DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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DVT after calf muscle tear
Posted by Sandie Ballantyne
Last Reply June 9, 2010 at 04:26
Started May 16, 2010 at 08:40
I tore my soleus muscle four and a half weeks ago complicated by a lot of bleeding into
the calf and night pain. The calf swelled and the ankle and foot swelled greatly. The
swelling did not entirely resolve, but last week the swelling and pain worsened and to
cut a story short, I have a DVT. Have Clexane for the weekend and start warfarin
tomorrow.
I have walked on the leg (albeit after a fashion) from day 1 and am usually fit, thin ,
active and don't smoke (but over 50 and female).
Has this happened to anyone else?

1 replies...

Too early to Cycle/Swim ..?
Posted by Mick
Last Reply June 8, 2010 at 22:17
Started June 8, 2010 at 15:35
Hi

I flew over to Philly from Europe on the 8th of April this year. While over there I noticed a tightening of the right calf muscle which I thought was muscle related. When I got back 4 days later it was worse and I was limping. Within a fortnight I saw my hematologist who diagnosed it as a superficial thrombosis after an Ultrasound. It got worse over the next 10 days and after another scan it had progressed to a DVT in lower leg / knee. On the 7th of May, I was put on Innohep (Tinzaparin) for 10 days as well as Warfarin for 3 months. INR is around 3. I would say its a good 10 days now since I have limped and the small bit of swelling that I had, has pretty much gone.

I went for a 10k cycle yesterday and a light swim on Saturday calf is a bit sore today, but has not swollen up and the Vein is the same size

Is it too early to be doing this sort of work out I figured that once the pain went while walking, I should be able to progress to swimming and cycling
... read more

1 replies...

plavix and May-Thurners
Posted by EG
Last Reply June 8, 2010 at 01:02
Started May 24, 2010 at 18:13
has anyone been switched from Coumadin to Plavix when DX with May-
Thurners symdrome. if you have can you give me your experience with it.
thanks

2 replies...

Type of Exercise?
Posted by Tim in Minnesota
Last Reply June 7, 2010 at 14:24
Started June 1, 2010 at 20:35
Quick summary: DVT almost 1 year ago (July 2009) full length of left lef (upper thigh to ankle). Started with walking about a month after DVT. Today I walk, bike, play tennis, and do circuit training with weights. The leg still turns colors though the swelling is minimal, and I wear the famous stockings daily.

My question is what type of excercise do others do and what do they think is best. I started out strictly walking, but started to diversify with biking, circuit training with weights, and some tennis. At first I felt that walking was the only exercise that I should be doing because the goal was to increase circulation particularly in the lower legs, and to work on the pumps in my legs (calf muscles). However, I've always cross trained and missed the circuit training and cycling. What do people think? Should I just stick with the walking...is that the best? Or does it really matter that much as long as you keep moving?

Thank you for any comments.

5 replies...

What would you do??
Posted by Worrier
Last Reply June 6, 2010 at 22:29
Started June 6, 2010 at 16:40
Okay so for the last year and a half, Ive had pains in my legs. All sorts of different pains that affect different parts of my legs. I have anxiety, and fear blood clots (DVT) About two months ago I had a DVT ultrasound, and then a week later i had a D-Dimer. Well the pains have come back. Should I go to the hospital and get another Ultrasound? Or will that just fuel my anxiety more?? Since Ive had it checked out in the past should I be okay??

Background info- none of my family has ever had a blood clot. Im not on birth control. im 22, walk everyday, and three dance classes a week. Just have really bad anxiety... THANK YOU

2 replies...

nerves
Posted by AB
Last Reply June 5, 2010 at 07:42
Started May 27, 2010 at 01:31
Hi all. I was diagnosed with DVT on Jan. 11th. Since then, I've dealt with the "normal" pains..leg swells and turns red when I've spent a lot of time on my feet. However, I have had pains the past two days that are, at times, as bad as when I was first diagnosed. I feel like I have a charlie-horse cramp in my calf that won't go away. At night, it's almost worse when I lie down. These are the symptoms that I presented with back in January. I've been on coumadin since I was diagnosed. My last INR was a 2.0, down from 2.8 the previous month. Am I just being overly nervous here? If I'm therapeutic, another clot is not likely to develop, correct?

Thanks.

3 replies...

DVT affected for both legs
Posted by Surya
Last Reply June 4, 2010 at 20:07
Started May 12, 2008 at 10:08
Hi All,

I got affected with DVT for both of my legs. I consulted many doctors in India and every body suggested to use anticogulants only. But I got some information about alternate quick menthods to remove the clots. Does anyone know in india, anybody got the DVT and treated with other methods. Please help me.

9 replies...

