DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Calf bleeds
Posted by Rob, UK
Last Reply September 23, 2010 at 10:48
Started September 23, 2010 at 10:48
I was diagnosed with a DVT in my right popliteal vein, extending into the distal SFV, back in January of this year. I was on heparin for about 6 weeks and have been on warfarin ever since whilst the haematologist runs test for any possible inherited clotting problems.
My INR is stable at 2.2, and I take 5mg warfarin per day.
Everything was relatively ok at the beginning, but I have now developed severe pain/stabbing/tingling down the back of my leg, from my bottom to my calf- this is sometimes pretty unbearable- and I have been advised that this is PTS.
However, I have noticed that whenever the pain is at its worst, I develop a couple of small sub-cutaneous bleeds in my calf, about the size of a small coin. My GP has advised me not to be concerned as there is nothing to worry about, but surely any bleed should be investigated/treated seriously? As my leg settles down, they tend to fade away, but can come back as quickly as they go. Or am I being a little paranoid?
So guys/gals,... read more

0 replies...

DVTSWELLING
Posted by HELEN
Last Reply September 22, 2010 at 15:51
Started September 21, 2010 at 22:41
Hi, I had a DVT 8 yrs ago in my left leg, from groin to ankle, I still wear stockings to help, as my leg still swells every day and get pain in it. I have just discovered this forum, and wondered is this normal, as I have just assumed it is. Have't been to the doctors for years about it, not sure if they hav developed any surgery procedures that could help! Grateful for any feedback

2 replies...

DVT Options may = EKOS
Posted by Mackie
Last Reply September 22, 2010 at 03:03
Started September 22, 2010 at 03:03
Just posted on Medscape.com (easy to view, sing in)
It's worth the time-hope this may help some-just some highlights

http://www.medscape.com/viewarticle/728409

From Medscape General Surgery
Aggressive Management of Chronic DVT and the Postthrombotic Syndrome
Mark J. Garcia, MD
Authors and Disclosures
Posted: 09/20/2010
Deep vein thrombosis (DVT) is a common and potentially devastating condition that can lead to permanent disability with significant morbidity and even mortality. DVT incidence estimates range from 350,000 to 600,000, with some estimates as high as 2 million, leading to 100,000 to 650,000 deaths.[1-4]
.Treatment of DVT
The gold standard in treating chronic venous disease is to control or improve symptoms, reduce edema, venous hypertension and reflux and to promote venous ulcer healing. A traditional method of DVT treatment and prevention of PTS sequelae is adequate anticoagulation... read more

0 replies...

what to do now
Posted by susie
Last Reply September 21, 2010 at 09:11
Started November 11, 2008 at 20:28
i think most peeps know my story , diagnosed 6 months ago but im about to come off warfarin in dec all being well , i have read the posts about coming off wfrin, im going to decrease my amounts each week in dec then stop,but can i then just start to have vit k spinach etc , vit pill etc and glass wine etc do i just do what i did before
i had dvt, i know tis sounds weird but fogotten about being normal i suppose ????? scared to fly though

9 replies...

When is it safe to exercise with a DVT?
Posted by Tracey
Last Reply September 21, 2010 at 06:53
Started September 19, 2010 at 09:25
I was diagnose with a DVT almost five weeks ago (10cm in my left
calf). I had a small amount of pain in my leg, but no swelling or
redness. The pain went as soon as I started blood thinning treatment,
and to my joy so did my 'restless legs' discomfort. I feel very lucky
about that. I have been told I need to stay on the warfarin for three
months. I have been walking the whole time, but am itching to get
back to running and some exercise classes. Am I going to risk
dislodging the clot at this stage if I commence heavier exercise now?
I feel perfectly fit and ready to go, and my leg is fine. I feel like
a blob if I can't get really moving.
Thanks
Tracey :)

2 replies...

leg pain
Posted by jen
Last Reply September 21, 2010
Started September 21, 2010
my leg hurt in the middle of my calf on the right leg could you tell me what wrong sometime i get my son to set on my leg to stop the pain sometime it work and sometime it don't

0 replies...

Could this be PTS with chronic DVT?
Posted by Lori
Last Reply September 20, 2010 at 18:47
Started September 16, 2010 at 16:55
I have a chronic DVT in my leg. I can go weeks to months with no real problems, but then all of a sudden, my leg will start to ache and swell more. I have such a hard time dealing with the paranoia that comes along with have a clot. I am wearing my stocking and taking my aspirin, but I still can't help but wonder.

2 replies...

