DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 154 of 237
Question for Char
Posted by Claire
Last Reply August 15, 2010 at 21:42
Started August 14, 2010 at 20:18
Hi Char,
I have an appt to see Dr Sam Martin in September, I see from one of your old posts, that he did laser surgery for you. How did that pan out ?, I'm not sure he'll be able to do anything with my clots as they are over a year old.
If you don't mind me asking, what was your out of pocket cost??

Regards

2 replies...

Magnesium supplements
Posted by Claire
Last Reply August 15, 2010 at 19:47
Started August 14, 2010 at 18:05
Hi

I am wondering about Magnesium supplements, I am taking 10mg Coumadin daily ( apart from one day where it's 7.5), I also take a womens daily multivitamin which I know has Magnesium in it. I'm just wondering if it's safe to take an extra supplement of Magnesium ??

4 replies...

Post Dvt and heat in leg
Posted by chris
Last Reply August 15, 2010 at 11:20
Started August 15, 2010 at 03:56
Hello all ,

I am 34 male currently travelling the world after having a very large DVT with a PE last yr feb 09, after being told that i would lose my leg , thankfully i had a very good haematologist that argued my case with surgeon who wanted to cut it off !

I am self testing as i have my own inr machine , i test every week and always around 2.0 . 2.5 , overall i am very healthy probably more so than before my DVT.

however in the last few weeks , i am getting a very hot leg where i was affected last yr, almost burning and can feel though a pair of jeans or thick pants , can anyone shed any light on this , as i am not home for another 3 months and a little worried about this .

Chris UK in Australia at the moment :)

Many thanks in advance :)

2 replies...

Post Dvt and heat in leg
Posted by chris
Last Reply August 15, 2010 at 10:54
Started August 15, 2010 at 03:57
Hello all ,

I am 34 male currently travelling the world after having a very large DVT with a PE last yr feb 09, after being told that i would lose my leg , thankfully i had a very good haematologist that argued my case with surgeon who wanted to cut it off !

I am self testing as i have my own inr machine , i test every week and always around 2.0 . 2.5 , overall i am very healthy probably more so than before my DVT.

however in the last few weeks , i am getting a very hot leg where i was affected last yr, almost burning and can feel though a pair of jeans or thick pants , can anyone shed any light on this , as i am not home for another 3 months and a little worried about this .

Chris UK in Australia at the moment :)

Many thanks in advance :)

1 replies...

Swollen leg
Posted by Lucy
Last Reply August 14, 2010 at 17:51
Started August 14, 2010 at 13:48
Hey, This is my first time on this site and I'm wondering why I never found this earlier would have been very supportive at the start of my DVT.
I developed a clot at the beginning of this year and was on medication for 6 months which I have just come off. My left leg which is where the DVT developed is still bigger than the right leg and it gets me down from time to time seeing as I'm 18 and never expected this to be something I had to worry about at this age. So I was wondering if anyone knew any exercises or anything that might help reduce the size back to normal and whether this is common?

2 replies...

DVTthree weeks ago
Posted by pauline
Last Reply August 14, 2010 at 11:02
Started August 12, 2010 at 20:42
My husband had a dvt in his femoral vein three weeks ago. I recognised the signs and got him to hospital, he was given heparin for three days and has been on warfarin ever since.Would it be safe to make love , he thinks it would but I am not sure and just dont want to do anything that puts him at risk. Please could anyone give any advice, I am aware the clot is still there and would rather wait for a few months.

6 replies...

Coumadin intolerence
Posted by Rick
Last Reply August 13, 2010 at 18:23
Started October 21, 2008 at 21:27
I've read on here where some people with dvt's taking coumadin
have side effects and have to switch to Lovenox or Arixtra.
What were your side effects???
I have been on coumadin for 1 month and have not felt good from the
beginning. Nausea seems to come and go all day long.
I was diagnosed with 2 small clots in my upper calf and a larger
dvt in my inner thigh. After four weeks the 2 in my calf are finally
starting to heal or be absorbed. The larger one in my thigh still
hurts as bad as day 1.



7 replies...

Chest infection three weeks after DVT / PE ?!
Posted by Clarky
Last Reply August 12, 2010 at 10:38
Started August 9, 2010 at 14:14
Hi folks,

Have been reading the forum with interest one and off over the past two or three weeks.

I ended up with a DVT in my calf after a flight home recently. This was missed inititally by hospital and two days later i was rushed back in with chest pains. To cut a long story short i had clots in both lungs and diagnosed with a pulmary embolism.

I have been back home for nearly 4 weeks now and getting better slowly but surely. Last week my girlfriend contracted a cold. Typically it passed her over in a couple of days and then i caught it, same symptoms etc.

