DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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false ultrasound reading?
Posted by J Dale
Last Reply July 24, 2010 at 15:45
Started July 24, 2010 at 04:48
I just got an ultrasound to assess my lower leg blood clot that I've had for three
months (basketball injury).
I told the radiologist that the clot was in my lower leg but they only scanned my
upper leg (groin to knee)!
The test, as expected, came back negative.

I'm frustrated because I'm afraid that they will call my case (workers comp) closed.

Can an upper leg ultrasound correctly diagnose a clot in the lower leg? The other
hospital that administered the first test-the hospital that found the clot-scanned my
whole leg.
I'm just afraid the second hospital (which starts with a K) is cutting corners. Please,
anyone with knowledge about this, please let me know what you think.

2 replies...

Husband traveling LONG flight
Posted by Linda
Last Reply July 24, 2010 at 14:39
Started July 23, 2010 at 22:43
Hello everyone,
Just found out that my husband will be traveling in the next few weeks to India and the UK. We live in New York. He will make both trips in a week's time. He is 63 years old and I am very concerned about him spending this amount of time sitting on a plane as I know that traveling to India is at least 26 hours. What precautions should he take?
I got my DVT from sitting in a car on a 9 hour car ride so I am concerned.
Thanks
Linda

3 replies...

Smoking weed with dvt?
Posted by Female
Last Reply July 24, 2010 at 03:45
Started July 23, 2010 at 06:15
Im on warfarin can i smoke weed?

2 replies...

DVT questions new here
Posted by Christi
Last Reply July 23, 2010 at 21:09
Started July 21, 2010 at 23:35
Hi everyone
Very long story short. I had a DVT, illiac to poppiliteal, when I was 32 weeks pregnant with twins. Went into labor naturally since I was in so much pain and I had an ER csection while on heparin(no other choice.)
Everything turned out fine with my babies, and I was in the hospital for 11 days on heparin released when I was therapeutic on coumadin, and am now keeping my INR between 2-3.
Of course I am always worried that it will spread, but am trusting God and staying on my warfarin. My question is I dont know what I can and cannot do. The doctors say that I can do anything, since it is now encapsulated. But...I treat that leg (my left) as it is very very fragile. I always put it up and dont even drive yet, as this just happened 4 weeks ago. I am even cautious about walking on it. I was told that I will be on warfarin for 6 months.
I did test positive for the c and s protein factor, but again will be retested in 4 weeks since I was pregnant when they tested me, and ... read more

4 replies...

blood clot
Posted by Diane
Last Reply July 23, 2010 at 12:47
Started July 22, 2010 at 23:18
Hi,
My sister died last week from a blood clot that detacted its self in her leg. Please don't ignore the signs, she stood no chance. She was only 46.

2 replies...

Contrception. IUD Merina
Posted by Erin
Last Reply July 23, 2010 at 05:43
Started July 23, 2010 at 05:24
Hey
I'm 17 and 3 months ago i got a blood clot from my belly button to half way down my thigh.
I have a prothombin gene mutation and was told that i got the clot because of my estrogen only contraceptive pill.
So im on a progesterone only pill now and its not really working out for me, my last period has lasted for 12 days and still counting. I was wondering if any other girls have been on the IUD Merina?
What are the pros and cons.
Thanks :D

2 replies...

MAY-THURNER SYNDROME
Posted by Diane Peterson
Last Reply July 22, 2010 at 04:31
Started July 22, 2010 at 04:31
If you'd like to join a group of other supportive individuals who have been diagnosed with May-Thurner Syndrome, please ask me about the May-Thurner Syndrome Resource Group on Google Groups.

Diane @ woodcreek12@aol.com

0 replies...

MAY-THURNER SYNDROME
Posted by Diane Peterson
Last Reply July 22, 2010 at 04:29
Started July 22, 2010 at 04:29
If you'd like to join a group of other supportive individuals who have been diagnosed with May-Thurner Syndrome, please ask me about the May-Thurner Syndrome Resource Group on Google Groups.

Diane @ woodcreek12@aol.com

0 replies...

