DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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DVT in femorial vein also 28 weeks pregnant
Posted by Michelle
Last Reply September 8, 2010 at 21:25
Started June 10, 2010 at 05:35
I am 28wks pregnant and just found out that I have a DVT in my femorial vein in my leg. It started out a few wks ago I was having bad lower left side back pain well the pain got worse and I went to the hospital as they wanted to make sure it wasnt pre term labor. Wel they let me go and thought it was a musscle due to workibg out at the gym. Then a day later pain started shooting down my leg so I called advice nurse she said just to rest and elevate leg. The very next day my leg was very swallon, by the time I made it to hospital it was 12 in bigger than other leg. They did a ultrasound on leg and said I have a DVT in my femorial vein. I was hospitalized for 4 days and now at home and still to painful to walk. My husband has to give me Lovenox shots twice daily in my stomach for 6 months. Also they said the medicine dont make the clot go away it just prevents new clots not to form. So I have been just praying that this one will go away on its own and will not travel. I know God ... read more

10 replies...

Stopping warfain and PTS questions
Posted by Don
Last Reply September 8, 2010 at 12:56
Started August 5, 2008 at 01:13
Don't know where to start. I had ankle surgery 8 months ago. Got DVT in thigh to knee. My thigh has never really hurt except a few sharp pains now and again. My problem is my foot/ankle. Blood pools there and the feeling is a constant buss like a small electrcal current going through the entire foot or tingling as well as the surgery site on the ankle being sore still. At first I could not were the hose because they hurt the surgery area, so it was less painful without them. Lately I've been wearing the hose and they have been helping more.

Now, as of Aug 1st I have come off of 6 months warfain. I am To have surgery in less than 2 weeks to have the screws taken out, so the doc said no aspirin until after surgery. Last night I had the wirst cramp in the leg I think I've since all this. Now today my foot starts to heart like crazy around my ankle surgery site...more than it ever has sine I've been on warfain. It was throbbing as if the blood could not get out...and this was with t... read more

3 replies...

PTS symptoms-BP
Posted by Char
Last Reply September 8, 2010 at 05:53
Started April 25, 2009 at 14:11
PTS can cause higher than normal BP, have researched that issue and read it at several medical websites. My BP has been elevated since my DVT. No other cause after diagnostics can be found, none of my Doctors have mentioned DVT as a cause. DUH

What is post-thrombotic syndrome?
Post-thrombotic syndrome is the name used to describe the long-term effects that can occur after you have had a venous thrombosis of the deep veins of the leg. It is caused by damage to the veins, resulting in higher than normal blood pressure. This increased pressure on the vein walls can damage the valves, which normally work to keep blood flowing properly through your veins. Poor blood flow can lead to pain, swelling and leg ulcers, which are some of the symptoms of post-thrombotic syndrome. Post-thrombotic syndrome can cause serious long-term ill health, poor quality of life, and increased costs for the patient and the healthcare system.

Post-thrombotic syndrome is common in people who have had th... read more

8 replies...

PTS and Disabilty
Posted by Michael
Last Reply September 8, 2010 at 05:52
Started July 1, 2009 at 15:49
Has anyone succesfully received disabiltiy payments from DVT and PTS. I had severe DVT from my kidneys to my ankles, included my IVC which is still totally occluded last year. For the first 4-5 months after thr clots were removed with clot busters, my legs were weka but "felt" ok as far as pain and fatigue. Over the last few months , I seem to be developing PTS (post thrombsosis syndrome) The longer I am on my feet the more pain and fatigue I feel. If I lay down for awhile it goes away. I work in a warehouse and am on my feet all day. By the time I get done with an 8 hour shift, I can hardly walk and when I get home I have to spend the rest of the night laying down to make the pain and fatigue go away. I don't know how much lonbger I am going to be able to work. I cannot afford to just not work and was wondering if anyone else is receiving disabilty for PTS and DVT.

2 replies...