Pre-Op Blood clot or DVT
Posted by Jen
Last Reply June 4, 2010 at 17:30
Started June 4, 2010 at 16:15
My husband (37 ) injured his knee playing soft ball. 2 days later he saw the Ortho that scheduled a MRI for him.Exactly one week later(before the MRI was done) my husband woke up with horriable pain in his left calf(same leg he injured).We called the Ortho who said to go to the ER and have an ultrasound done to check for blood clots. ER found a clot on a superficial vein and told us it was no big deal.Told him to take asprin and f/u with our PCP. 2 days later he followed up with our PCP who advised him to stay on asprin.Within the next week the MRI was done and he received the report from the Ortho that he would need surgery- this whole time the pain has not really subsided from the clot found at the ER. 4 days later he had the knee surgery. Dr put him on Lovenox 30 mg once a day,but never addressed the orgional blood clot.3 days later hubbys leg looked like a balloon from the ankle up and he went to Ortho for a check up and to have the bandages removed.Dr said swelling was normal,n... read more

1 replies...

Post DVT- purpura/low INR
Posted by Audrey
Last Reply June 4, 2010 at 06:34
Started May 25, 2010 at 18:38
I was dx'd with DVT (Facto V Leiden)last June and was on Coumadin until Dec. I am now taking baby aspirin every day.

For years I have been dealing with neuro problems and decided to start the round of doctors and tests again. I just got back an extensive panel of blood tests and noticed that my INR an PT levels are below the reference range. I have also been bruising very easily and have petechiea and purpura. This does not make sense with the INR level to me.

Can anybody help me understand this?

3 replies...

few questions about DVT
Posted by Barbara
Last Reply June 4, 2010 at 06:30
Started June 3, 2010 at 21:50
Ok so I just have a few questions. Are DVT painful? Like something is wrong painful. I read on Wikipedia, that only 3% of people who develop this disease die, and in MOST cases people will have symptoms. I have a phobia of blood clots, (working on it with a counselor) But every time I feel a pain in my legs I assume DVT. Ive had three ultrasounds, lots of D-Dimers and everything was fine. Just looking for a little information. My drs arent very helpful, and tell me to relax. THANK YOU

2 replies...

New DVT
Posted by Vicki
Last Reply June 3, 2010 at 23:58
Started October 18, 2009 at 16:48
Hello, I am only 21 years old and was diagnosed with an extensive dvt from my hip to my foot in my left leg around 3 weeks ago. I had travelled on a short flight. Although I am used to frequently travelling by plane on much longer flights. I did have my lymphnode on my groin up for an unexplained reason. My doctor put it down to a skin infection although there was nothing to be seen on the surface of my whole leg. We thought it could have been caused by an ingrown hair or using non sterile tweezers. I was put on antibiotics and then flew the next day. I walked around a bit on the flight. However we flew a cheap airline and so the seats would not recline. I am guessing the pressure of the gland pushing on the vein for a few hours did not help. I am also on the pill. I am so freaked out by the news that a lot of people have had clots due to yaz and yasmin. I am taking Yaz. My clot took around 4-5 days to show any real sign. It eventually blew up and after 3 days of resting, and anti ... read more

19 replies...

Percentage chance of a PE?
Posted by Carl
Last Reply June 2, 2010 at 01:49
Started May 31, 2010 at 16:21
What are the statistics that a dvt sufferer will develop a PE? What's the percentage rate of getting one before treatment and also during treatment and when the treatment has finished?

My GP keeps saying it is rare, less than one in a hundred on treatment and one in a hundred before treatment.

Are these just words of comfort?

2 replies...

Inflammatory Bowel Ups Risk for Blood Clots
Posted by N
Last Reply May 31, 2010 at 10:03
Started March 8, 2010 at 02:47
TUESDAY, Feb. 9 (HealthDay News) -- People with active inflammatory bowel disease are much more likely to develop blood clots than people without the condition, a new study suggests..

Overall, people with IBD were found to be 3.4 times more likely to develop a blood clot and eight times more likely at the time of an IBD flare. But the risk rose to 16 times higher if a flare occurred when the person was not hospitalized.

The study was published online Feb. 8 in The Lancet.

The researchers said the findings suggest that active IBD might be a far greater risk factor for blood clots than previously believed.

"We believe that the medical profession needs to recognize the increased risk in people with inflammatory bowel disease when assessing the likelihood of venous thromboembolism and to address the difficulty of reducing this risk in patients with a flare who are not admitted to hospital," wrote Dr. Matthew J. Grainge, of the University of Nottingham, and his colleagues.
... read more

2 replies...

Warafin Negative Impacts on Running?
Posted by Rich G.
Last Reply May 31, 2010 at 03:58
Started August 27, 2008 at 20:42
Good Day folks,

Let me tell you my story and see if there is any good sound advice out there.

