DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Coming soon, the in-flight DVT test
Posted by N
Last Reply April 22, 2010 at 20:56
Started April 22, 2010 at 20:56
Airline passengers at high risk of potentially fatal blood clots could soon be able to monitor their condition on a flight, claim researchers.

Scientists are developing a computerised plastic strip that could assess the risk of deep vein thrombosis among long haul flight passengers.

The new system would require one drop of blood, which would be analysed by a biochip for blood clotting markers that indicate a high risk of DVT.

The single-use cartridge plate could be carried around by anyone at risk of clotting disorders, including stroke patients, pregnant women, obese people and smokers. [....]

Read more: http://www.dailymail.co.uk/health/article-1267877/Coming-soon-flight-DVT-test-use-yourself.html#ixzz0lrQdhh3b


0 replies...

Possible recurrance
Posted by G
Last Reply April 21, 2010 at 07:32
Started April 21, 2010 at 07:32
I had my last DVT about years ago toe to groin. I was a IV drug user. Been clean 10
years and lead a healthy lifestyle. Was told I was going to be life time warfarin but
stopped using it about 6 years ago.

Just got off a 13 hour flight from Sydney to LA and have a pain behind my knee and a
slight swelling but not sure whether it is a clot or because I drove for about 3 or 4 in
a hire car and am unused to the position. Drove another 9 hours today and I am now
in a motel in the desert and getting worried that I might have clotted again. I thought
if you had a big clot and as far as I know mine hasnt dispersed that you couldn't clot
again because it was already clotted if you know what I mean??

Has anyone any similiar experience or advice? I really don't want to go to hospital
unless I have to.

Thanks

G

0 replies...

Circulation
Posted by Tim in Minnesota
Last Reply April 20, 2010 at 20:11
Started April 20, 2010 at 20:11
Hi All:

I was diagnosed with a pretty extensive DVT (groin to ankle) July 2009 and have been recovering since. I was very active before and have gotten back to a pretty active state since (walking, biking, lifting weights, playing tennis). I continue on warfarin and will probably do so at least until July 2010, and possibly 2011. This is do to the extensiveness of my clot and also because I had an initial diagnosis of lupus anticoagulent. I wear compression stockings religiously, etc.

The question I have for you all is about circulation. I have noticed what I would consider to be continuous and even worsening circulation issues. These include continued discoloration of the affected leg (left) when standing and less when sitting. I also started having discoloration problems in my non affected leg (right) though not as bad. I also have discoloration extending to my hands when standing (not when sitting), and periodically experience light headedness when standing. Howeve... read more

0 replies...

DVT & Superfical
Posted by Linda
Last Reply April 19, 2010 at 02:02
Started April 19, 2010 at 02:02
Hi i found out that i had a dvt in one leg and a superfical in the other after having my baby in Oct last year.I started off with Clexan injections in my stomach which with the dosage required was 2 injections everyday for about 2mths to get my irn levels to where they should be which is 2-3 and then onto warfarin which was 13mg which im still on.I keep getting my periods every 2 weeks which just come on with no symptoms and are really heavy as well.They are that heavy that i to am going through pads and tampons every half an hr or so.I also got a umbilical hernia while pregnant and is getting operated on in June which therefor have to go back on the injections 1 week b4 operation but am scared that i will have massive bleeding whilst getting operated on.Has anyone been operated on whilst on large amounts of warfarin and had any troubles with bleeding and the clot has come back again and then the drama begins again?

0 replies...

Inner thigh pain.. any help
Posted by Betty
Last Reply April 18, 2010 at 15:50
Started April 18, 2010 at 15:50
ok so yesterday I was having alot of anxiety about getting on a plane and getting a blood clot. Well I sat in the car for an hour and a half to the airport, my flight was less than an hour. Then we had a four hour ride home, where I got out twice. Well my Inner thigh is hurting a little bit. Not alot where its affecting me, just enough so I can notice and get freaked out. Im paranoid of blood clots, and I always jump to conclusions. Which im working on with my counselor. So should i be worried about this? or am I overreacting. I have no risk factors, not on birth control, doesnt run in my family or anything. any ideas?

0 replies...

pregnancy after DVT
Posted by Alison
Last Reply April 18, 2010 at 09:52
Started April 10, 2010 at 10:03
I was diagnosed with DVT at the age of 17 after taking the contraceptive pill for 6 months. I had daily injections of clexane for 3 weeks as well as taking warfrin for almost a year.
I had a total of 3 clots, one in my calf, one behind my knee and one in my groin!
After coming off the warfrin I had a thrombophilia screening carried out which came back normal meaning that I have no underlying problems that cause the clots.
I am now 23 and would love to have a baby but im so nervous about the DVT returning and would love some advice from anyone who is in a simular situation.
Alison

4 replies...