PTS and stockings
Posted by debbie
Last Reply September 8, 2010 at 05:52
Started October 29, 2009 at 12:03
It is coming into summer here in Australia and I have had my DVT since March this year. Just wondering what the effect would be by not wearing the stocking every now and then. It is going to be too hot for jeans or long pants and it looks really silly with shorts! I know I am being vain but was wondering what your thoughts are on the effects of not wearing the stocking every now and then.

9 replies...

PTS after DVT
Posted by Me
Last Reply September 8, 2010 at 05:51
Started May 4, 2010 at 20:23
I had a massive DVT in my leg. I was on heprin, then the shots and then coumadin. My clot cleared afer 6 months. I wore a 20-30 compression stocking daily. Once in awhile i could go without a tocking if i was not on my feet much. i was pretty good for a year. I was able to go for walks (with hose) and be pretty normal. All of a sudden this year (1.5 years post DVT) as soon as it turned hot I had sweeling, pain and similar symptoms to when I had the actual DVT (this ever happen to anyone?) I was dx with PTS. I now have to wear a 30-40 stocking. It is not comfortable.

My question is....why would my leg all of a sudden get worse? I asked the vein doc and he didn't know.

I feel set back and am afraid my leg will get worse and worse and worse over time.

Any insight appreciated.
(p.s. I gained 20 # b/ci could exercise like i used to...whoch could be causing it...but i can't exercise like i used to to lose the weight. catch 22)

3 replies...

Possible PTS Signs - Help Needed
Posted by Mike in Aus
Last Reply September 8, 2010 at 05:49
Started July 16, 2010 at 03:19
Hi all,

Well I've finally come of Warfarin after suffering a major clot (below the knee to the ankle) and I've noticed that on occassions i am standing or havn't got my legs raised (e.g. shower, going to bathroom in the evening) that along the top of my foot a red area develops and stays that colour. It's a pretty deep red and when I elevate it it disappears. My doctor thinks it could be a reaction to the compression stocking causing it as I have no swelling problems or any redness anywhere else on my leg but I'm really worried it is PTS. Has anyone else who has PTS experienced this on the ridge of their foot? Any other possible causes for this redness?



5 replies...

DVT was okay...now its not?
Posted by Krystal
Last Reply September 8, 2010 at 05:26
Started September 8, 2010 at 05:26
I had knee surgery July 24th/10 and I got a DVT shortly after. I was
given heparin and warfarin right after and then discontinued the
heparin after 9 days. I am still on warfarin. Everything was going
good until a few days ago my calf started aching....well today it
hurts so bad that I can't walk. It feels like it did when I first got
the clot. I am on 3mg of warfarin, and my blood wont stabalize. One
week the INR is 4.8 and the next its 1.2. What could make it hurt like
this again? Anyone else had this? Also, ever since I started the
warfarin my teeth are soooo sore. Also, the side of my head (same side
as sore teeth) is also very very sore. Last night I couldnt sleep
because I couldnt lay my head on a pillow without pain. Im not sure if
this is normal or not. Ive read that sensitive teeth is normal but
mine are feeling like when you eat something hot and then have a cold
drink...only they feel like that all the time. Sometimes the air from
just me talki... read more

0 replies...

itchy red itchy blotches after dvt
Posted by zarina
Last Reply September 7, 2010 at 22:48
Started August 13, 2010 at 23:47
I had dvt 6yrs ago after surgery & for the past 4yrs ive developed red itchy blotches on that legwhich looks like excema ive tried all kinds of creams & nothing helps it just gets worse more blotches appear all the time & the itching drives me crazy PLEASE HELP ME I dont know what to use anymore my leg looks unsightly I cover it all the time I also wear compression hose I also have lotsa veins on the leg

5 replies...

Vein valvuloplasty
Posted by EB
Last Reply September 7, 2010 at 22:30
Started February 2, 2010 at 22:02
Has anyone ever heard of this surgery or had one?I recently read a study and it seems pretty promising, the article was from 2007, however Im from the U.S. and I think this review was done in London.