Chronic DVT treatment
Posted by Louise
Last Reply July 21, 2010 at 23:43
Started July 21, 2010 at 08:50
Hi
I am considering having some treatment for an extensive DVT I developed in my left pelvis and leg, about 2 years ago. I have been given the name of Dr Mark Garcia (Christiana Hospital, Deleware). Has anyone had any treatment from this doctor for their DVT - if so I would really like to hear your experiences of him and your treatment.
Many thanks


1 replies...

At the one-year mark
Posted by pamela
Last Reply July 21, 2010 at 18:22
Started July 18, 2010
A year ago yesterday was my diagnosis, a DVT from thigh to second toe, a clot
which had probably started forming 3.5-4 weeks earlier. In that time I saw my doc
4x, but I didn't have the "risk factors" for a clot.

My doc emailed this week to say I was getting my referral to a hematologist to
discuss the full range of testing to determine my risk of another one, and what I
need to know before having children. I tested negative for Factor V but positive for
APS, and the rest could not be done while on warfarin. And the APS has to be
repeated.

I so hope I'll be told when I drop the warfarin and can stay off it, or my doc and I
and the warfarin clinic will be having a discussion about bike riding, roller skating
and the reinstatement of green tea.

Anyone have any advice as to questions for the hematologist??

4 replies...

Does the clot form a protective shield?
Posted by Carl
Last Reply July 21, 2010 at 12:07
Started July 20, 2010 at 17:31
I have heard somewhere on the Forum that a protective shield forms around the DVT clot 3 months from taking the Warfarin medication thus making it unlikely that the clot will cause one any complications. Has anybody heard anything about this and is there any medical proof?

3 replies...

Water Resistence Stockings
Posted by Raj
Last Reply July 21, 2010 at 05:38
Started July 18, 2010 at 09:02
Hi,

Its raining down here and I want to protect my leg & stockings from getting wet? Is there any protective socks/likes which can be worn over stocks to ensure that its doesnt wet?

1 replies...

This forum may of saved my life today Thanks
Posted by Beral
Last Reply July 21, 2010 at 04:46
Started July 16, 2010 at 20:52
Hi
I have posted a few times.
My story to date is I had pain in my calf for a week. I am fit young and active. Eventually went to out of hours Dr who did a D-Dimer which was positive. I had two days of Tinziparin then went to the practice nurse. She looked at my leg and said I did not have a clot but did give me a few more days of injections until the scan was done. I was called by the hospital on the same day. When I offered to come in that day they laughed and said they where to busy and booked me for a scan 5 days later.
I stopped the Tinziparin and treated my leg as a sprain as I don't like being treated like an idiot or laughed at.
Friday last week I had a scan which stopped half way down my calf. This was in the special DVT clinic in the scute hospital. When the DVT nurse told me I was breathless from walking from the scanner to the consulting room. No comment was made. I was told if my leg keeps hurting see my family DR.
Over the week end I was more breathless and my bac... read more

12 replies...

How long does the pain in the calf last?
Posted by Marcus
Last Reply July 19, 2010 at 01:05
Started July 19, 2010 at 01:05
Hi all,

I have been off Warfarin for about two months now and am still getting a niggling pain in my calf and around my foot. My circulation is fine and my specialist is not concerned about it to even do ultrasounds. Have to admit it is quite a worry but as this was due to a leg break he thinks it is simply the calf feeling pain from all the exercise I am doing and my other leg is in good enough shape and strength not to be the same strain on it. He also said people normally have lingering pain for some time and not to worry about blood clots coming back. Apart from the pain in the calf and foot I'm not getting any sharp stabbing pains, numbness or swelling in the leg.

Out of curiosity can anyone tell me how long their pain lasted and when if ever it got better.

Cheers

Marcus

0 replies...

Low INR(1.7) to High INR (22) in 3 days
Posted by Ashley S
Last Reply July 18, 2010
Started July 13, 2010 at 23:35
A month ago I was diagnosed with a DVT and the next day I started having chest pains so I came back into the ER and I was admitted with multiple PEs (Pulmonary Embloisms) I was admitted for a month because my INR was all over the place at first it was super hard to get my INR past 1.5 than finally after a month of fighting to get my INR up I got it to 3.1 so I was able to go home and it dropped again to an all low of 1.1 for like 2 weeks it was low and finally it started coming up and on a Friday my INR was 1.7 and so my hematologist told me to take 10mg warfarin and a shot of fragmin on friday and saturday and on Sunday to take 9 mg of warfarin and come back moday for blood work, and that is my usual dosage so nothing had changed my INR on Monday was 22! she didnt believe it..I didn't believe it so I was told to come back she re did the test and it was 22 so I go a vitiamn k shot and ask to come back today and get checked it was 10.7 today which is good but ive been having some b... read more

1 replies...