BLOOD CLOT IN CALV
Posted by A WIFE WHO IS CONCERNED
Last Reply April 17, 2010 at 21:31
Started April 17, 2010 at 19:37
MY HUSBAND HAD KNEE SURGERY ENDED UP WITH A BLOOD CLOT WE HAVE BEEN TO THE EMERGENCY ROOM TWICE BECAUSE OF THE PAIN. HE EVEN SPENT 4 DAYS UNDER THE CARE OF A VASCULAR SURGEON. UPON LEAVING THE HOSPITAL HE WAS JUST IN AS MUCH PAIN, HE IS ON COUMADIN NOW FOR ABOUT 5 WEEKS, HE IS IN SO MUCH PAIN AND HIS DOCTOR HAS NOT GIVEN HIM A REFIL ON PAIN MED. HE IS TRYING TO JUST TAKE TYLENOL. HE CAN NOT MOVE AROUND, HE GETS UP SHORT TIME 5 MINUTES, HE IS NOT ABLE TO DRIVE. hE IS NOT EVEN CONCERNED SO MUCH ABOUT THE PAIN, BUT FOR HOW LONG DOES SOEMTHING LIKE THIS TAKE TO GET EVEN SOME OF YOUR LIFE BACK.

3 replies...

DVT 10 years on
Posted by Julie
Last Reply April 17, 2010 at 21:16
Started April 15, 2010 at 08:48
Hi all. I had a DVT and PE 10 years ago after knee surgery. I was 33 fit and healthy. I was on warfarin for 10 months and have had no problems since. My question is about flying, at the time I was told not to fly for longer than about 4 hours, to use stockings and asprin and be vigilant. 10 years on and I want to fly for longer so want to know if the risk is less now its 10 years ago?? Getting married and want to go further than med for honeymoon! Any advice gratefully received. Thanks

4 replies...

BLOOD CLOT IN CALV
Posted by A WIFE WHO IS CONCERNED
Last Reply April 17, 2010 at 19:35
Started April 17, 2010 at 19:35
mY HUSBAND WAS HAD KNEE SURGERY EENED UP WITH A BLOOD CLOT WE HAVE BEEN TO THE EMERGECNY ROOM TWICE BECAUSE OF THE PAIN. HE EVEN SPEND 4 DAYS UNDER THE CARE OF A VASCULAR SURGEON. UPON LEAVING THE HOSPITAL HE WAS JUST IN AS MUCH PAIN, HE IS ON COUMADIN NOW FOR ABOUT 5 WEEKS, HE IS IN SO MUCH PAIN AND HIS DOCTOR HAS NOT GIVEN HIM A REFIL ON PAIN MED. hE IS TRYING TO JUST TAKE TYLENOL. hE CAN NOT MOVE AROUND, HE GETS UP SHORT TIME 5 MINUTES, HE IS NOT ABLE TO DRIVE. hE IS NOT EVEN CONCERNED SO MUCH ABOUT THE PAIN, BUT FOR HOW LONG DOES SOEMTHING LIKE THIS TAKE TO GET EVEN SOME OF YOUR LIFE BACK.

0 replies...

In Recovery??
Posted by WifetoDVTMan
Last Reply April 16, 2010 at 11:22
Started April 13, 2010 at 23:18
Just happy to find this site!! My DH had a DVT diagnosed on Feb 2010. We are just 2 months past and there is no improvement on his pain. I just want my husband back. I feel like I'm in mourning right now for the loss of activity he does. He goes to work (sits most the day) and comes home to lay on the couch. I know its not about me...think of the pain he is in daily, but we are both depressed about this.
Please some one give me a good story about it actually getting better.

3 replies...

cellfood and prgnancy
Posted by kELLIE Anaya
Last Reply April 16, 2010 at 02:19
Started April 16, 2010 at 02:19
Hello, can you give me a list of Doctors in the Las Vegas NV area that would reccomend me taking cellfood now that I am pregnant.I have been taking cellfood for about a month now, and just found out I am 6 weeks pregnant...

0 replies...

Bilateral UEDVT
Posted by Patti
Last Reply April 15, 2010 at 17:44
Started April 15, 2010 at 17:44
I was diagnosed with Bilateral Upper Extremity Deep Vein Thrombosis two years ago and was treated with Warfarin and Lovenox. My resolved and Ultrasounds taken 8 months later were clear. However, since that time I have had a lot of pain in my arms - similar to tennis elbow - but in both arms. Can UEDVT cause a permanent disabling condtition?

0 replies...

DVT question.....
Posted by alan
Last Reply April 15, 2010 at 15:01
Started April 13, 2010 at 23:24
hi all, i am a twin, 26 years old. my father had DVT (i dont know the in's and outs - died when he was 33), anyway, my twin was recently dianosed with DVT and has ezcma like spots, it is exactly the same for me, the (the ezcma/spots) is much worse on his legs, i aslo have them on my legs.

i have been getting more and more concerned about it for a few reasons, and i dont know if its a DVT thing or something to do with a neurological condition i have.
for the last year i have been getting sharp pain in my hips, mostly left side and pain also in the centre of my back near the tail of the spine, or just over it. this pain i have experienced when walking and a few times when sitting, anyway this pain i get pretty much brings me to a place where i can not walk, i loose complete control and "almost" collapse for a split second and then i am ok. this happens once every while and have not seen a doctor about it. the last time it happened i was just getting up from sitting, and had the s... read more

8 replies...

