DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 167 of 237
APS Testing
Posted by Claire
Last Reply March 2, 2010 at 19:27
Started March 2, 2010 at 17:54
does anyone know what the APS tests consist of, ie what do they test for in total ??

3 replies...

Questions on Doctors
Posted by Tim in Minnesota
Last Reply March 2, 2010 at 18:09
Started March 1, 2010 at 14:16
Question for anyone: What type of Doctors do you see (vascular, hemotologist, GP, Rheumetologist)? I am now 8 months post DVT occurence (ankle to upper thigh), still on warfarin (tested moderate positive for Antiphospholipid 2 months into recovery via genetic testing). How often do you see them? The reason I am asking the question is that medical bills do pile up and become expensive and I'm starting to wonder how much I need to see these doctors (currently seeing a vascular surgeon and hemotologist seperately). I have appointments scheduled for both vascular and hemotologist in March and am wondering how much benefit I am getting out of those visits versus what they are costing me. Benefits versus cost: I get 5 to 10 minutes with each and they don't really tell me much, yet are costing me between $300 and $500 per visit. Any thoughts would be appreciated.

4 replies...

Off topic: Chinese herbs
Posted by N
Last Reply March 2, 2010 at 11:01
Started March 2, 2010 at 11:01
It's never been more popular. But how safe Chinese medicine?

For five years, Patricia Booth took a Chinese herbal remedy for a skin complaint. As a result, she has lost both kidneys and developed cancer of the urinary tract. It is a shocking story, but even more shocking is that it almost exactly parallels the experience of catering manager Sandra Stay.

...read: http://www.dailymail.co.uk/health/article-1254746/Chinese-medicine-caused-kidney-failure-cancer-So-safe-popular-cures.html

0 replies...

Questions about D-Dimer
Posted by Shane
Last Reply March 1, 2010 at 01:35
Started February 27, 2010 at 22:43
I went to the hospital three days ago for chest pains, had an x-ray and D-dimer test to rule out clots in my lungs. Everything was fine. Well Shortly after the test my right inner thigh has been hurting like crazy. It goes from my groin area, down my inner leg and even my lower back.

So Im just wondering if I had a negative D dimer test should I be okay?

im kinda freaking out.

2 replies...

ALTERNATIVE MEDICATION TO WARFARIN
Posted by AJU
Last Reply February 25, 2010 at 16:01
Started February 23, 2010 at 21:42
Hey, let me fill you with my info first. I am a 35 years old female who has been on warfarin for the past 14 years. at 20 years after giving birth to my first child i form DVT and PE (in lungs). I also have in IVC filter fitted in. i suffer from double dose protein c deficince also known as factor v leine
lately for the past 6months to 1 years, i am noticing i have a lot of side affects, mainly fatigue, tiredness etc... i do not know if this is to the fact the warfarin side effect or just my body changing.
Anyway to cut the chase short, i requested my consultant to stop my warfarin.

it has now been 4 weeks and my calfs are hurting again,

i have been doing a lot of research on alternative medication and i see, garlic, ginger, gingko, ginsing vitamin e are all good blood thining agents.
just wanted to know anyone know of tried any alterantive medication instead of warfarin.

2 replies...

Epigenetics: Chemicals Turn Genes On and Off
Posted by N
Last Reply February 25, 2010 at 06:54
Started February 24, 2010 at 09:52
Epigenetics: Chemicals Turn Genes On and Off at the Wrong Times
Tuesday, February 23, 2010 by: David Gutierrez, staff writer

) Scientists are increasingly becoming aware of a new mechanism by which pollutants can damage the health of living organisms -- epigenetic changes, in which a chemical changes how a gene is expressed.

While some chemicals are toxic (attacking the body's systems directly) and others are mutagenic (changing the actual code of an organism's genes), others do not change the way a gene is written, but instead how it acts in the body.

Epigenetic changes "can lead to increased susceptibility to disease," said Linda S. Birnbaum, director of the National Institute of Environmental Health Sciences and of the National Toxicology Program. "The susceptibility persists long after the exposure is gone, even decades later. Glands, organs, and systems can be permanently altered."

