DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 168 of 237
genetic test results? (lab results)
Posted by pamela
Last Reply February 17, 2010 at 02:23
Started February 5, 2010
General request, since I haven't seen this specifically...

Those of you who were diagnosed with a clotting disorder, or CLEARED of a clotting
disorder after testing, would anyone be willing to share what their test results were-
including what they were told was the "standard range" or whatever if it was included
in lab reports? I realize I will have to wait for all my results, but one of the APS ones
came back (don't know what it means, can't find the #s info online). I have online
access to the results, but won't see my doc again for another 3-4 weeks.

People willing to share for the benefit of myself and others who come to the forum
after me? I'll post mine when I get them.

6 replies...

Radical New Understanding of Genetic Disease
Posted by N
Last Reply February 15, 2010 at 21:11
Started February 15, 2010 at 21:11
The theory of the genetic origin of diseases is one of the most firmly upheld doctrines of today's medicine. Medical science claims that cancer is brought on by "mistakes in DNA replication", causing cells to gradually change from normal to "abnormal" and eventually to "malignant" cells.

Studies in the science of Epigenetics show that genes are by no means 'set in stone' but that they can alter themselves in response to a person's environment. In short, the DNA and thus the biology of an organism are constantly adjusting themselves to signals from outside the cells, including energetic information arising from thoughts and beliefs. Diseases such as cancer are not caused by defective genes, as claimed by mainstream geneticists, but rather by non-genetic factors that alter the expression of genes without changing the DNA sequence.

Your brain controls all processes in your body. By comparing brain CT scans with medical records and personal histories, it becomes evident that emoti... read more

0 replies...

is this dvt
Posted by kelly
Last Reply February 14, 2010 at 18:33
Started February 14, 2010 at 17:23
hi everyone i'm hoping that someone will be able to help me, my husband is getting pain in his left leg, it started in his calf and has travelled up to his groin, he is also short of breath coughing a lot and chest pain, he has seen a doctor and they done a chest x-ray and blood test but apart from his red blood cells slightly raised there was no diagnosis i asked his dr if it could be a dvt and was told this was unlikely as my husband has had these exact symptoms before last year and they disappeared after a few months by them selves but he was never diagnosed, however my husband is convinced it is dvt and last time he felt the pain in his leg go and he then started to have a very high racing heart this was detected by the drs and he was put on bisporol and asprin. i was just wondering if anyone could help me are these symptoms of dvt? or something else any help would be much appreciated

1 replies...

a year later
Posted by Kelly
Last Reply February 13, 2010
Started February 12, 2010 at 13:42
I had a dvt in my left leg over a year ago. They had to go in through the back of my knee to bust the clot. Now i'm having swelling and pain in the same spot. I am very worried being as I almost died from this. Should i be concerned?

2 replies...

Can i have surgery with a blood clot
Posted by rebecca
Last Reply February 11, 2010 at 12:17
Started February 10, 2010 at 12:51
I went to the doctors yesterday with pain in my calf which he suspects could be a blood clot, the thing is i and a am due to have a brest enlargement in three weeks. I am having the breast enlargement abroad so and my doctor here doesn't know about it and i was just wondering if it is still ok to have the operation?

3 replies...

Pain after hot bath is that normal???.
Posted by Rachael Hall
Last Reply February 10, 2010 at 08:31
Started February 3, 2010 at 13:04
Hi, Im 18 and have had a blood clot'for almost 2years. My clot goes from my left ankle to my belly button. Tonight I though it would be nice to have a hot bath about 5minutes into it I started getting a fare bit of pain I have been out for about an hour or two and the pain hasent gone away should I be concerned? Does anyone have hot baths with a blood clot???

3 replies...

Clot on Warfarin Scared
Posted by Eveewonder
Last Reply February 9, 2010 at 17:33
Started February 9, 2010 at 03:16
Hi - I have a DVT in my subclavian vein. It was removed mechanically
last year but it has come back even though I am on warfarin for the rest
of my life. My vein is damaged and they put a stent in there but that is
now fractured and the vein is completely occluded with a blood clot. Is
it dangerous to live with this? Will the clot probably continue to grow?
I am 44. Will this blocked vein eventually cause damage to my arm? I'm
scared and worried about this. Thanks everyone and sorry for all of us
we have to worry about these darn things. :-)

2 replies...

