DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 159 of 237
Air Travel
Posted by Concerned Daughter
Last Reply June 21, 2010 at 23:31
Started June 21, 2010 at 13:34
My Mother has Post thrombotic syndrome (lower left leg near ankle)and is wanting to fly from Sydney to New York (>20 hours). Is it possible for her to do this without having a severe episode of some sort?

1 replies...

Do they scan the clot again?
Posted by Carl
Last Reply June 19, 2010 at 21:52
Started May 14, 2010 at 16:48
Hi,

I have just started on the Warfarin and injections. A question I never asked was, how do they monitor the clot and is it ever scanned again to rule out any more growth or to check if it has gone?

Thanks

9 replies...

Undiagnosed Venous Clotting Since Age 12
Posted by sirenade
Last Reply June 19, 2010 at 19:07
Started June 19, 2010 at 19:07
Our daughter has been getting clots in her legs for the last six years. Some of the clots are superficial and some have significantly reduced the flow through her femoral veins. All but the first clot occurred while she was on anticoagulants (warfarin/Lovenox).

She's seen many doctors, including hematologists, vascular surgeons, a geneticist, and a diagnostician. No one can tell us why she's clotting. And, unfortunately, most of the doctors don't seem to care about the "why." They just want to continue treating the systems, even though she continues to clot.

We are posting to this forum to extend our search for answers. Our hope is that a doctor who is also interested in finding answers may read this and join our effort.

So, here's some technical info:

- Significant elevation in Lp(a)
- Heterozygeous MTHFR 677T status
- One positive test for lupus anticoagulant (all subsequent tests have been negative)
- Borderline FANA tests
- D-dimers and monocyte counts a... read more

0 replies...

'Washed out on Warfarin'
Posted by Rob
Last Reply June 18, 2010 at 21:58
Started June 15, 2010 at 14:16
I was diagnosed with a DVT behind my right knee 6 months ago, but since my medication changed from Heparin injectionsto the Warfarin tablets, I feel extremely tired all the time and generally 'washed out'.
I have mentioned this to my GP, but was advised that I would have to live with!
Any comments or advice would be very welcome. Thanks.

2 replies...

Post DVT/PE
Posted by Jon Bush
Last Reply June 18, 2010 at 02:56
Started June 18, 2010 at 02:56
Since having a DVT in my left leg and PE, I've been on
Warfarin/Coumadin. I suffer from extreme fatigue and pain in the bend
of my leg; typically in early morning hours. Additionally, I'm a
Parole Agent and am concerned about the fact that if I'm shot or
stabbed, my blood will not clot and I'll bleed out lickety split. I
guess my main question is: Am I the Lone Ranger or are these symptoms
typical post DVT and does the fatigue ever go away. I've also packed
on the pounds and would like to think that it's from the Warfarin but
I would suspect that it could also be attributed to the lack of
motivation from being chronically exhausted. I'm prior United States
Army and am not a slug, but I certainly feel like one now.
Comments/questions much appreciated.

0 replies...

Type of Exercise?
Posted by Tim in Minnesota
Last Reply June 17, 2010 at 15:01
Started June 1, 2010 at 20:34
Quick summary: DVT almost 1 year ago (July 2009) full length of left lef (upper thigh to ankle). Started with walking about a month after DVT. Today I walk, bike, play tennis, and do circuit training with weights. The leg still turns colors though the swelling is minimal, and I wear the famous stockings daily.

My question is what type of excercise do others do and what do they think is best. I started out strictly walking, but started to diversify with biking, circuit training with weights, and some tennis. At first I felt that walking was the only exercise that I should be doing because the goal was to increase circulation particularly in the lower legs, and to work on the pumps in my legs (calf muscles). However, I've always cross trained and missed the circuit training and cycling. What do people think? Should I just stick with the walking...is that the best? Or does it really matter that much as long as you keep moving?

Thank you for any comments.

3 replies...

evening therapies
Posted by Morgan
Last Reply June 17, 2010 at 13:37
Started June 16, 2010 at 02:50
My husband (40 years) has this condition on his right leg due to a serious injury 20 years ago. We have seen vascular surgeons, a very reputable doctor at a vein center, etc. etc. It appears as though there is nothing we can do to reverse the problem and we are focusing on compression stocking etc. to maintain it. However, speaking with another medical professional recently, he told us about a newer product that works as a circulatory enhancer ( somewhat like a pillow worn at night with oxygen pressure) that may assist in helping it. He gave me the name of the company that produced the product as well as well as the name of the product - which I promptly misplaced. Anyone know anything? The company name had "compression" in it. I am looking for anything that can help us with this situation. Thank you.

