DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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blood clot one leg; now symptoms in other
Posted by Shona
Last Reply April 9, 2010 at 04:18
Started April 9, 2010 at 02:43
Hi everyone,

My mother had a blood clot in one leg about 6 months ago. Everything seemed to be going fine and she recently came off the medication. Now, about 2 weeks later, the opposite knee is swollen, bruised and sore. She just called to tell me, so I haven't seen it myself, to judge just how bad it is. She says it has been like this for four days now. Could this be another blood clot? My mother has taken aspirin and says she will see how the knee feels tomorrow. She may go to a walk in clinic. If it were up to me, we would go to the emergency room right away, however the long wait times are putting her off. Is this something we should be really concerned about? Sounds like a silly question, however my mother seems to think it could possibly be phlebitis, which she feels is not an immediate threat...in other words, a visit in the next few days to a regular doctor will suffice. Does anyone have any suggestions? Thank you so much.

1 replies...

Paid Research for DVT AND PE
Posted by Jill
Last Reply April 8, 2010 at 12:10
Started June 1, 2009 at 15:52
Delve, LLC in Oak Brook, IL is looking for people diagnosed with Pulmonary Embolism (PE) and Deep Vein Thrombosis (DVT) who would be willing to participate in a market research study about the impact of living with A-fib, PE, and DVT. If you or anyone you know may be interested, please call 630-990-8300 and refer to study 9166. We look forward to your calls and referrals.


3 replies...

New DVT and Traveling
Posted by Colleen
Last Reply April 6, 2010 at 20:05
Started April 6, 2010 at 04:30
2 weeks ago I had surgery for my vericose veins. I felt fine besides normal tenderness obviously where the veins had been lasered. When I went back for my week follow-up and ultrasound they found a dvt behind my left knee and on my lower calf area. The doctors told me they think my birth control (yaz) played a role in this. Having this happen was the last thing on my mind since I am a young (28) healthy woman. So I was put on Lovenox 2xs a day and Warfarin once. I have since had my labs done twice and both were low so I was told to take 7.5mg instead of 5mg 2x's a week.
I am supposed to go to Mexico May 1st for my Best Friends wedding. The Dr said my medication would be fine by then and I will be ok. I myself am contantly freaking out about everything. I am nervous about the traveling and also I want to be able to enjoy myself and be able to have drinks, lay out at the pool and not worry about anything. It sounds crazy but I am scared if I just enjoy myself as usual (drinking, eat... read more

4 replies...

Student's life saved by biology lecturer
Posted by N
Last Reply April 6, 2010 at 15:25
Started April 6, 2010 at 15:25
Student's life saved by biology lecturer who diagnosed DVT blood clots in her leg during class

By Daily Mail Reporter
Last updated at 12:39 PM on 06th April 2010

A student's life was saved when she went to a biology lesson - and her teacher diagnosed that she had potentially fatal blood clots.

When Billie-Jo Twigg's leg became painful and swollen she assumed she had just strained a muscle.

But when the 19-year-old mentioned it to her college biology lecturer Caroline Morgan she was told to get to a doctor as soon as possible.

Three blood clots were discovered in her leg which, if left untreated, could have moved to her lungs causing a potentially fatal pulmonary embolism.

Now Billie-Jo, who goes to Portsmouth College in Hampshire, has thanked her Ms Morgan for saving her life.

Hailing her as a hero, Billie-Jo said: 'If Caroline had not said anything, I probably would have just left it and waited for it to get better itself.

'I honestly just thought I had spr... read more

0 replies...

Factor Five and pregnancy.
Posted by Tammy
Last Reply April 6, 2010 at 13:15
Started April 5, 2010 at 12:52
Wow!
It is very rare to have this disorder, especially for men!
I have Factor Five, I am 35 years old and am currently expecting, I am in my fourth month.I want to take fish oil, krill oil in particular, There is so much conflicting info on this, some say take it, others say not to, I am not on any kind of anticoag, thank God! I work in a chem lab, and still can't figure it out! My doctor said my risk is very low, because I only have 1 of the 2. I really want the best for my baby. Any thoughts on this?

3 replies...

off of welfarian
Posted by michelle
Last Reply April 6, 2010 at 10:07
Started April 4, 2010 at 16:58
I've been off of welfarian for a year now. and i've been having breathing problems like when im in my vehicle. or in my room. I will feel lightheaded and haft to lay down and have hte breathing problem.. Idk if it's aniexty or what. But did anyone have any problems after being off of blood thinner?

1 replies...

