DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Tested positive for Lupus Anticoagulant
Posted by Martha
Last Reply September 2, 2010 at 10:18
Started September 1, 2010 at 20:52
Hi,

I had my DVT back in Decemeber/January (no known cause) and have been off warfarin for about 3 months now. I had a thrombophilia screen some weeks back and went to see the consulatnt today. She told me I had tested positive for the Lupus anticoagulant and I have to retest in about 6 weeks. She told me we would talk more about it next time.

Has anyone had the same results and what does this mean?

1 replies...

Work
Posted by Susanna
Last Reply September 1, 2010 at 15:53
Started August 31, 2010 at 13:29
Hi everyone,
I've noticed there are a few people on this forum who took time off work with their DVT. I went back to the office the day after my diagnosis, but was wondering whether you were told not to go to work by the doctors? They didn't say this to me. I'd rather not be working to be honest as my leg really hurts just sitting at a desk all day, but not really sure I can broach this with my employers if there isn't a proper medical reason for it and my doctor hasn't said anything. Is time off normal?


3 replies...

Pain in leg during excercise after recovery
Posted by Lobo
Last Reply August 31, 2010 at 20:40
Started May 26, 2010 at 14:38
I had DVT in my right calf and a PE in November 2009. I'm on 5.0 warfarin a day, no injections.

Before this happened to me I was a runner. I would run 30 minutes a day 5 or 6 days a week. It's the only work out I can tolerate and stick to, I like it.

Today I went running for the first time since this happened to me, the hemotologist told it was okay to run again a few weeks ago.

My breathing is great, I felt I could have done my entire routine the first day back out there but my leg was no co-operating.
After about 2 minutes of running I had to stop because of the pain in my leg. After a few minutes the pain goes away.

My left leg was fine.

Will the pain in my right leg ever go away during running or is this with me for life? I'm assuming the circulation still isn't 100% back to normal and from what I understand probably never will be. The doc told me that even though I'm on warfarin that the inside wall of the vein still has some of the clot left behind and that ... read more

3 replies...

varicose veins
Posted by N
Last Reply August 31, 2010 at 15:50
Started August 31, 2010 at 15:46
Me and my operation: A blast of energy that could spell the end for
varicose veins
By CAROL DAVIES
Last updated at 9:13 PM on 26th July 2010

Millions of Britons suffer from varicose veins. Cindy Bourne, 55, from
near Rochester in Kent, who runs a plastering business with her
husband Stewart, underwent a new, less painful procedure, as she tells
CAROL DAVIS.

THE PATIENT

As a keen walker, I've always been pretty fit and active - and as a
plasterer, I'm up and down ladders every day. But when I was expecting
my son Ian in 1979, I started to notice knobbly blue veins on the back
of my calves.

They weren't painful at first, but as they got worse they started to
ache unbearably, especially if I'd been standing around or shopping.
My GP said they were varicose veins - swollen veins caused when the
valves become faulty.

He explained that normally these valves open and close to keep blood
travelling to the heart, but when they fail to close properly, ... read more

1 replies...

Smoking and Clots, the science?
Posted by Wondering
Last Reply August 31, 2010 at 13:35
Started December 8, 2009 at 23:50
Anyone know the science behind HOW cigarettes increase the blood's ability to clot? Looking for the science behind it...

1 replies...

Coumadin for 6 months already
Posted by Gloria
Last Reply August 31, 2010 at 13:11
Started August 31, 2010 at 02:53
Im 27 i was 26 when diagnose of a dvt from my groin to my knee on the left leg.
5 months before thT i had my first baby then was on nuva ring for 3 months and
they said it was the birth control that did it well that they think did it. They did an
ultrasound on my leg and blood clot is gone its been gone since may :) and i
been on coumadin for 6 months already and they want to get me off it and im
soooo scared i dont want a blood clot to come back :( has that happen to
anyone? That after getting off from blood thinners a blood clot comes
back?????