2 replies...

Posted by JACKSON
Last Reply September 7, 2010 at 11:34
Started September 6, 2010 at 03:48
I had a DVT 3 weeks ago. Am on 7.5mg Waffirin and after what semed like 2 good weeks, today I am having reallly sharp pains in my left leg where the clot is. Anything to worry about? I was up on my feet most of the day yesterday & moved some furniture around for cleaning. Should I havr not done much lifting/pulling? the doc said i was ok to return to work.
ALSO: my calf muscle keeps "jumping" ALLOT today. Leg feels like someone just shot me with a .22 for a minute or so, then the pain subsides. Anything to worry about?? thanks!

3 replies...

Why looking after your teeth can prevent deadl
Posted by N
Last Reply September 7, 2010 at 09:03
Started September 6, 2010 at 22:40
Why looking after your teeth prevents deadly blood clots
Last updated at 11:33 AM on 6th September 2010

Brushing your teeth and flossing may be a chore, but it could just
save your life, according to a new study.
Although gum disease has long been suspected of causing heart
problems, scientists have long been puzzled as to how this happens.
Now researchers from the University of Bristol say that a self-defense
mechanism of microbes in the mouth are to blame.
When the bacteria enters the blood stream through bleeding gums they
deploy a protein that forces platelets to bind together and shield the
bugs with clots.
Study leader Professor Howard Jenkinson, said: 'When the platelets
clump together they completely encase the bacteria.
'This provides a protective cover not only from the immune system, but
also from antibiotics that might be used to treat infection.
'Unfortunately, as well as helping out the bacteria, platelet clumping
can c... read more

2 replies...

Need advice-DVT,FVL
Posted by Amy
Last Reply September 6, 2010 at 09:32
Started September 3, 2010 at 04:30
Hi everyone,
I am so glad I found this place,I had searched in the past 6 months but I did not see this site.I had massive DVT in thigh from knee to crotch in December 09 and multiple PE's including 2 large ones by my heart. I did not know I had FVL until then after 4 days in a hospital they told me that I went to a larger hospital that specialized in interventional radiology. Had thrombolytics therapy on my left leg did not respond to the first medication and developed a new DVT in my calf while in the hospital and after I had been on heparin. In April I had a Rectus Sheeth Hematoma and lost atleast 40% of my blood into my abdomen had blood transfusions etc. In July I had another hemorrage in my pelvis. I have a very unstable INR I am on vitamin K therapy to try to regulate my INR along with warfarin. Anyway my problem tonight is over the last 2 weeks I knew my leg was not doing well but I attributed it to this or that. When I had my DVT in DEC. I remember telling my husband "I wi... read more

5 replies...

Posted by andrea
Last Reply September 5, 2010 at 22:59
Started September 3, 2010 at 23:02
Had small dvt in calf 2 years ago following an injury. Scans show that there is no evidence of any clot and doctors say that i would unlikely have another one. But i am still really anxious and worried that i will get another one. Can anyone give me reassurance please? Thanks x

2 replies...

Posted by Tracie
Last Reply September 5, 2010 at 22:56
Started September 3, 2010 at 22:49
I am 36 and was in a motorcycle accident on Sat Aug 21, 2010. I was hospitalized with a dvt in my leg and am now on Warferin treatments after 11 days of the Lovenox injections. I recenlty lost 45 pounds and that took me about 7 months to do. I was very active with 2 jobs and working out at the gym on my lunch. I was told not to be working out or walking and have 6 weeks off of my part time job. I have noticed that my appetite is spiraling out of control and I am very worried that all the hard work I have done to lose the 45 pounds is completely lost. I fear I will gain it back quickly without being able to exercise. I want to work out and be more active, but at this point, I am scared to death of the consequences. I did start doing upper arm exercises, but it is not the same without the cardio. Can any of you give me any kind of a pick me up so I will not lose hope? I dont want to become that obeise person I once was.

2 replies...