Venous thrombosis is a multi causal disease
Posted by N
Last Reply February 9, 2010 at 02:40
Started February 9, 2010 at 02:39
Factor V Leiden is associated with an increased risk of developing an episode of DVT (with or without a PE). Approximately 1 in every 1000 people will develop a DVT or PE each year, and this increases from about 1 in 10 000 for those in their twenties to about 5 in 1000 for those in their seventies. Heterozygous factor V Leiden increases the risk of developing a first DVT by 5- to 7-fold (or 5 to 7 in 1000 people each year). Thus, even though the relative risk of developing a DVT seems high, the absolute risk of having a DVT is still quite low with factor V Leiden. Factor V Leiden is thus a weak risk factor for developing blood clots; in fact, most people who have heterozygous factor V Leiden never develop blood clots. Homozygous factor V Leiden increases the risk of developing clots to a greater degree, about 25- to 50-fold. If you have the heterozygous form of factor V Leiden, the lifetime risk of developing a DVT is 10% or less, but may be higher if you have close family members ... read more

1 replies...

Positive thinking makes me sick
Posted by N
Last Reply February 6, 2010 at 22:38
Started February 6, 2010 at 22:27
JENNI MURRAY on why she hates the self-help industry

To be told that feeling miserable about a health problem that fills you with perfectly rational fear will make your prognosis less hopeful seems to me nothing short of cruel. I have recently been pleased to discover that I am not alone in my scepticism. A pair of American university psychology professors, Anne Harrington and James Coyne, have argued that it makes sense for a doctor to try to make a patient feel positive about coping with their diagnosis and the prospective treatment plan, no matter how horrible it's goingto be.

Someone I'd thought of as a good friend first encouraged me to embrace what she described as 'The Power of Positive Thinking'.

I'd just told her about what I saw as really rather bad news. I had breast cancer.

Her rebuttal of my justification for feeling a bit down in the mouth about it - I would have to undergo surgery and then either radio- or chemotherapy to control or maybe even cure a disea... read more

4 replies...

Unusual Clot
Posted by Melissa
Last Reply February 6, 2010 at 18:41
Started February 6, 2010 at 18:41
When delivering my child through semi-scheduled c-section my doctor discovered a clot in a vein that drains my uterus. She said she had never seen a clot like this in her whole career. I was put on coumadin for the next 6 months and had a variety of tests done, but I do not have any clotting order they know of. Has anyone had a similar clot?

0 replies...

DVT & YAZ - Legal action?
Posted by Rose
Last Reply February 5, 2010 at 23:58
Started September 29, 2009 at 23:21
I had been on birth control pills for 30 years when I switched this past February to Yaz. Approximately in April or May of this year I started have calf pain and cramps that progressed to pain that was ultimately diagnosed by doppler as a DVT (no PE, thank God!) I'm now on Warfarin until a repeat doppler in November.I'm scheduled for testing once I'm off Warfarin for genetic blood clotting disorders to rule that out.

My question to you - Does anyone have a similar situation and did you consult with one of those legal firms advertising to file with them if injured by Yaz? Part of me feels like although I didn't have a PE, I did experience a blood clot possibly caused by Yaz, disrupting my life and foring me to take powerful medication.

I also don't know whether I should consult a lawyer now or wait until the genetic testing is done in case I'm positive for a disorder. Thanks for any advice.



8 replies...

What else can I do?
Posted by Paula
Last Reply February 5, 2010 at 19:06
Started February 3, 2010 at 11:30
Having been taken off warfarin after the standard 6 month treatment my leg is still slightly swollen and discoloured, and sometimes painful.

I wear the compression hosiery which help and do exercise but I just wanted to see if anyone could recommend if there was anything else that I could do or take to reduce my chances of getting another clot.

Prior to my dvt I used to take cod liver oil and glucosamine - would it be ok to start to take these again or is there something better?

Thanks in advance for any advice.


4 replies...

leg pain for a year now?
Posted by Mommy
Last Reply February 5, 2010 at 13:52
Started February 4, 2010 at 04:41
Ive had this leg pain for a year now ever since I found out i was pregnant. Ive been to the drs a million times, as I fear dvt is the culprit. Ive had ultrasounds, physical exams and d dimer tests. The dr says I have nothing to worry about and says I need to take magnesium pills for the cramps/pain. Should I still be worried about DVT after all this??

2 replies...

IVC Filter and Anticoagulants
Posted by Khalid
Last Reply February 5, 2010 at 11:48
Started February 5, 2010 at 11:48
Hi,
Is there anyone on the forum who has a permanent IVC Filter and does not take any anticoagulant (Clexane/Lovenox, Warfarin etc).
I have a permanent filter and take clexane injections since March 08 ...my doctor is thinking of putting me off clexane. Need some peace for mind -:)

Khalid

0 replies...