2 replies...

help with compression hose
Posted by Linda
Last Reply August 29, 2010 at 23:31
Started August 27, 2010 at 13:32
I hope you don't mind if I trouble you for assistance. You see, I've only just begun wearing support hose this summer. I tried a couple brands from our local Walgreens, Futura and Jobst, and neither accommodated my large feet and long legs very well. So I tried an online retailer for Sigvaris 120p. In that brand and style I'd wear a size E. The first pair I ordered fit very well, although there was a little over-stretch where the hose meets the panty. However, I was tickled at the fit and ordered 3 more. I am a little frustrated that out of the 4 total, only the first one fit the best and all 4 pair, although they were all size E, all seemed to be sized differently. I mean you could hold them all up together and the lengths', waist sizes were all different. The worst part of it is that the differences were painful - ie, one pairs waist was so small it hurt.

Anyway so I though I might try another brand, from a different online retailer. But I'm hesitant. Is what I described above ... read more

2 replies...

08-27-10 DR. VISIT
Posted by KEVIN @ TENNESSEE
Last Reply August 29, 2010 at 01:33
Started August 29, 2010 at 01:33
WENT TO THE DOC YESTERDAY FOR A POST-HOSPITOL FOLLOW UP & FOUND OUT THE TEST SHOW MY DVT WAS HEREDITARY & NOT FROM DRIVING THE TRACTOR OFF INTO THE SINKHOLE. ALSO SAID I WOULD BE ON CUMADIN FOR THE REST OF MY LIFE! DANGIT!
ALSO WEARD, FRIDAY A WEEK AGO, MY INR WAS 4.0 YESTERDAY IT WAS 1.9 SO HE UPPED ME TO 7.5mg DAILY


0 replies...

Data & Recommendations for DVT/treatment
Posted by pamela
Last Reply August 26, 2010 at 14:30
Started August 11, 2010 at 06:53
Peer-reviewed journals! The good stuff. My hematologist turned me on to the
current recommendations for doctors in treating DVT, and I was shocked, given our
normal experience, that this is available in full text format without a subscription.

The current recommendations can be found in CHEST's (American College of Chest
Physicians, specializing in multiple disciplines) June 2008 issue. Apparently
updated about every 3 years, so this info is still good for about a year. You can
find all related articles here:
http://chestjournal.chestpubs.org/content/133/6_suppl

You will find the meat of the information just under the executive summary titled
"Antithrombotic and Thrombolytic Therapy: American College of Chest Physicians
Evidence-Based Clinical Practice Guidelines (8th Edition)," but you will also notice a
lot of available information on participating doctors (very internatio... read more

2 replies...

Post - DVT Flying
Posted by kb
Last Reply August 26, 2010 at 09:33
Started August 26, 2010 at 06:02
I haven't been on this site in a while, so sorry about that as I make it a point to give back where I can. I have seen a few comments on flying so I will share my knowledge. I had a left leg DVT and bi lateral PE's in Dec 08 (very scary time in my life as it was for many on this site - I was 39 male and extremely active). My condition was never fully diagnosed however I fly internationally alot - many times in coach...so that is my smoking gun, I am sure of it. Anyway, I am happy to report being 1 year warfarin free this past July. I still travel a lot internationally (just got back from an overseas flight a few weeks ago). Here is what I do differently now:
1) I demanded my doctor write me a perscription for Lovenox (low dose) shots that I take prior to my flight. It thins the blood quickly and lasts for 12 hours. I usually take another in flight as I am flying longer than 12 hours (always fun in the airplane toilet). It is expensive, but if your insurance can cover some of it you... read more

1 replies...

Looking for Vitiligo Treatment ???
Posted by Kumail
Last Reply August 25, 2010 at 10:45
Started August 25, 2010 at 07:43
Vitiligo is a fairly common condition that causes pale, white patches to develop on the skin. This is because that particular area of skin has little or none of a type of pigment called melanin.

Any area of the skin can be affected by vitiligo, but it is most commonly seen in parts that are exposed to the sun, such as the face, neck and hands. It is more noticeable on people with dark or tanned skin.