DVT and trigger point pain
Posted by Bob D
Last Reply September 5, 2010 at 18:28
Started November 13, 2007 at 18:34
Hi, has anyone else had trigger point type pain with a DVT? By this I mean a localized knotting muscle pain with each of the first steps in the morning or after prolonged sitting pain which can be strong enough to cause limping, which disappears as weight is shifted to the other non-DVT leg during walking, tends to diminish with continued walking, and is not present at rest. There is often localize tenderness when pressing on the painful site This trigger point type pain seems different than the cramps, aches, claudications, and prolonged standing pains that have been so well described in other threads. Is this what some people mean by charley horse?

I ask because that is how the pain started in my lower outer thigh after having a groin to ankle DVT. I got the DVT during my 5th week of being on crutches and started getting the pain as I began using my leg again after the crutches were discontinued on the 6th week. My docs do not seem to know much about it. Because the... read more

17 replies...

Foot massager
Posted by Tina (amyfleur)
Last Reply September 4, 2010 at 19:04
Started September 3, 2010 at 19:36
I'm 6 weeks on from being diagnosed with DVT. I am on Warfarin and have started to wear a surgical stocking.

I want to 'help' myself so I was wondering what kind of exercise I can do to get rid of the blood clots and keep them at bay in the future.

Walking, I know, is an option. But I have arthritis in my feet and cannot walk more than a couple of minutes.

I'm thinking of trying out a 'foot massager' as advertised on TV (UK) and various magazines. It vibrates and is recommended to use with poor circulation and swollen feet and ankles.

Does anyone know if it would be okay to use for DVT?

Thank you very much.

Tina (amyfleur)

2 replies...

Posted by Diane
Last Reply September 3, 2010 at 20:30
Started December 17, 2007 at 05:26
The list keeps growing so I thought it was time to start a new string. Please feel free to add your name and location. We are quite the international group!

1.) Diane, Victoria, BC, Canada (me)
2.) Jo, Tasmania, Australia
3.) Terry, North Wales, UK
4.) Jackie, New York City, USA
5.) Donna, Washington, Pennsylvania, USA
6.) Donna #2, Scotland, UK
7.) Ann, Livingston in West Lothian, Scotland, UK
8.) Valerie, West Ireland, UK
9.) Sue, Skipton, North Yorkshire, UK
10.) Crystal, Baton Rouge, Louisiana, USA
11.) Kim, Aberdeen, Scotland, UK
12.) Gayle, Glascow, Scotland, UK
13.) Justin, Alaska, USA
14.) Sharon, Friendswood, Texas, USA
15.) Karen, Seattle, WA, USA
16.) Denis (Dero), Ottawa, Canada
17.) Pamela, Milton Keynes, UK
18.) Cate, Surrey, England, UK
19.) Donna #3, Wakefield, West Yorkshire, England, UK
20.) PJ, Denver, Colorado, USA
21.) Frances, Florida, USA
22.) Ray, Providence Plantation, Rhode Island, USA
23.) Char, Saskatchewan, Canada
24.) Dan, Pres... read more

53 replies...

Compression stockings
Posted by Cat
Last Reply September 3, 2010 at 10:00
Started September 3, 2010 at 02:05
Was wondering if anyone had any advice on compression stockings? I had a dvt
2 years ago after being very sick in bed. I ve just come back from travelling
round the states where I took a total
of 5 flights over a 4 week period. I wore my medical stockings
for every flight drank lots of
water and exercised my legs a lot. The Internet says wearing medical socks is
very effective
but can't find too much statistics. My leg is a
bit achy but it always is! Any advice would be great.

1 replies...

diet of DVT Patient at home
Posted by Mukesh Khandelwal
Last Reply September 3, 2010 at 09:06
Started December 8, 2006 at 17:56
I was diagnosed DVT in my left leg 3 yrs back. i am still on Acitrom.
Is it cureable?
Can anyone tell me what should be the diet of a DVT patient which are easily available at home.

Pleas reply me on my emailid muk944@yahoo.com

5 replies...

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