Super-pill is being developed by scientists
Posted by N
Last Reply February 5, 2010 at 11:10
Started February 4, 2010 at 15:22
The 'live to 100' super pill that could eliminate diabetes, Alzheimer's, and heart disease 'to be ready in three years'

By Jenny Hope
Last updated at 8:48 AM on 03rd February 2010

A super-drug that could eliminate Alzheimer's, diabetes and heart disease and help people live to 100 is being developed by scientists.

Their research is based on the identification of three genes that promote long and healthy lives and prevent diseases of ageing.

Medically manipulating the proteins made by the 'longevity genes' will allow millions to live longer, predicts Nir Barzilai, a prominent geneticist.

Those whose DNA strongly features the three genes are 80 per cent less likely to develop Alzheimer's, he will tell BBC2's Horizon tonight. Genetic inheritance also protects against the deadly impact of smoking, bad diet, obesity and lack of exercise, he will say.

Already, several laboratories are working on a pill to mimic the benefits of the genes and Dr Barzilai thinks it cou... read more

3 replies...

Non Typical
Posted by Machka
Last Reply February 5, 2010 at 01:52
Started January 28, 2010 at 02:39
I'd heard about DVT long before I developed one, but I always heard they happened to a certain "profile" or type of people:

From Victoria's Better Health Channel site on DVT:
Some of the risk factors that may contribute to the formation of a thrombus include:
- Coronary heart disease
- Being overweight or obese
- Cigarette smoking
- Pregnancy
- A high dose combined oral contraceptive pill
- A susceptibility to 'stickier' blood and a family history of DVT
- Sitting still for long periods of time
- Recent surgery or injury
- Some types of cancer
- Congestive cardiac failure
- Previous thrombosis.

From UK's BUPA Health site:
You are more likely to get a DVT if you:
- are over 40
- are immobile, for example, if you have had an operation (especially on a hip or knee) or are travelling for long distances - and so are not able to move your legs
- have had a blood clot in a vein before
- have a family history of blood clots in veins
- have a conditio... read more

5 replies...

genetic tests on warfarin
Posted by pamela
Last Reply February 5, 2010
Started February 3, 2010 at 04:36
I saw my doc today. I learned that Factor V, APS and 20210 can be tested for while on
warfarin. So when I said I wanted to know, he sent me down to get tested. Protein C
and S cannot, so I will get tested for those next August or September. Really, I think
some of my anxiety will go just "knowing," even if in the short term I end up with
more questions than answers.

Also, my doc asked me for a 2nd 6 months on warfarin, saying there was some
evidence there are benefits to a whole year. I am bummed to have my "vitamin i" off
the list for awhile longer, and that I'm going to have to go another summer with my
beloved bikes in the garage unloved, but I don't want another clot, and the doc thinks
there are benefits to be had.

Much thanks to Bill for the natto white paper, my doc asked me to take it to the clinic
to ask them about it, they'd have to be on board for it anyway. So I will in the near
future.

7 replies...

what were your symptoms and how did you know?
Posted by worry wart
Last Reply February 3, 2010 at 06:51
Started February 1, 2010 at 18:48
just wondering on peoples personal expierences. What was your symptoms when you had DVT? did you know something was wrong??

just curious :)

5 replies...

normal d-dimer
Posted by bev
Last Reply February 3, 2010 at 02:59
Started January 25, 2010 at 16:14
does this mean no clot present blood was 189 ayone know what its meant 2 b

3 replies...

worried about DVT
Posted by jenni54
Last Reply February 2, 2010 at 13:47
Started February 2, 2010 at 05:42
hi all

I just had a few questions maybe someone on here could help me through this.

I have a fear of getting a blood clot and just dropping dead from one. Ive had my leg checked a million times, from a million different doctors. Ive had physical exams, blood tests, and even an ultra sound. My doctors have assured me that Im highly unlikely to get a blood clot, with no risk factors or hereditary predispostion. The drs have also told me that if I did get one, my leg would be very swollen, red, and very warm. I would deffintly notice something was wrong. And more than one dr has told me this. But I read online that people get them all the time and have no symptoms. So why would my dr assure me I would have some warning signs??

When do no symptoms never show up? ( ex: after surgery? being overweight ect ect?)

If my dr has assured me many times, should I just let this go??

thanks for taking the time for this

3 replies...

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