Epigenetic changes have been identified that increase the risk of Alzheimer's disea... read more

1 replies...

Compression Stockings Incorrectly Used
Posted by N
Last Reply February 25, 2010 at 04:26
Started February 17, 2010 at 02:45
Compression Stockings Incorrectly Used In 29 Percent Of Patients

An original study, published in the September issue of the American Journal of Nursing (AJN), revealed that graduated compression stockings were used incorrectly in 29% of the patients and sized incorrectly in 26% of the patients.

These stockings play an important role in preventing the formation of deep vein clots that can result in pulmonary complications and death.

"Problems with the use and sizing of graduated compression stockings are common throughout the country and this study is one of the first to systematically analyze the problems and recommend ways to improve practice," said Elizabeth H. Winslow, PhD, RN, FAAN, Research Consultant, Presbyterian Hospital of Dallas, TX and lead author of the study. "Based on the study findings, we recommend that knee-length stockings be the standard length used and that the education of nurses and patients about the proper use of stockings be improved."

This stud... read more

4 replies...

Vitamin D Protects Against Dangerous Blood Clo
Posted by N
Last Reply February 24, 2010 at 23:38
Started February 24, 2010 at 10:43
More good news about Vitamin D AGAIN!

With March being National Deep Vein Thrombosis Awareness Month (I'm not making this up!), you would think that a study showing that prevention of Deep Vein Thrombosis, also called DVT, through sunlight exposure would have captured some attention. But for most of National Deep Vein Thrombosis Awareness Month, Big Pharma had it's showcase, trotting out examples of people who have died from DVT and how THEIR drugs would have saved them.

Blood clots in the legs, also known as Deep Vein Thrombosism, are most often acquired by people who are inactive for long periods of time, women who smoke and take birth control pills, the elderly and hospitalized and post surgical patients. DVT's in and of themselves are generally not dangerous and will often resolve on their own. But the BIG risk is that the clot in the leg will break off and go into the lungs causing a life threatening situation called a Pulmonary Embolism- or PE.

For people who are at h... read more

2 replies...

Factors associated with warfarin sensitivity
Posted by N
Last Reply February 24, 2010 at 17:01
Started February 24, 2010 at 17:01
Both genetic and environmental factors such as foods and medications can affect the anticoagulation effect of warfarin:

* Genetics: Variants in both vitamin K epoxide reductase (VKORC1) and cytochrome p450 2C9 (CYP2C9) have a significant impact on warfarin sensitivity. Carriers of specific variations may be more sensitive to warfarin and may therefore require significantly lower doses than those with other variations. Variations in VKORC1 have a much greater impact on warfarin sensitivity than variations in CYP2C9, particularly during the initiation of therapy.

* Ethnicity: There are significant differences in warfarin dose requirements among different ethnic groups. Specifically, it has been recognized that people of East Asian descent require on average a 30-40% lower warfarin dose than individuals of European descent. In recent years it has become apparent that the VKORC1 gene variants that are associated with lower warfarin doses are much more common in Asians than... read more

0 replies...

Heparin blood thinner caused man to lose his..
Posted by N
Last Reply February 24, 2010 at 09:45
Started February 24, 2010 at 09:45
Heparin blood thinner caused man to lose his toes, claims lawsuit
Tuesday, February 23, 2010 by: Ethan A. Huff, staff writer

) A recent report in the West Virginia Record details a lawsuit filed against Baxter Healthcare Corp. for damage caused by their blood thinning drug, heparin. After being prescribed the drug in 2007, James Bradley quickly developed severe bodily injuries that resulted in having to have his toes amputated. He and his wife Shirley are seeking compensation for his loss and the intense pain and suffering that he experienced from the drug.

Heparin is known to cause a severe blood platelet disorder called thrombocytopenia that can cause patients to develop gangrene. The Bradley case is one of many in which patients have had to undergo amputation due to heparin-induced disease and decay.

The Bradley case is alleging that Baxter and other drug companies that market heparin are doing so falsely. They believe it is clear that the drug is not safe and that it ... read more

0 replies...