New swelling in calf that had DVT
Posted by Barbara K.
Last Reply September 20, 2010 at 11:00
Started September 20, 2010 at 01:19
My husband has been on Coumadin since July '09 since he was diagnosed with D-V-T (right calf). He also had a I-V-C filter installed.
Today he noticed his right upper calf (just below the knee) appears swollen - not discolored, no pain. Any ideas? Thank you.

1 replies...

1st flight since DVT
Posted by Will
Last Reply September 18, 2010 at 17:44
Started September 17, 2010 at 05:27
I had a groin to ankle DVT in 2007 & 2008. And I am on blood thinners for life now. I will be taking my first airplane trip since the DVT's. It will be a 8 hour flight, then a 2 hour flight followed by a 2 hour drive. I have been at 2.4 to 2.6 for my INR all year long. Any advice anybody had would be helpful. I am a little concerned. I will be wearing my stockings on the flight.

3 replies...

Diagnosis?
Posted by Lori
Last Reply September 17, 2010 at 20:38
Started September 17, 2010 at 13:45
Hello, obviously I realize looking on the internet for health info is
a dangerous thing. I had injured my back a few weeks ago and had
numerous chiro adjustments. I thought the pain in my leg from thigh
to knee was sciatica, used lots of heat. I now realize it's vascular.
I am 48, female, active but considerably overweight. Don't smoke,
have high bp, take verapamil every day for that. When I stand up it's
a very all over pain all down my left leg ending above the knee.
Sometimes I feel it in my groin. If I sit down, or lay down with feet
elevated it is fine. Walking is painful, but bearable. I now have
been treating with ice rather than heat and that is making a big
difference. Taking Horsechesnut, grape seed and butcher's broom since
yesterday and on no salt diet (yuck). This pain wakes me up in the
night and is controlled with elevating the leg. I have no swelling,
no hot spots but am worried. I'm a wife and mom and am just starting
to rea... read more

1 replies...

High HDL
Posted by Mark
Last Reply September 17, 2010 at 13:40
Started September 17, 2010 at 13:40
My HDL is 214, is there a concern with this or is it an indication of some other condition?

0 replies...

husband's DVT / ER visit last friday
Posted by laura
Last Reply September 17, 2010 at 03:35
Started September 16, 2010 at 04:28
My husband is 39 and went to the ER last friday, after visiting his primary care doc
who said his leg pain and swelling could be a clot. It is a DVT, affects three veins, I
think. They didn't say how big it is, but rattled off the vein names. His leg was
bothering him for a few days.
Now he is on Coumadin, 5mg and Lovenox 100mg 2x/day. He had his pt/inr this
morning with results to come tomorrow. They are testing him for possible underlaying
conditions, too. His Lovenox is complete, but doc will continue it if INR is not 2.5 or
greater.
He is not wearing compression stockings -- doc said to wait a week.
He still works, sitting in an office chair (at home), with leg elevated at times. Rests in
the evening. He gets up and walks around every 30-60 min. Drinks lots of water.
I am a nervous wreck -- I need reassurance that he will be okay. ??? We have two
small children. :-(

4 replies...

New to DVT lots of questions
Posted by Arnetta
Last Reply September 16, 2010 at 14:12
Started August 27, 2010 at 04:30
On august 9, 2010 went to hospital with swollen leg found out it was a blood clot. was in the hospital for 2 weeks. now am home and wanting to do more than sit around with my leg up. i have a lot of questions if some of you could answer them. does the warfarin make you lose your hair? will my leg go back to its original size? when is the earliest you got back to walking and driving and doing everything like before?

13 replies...

Stent didn't work- help :(
Posted by Katrina P
Last Reply September 15, 2010 at 17:30
Started September 3, 2010 at 23:12
Hi, my sister has May-Thurners syndrome, and they've been treating her with medications, put a filter near her heart and gave her a stent and put her on Coumadin. She went back in to get the filter removed, hoping everything was okay- and they checked her again to find that the vein is clogged again and the stent didn't work. They went back in to try and get the blood clot removed and weren't able to take it out. That the vein is too squinny and squished. They say there's no other procedure they can do.and that she has to be on blood thinners for the rest of her life. Is there anything else we can do? Should we take her to another doctor, another hospital? We don't like the idea of blood clots traveling thru her body. Especially if they're big enough to still jam up the veins and the medicine she's on to thin them isn't really helping?

2 replies...