3 replies...

pain and sweling in foot after DVT
Posted by jennie
Last Reply June 16, 2010 at 07:44
Started June 15, 2010 at 16:19
please can anyone give me any advice - i had a DVT & multiple PE approx 4 weeks ago following a knee op..i am taking warfarin. the large swelling i had in my calf has gone but i still have swelling in my ankle and foot. when i stand up my foot swells more and goes blue and is to painfull to put presure on. is this normal? and if so when will it go...the hospital said i cannot have stockings untill the swelling goes but iam am concerned i may get Post Thrombotic Syndrome as i also have small red blood bisters under the skin on my leg.....any advice would be great

2 replies...

dvt from pregnancy
Posted by nicole
Last Reply June 15, 2010
Started May 4, 2010 at 02:07
Hi everyone. I had a baby girl in january of this year. On december 21 2009 I
was admitted to the hospital with a considerably large blod clot in my groin of
my left leg. I can't remember what artery my doctor told me it was in but I will
ask on my next drs appt. I had been having continual severe pain and swelling
in the leg for about a week and a half prior to hospitilization. Thinking that the
baby was resting on my sciatic nerve or something, I barely made it to the
hospital. I was in for 18 days. They had me on a heparin drip initally, and kept
switching me off and on with lovenox injections.I really felt as though the
doctors didn't know what they were doing. So I have been taking 12.5 mg of
warafarin for the past 4 months to stay theraputic. I will be on this for 2 more
months. What I'm wondering is if anyone has been in a similar situation? If my
leg will be slightly bigger than the other one for life? Is there any kind of
surgery to "clean the blood... read more

3 replies...

Anxiety Disorder After DVT
Posted by Rose
Last Reply June 14, 2010 at 23:51
Started June 13, 2010 at 12:50
Anyone else been diagnosed with anxiety disorder after DVT? I believe I always had a tendency towards anxiety, but since having a DVT, being diagnosed with genetic clotting disorder that was possibly caused by birth control, and having to stop taking birth control, I've developed a full blown anxiety disorder to the point where I may need to start taking medication.

Hematologist told me I'm now more susceptiple to clots and have to be careful of injury. This is always in the back of mind along with other anxious thoughts on everything in general. This along with now having less estrogen in my body at age 47 after being on birth control for 30 years has me not feeling like myself anymore.

Anyone else experience this?

7 replies...

Italian saint died of blood clot in heart
Posted by N
Last Reply June 14, 2010 at 22:04
Started June 14, 2010 at 22:04
Friday, 11 June 2010 10:14 UK

Italian saint died of blood clot in heart, researchers say

Researchers have used X-ray techniques to uncover the cause of death of a 700-year-old Italian saint.

Santa Rosa - who died when she was 18 or 19 years old - was most likely killed by a blood clot in the heart, say the Italian research team.

It is said the 13th Century saint had miraculous powers that allowed her to raise someone from the dead and to survive the flames of a burning pyre.

Her mummified remains are conserved in a monastery near Rome.
Continue reading the main story

Santa Rosa is one of the most important saints in the Roman Catholic Church and is revered by thousands of people

Professor Ruggero D'Anastasio

The research team had been asked in 1995 to carry out some preservation work on the body, which was showing signs of damage.

As part of the restoration work, they were able to take X-rays using a mobile device.
Rare condition

Historical record... read more

0 replies...

Pain in leg during excercise after recovery
Posted by Lobo
Last Reply June 14, 2010 at 05:25
Started May 26, 2010 at 14:36
I had DVT in my right calf and a PE in November 2009. I'm on 5.0 warfarin a day, no injections.

Before this happened to me I was a runner. I would run 30 minutes a day 5 or 6 days a week. It's the only work out I can tolerate and stick to, I like it.

Today I went running for the first time since this happened to me, the hemotologist told it was okay to run again a few weeks ago.

My breathing is great, I felt I could have done my entire routine the first day back out there but my leg was no co-operating.
After about 2 minutes of running I had to stop because of the pain in my leg. After a few minutes the pain goes away.

My left leg was fine.

Will the pain in my right leg ever go away during running or is this with me for life? I'm assuming the circulation still isn't 100% back to normal and from what I understand probably never will be. The doc told me that even though I'm on warfarin that the inside wall of the vein still has some of the clot left behind and that ... read more

3 replies...

When are you considered safe from a PE?
Posted by Carl
Last Reply June 13, 2010 at 19:37
Started June 12, 2010 at 21:43
Is it true that you probably won't get a PE if your dvt is stable after 3 months?

1 replies...