No one seems worried can I stop medication
Posted by Beral
Last Reply July 16, 2010 at 21:28
Started July 5, 2010 at 13:37
I got what I thought was calf pain from cramp about 10 days ago but have memory of cramp or calf injury. I am on Yasmin 30 fit and healthy. I walk daily with the dogs, cycle, swim, run and do gym weights almost daily. As with everyone I would love to lose a few pounds but nothing major.
After friends nagging I go and see a Dr who does D Dimer test which is double normal range, put on heperain injections and wait until clinic scan. I have the jabs to self administer as I am to busy to visit the Dr's daily.
I can hardly walk and in a lot of pain.
So if this is a clot how can I get rid of it now as I can't have this pain for ever.
I have a slightly swollen calf no reddness or viens but very bruised feeling. I did bang my shin several weeks ago and my calf is very sore at the back of the bruised shin.
Clinic called no apparent rush to see me no advise given, in fact nothing at all. Could I get worse, stop breathing or die? YThe reply ywas I was safe!
Dr who gave me the jabs today ... read more

8 replies...

Excercise with stockings
Posted by Tim in Minnesota
Last Reply July 16, 2010 at 14:21
Started April 27, 2010 at 14:18
Has anyone used the exercise compression stockings versus the medical when exercising? I play tennis and ride bike, and typically wear long pants all the time because of the stocking I wear on my left leg (affected leg). I wear thigh highs since my DVT was from ankle to groin. I've been looking at exercise recovery socks from Sgvardis (sp?). However, they are only 10-20 versus the 20-30 I usually wear. I'm looking for alternatives that will allow me to wear shorts when biking and playing tennis and am wondering if using the exercise recovery socks only when excersising and using my other medical compression socks at all other times would work. What do other people do? (Vanity sucks, doesn't it!)

18 replies...

Natural with DVT??
Posted by Rassega
Last Reply July 15, 2010 at 15:49
Started June 12, 2007 at 05:16
I just wanted to start a new strand to see if anyone out there tries to supplement their healing process with more natural meds. Currently I am not on any meds, but I take a lot of herbs and vitamins to hopefully speed healing. I have MTHFR but control it by increasing Folic acid, B6 and B12. I am pretty anal with my diet and exercise daily. I am also considering accupuncture to help with swelling.

If you do augment your current meds with alternative med or natural meds, I am curious what you do?

39 replies...

swelling alternates between calf and thigh
Posted by Melissa
Last Reply July 15, 2010 at 04:24
Started July 15, 2010 at 04:24
I have been dealing with a DVT in my right leg from groin to ankle for about a month now. I was sent home from the hospital on coumadin, and returned to work for two days using crutches. My calf ended up swelling up (my whole leg was already swollen) to the point where it was firm, and when I lowered my leg to the ground the pain became excruciating, but totally disappeared once my leg was level or raised again. I went to the ER and got readmitted for three days but they did nothing, changed nothing. I just rested for a week and a half on the couch until I went for my check up. By then the swelling and pain were nearly all gone and I could use crutches again rather than having to be carried around by my husband or in a wheelchair with my leg up.

My doc okayed me to return to work after that week and a half provided I kept my foot elevated (it swelled and unswelled on its own volition) and was as sedentary as possible. I have followed those orders alternating between crutches and ... read more

0 replies...

advice after dvt
Posted by kerensa
Last Reply July 14, 2010 at 21:03
Started July 13, 2010 at 22:11
hi please can anyone give me some advice/ experience/ help. In september 2009 i had a major dvt which went from below belly button to ankle. It blocked the febral vein in thigh and 2 in calf. I have had it scanned and it has gone but I suffer daily with hideous pains in the leg, I enjoy walking and find that whilst it is hideous when starting on a walk it can ease the pain for a while, i get pins and needles on and off and just aching where it has been apart from pain killers which i happily take is there anyone who has tried and suceeded to reduce pain in any way i would really appreciate some help here thanks

3 replies...

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