Vegetarian Diet Can Cause Repeat Miscarriages
Posted by N
Last Reply February 23, 2010 at 22:36
Started February 23, 2010 at 22:36
Women who are deficient in vitamin B12 may be at risk for infertility or repeat miscarriages, but in many cases they can change their situation with vitamin therapy.

Vitamin B12 plays a key role in the nervous system and the development of new tissue, and is also crucial in ovulation.

Women who are deficient may not ovulate, for instance, or a fertilized egg may not develop, resulting in miscarriage.

But according to the study, 10 of the women conceived after beginning vitamin therapy; six of these women conceived almost immediately. Seven of the women were found to have mutations in a gene involved in metabolism of folate. That, combined with the B12 deficiency, increased their risk of thrombophilia, a condition in which they were at increased risk of clot formation. Six other women were found to have other causes of thrombophilia.

One woman had suffered seven miscarriages before doctors discovered that she was deficient in vitamin B12. The woman went on to have three ... read more

0 replies...

pain
Posted by caly czunys
Last Reply February 23, 2010 at 02:11
Started February 19, 2010 at 22:18
Hiya, im 20 and i found out i had an extensive dvt of my upper leg when i was 30 weeks pregnant with my 2nd child. I was in hospital for 2 weeks and was on heprin for 6 months. its been 2 months since i came off the injections but my leg still gets really sore for time to time. i use my stockings most days and i know ill get a little pain sometimes but how often and to what extent? i couldnt walk for 2 months after being in hospital and had to marry my now husband on crutches. thanks! carly

3 replies...

Routine eyetest revealed rare brain blood clot
Posted by N
Last Reply February 22, 2010 at 20:18
Started February 22, 2010 at 20:16
Forget Specsavers, my opticians were lifesavers! Sales assistant's killer blood clot spotted during eye test

A young sales assistant was stunned after a routine eye test revealed she had a rare brain blood clot that could kill her at any time.

Kirsty Old, 22, only discovered she had the one-in-a-million blockage when she visited her family opticians suffering from migraines.

A retinal scan quickly revealed swelling behind her eyeballs and Kirsty was rushed to hospital where an MRI scan showed her brain was a ticking timebomb.

Doctors realised the sales assistant suffered from a rare blood clotting disorder that could strike at any time and immediately gave her the blood thinning drug Warfarin to get rid of mass that was clogging up the vein in her brain.

The clot could have caused a stroke, severe bleeding, blindness or even killed her if it hadn't been treated.

Miss Old, from Shrewbury, said: 'You could say I was spec saved! It was a very scary time. I have to tak... read more

1 replies...

Chronic Venous Insufficiency/Antiphospholipid
Posted by Lupus Sufferer
Last Reply February 21, 2010 at 19:42
Started February 21, 2010 at 11:02
Hi everyone, I have been diagnosed with having chronic venous insufficiency. I also have antiphospholipid syndrome due to having positive anti cardiolipin antibodies and have previously thrombosed. I also have nerve damage due to the SLE and have been prescribed Gabapentin to help with this.
Because of the above, my doctor has prescribed me compression stockings. I have been prescribed Activa Class 1 thigh stockings.
Previously I had been prescribed compression stockings, but did not find them very comfortable. However, my doctor assured me that compression hosiery has moved on substantially from a few years ago and that I would find the Activa range not only comfortable, but also very aesthetic.
I went to my local chemist to get my prescription, however I was told by my local chemist, that they could not get the size/colour that I wanted as their suppliers don't stock it.
Very disappointed with my chemist's response, I went to the Activa site read more

1 replies...

Hoping to find some help!!
Posted by Veda
Last Reply February 19, 2010 at 23:47
Started February 16, 2010 at 03:31
hi all im hoping to get some advice from this forum and maybe some help :)

Ive been having leg pains for the last few months off and on, in my left leg mainly. Ive convinced myself that Ive had a DVT and have had my leg checked out many many times. Ive had blood tests, ultrasound, physical exams, exrays, you name it Ive had it. The drs just say its just leg cramps and they gave me some muscle relaxers. I dont like to take them because they make me feel drugged up.

My left leg still hurts on a daily basis, and im scared about DVT. Ive never had one nor has anyone in my family, but going through this forum, I see that thats not really a huge deal. As lots of people have gotten them with no family history.