I am a late 37 year old white male. I am in excellent physical condition now. I workout constantly. I have set a goal being able to run a 2 mile course in 18 minutes. I can maintain the pace of a 9 minute mile for the first mile, but the second mile just gasses me so I usual finish at 20:30. I have to wonder, since I am on 8mg of Warafin a day, and the Dr. seems to think that my blood should be 4 times as thin as most people, I wonder, if my fatigue in the second mile can be attributed to the blood thinner?

Thoughts....

6 replies...

Travel after DVT?
Posted by Bill
Last Reply May 26, 2010 at 19:12
Started May 26, 2010 at 14:46
Got a calf DVT after a brief plane trip and 4-6 hour car trip. I am partially occluded and on Lovenox and Warfarin 6 mg. We are leaving on a trip to New York City for my daughter graduation 12 days after the DVT, 9 days after starting Lovenox, 8 days after starting Warfarin. My INR started at 1, then 1.3 two days ago. Hoping to be therapeutic range by the time I fly. Will still be on Lovenox for the flight.

How stupid is it to take a 5 1/2 hour plane trip and extensive walking, golf and stairs in NYC this soon after my DVT? It is 5 flights up to my daughter's apartment.

I am seeing an internist who just says, 'life has risks' and says it is ok to go. I am planning to continue lab tests in NYC and send them back to my internist.

2 replies...

How Long.....
Posted by Tavo Govea
Last Reply May 26, 2010 at 15:34
Started May 15, 2010 at 02:37
How long does it take to walk without any pain? i was diagnosed of DVT
on my calf three weeks ago....

3 replies...

DVT - How long for
Posted by aswal
Last Reply May 26, 2010 at 15:23
Started May 13, 2010 at 13:09
My boyfriend was taken to hospital last Tuesday (4th May) with DVT. He's 6ft 2 and around 12 stone and although he was never the human dynamo he came to work with me three times a week which involved a commute accross London and also he walked to the shops every day. He wasn't infirm for a long period before diagnosis, is what I'm saying.

I saw him in hospital on Saturday and although he couldn't walk fal we managed a goot ten minute stroll around the hospital grounds. When he was discharged on Monday his leg was very painful and it does not seem to be getting better, he can barely walk to tyhe bathroom which is fifteen steps away.

What kind of recovery can I excpect for him? i don't know whether to prepare for a few months of immobility or to hope for the best and expect him to be a lot more mobile over the next week or so. Has anyone had a similar experience?

Thanks..ll

4 replies...

How many days in bed
Posted by Tavo Govea
Last Reply May 26, 2010 at 15:17
Started May 16, 2010 at 04:45
I have another question. how many days did you spend in bed? the doctor
said i have to stay in bed for one month, thats one more week from
today. id really aprecciate your help

3 replies...

INR: Finger-stick 1 point higher than Lab
Posted by Marie
Last Reply May 25, 2010 at 22:13
Started May 20, 2010 at 23:27
Hey everyone - I'm almost 6mths post-dvt & pe and on Warfarin with a very irregular INR despite "doing everything right", to quote my nurse. My doc's office uses a finger-stick testing meter (I think it's the INRatio brand). On Tues I had my weekly check, and it came up as 4.7 on the finger-stick. It's the lab's policy to send out a tube of blood to be tested at the hospital for >4.5. So they sent my blood to the hospital at it came back as 3.7. My nurse doesn't know why there was a whole point difference when both tests were done at the same time.

Should I be concerned? Should I ask for them to do both the finger-stick and the draw next week to see if they are closer in value? I'm really frustrated with all this - I have to get checked every week because my INR is so variable (e.g. It jumped from 2.6 to 3.7 "for no reason" when I'd been at the same dose for two weeks), but now I'm worried that then finger-stick isn't accurate.

Thanks in advance for any advice!

7 replies...

Althetic women or men post dvt
Posted by FitGirl
Last Reply May 25, 2010 at 14:48
Started May 13, 2010 at 04:49
Hi all,
I had surgery in 2003 for an extensive DVT that occulded a vein from my ankle to my groin (cant remember which at the moment.) I was 18 at the time, am now 25. I was told by a few doctors that they couldn't tell me how well I would recover. I am wondering if there are any other women or men out there that have athletic ambitions and how the damage affects your training or recovery time. I was always into sports and as an adult have been weight training for a year now, hoping to compete in a NPC Figure competition someday. If anyone has any experience dealing with permanent damage and still does anything athletic in nature seriously, be it plays a sport, runs marathons, bodybuilds, etc. please let me know about your experience! I would really appreciate it.

7 replies...

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