DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 163 of 237
Am I safe for long Haul flights
Posted by Martin
Last Reply May 4, 2010 at 12:16
Started April 29, 2010 at 21:05
I had an aterial clot in 2007 then thigh length DVT and Double PE in Sep/Oct 2009 and have been diagnosed with Hughes syndrome (APS). On Warfarin for life now and this appears to have put a dampener on me and the wifes plans to go travelling around the world. Can anybody offer advice on whether I am safe to longhaul (probably 10-12 hours max) Doctor says no but i'm a great believer that they often put up the premature umbrella to avoid the possible fall out. If they tell me it WILL kill me i will probably give it a miss. If they're just covering their backs I may be persuaded to take a chance. What the worse that can happen!!!

3 replies...

had ultrasound month ago pains come back
Posted by svea
Last Reply May 3, 2010 at 11:03
Started May 2, 2010 at 21:28
So I had a ultrasound last month due to right thigh pain, came back clear, also
had a D-Dimer two weeks ago. The pain has come back, but its in my inner
thigh as to when i had the tests it was my inner thigh as to when i had the tests
it was on the ront of my thigh.... I have a phobia of getting a blood clot, doesnt
run in my family ect ect... just a weird phobia.. any ideas?? should I be okay?
getting a blood clot, doesnt run in my family ect ect... just a weird phobia.. any
ideas?? should I be okay? I also went and saw my GP she didnt do anything just
said if I had it checked out a month ago I should be fine, and to stop worrying!

1 replies...

Posted by LYN WALKER
Last Reply May 3, 2010 at 09:35
Started May 2, 2010 at 20:21
My annual travel insurance was cancelled immediately the company were informed of my dvt.The dvt occured while I was abroad,so I had already been on wafarin & other medication for three months before before I flew home.My doctor has told me I am ok to fly particularly while I'm on wafarin but so far all insurance companies have declined me.Any ideas?

1 replies...

Chronic DVT's
Posted by K
Last Reply May 2, 2010 at 19:10
Started May 2, 2010 at 02:19
Recently diagnosed with 2 chronic DVT's on my right side, one very old in right femoral vein, and the other more recent (2-3 yrs) of right external iliac. Possible May-Thurner's. Bilateral edema, and significant pain which has impacted my quality of life very much. Possible stent suggested for M.Thurner's and treatment of chronic DVT's suggested via graft surgery. I have large engorged collateral veins criss-crossing my abdomen. They will always be there but with treatment they may thin down. Treating the chronic DVT's could really improve my swelling and pain. Waiting to see how things come together, and what the doctor will decide. Scared and hopeful all at once. More scared that I will be left like this than facing the surgery. As hard as it would be I am most afraid of having no hope of getting better. It's been a long journey to this point. Any information or support is most appreciated.

3 replies...

Iliac DVT
Posted by Sarah
Last Reply May 2, 2010 at 08:21
Started April 30, 2010 at 21:41
My 17 year old daughter is recovering form a major DVT affecting her whole leg and pelvis.

Her whole leg was extremely swollen and very painful for 18 days. She has been taking Warfarin for 4-5 weeks now and her leg is much better but still getting swollen - especially towards the end of teh day.

We have jsut joined a gym so we can go swimming and start to do some gentle but regular exercise.

She will be on Warfarin for 6 months and I was wondering when her leg will stop swelling? Any tips about exercise and recovery woould be gratefully received.

4 replies...

support hose?
Posted by Char
Last Reply May 1, 2010 at 10:41
Started July 1, 2008 at 18:25
Anyone have wearing of the toe area of their support hose, I seem to be wearing small holes in the area of the large toe. I keep the nails very short.
Also I switched form thigh highs to knee-highs because of the hot weather, better to wear something than nothing. I know thigh highs are better, but only if I wear them.

19 replies...

dvts in both
Posted by charmaine
Last Reply May 1, 2010 at 02:04
Started May 1, 2010 at 02:04
hey there
i was first diagnosed 3 years ago with a clot in my right leg, was told non threatening after six months so got taken off coumadin. a month later, my left leg was really hot and heavy like lead and also very painful again, found out 5 dvts had occurred due to lack of a protein. i asked my doctor if all i needed was a protein shake, but apparently this protein is something our bodies produce and i do not produce it anymore.
my legs have been really sensitive ever since, i keep getting cramps and spasms which can be very painful, dont last long thank goodness but very scary to say the least. i cant sit down at my desk too long, and if i have to i walk my legs, and i cant stand up for too long either.
since being on coumadin, i am tired a hell of a lot which is very frustrating as my son cant understand and others just think i'm lazy. i have panic attacks when i have to go further away from my home for fear of leg cramps. the only good thing i can say about the whole ... read more

0 replies...

new diagnosis / worry / questions
Posted by Henry
Last Reply May 1, 2010 at 01:34
Started April 19, 2010 at 20:49
Hello everyone,

I have just found this site and have been reading with great interest - it's a wonderful
resource. I am a 41yr-old male and was diagnosed almost two weeks ago with two
DVT, one behind my left knee and one in my lower left thigh. Out of the blue: no
injury, surgery etc. Since then have been on Lovenox (2 x day) and warfarin,
increasing from 5 mg - 10 mg. Today my INR was at 2.5 (up from 1.7), still on
Lovenox for another 24-48 hours while we recheck levels tomorrow.