It has passed me over too but i still feel it in my chest. Nothing too major as this usually happens to me over year or two after a cold (i'm only 26) and if it hasn't shifted by the end of the week i would go to the docs to get amoxicilin to help flush it out and bring up the mucus.

The thing i am wondering about is does my recent PE and DVT mean i have to be extra vigilant of anything and/or at higher risk of ... read more

2 replies...

Very frustrated
Posted by Melanie
Last Reply August 12, 2010 at 10:34
Started August 7, 2010 at 06:08
Please help! I taking 10mg warfarin a day ( I was diagnosed with dvt 2 years ago, and it is the 2nd one I've had! ) I am now on it for life. The trouble is I feel awful most of the time, headaches, numbness and tingling in feet and fingers, painful joints, lack of concentration and evening slurring my speech on occasion. I am convinced it is the warfarin as I seem to have most of the major side effects, but why is it that my warfarin clinic and GP both say that it can't be. My GP even try to make out I was depressed but I only feel down because I feel yuk! I believe there are alternatives to warfarin and I know it is potentially a life saver ( as no warfarin = blood clots ) but do they not offer one because warfarin is cheaper? I am trying to carrying on with life as normal, I am very busy running my own shop but work 6 days a week and am very tired anyway without feeling like this. I am 39 but most days feel like a women of 100! Does anyone have any idea who I could speak to next a... read more

3 replies...

Scared & seeking advice
Posted by Jilly
Last Reply August 12, 2010 at 10:18
Started August 5, 2010 at 01:06
Hi all -- I am so glad to have found this forum and am so relieved to have some people to turn to!

If you will forgive a bit of a long and sad-sacky story, 2 years ago I lost my job and have been in and out of a depression since then. I stopped exercising (I know, I know) and gained a lot of weight from my already overweight point, and as a kicker -- I smoke. So really, I kinda deserve to drop dead, and I know that ... it makes me ashamed but does not shake me out of my stupor. I have spent most of my time on my laptop -- curled up in the corner of my sofa, one knee in the air, on knee tucked underneath me, with the computer perched on the arm. Hours and hours and hours in this position over the past 2 years.

Last week I went to the movies, to one of those theaters where you have to walk like a mile to get to your show, and I got a cramp in my leg. Generally when I get leg cramps they are in my calf, but this was very high on my thigh, almost to my butt (in my right leg... read more

9 replies...

dvt and flying
Posted by cat
Last Reply August 12, 2010 at 04:54
Started August 3, 2010 at 22:09
some advice please!! i had a dvt 19months ago, it was a fairly small dvt in my right lower calf, i had usual treatment for 3 months and although it still aches luckily it has not returned, i am flying to new york on sunday and im getting very anxious about the flight. once there i ll be taking a further 3 flights whilst we travel around, i went to the dr and he will not give me clexane as a one off but i ve got compression stockings. was wondering how effective the stockings are and if anyone else freaks out now at the prospect of getting on a plane, i really dont want this to be an issue as i just want to enjoy my holiday but the panic is kicking in.

3 replies...

Ultrasound update
Posted by Claire
Last Reply August 10, 2010 at 20:59
Started August 4, 2010 at 15:22
I had my ultrasound on my legs this morning, the one on my right leg (occluded from popiteal to femoral), is still present with good blood flow but I have grown 2 collateral veins, which I think is good news?, the one on my legt femoral has shrunk a bit but has extremely good blood flow.
Whilst this is not the news I was hoping for, it is what I suspected, I asked the radioligist how they can tell a new blood clot from an old blood clot & she said its almost impossible to tell, but she said she had never seen 2 collateral veins to compensate, only ever 1.
I'm a medical mystery lol.
So now to my hematologist for results from my blood work & to find out if I can come off Coumadin. Lets hope so ...........

1 replies...

DVT and Chicken Pox
Posted by Alison
Last Reply August 10, 2010 at 20:55
Started August 10, 2010 at 11:15
I was diagnosed with a DVT in May 2010 in my right leg after a flight to Cananda for mt 50th birthday. A week ago I have been diagnosed with chicken pox although I had chicken pox when I was 5. Is there a connection the spots are worse on my legs, behing my knees and under my arms

1 replies...

Would you recommend a vascular surgeon ?
Posted by Claire
Last Reply August 10, 2010 at 20:46
Started August 10, 2010 at 19:33
Hi all
I've had my clots ( one in each leg), for almost a year, with very little improvement, apart from growing 2 new colatteral veins in the major one. I'm told to be on coumadin for another year, then maybe for life depending on the results from my ultrasound then.
I have no clotting dosorders, I got them on a long haul flight.
I'm just curious as to whether it's worth it to see a vascular surgeon, to see if there's anything that can be done to remove the clots my body hasn't dissolved.