The condition varies from person to person. In some people only a few small, white patches will appear and progress no further, whereas in others the patches may get bigger and join up across large areas of the skin. There is no way to predict how much of the skin will be affected, and the white patches are usually permanent.

About 1 in 100 people in the UK develop vitiligo. The condition can occur at any age, but begins before the age of 20 in about half of all cases. Both men and women are equally affected.

The exact cause is unclear, however, vitiligo is not infectious an... read more

3 replies...

DVT at age 24
Posted by Freddy
Last Reply August 23, 2010 at 02:05
Started August 23, 2010 at 02:05
On September 21, 1979 while sitting at home watching The Roper's on TV I got this pulled groin feeling in my left leg when I got up to get a beer. I was alone at the time. It did not seem like a big deal at first then about 10 minutes later I noticed my jeans getting tighter.

I went upstairs to change them when I noticed my swollen and blue/purple thigh as my toes began to lose feeling. I made it back downstairs to the phone and called an EMT friend of my father. When he saw the leg his eyes almost bulged out of their sockets. He simply said what hospital do you want to go to?

It took about 30 minutes to get to the UMASS Medical Center. By this time I could not feel anything below my knee. The doctors in the ER were residents and interns who asked the same set of stupid questions.
Finally, one asked me what I thought was wrong and I said, "I have blood clot in my leg." Their response was, "twenty-four year-olds do not have blood clots." Brilliant!

By this time the pain was... read more

0 replies...

Warfarin - cause of elevated Liver Levels?
Posted by Marie
Last Reply August 23, 2010 at 01:17
Started August 23, 2010 at 01:17
Hi everyone - has anyone had elevated liver levels while on Warfarin?

I'm on a very high dose of Warfarin (15mg for 6 days, 17.5mg for 1 day) because it interacts with the medicine I take for Crohn's disease (mercaptopurine, 6MP). I've been on the Warfarin since December (dvt and bilateral pe) with no "exit strategy" since the docs don't know on what caused the clots. (That's another story - I'm trying to track down if I ever had a positive Anticardiolipin test. Was told I did by one doc who at the follow up appt didn't remember that and couldn't find that test. Argh).

Anyway, my Liver Levels (ALT and AST) have been rising - in Feb and May they were slightly elevated, and now both are moderately elevated (ALT is 132, AST is 220). My GP thinks this is caused by the Crohn's med because that's a known side effect (that is why they are checking my liver levels regularly). But I was on that same Crohn's med for more than 12 years as a teen/young adult and it never affected my liver... read more

0 replies...

Yet another question for char !
Posted by Claire
Last Reply August 22, 2010 at 21:51
Started August 21, 2010 at 15:19
Hi Char
Can you tell me if your insurance covered all of your coagcheck monitor, seeing as I'm going to be on Coumadin for another year at lease, maybe forever, I think its a good idea to get one of these. I work in Celebration hospital & it's no trouble to go to the coumadin clinic there, but it costs $40 for a little finger prick !, which machine do you have ??

Regards x

7 replies...

Stockings & broke
Posted by Kay
Last Reply August 22, 2010 at 20:05
Started August 21, 2010 at 20:48
have hadd dvt for about a month now. have been out of hosp. for 2 weeks.
problem is i am on the unemployeed list due to our company going bankrupt and now have no income or insurance.
doctors tell me i have to get compression stockings. i am almost flat broke, the hosp. took care of most of my nest egg & savings acct & checking account, and now I have almost nothing to live on expt my husbands tiny income & it just barly pays housing & food cossts.

I had an idea after puting on my thigh highs to go to church last sunday......Why cant I just use a small size tight fitting pantyhose or thigh high instead? i am 100% sure the support would not b as good as proper fitting compresion stockings, but would not it be better than nothing? Even if I put on say 2 layers at a time???

I may not be able to view this after a couple of weeks as our internet is going to be turned off due to lack of funds. Please, any help quickly is great thanx kay beauler

4 replies...