At this point the pain and swelling is not bad at all - I have more or less full mobility
and can walk for fairly long distances. I'm experiencing a few mild side-effects,
chiefly a kind of tingle or prickle or "cold heat" that comes on periodically, in many
different places on my body. Nothing too dramatic, coming and going. I get some
very occasional light-headedness; I wouldn't describe it as dizziness or disorientation,
just a light moment. I've been putting it down... read more

5 replies...

Vitiligo twin treatment Tablets + Creame
Posted by Vitiligo
Last Reply April 30, 2010 at 09:56
Started April 30, 2010 at 09:56
Vitiligo twin treatment Vitiligo tablets Plus Vitiligo cream

What Causes Vitiligo?
The exact cause for the pigmentary disorder remains unknown. However,
there are theories suggesting autoimmune link, hormonal connection,
genetic tendencies, etc. Vitiligo may be an autoimmune disease. These
diseases happen when your immune system mistakenly attacks some part
of your own body. In vitiligo, the immune system may destroy the
melanocytes in the skin. The familial incidence is almost 20 to 30%.
Often observed in the family members. If the parents have Vitiligo,
there are more chances of one developing the same. However, it is not
a rule. At the same time, numerous cases of vitiligo do not have a
relevant family history of Vitiligo.

Vitiligo Tablets Treatment

Treating Vitiligo with our Anti Vitiligo Tablets requires the patient
to take regular dose of the pills until the skin is completely clear
from Vitiligo. The dose is then lowered to a level sufficient t... read more

0 replies...

Other problems after DVT?
Posted by pamela
Last Reply April 28, 2010 at 18:37
Started April 28, 2010 at 18:37
I was diagnosed with patella-femoral syndrome recently, 7-8 months after my thigh-
to-toes DVT on my left side. (I'm still on warfarin until the 1 yr point, in July.) I had a
dull achey pain on the kneecaps after working out/doing certain activities. I saw a PT,
and cut out the activities aggravating it, and it seemed quite manageable, even during
some intense exercise. I did not have problems with my kneecaps prior to the DVT,
but I also hit the highest weight I've ever been about 8 months prior, and while the
DVT was not diagnosed/first two months after I was limping significantly because of
swelling and soft tissue damage to my left ankle and shin.

Two weeks of no exercise (planned rest) later, I am in a lot of pain. And of course, I
can't take any NSAIDs, etc. A week into it, I was having trouble falling asleep because
of my knee aching, I went to see the PT again, and she gave me new exercises to do
every day and some to do only on days when I don't ha... read more

0 replies...

DVT or Edema?
Posted by john
Last Reply April 28, 2010 at 16:51
Started April 24, 2010 at 04:29
Hi. I just got back from a 14 hour flight (Sydney to LA). Both legs swelled a lot during the flight, but it went down within a few hours after landing and seem to be OK a week later. Does that sound like a DVT? I did have several alcoholic drinks the night before flying, which I am sure added to it. Just wondering if I need to see a doctor before my next long flight. Any advice or similar experiences?

1 replies...

How to tell new DVT or PTS?
Posted by Rose
Last Reply April 28, 2010 at 14:21
Started February 24, 2010 at 22:57
My clot has dissolved and now I am off Coumadin for two weeks now and taking baby aspirin daily. I'm scheduled for genetic blood disorder testing at the end of the week. I'm starting to have the same pain that I had when my DVT first occured, shin pain. Initially prior to my diagnosis, this shin pain progressed to the swelling of my calf and severe pain.

I'm a little freaked out because until I came off the Coumadin, I wasn't have any pain and now I have a sense of deja vu with the shin pain I'm having.

How do I tell if I'm developing another DVT or if I am experiencing Post Thrombotic Syndrome? I don't want to run to the doctor for every little twinge, but I don't want to overlook it if it could be serious. What would you do in my situation, or has anyone expereinced this before? Thanks, Rose

3 replies...

tylenol and headaches
Posted by AB
Last Reply April 28, 2010 at 01:41
Started April 25, 2010 at 03:08
I have been on coumadin for 3 months, with a stable INR. I had a migraine start 6 days ago, and it is still here. I have taken several doses of tylenol...trying to keep it managable so I can take care of everything/one that I need to. I was wondering if anyone else has experienced something like this and wondering if I need to get my INR checked to make sure that the tylenol has not thinned my blood too much. Not supposed to go back for 2.5 weeks.