Can't take it anymore - help
Posted by Charles
Last Reply April 14, 2010 at 03:47
Started April 9, 2010 at 04:40
42 yo male. I got my 1st DVT and Bi lat PE in 08. I came back from a long business trip and went hiking the following day. I laid down that afternoon for a nap and woke up with my leg in pain. Went to sleep that night and woke the following morning and couldnt put any weight on the leg. I stayed off my leg on Sunday and went to work on Monday in bearable pain but by the end of the day it was red and swolen and extremely painful.I went to the ER and was diagnosed with cellulitis, put on an IV antibiotic drip and sent home with more antibiotics. 4 days later the leg is triple normal size and back to the ER where the attending physician orderd an immediate ultrasound and confirmed a dvt with my deep vein now occlusive. Spent a couple days in the hospital and sent home on warfarin and lovenox shots. The first night home I experienced extreme burning in my lungs an went to the ER where they found through a CT that I had a Bi lat PE with 2 clots in my left lung and one in my right. They i... read more

7 replies...

vein reflux
Posted by Anne
Last Reply April 14, 2010 at 03:31
Started April 14, 2010 at 03:31
I know that vein reflux is a complication caused by DVT, some say its another name for Post Thrombotic Syndrome, however does anyone have it and what are the symptoms, I have a weird feeling in my groin area that feels life the valves are backwashing the blood if that makes sense. Is this normal for vein insufficiency I do have an appt. but I am still scared cause I don't want to go through this clot thing again. And to top it off its the opposite leg from my affected leg with the clot

0 replies...

Length of Juzo compression nylons
Posted by JIll
Last Reply April 13, 2010 at 20:07
Started April 13, 2010 at 20:07
I am pregnant and have to wear the Class II compression because of vericose veins. My
doctor recommended the JUZO brand (previously used Corolon??. But - on their thigh
lenth it shows it only goes to 32 3/4"s. If my thigh lenth is 34 1/2 will these fit me - or
should I find another brand?

0 replies...

some info and advice??
Posted by becky
Last Reply April 13, 2010 at 17:29
Started April 3, 2010 at 13:09
hey, my names becky am 20yrs old and 2weeks ago had my first baby, she was 6weeks prem.

Monday just gone i had swollen legs and got myslef to the hopstial they did tests and scans and said that i had a DVT in my right thigh, as am still post-natal bleeding they have put me on injections for the next month until i can go on warphin.

I just want some advice as my lil girl is prem shes in hops and ive been discharged home a while ago, i cant seem to walk as my leg is very swollen and e live abit away from the hops so its had to see her so my partner has been done everything, i just want some advice on when poss the swelling will go down for me to be able to walk better?? and i fi gonna be like this all my life now?? i feel so depressed as i feel i cant do anything anymore some please help me :(

thanks x

11 replies...

Weird Post Thrombo Syndrome
Posted by Rose
Last Reply April 11, 2010 at 23:41
Started April 11, 2010 at 14:51
Anyone have the feeling of the hair on your legs being pulled even though you don't have any hair?

I'm 8 mos after DVT diagnosis in left leg and per my Dopplar, my clot is dissolved. I do have PTS to a certain degree because my leg aches if I sit or stand too long or exercise too vigourously.

Now I have another symptom every once in while. The only way to describe it is as if I had hair on my legs that is being pulled. It is only a momentary feeling, but sometimes is enough to make me yelp.

I hate having had this DVT, I never know what type of after effects to expect.

1 replies...

I was frozen to death- and it saved my life
Posted by N
Last Reply April 11, 2010 at 16:35
Started April 11, 2010 at 16:32
I was frozen to death- and it saved my life

By Diana Appleyard
Last updated at 2:02 AM on 11th April 2010

In April last year, Vonetta Flowerdew struggled to sit upright in her hospital bed, took her husband Bob's hand and said: 'Kiss the children for me, tell them goodbye and that Mummy loves them very much.'

Vonetta, the wife of Bob Flowerdew - one of the experts on Radio 4's Gardeners' Question Time - was convinced she was dying and would never see her four-year-old twins Italia and Malachi again.

Vonetta was suffering from a rare form of blood clotting which had blocked the arteries round her heart, creating a condition known as chronic thromboembolic pulmonary hypertension.

But for a pioneering and radical form of surgery offered only in the UK at Papworth Hospital in Cambridge, she would now be dead.

The surgery, which can take up to 11 hours to complete, is one of the most complex and difficult heart-and-lung operations being undertaken in the world tod... read more

3 replies...

eecp
Posted by tony
Last Reply April 11, 2010 at 12:12
Started April 11, 2010 at 12:12
hi as anyone tried EECP treatment for there dvt

0 replies...

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