NEW TO DVT, CONFUSED
Posted by KEVIN @ TENNESSEE
Last Reply August 22, 2010 at 15:27
Started August 21, 2010 at 20:31
August 13th 2010 (Friday 13th, go figure) I was admitted into the hospitol & diagnosed with DVT. I am 33 years old, in great shape (Was) and up untill a couple of days ago, was a heavy smoker.
It has not been confermed, but the blood clot was thought to have been started when I ran our tractor off into a sink hole & got tossed around & banged up a bit. However, my father has a long history of health problems. (He had a stroke when he was only 37 or 38)

NOW, Here is my conflits: I was told when I was released from the Hospital that I could slowly resume my regular work schedule. I am a parts department manager at a farm tractor dealership and am up on my feet 4-5 hrs a day, and sitting 3 to 4 hrs a day. NOT very great for DVT sufferers. So should I be at work 9 to 12 hrs a day, or continue working only 3 to 5 hrs a day?
2) My wife found out that in 2006, 900,000 people had DVT, AND 200,000 PEOPLE DIED from complications with PE after having DVT. Yet a few people we know... read more

3 replies...

GETTING PREGNANT WHILE BEING TREATED FOR DVT!
Posted by Angie
Last Reply August 22, 2010
Started August 21, 2010 at 22:34
I have been on Coumadin for over 3 months now. Been a very rocky road for me. Well yesterday I found out I was pregnant! I am lost for what I should do? I dont have money for the lovenox injections. They are waay too expensive. I am a single mother, Who cannot work due to the DVT from the left kneecap up to the pelvis. What are my options? What can I do? Im only a month pregnant and extremely sick, and tired already! PLease help!

3 replies...

May Thurner: how can i alleviate symptoms?
Posted by Adam
Last Reply August 21, 2010 at 13:29
Started August 20, 2010 at 14:12
Hi,

I have MS and recently had a Catheter Venogram to check for CCSVI,
which i had a balloon angioplasty to treat,

but in the venogram it was noted i also had May Thurner syndrome -
narrowing/compression of the left illiac vein,
I have always had a v faint tenderness of th eleft thigh but just
thought i easily pulled that muscle.

So since my internal jugular veins were dilated my left leg
tenderness/stinging has become a lot more uncomfortable,

so as i will not be getting the M-T treated for a month as i dont want
to treat more than one thing at a time, is there any tips to relieve
the stinging/tenderness discomfort of my left thigh?

thanks

3 replies...

Treament for new clots that works!
Posted by Ju
Last Reply August 19, 2010 at 16:42
Started August 18, 2010 at 09:31
I found this site about 6 weeks ago after having a suspected DVT in my right calf. I was put on to Tinziparin injections until the leg could be scanned. The scan 7 days later was negative and over the next few days the pain in the calf went but my breathing deteriated. The breathing was not to bad but was persistant so I went back and had a lung scan one week after the calf scan. This showed a PE and I was put back on the injections. One week later I woke up with a swollen left leg from the crutch to ankle. This was scanned 5 days later with the clot found to go from my belly button to the ankle. I was rather upset about the new clot so did a lot of research and found new clots could be treated with the clot busting drug TPA. I stormed around saying I would go anywhere in the UK and pay to have the treatment if a Dr could refer me. I met with a blank wall from the GP and acute hospital GP so I kept shouting. The afternoon after my leg scan I was called by a valscular consultant who ... read more

11 replies...

Cost of clot scan on my leg?
Posted by Niamh
Last Reply August 19, 2010 at 03:34
Started March 29, 2009 at 02:01
Hi everyone,
I hope someone can help me. I have been suffering pain in my calf for a few weeks now, within 10 minutes of sitting down I am in pain. In the past couple of days it has spread to my upper thigh and now hurts when I walk.
I am due to get a Sector Colour Doppler test on my lower right leg on Monday morning. I am still sorting the insurance out and may have to pay upfront and claim later. Can anyone tell me roughly (in USA or Canadian dollars if possible!) how much this will cost? (I am not a permanent resident in this country so I don't qualify for healthcare.)

Thanks

Niamh

4 replies...

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