6 replies...

support stockings
Posted by suzanne
Last Reply April 26, 2010 at 20:21
Started April 26, 2010 at 17:19
I have been told to wear a support stocking on my leg for life really but important to wear it strictly for 2 years,2 years will be in sept.Anyway im hoping to go on holiday abroad this summer for a week or 2,do u think would hurt not to wear it for most of time while their?

2 replies...

support stockings
Posted by SUZANNE
Last Reply April 26, 2010 at 20:11
Started April 26, 2010 at 17:24
I have got to wear a stocking on my leg really for life but important for 2 years,it be 2 years in dec,im wanting to go on holiday this summer abroad,do you think it would hurt not to wear it for most of time while their?I be wanting to wear sandels and dreses etc!

1 replies...

Scared about DVT
Posted by Jenni54
Last Reply April 26, 2010 at 19:53
Started February 2, 2010 at 05:15
hi all!

this forum is Great! I just had a few questions maybe anyone who has had a DVT can help! I have this fear of developing a blood clot in my leg and just dropping dead from it. I have been to the drs a million times, had physical exams, blood tests, and one ultrasound and nothing. My doctors said Im highly unlikely to get a blood clot, and really the only way I would get one is if I sat on a airplane all day and didnt move. They also said my leg would be very swollen red and warm. But then I read about people who had no idea they even had one. Why would my doctor tell me this? Ive heard this from several different doctors actually. But then I read different stuff. Can anyone one educate me on this? when you had a DVT did you have alot of warning signs? When are warning signs usually not present (ex: after surgery?) If my doctors have cleared me should I really dwell on this anyore?

1 replies...

Posted by Linda
Last Reply April 26, 2010 at 03:23
Started April 25, 2010 at 02:15
I am personally sick of those three letters. I had a car accident in 2000. Was not wearing my belt at the time but usually did. I was sitting at a red light on a residential street and a driver whom was drunk hit from behind. My knee hit the dash and a week later I was diagnosed with a DVT of the left leg that was very extensive. I was in the hospital for three days on heperin and then coumadin. Which followed with coumadin and a full leg compression stocking for the next two years. Being a women of child bearing age and the fact that the coumadin was not going to resolve any more of the clot I asked the doctor if I could come off the medicine and he said yes. I then downgraded to a compression stocking that only when to the knee. As long as I kept my weight in check the pain and swelling was doable. This past October out of the blue I developed another clot but this one was in the groin/pelvic area. My new doctor performed a procedure to remove the clot. He also placed a filter i... read more

1 replies...

DVT is gone!
Posted by Colleen
Last Reply April 24, 2010 at 23:02
Started April 24, 2010 at 21:13
I had vein removal surgery march 22-23rd and on my followup a week later march 30th the ultrasound showed I had some blood clots behind my knee. I was put on the usual lovenox for 14 days and have been on warfarin also. Well I went back yesterday which was a month after the surgery and it showed they are gone. I am so thankful! They were small in the beginning so I was extremely lucky. Im wondering how much longer I will have to be on warfarin? Im sure it varies from person to person. Also, I was told tylenol was ok to take but no ibuprofen, advil, aleve, asprin. Then I read you shouldnt take it. What does one take for a headache?

2 replies...

Coumadin dose
Posted by kelleybird
Last Reply April 23, 2010 at 14:52
Started April 23, 2010 at 02:10
Hi, I'm new here and have been looking for a forum for a while. I've had 7-8 DVTs since 1995 and have been on Coumadin.

My INR will not raise. I have been around 1.4 and my Coumadin dose is now 21 mgs a day.

I was wondering what others maintanence doses tend to run.


4 replies...

DVT was right side, left leg now swelling
Posted by imateacherofmusic
Last Reply April 23, 2010 at 08:16
Started April 20, 2010 at 05:45
Hi everybody,
I haven't posted in a bit, but have a question (so I know whether or not to mention it to my doctor on Wednesday).

My DVT behind right now and clot in right side of groin were diagnosed mid-November. I took Lovenox while in hospital and have been on Coumadin since my dx.

I have been functioning with the day-to-day symptoms of my DVT and SE's of Coumadin, but there is something that has been bugging me for a few weeks.

My left leg (well, most visibly), my "cankle" is SWOLLEN! I can rotate my right foot without feeling like I have some padding around my ankle. I try to rotate left foot and it feels like it's been packed in tons of gauze. I measured it and didn't see a difference, but when I wear compression socks I can see that it's left an indentation on both sides.

Do I need to be concerned? Thank you.

4 replies...

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