Had a venous doppler ultrasound, still questio
Posted by Sara
Last Reply June 13, 2010 at 07:31
Started June 11, 2010 at 17:00
okay so yesterday i had a venous doppler down on my left leg, cause it had been bothering me. It was negative for DVT. I asked the technician to do my right leg as well cause it had been bothering me as well. But she couldnt because the dr didnt order the right leg. She only checked on spot on my right thigh, like near my groin area. And she listened to the blood flow. Should I be okay from DVT if she didnt check the whole leg? she told me not to worry, thats is most likely muscular, but im worried because she didnt check the whole leg... any ideas??

1 replies...

Clot is getting bigger.
Posted by Cat
Last Reply June 13, 2010 at 07:22
Started June 8, 2010 at 16:03
Hi, I'm 20 years old and was diagnosed with a blood clot going from my groin to half way down to the knee on my left leg. This was approx two weeks ago. I had the tinzaparin injections for a few days then was put on Warfarin and my INR is currently 2.7ish. Problem is, the clot has now extended down to just above my knee but it still ends at my groin meaning it has grown bigger. I thought Warfarin was meant to prevent growth of existing clots and the formation of new ones. Luckily it hasn't grown upwards. Are there people whose blood seems immune to the effects of Warfarin? I was on the Yasmin birth control pill and came off it 2 weeks ago after I was admitted to hospital. Could there still be residual hormones playing about with my blood? Thanks :D

3 replies...

APS featured in 2006 Mystery Diagnosis episode
Posted by pamela
Last Reply June 12, 2010 at 03:57
Started June 12, 2010 at 03:57
Episode of Mystery Diagnosis from 2006 "Falling Through the Cracks" (now available on
iTunes, but was just replayed this week and will be again) features someone with APS
(the 2nd of 3 cases in the episode). FYI.

0 replies...

Had a venous doppler, have a few questions
Posted by Sara
Last Reply June 11, 2010 at 16:37
Started June 11, 2010 at 16:37
okay so yesterday i had a venous doppler down on my left leg, cause it had been bothering me. It was negative for DVT. I asked the technician to do my right leg as well cause it had been bothering me as well. But she couldnt because the dr didnt order the right leg. She only checked on spot on my right thigh, like near my groin area. And she listened to the blood flow. Should I be okay from DVT if she didnt check the whole leg? she told me not to worry, thats is most likely muscular, but im worried because she didnt check the whole leg... any ideas??

0 replies...

Words of wisdom for DVT 'newbie'
Posted by MummyNic
Last Reply June 10, 2010 at 12:58
Started June 7, 2010 at 23:35
Hi

I was diagnosed with a small DVT in my anterior tibial vein on Friday - this was after having some very mild calf ache for a few days last week. The only reason I went to the docs was because my mum died of a PE, I wasn't expecting in a million years they would actually find one.

I am on the heparin injections and am currently on 6mg of Warfarin until my next check on Thursday (INR currently 1.7)

I have a few queries that I wanted to raise with the haematology nurses, but so far haven't had an opportunity to do so, and wondered if all of the experience on here could help ....

I'm not in any of the traditional 'at risk' categories other than what happened to my mum. I am going to ask for the Factor V Leiden test, is there anything else I should try to get ? If the cause doesn't appear to be this, what else is usually done to try and find out (if anything?)

Does the location of where the DVT is found given any indication of cause or likelihood of re-occurence. Mine w... read more

6 replies...

Has anyone had a dvt with no further problems
Posted by Claire
Last Reply June 10, 2010 at 01:15
Started September 16, 2009 at 12:55
I was just wondering if anyone has had a dvt with no further problems ?

15 replies...

Tingling Leg - Normal? Also RTW post DVT?
Posted by Heather
Last Reply June 9, 2010 at 21:06
Started June 9, 2010 at 17:07
Hi,
just found this site, and it looks like it gives great advice and also reassurance. I had DVT in left calf about 3 months ago after a broken foot. Was on wafarin and Lovenox for a month and then ultrasound showed it had cleared so came off all meds. Blood tests show i have Factor V deviciency, but i was given 'ok' to fly to the UK (7hr flight). I came back last week and have had fairly constant mild tingling in my DVT leg since. No pain or swelling but it has me concerned. I followed the standard advice when on the flight.

I am also meant to be going on a round the world trip soon for 10 months - has anyone with my types of symptons done this and if so what would you advise i ask the doctor? i see some people on this site get Lovenox to take just before flight so that may be an idea??

Any help very gratefully received - particularly about the impact of Factor 5 deficiency, as everything i find on the net seems rather vague.

thanks very much.


1 replies...

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