Favtor Five Five and pregnancy.
Posted by Tammy
Last Reply April 5, 2010 at 12:51
Started April 5, 2010 at 12:51
Wow!
It is very rare to have this disorder, especially for men!
I have Factor Five, I am 35 years old and am currently expecting, I am in my fourth month.I want to take fish oil, krill oil in particular, There is so much conflicting info on this, some say take it, others say not to, I am not on any kind of anticoag, thank God! I work in a chem lab, and still can't figure it out! My doctor said my risk is very low, because I only have 1 of the 2. I really want the best for my baby. Any thoughts on this?

0 replies...

DVT and Warafin
Posted by Mark
Last Reply April 4, 2010 at 10:06
Started April 4, 2010 at 07:03
Hi, been on here for a while reading and gathering info from all the people who post. I had a DVT in my right calf a month and a half ago as well as PE. Been on Warafin (8mg) since then and was just wondering about a few things. The pain has gone for the most part and there is a little swelling still there as well as some slight discoloration. Every so often I will get a real bad itch on my calf, has anyone experienced this.

I've also read alot about compression stockings, but no doctor that i've talked to has mentioned anything about them. Are they an absolute must?

I'm also planning a trip this summer with my family, it is by car and is 13 hours. When traveling by car do i need to be worried like I would about a long plane trip?

Any help or answers would really be appreciated. I know there are certain precautions that I need to take but I don't want DVT and my Warafin to rule my life.

1 replies...

zyrtek & coumadin
Posted by claire
Last Reply April 3, 2010
Started April 2, 2010 at 10:36
does anyone know of any problems taking zyrtek & coumadin together .
my allergies are bad this time of year. I'm taking claritin which I was told was ok,
but this doesn't seem to be doing any good.

6 replies...

Why is it still painful?
Posted by AS
Last Reply April 2, 2010 at 03:27
Started April 1, 2010 at 12:31
I had large clot in my right leg, from May to Dec of 09. I'm still experiencing pain and slight swelling in my leg. Sometimes it hurts to stand or sit for very long. I seem to only find relief when I prop my leg up. I was wondering if it was possible if the clot as reformed, or if it never really went completely away? If not, is there a reason it's still painful? Like lifelong side effects of the DVT or something?

2 replies...

Possible PE
Posted by AB
Last Reply April 1, 2010 at 11:01
Started March 28, 2010 at 07:32
Hello all. I was diagnosed with a DVT on Jan 11, 2010. On my second day of hospitalization, the nurse noticed that my heartrate was erratic. EKG's showed palpitations, and an echocardiogram showed that my heart is not relaxing in between beats. At that time, I was not experiencing shortness of breath. In the past few weeks, the shortness of breath has increased. I saw a cardiologist, and this past Monday, they did a treadmill stress test, and ever since I have experienced more chest congestion/coughing. This started after the test and has progressively gotten worse. I was not contacted with results after the stress test, which I was told means that there was nothing of great concern to the cardiologist. They have not done any x-rays/scans on my lungs, including when I was hospitalized with the DVT. Is it possible that I have a small PE that could be causing these symptoms? It seems that they would be more severe if that was the cause, but it seems strange to me that all of... read more

6 replies...

statins+dvt
Posted by tony
Last Reply March 31, 2010 at 10:54
Started March 21, 2010 at 22:44
hi,had dvt 20 years ago,left leg,calf muscle,high blood pressure,the cause,now on Simvastin,Fossinoporal,Amladophien,Asprin small dose,Water tabs,but the aches from the Statins are causeing to many problems now, so been looking on net for answers,I am one week into DR Linus Pauling cure,but just found Serrapeptase, i was just wondering if anyone has used Serrapeptase,

4 replies...

Compression stockings
Posted by Pamela
Last Reply March 31, 2010 at 05:35
Started August 21, 2009 at 03:11
I was diagnosed with DVT 7/16/09, but I'd had it and dealt with swelling and pain for
a month beforehand, but I didn't have any real risk factors, so it wasn't the first thing
checked out. I'm disappointed as I read here that I know it's in my left foot/ankle
somewhere, but don't know where exactly, so I don't know how it can be monitored to
be sure it's gone.

I have an appointment to get measured for compression stockings, since I currently
can't wear shoes. I don't know anything about them, other than you have to get
measured and have a prescription. Is this typically covered by insurance, like a
medicine co-pay, if you have an HMO?

Thanks! I'm sure I'll have other questions, but this is the burning one for the moment.

4 replies...

DVT or just over reacting?
Posted by Sophia
Last Reply March 30, 2010 at 11:18
Started March 29, 2010 at 19:50
Ok so I had a dvt ultrasound on legs about three weeks ago, came back fine. my dr told me not to be worried anymore. well ever since this girl i work with got one in her calf ( due to a disorder) ive been totally freaking out about it. Im just so afraid ill get a dvt in my calf and have no warning signs. ive never had one before and am not at risk. Can anyone help me?

