nattokinase -->without vitamin K

(Pages are Hungarian. I don't know if Gambe Slim is on the market in the US. Gambe Slim is best in ampul form)

(kurkuma = turmeric)


Pls, write your experiences :))


kisses

0 replies...

Magnesium with warfarin
Posted by Kerri
Last Reply October 9, 2010 at 15:02
Started October 9, 2010 at 12:26
Does anyone know if there are any contraindications with taking magnesium with
warfarin??

1 replies...

saunas etc after dvt
Posted by suzanne
Last Reply October 8, 2010 at 22:27
Started October 8, 2010 at 19:44
Hi all,i had a dvt 2 years ago,anyway just wondering if any of u have used sauna's after having dvt,im going away for the weekend soon and got opportunity to go on a spa day but when i went on the site on the internet it said alot of things maybe unsuitable for people that have had dvt.

1 replies...

2 months or 3?
Posted by michelle
Last Reply October 7, 2010 at 22:30
Started October 7, 2010 at 14:51
Hi my daughter who is only 11, was diagnosed with a dvt on aug. 24th, she has been on Lovenoux, she is very athletic and wants to return to at least basketball, her first doctor says depending on what the sono says on Oct 15th he might take her off the blood thinners after only 2 months so she can play because he says the medicine doesn't dissolve the clot. i went for a second opinion they say they would leave her on it an extra month because they usually treat for a total of 3 months not 2, and they say she can play basketball while on the blood thinners. this worries me, what if she gets hit in the head or falls on her head hard. Please advise what u would do as a parent. The clort is in her fermoral vein only and her swelling is about 1 inch bigger than the right leg, but it stays the same and doesn't get aggravated by exercise, in fact they said exercise is good to get the blood flowing, please help! thanks

2 replies...

has anyone had dvt's/pe's with no further prob
Posted by Claire
Last Reply October 6, 2010 at 21:54
Started May 5, 2010 at 11:41
has anyone had clots, either dvt' or pe's with no further problems ??
after seeing 3 different hematologists (1st one disappeared so i saw his
replacement who said " stay on coumadin for life, I font need to see yourver
again " what !!!!!, so I saw one that was recommended who tells me my blood
tests from October last year who said one test indicated I was borderline for
APS, I have to do more tests in august plus an ultrasound with comparison to
see if there's been any improvement. He did say I could probably come off
coumadin in October ( which also worries me ).

14 replies...

DVT in leg Coumadin ?s
Posted by Makana
Last Reply October 6, 2010 at 16:11
Started October 3, 2010 at 04:55
My friend has DVT in her leg and is on coumadin.. How long does it take for he
to reach a therapudic level for INR and how long does it take before she reaches
a stable level?

2 replies...

How much activity with newly diagnosed DVT?
Posted by George
Last Reply October 5, 2010 at 19:14
Started October 4, 2010 at 23:35
My mother has been told that she's got a fairly large clot going down the length of her left leg and a good sized one in her right as well. This all occurred after a successful surgery to cure renal cell carcinoma. So now she's out of the hospital and back at home (1 week today) and she acts like she wants to be babied all the time. Every time I walk past her (she's staying in my home for now) it's "Can you get me this" or "can you get me that real quick".

For the majority of last week I would but then I started thinking I was just enabling her to act that way. But the majority of what I hear from nurses and doctors is that although she is in a decent amount of pain she should try to fight through it and keep active. Prior to the surgery for RCC she was very active in going to the gym 4-5 times a week and just active in general. She was a smoker but hasn't smoked in over a month and a half since before her surgery.

I can also say that she was about 135 pounds prior to e... read more

3 replies...

DVT in one leg BUT WHAT HAPPENS with other??
Posted by Melinda
Last Reply October 5, 2010 at 05:02
Started September 30, 2010 at 07:36

Hi everybody!

I had dvt in left leg 3 months ago. Doctor said it's enough wearing the stockings just on the ill leg. I did this way. After 2-3 weeks, my healthy leg has started to show freaky things..on ankle, the vein bulges in a relatively high way when I walk or stand, the foot gets red!
I have let it checked by Doppler twice, but the results show that the venous curculation in the right leg is OKAY.

Then what are these symptoms???????
Sometimes I also feel a little burning payment in the RIGHT!! foot.

WHAT IS THAT?? :(((((((((((((
side effect of warfarin or something with pressure?

I rather wear the stocking on both legs after this happened...but i am very sad :( i don't understand :((

Do you have experiences like this??

Melinda

7 replies...

subclavical vein treatment and timeline ?
Posted by RA
Last Reply October 4, 2010 at 13:07
Started October 4, 2010 at 13:07
I had a intravenous line for a contrast CT scan on September 4. Within 4 days a
phelbitus showed up, within 3 more days, it was very red, inflammed painful. I
went to my GP and they just put me on antibiotics. By Thursday, it was worse, my
GI doctor say it (unrelated appointment) and she sent me for a dopplar. they
found the clots in the arm, but also a clot had moved/broken loose and gone into
the clavical region and close to the main vein (not sure the name), so into the
hospital I went right away. I stayed for 3 days...and received injectible Lovenox.
Three more dopplars and they said it was still there but had not worsened, so
good news. I was taken off lovenox and now full size aspirin (good not comadin).
My arm is still very painful into my chest. The pain is about the same...and I have
not gotten much response on how long this takes to get over. I presume I can
return to normal activity, but I do feel like a truck ran over me. sort of flu like
symptoms... read more

0 replies...

INR after cardiac ablation
Posted by Jan
Last Reply October 4, 2010 at 10:59
Started October 4, 2010 at 10:59
Hello

I had a cardiac ablation on Saturday (2.10) and had to stop my warfarin the day before. I started taking Marevan straight after the procedure, but at todays INR test it was 1.7.

My question is: How quickly will I be back at theraputic level? I am supposed to be flying home for a wedding at the weekend so want to be theraputic by then.

Thanks

jan

0 replies...

Mobility with DVT
Posted by Sharon
Last Reply October 2, 2010 at 22:17
Started October 2, 2010 at 22:17
Diagosed in August 2010 with pelvic and knee blood clotsin left leg. Not quite stabilised
with warfurin reading 1.6. How long before moilty feels normal.

0 replies...

ringing in ears
Posted by Rachel
Last Reply October 2, 2010 at 22:14
Started September 29, 2010
I had a bi-lateral pulmonary embolus in July 2010. I have had the Fragmin shots and
take warfarin now. I cannot fly for at least 6 months. I had massive headaches for a
few weeks after the PE. They are gone. However, my ears ring and I feel like my ears
are popping from pressure (like being in an airplane).

Has anyone had this and does it go away? Also, will I be able to fly again?

3 replies...

Negative for Leiden Factor
Posted by Laura
Last Reply October 2, 2010 at 19:02
Started September 23, 2010 at 15:34
Hubby is negative for Leiden Factor -- any other clotting disorders he should be
tested for?

2 replies...

heparin injections ongoing
Posted by Angie
Last Reply October 2, 2010 at 15:53
Started May 3, 2010 at 11:29
Hi and thank you for this forum.
My husband was diagnosed with dvt in lower left leg over two weeks ago. The hospital
has not taken him off the heparin injections while they try to stabilize the warferin
pills.

Is this normal> Everything I have read says that the injections shuld only be for the
first few days. Does this mean the warferin isn't working? The hospital seem reluctant
to answer questions - they just say 'everyone's different'. The swelling and redness
has not changed since the first day.
He is not overweitgh or a smoker and hasn't been inactive. Probably genetic.
Any thoughts / ideas much appreciated. Many thanks.

6 replies...

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