Any advice would be much appreciated.

2 replies...

Menstruation and INR
Posted by Gabbismom
Last Reply August 10, 2010 at 15:52
Started August 10, 2010 at 15:52
Has anyone experienced a decrease in their PT/INR during PMS and menstruation? I am 35 yrs old and developed a DVT/PE this January. I have been hospitalized 4 times this year with DVTs and each time I am just starting my mentrual when the pain starts and my INR/PT drops. I have seen two hematologists and no one can get my INR theraputic/consistant for more than 2 weeks. The one thing that is the same each time my INR drops is the time of the month/cycle. I had never put that connection together until last month. I have discussed it with my docs and they are looking to see if there could be a connection. I have had numerous tests and thousands of dollars later I am exhausted and desperate for help. One thing I should add is that when I had my daughter 14 years ago I hemoraged and had numerous blood transfusions. I had what they called Help Syndrome and D.I.C was another term used during that time. I dont know if these could be a factor but maybe someone has had something similar.

0 replies...

when to stop warfarin
Posted by pkg
Last Reply August 10, 2010 at 01:00
Started August 9, 2010 at 04:35
I have been taking warfarin since last one year. I have fully recovered from DVT. I need advise as to when to stop the treatment. My INR is stable and is abt 2 with treatment. I have been taking warfarin 5mg/daily. Please advise.

1 replies...

high inr levels
Posted by micro
Last Reply August 9, 2010 at 21:41
Started August 9, 2010 at 21:41
My Mum has been put on heptarin and warfarin following a blood clot in her arm. INR
was over 10 yesterday so the hospital took a chest x-ray and seemed happy with
that. Heptarin and warfarin have now been stopped and she has been given a dose of
Vit K. . Anything I should be asking the doctors - I dont' know whether to be
concerned or whether this is normal til things have settled .


0 replies...

On Comadin long term
Posted by Claire
Last Reply August 9, 2010 at 16:25
Started August 9, 2010 at 16:25
So i've just seen my hematologist who has reviewd my ultrasound & blood test results , and has recommended I stay on Coumadin lon term, by this, he says I should have another ultrasound in a year, if both clots ( 1 in each leg), have gone, then we can discuss the possibility of coming off of it, but right now the risks of coming off of it with blood clots still present, outweigh the benefits of staying on it. I'm fine with this, it took me a while to get my head around it initially, but I feel safer on it as my clots have only improved a little in the year I've had them.
I have no clotting disorders.
I feel fine, keeping my weight down, excersizing regularly, keeping hydrated, no pain swelling or discoloration, so I feel lucky x

0 replies...

Muscle pain after DVT
Posted by Simone
Last Reply August 9, 2010 at 02:49
Started August 9, 2010 at 01:15
Hi everyone,
I was diagnosed with DVT in my left calf after a long haul flight 10 months ago and received heparin, warfarin and stocking treatment to deal with it. Warfarin gave me a lot of problems especially haziness and pain whenever my INR level went beyond 3. I found it difficult to stabilise my levels and they regularly fluctuated between 1.3 and 5.4. At the time the levels were high, I started to get bad pains in the muscles at the back of my legs, especially thighs and buttocks. I turned from being a very flexible person into someone who felt like a stiff and creaky 80 year old. While my clot dissolved within 10 weeks and I was off the warfarin after 3 months, the pain in my legs (both) has remained and intensified. The doctors have no answer and tell me to keep stretching which is very painful and also does not seem to improve the condition of my muscles. This pain also causes problems when I am driving. After 30 minutes in the car, my left lower thigh hurts so much I have... read more

1 replies...

DVT....
Posted by Thankful
Last Reply August 7, 2010 at 22:52
Started August 5, 2010 at 23:16
Hello to you all, I am new to this following some invasive internet seaching for some support groups about this dvt thing.

Im out of hospital about a wk now, after being in for 3wks, due for follow up in 3days to the hosptail again. Excuse the talk but I feel like death! The pain in my leg is unreal, still very swollen, looks like corned beef, and hard to walk around on, not to mention the fact that they have released me prob with still a small PE on my lung, cause I can barely make it up the hallway of my house. Im on Clexane injections twice a day, and am bruised to the hilt from it, like Ive gone 10 rounds with Mike Tyson. Im also anaemic, I look like a ghost according to the nurse who took my INR today in the OP Department of the local hosp.. My hospital doctor gave me a copy of a letter which he sent to my family doc to update him, this is what it says: "presented with an extensive DVT. At time of the angiogram, it was noted that I had a complete occlusion of the lower i... read more

4 replies...

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