Im also not very overweight, exercise, and am not on birth control.

Also Ive noticed after I had my baby, that my left calf is a wee bit larger than my right calf. Makes me think I have a DVT even more.

Any ideas, and im just curious im not trying to hurt anyones feel... read more

10 replies...

sometimes it aint bad
Posted by Emma
Last Reply February 18, 2010 at 23:58
Started February 18, 2010 at 23:58
I've been reading this forum a lot, I have received some great information and support from members here, thankyou. DVTs have caused a lot of posters here a lot of concern, anxiety and severe physical symptoms, they have affected many aspect of peoples lives for years or their issues will remain with them for life. And for others, sometimes it ain't really that bad.

Just before Christmas I found I had a massive dvt in my arm and neck that involved 3 veins. Doctors searched for a primary cancer cause, nothing. No genetic cause either. My dvt was just one of those damn things. I was totally jacked off that it ruined my festival partying season. Warf, INR, blood test and specialist appointments where a real bother to me. I think I lost a bit of perspective on things and got pretty down.

Anyway, a scan 2 weeks ago and my DVT has gone, I have no swelling, no discolouraion, no loss of function or weakness. I'm stopping warf slowly over the next 3 weeks and then that is that. ... read more

0 replies...

Slight swelling in hands after pe's
Posted by Becky
Last Reply February 18, 2010 at 12:00
Started February 18, 2010 at 12:00
I had pulmonary emboli in October, and the past week I've noticed
slight swelling in my hands. It's not painful, just I've noticed my
rings are tight, and when I take them off, I have indentions where the
ring was. I don't know if I need to call my doctor about it, or when
it's something I need to worry about.

Also, do any of you know of things to do to decrease swelling if it's
just water weight or something? I don't want to take medicine or
anything, but I don't know if certain foods decrease swelling or not.


0 replies...

Anxiety about DVT
Posted by J Mommy
Last Reply February 18, 2010 at 03:52
Started January 31, 2010 at 04:03
Hi all- this is my first time here, and im hoping maybe someone can help me!

Im 21 female. I had my baby 5 months ago! a beautiful baby boy. Well While I was pregnant I read a story about a woman dieing after childbirth due to a blood clot after a c-section. Well ever since then Ive been plagued with a fear of getting a blood clot and dieing, that was like 14 months ago and im still fearing this.

I have no family history, i am not on birth control ( use condoms) I dont sit around all day, a decent weight, and I exercise.

Ive had my leg checked out a million times, had blood tests and ultra sounds, and everything has been fine.

Today my left leg hurts down the left side, and my mind automatically jumps to blood clot.

can anyone PLEASE help?? nothing seems to help me get over this fear

7 replies...

Off Topic: Aspirin & Breast Cancer
Posted by N
Last Reply February 17, 2010 at 15:00
Started February 17, 2010 at 15:00
Women who take aspirin regularly are half as likely to die from breast cancer, a startling new study has found.

The findings could lead to a low-cost and relatively safe tool to help women survive the condition.

The study of more than 4,000 nurses showed that those who took aspirin - usually to prevent heart disease - had a 50 per cent lower risk of dying from breast cancer and a 50 per cent lower risk that the cancer would spread.

'This is the first study to find that aspirin can significantly reduce the risk of cancer spread and death for women who have been treated for early stage breast cancer, ' said Dr Michelle Holmes of Harvard Medical School, who led the study published in the Journal of Clinical Oncology.

'If these findings are confirmed in other clinical trials, taking aspirin may become another simple, low-cost and relatively safe tool to help women with breast cancer live longer, healthier lives.'

Dr Holmes and her team studied 4,164 female registered nurs... read more

0 replies...

Had DVT and PE, Safe to Get Pregnant?
Posted by Alona Ocampo
Last Reply February 17, 2010 at 05:39
Started January 22, 2010 at 11:05
Hi, this is Alona Ocampo from Philippines. Had a DVT and Pulmonary embolism last year 2009. I just want to ask if it is safe to get pregnant still? Or i'm on risk? Just got off coumadin last Jan 14, 2010. I want to have a baby. :(

5 replies...

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