4 replies...

dvt
Posted by b.obryan@ cox.net
Last Reply March 29, 2010 at 23:36
Started March 29, 2010 at 20:26
I had a tkr left 3 wks ago. I just finished 2 wks of loviton and am on coumadin. I am active, normal weight, and just today have an occasional intermitent tnrobbing in my opposite shin = feels like ashin splint. Should I be concerned? I don't want to go to the dr if not necessary.

1 replies...

May-Thurner Syndrome
Posted by Diane
Last Reply March 28, 2010 at 17:49
Started March 28, 2010 at 17:49
I have started a new group on Facebook (March 27, 2010) and it can be found by going to Facebook Groups and typing "May-Thurner Syndrome Support Group" which will take you to two FB groups with similar names.

My new group has the word Support in it because that is what we do, plus I post medical information from experts in the field as it becomes available.

This is a closed group for privacy of the members, so please write and tell me a little about yourself if you are interested in joining. I can be contacted at woodcreek12@aol.com

This new FB group will be in addition to the thriving group I've had for two years on Google Groups, and which currently has 85 members.
--Diane Peterson

0 replies...

May-Thurner Syndrome
Posted by Diane
Last Reply March 28, 2010 at 17:47
Started March 28, 2010 at 17:47
I have started a new group on Facebook (March 27, 2010) and it can be found by going to Facebook Groups and typing "May-Thurner Syndrome Support Group" which will take you to two FB groups with similar names.

My new group has the word Support in it because that is what we do, plus I post medical information from experts in the field as it becomes available.

This is a closed group for privacy of the members, so please write and tell me a little about yourself if you are interested in joining. I can be contacted at woodcreek12@aol.com

This new FB group will be in addition to the thriving group I've had for two years on Google Groups, and which currently has 85 members.
--Diane Peterson

0 replies...

I found out why
Posted by Machka
Last Reply March 27, 2010 at 12:33
Started March 27, 2010 at 12:33
I had bloodwork done last week, and two days later was sent a letter to pay my Dr a visit "at my earliest possible convenience".

Evidently I'm a mutant. :D

Turns out that I have both a genetic mutation which increases my risk of developing DVT, and a high homocysteine level which puts my cardiovascular risk from the genetic mutation into a high risk level. The mutation is the methylenetetrahydrofolate (MTHFR) Gene Mutation (C677T), and apparently 8-18% of the population has this mutation.

I guess there's a good possibility I'll be on warfarin for the rest of my life, and Vit B and Folic Acid are supposed to reduce my homocysteine level.

The test for this is a simple blood test which tests for both MTHFR and Homocysteine. If you haven't found out a cause for your DVT yet, talk to your Dr about getting this test done. Who knows ... you might be a mutant too. :D

0 replies...

silk worms/fibrin
Posted by tony
Last Reply March 25, 2010 at 18:46
Started March 25, 2010 at 18:46
hi,the forum is very good it seems to me people are very worried about there dvt,s i had my dvt over twenty years ago left leg, yes and it is thinner than the right and it as never returned ,8 weeks in hostpital , heperin, then warferin,doeses getting smaller with each return to hostpital, over the years i have tried most cures , i am only lay person , i just thought i would try and share with you all what i have found out, i might be wrong but hear goes, the stuff that causes blood clots is called Fibrin ,the way blood vessels are made if there is a crack or fiisure in the Fibrin colesterol builds up around it then over time a little piece breaks of and blocks blood vessel ,hence dvt,but in USA Tufts Unversity they are trying to put silk worm cocoons in a stent, boiling them first soaking with antibiotics only 1mm thick when cocoon dissolves it makes new fibrin , i myself are going to try something called Serrapeptin,silk worms again,DR linus pauling vitamin c cure,q10,hope you che... read more

0 replies...

thigh pain
Posted by joe
Last Reply March 25, 2010 at 11:19
Started March 20, 2010 at 17:55
Ok, been looking online now for a cpl days about DVT and have a cpl questions. When ppl talk about thigh pain, what part of the thigh are they normally meaning, like the front, back..etc? I started having pain in my right leg on thursday right above my knee cap on the top side, then it seemed to spread up my leg, friday it hurt on the top of my thigh up to my waist, now today it no longer hurts there, but seems to have moved over a little to the inside a bit. i was just wondering if that sounded common in DVT, cause everything i've read online shows deep veins in the thigh run from the groin to behind the thigh bone and not on top. also there is no swelling or redness that i can see, and only warmth is from where i keep pushing on it to try and locate the exact point of the pain cause it seems to move around. and no i do not recall injuring my leg in any way prior to thursday, just kind of came on so to speak. i am 35, non smoker, fairly active, although i do read in my recline... read more

3 replies...

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