Life Goes On - maybe some answers for you!
Posted by Kimberly
Last Reply September 15, 2010 at 04:25
Started September 13, 2010 at 15:50
I'm a "survivor" of DVT. After complications from giving birth, I was diagnosed with a DVT in my left leg at the age of 25. My deep vein was filled completely like a hot dog from my ankle to my groin. As most of you know the swelling was ridiculous and as I was being admitted I was told I could possibly die in the next 24 hours while they started administering blood thinners. After 24 hours cleared, I was told my leg would possibly be amputated as this clot was the worst they had ever seen. Well, I didn't die...and I didn't lose my leg. A couple years after diagnosis, the clot completely disolved. However, I do have "valvular incompentency" now (the valve doesn't open and close behind the knee properly anymore due to the clot). I am no longer on blood thinners.

It has been 15 years since this happend, but believe me, sometimes feels like yesterday. My left leg has remained 1 inch bigger than the right leg (no one can tell but me) and I can not run without my leg swelling up l... read more

5 replies...

PE experience
Posted by Marie
Last Reply September 15, 2010 at 02:46
Started September 10, 2010 at 21:56
This site is filled with knowledgable people..I am hoping that some of you can share some insight as to your personal experiences when you developed a PE, and at the same time alleviate some of my fear.

I was diagnosed in Jan 2010 with a blood clot in my popliteal vein, with unknown cause. At that time, there was no indication of a PE. I was on warfarin for 6 months, and have been off of it now for approximately 3 months. I have made several lifestyle changes since my original diagnosis..including walking two miles on a treadmill at least 4 times a week.

I have been experiencing leg pain off and on since I was diagnosed. The pain started again last Friday. However, my leg is not swollen (it was in Jan) or red. I attribute it to PTS. Over the past week, I have experienced pain in my rib cages. It's not too bad when I first get up in the morning, but by bedtime I feel like someone has used my ribcage as a boxing bag. Am I correct in assuming that, since the pain comes ... read more

4 replies...

Wafarin and Menorrhagia
Posted by Neeti
Last Reply September 13, 2010 at 12:51
Started September 13, 2010 at 11:06
I fount out 2&1/2mths ago that I have DVT in my leg and started warfarin for it. Since then I have been suffering from astronomical blood loss during menstration and lasting for 2weeks straight each time, with big clots in it. I have to wear a tampon and pad at the same time and change every 30mins, at night I have to wear one of my babies nappies to bed, It's heavier then maternity blood loss even. I was woundering is this normal and has anyone else had a similar experience?

4 replies...

...about PTS?
Posted by Michelle
Last Reply September 11, 2010 at 12:16
Started July 19, 2007 at 16:21
Hello everyone: Well I have some good news! I went to get the results from my Hematologist yesterday regarding the blood tests I did at the end of May. Everything came back completely normal and therefore, no genetic / hormonal clotting factors!

My DVT / PE's July '06 were caused purely by bad luck, by my work-related knee injury, immobility and leg brace (also a factor was Yasmine BCP). Anyway, my lungs seem to have healed with no noticable symptoms, however my leg is really screwed up with the discolouration, tingling, numbness - I'm a major fidgeter and can't stand or sit for very long. I was diagnosed with PTS (post-thrombotic syndrome) and told I will have this for the rest of my life. The vein is permanently and irreversably damaged.

QUESTION: as this is work related, my DR is going to fight with me to get either a settlement / life time coverage. I would like to know if anyone has had PTS for years now and what I might expect? Will what I have now get worse? ... read more

6 replies...

safe birth control and dvt
Posted by jamie
Last Reply September 10, 2010 at 21:49
Started September 7, 2010 at 13:18
I had a dvt almost a year ago in my right leg just below my knee. I had
surgery on my knee and i was on birth control. Both were deemed to be
the reason i developedthe dvt. I was told i could never take birth control
again. I was in the pill. I was wondering if there is a safe birth control out
there other than abstaining from sex and condoms. From what i
understnd estrogen is what causes the risk for dvt in birth control pills.
Is there any out there that are estrogen free or are safer than others to
take?

3 replies...

Multiple rare problems is this possible
Posted by Ju
Last Reply September 10, 2010 at 20:59
Started September 10, 2010
I have had a large DVT belly button to ankle and a PE and following sum begging had the DVT treated with TPA and currently have a lovely leg :-) But I am under the care of several consultants and all have a diffrent diagnosis all of which are rare and I am having problem believing they are correct so does any one elsze have multiple diagnosis like mine.
I am menat to have May Turner Syndrom MT
Heperin induced thombcytopenia HIT
Huges syndrom
Lupus
APL
On top of this I am using Fondaparinux and although average weight have now had to reduce the does to 1/3 the correct does as I have high levels of anti-Xa. Could this all rwlate to the medication or could I really have all the above condiytions plus a strong reasction to arixtra

3 replies...

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