DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 169 of 237
Steroid usage
Posted by David Smith
Last Reply February 1, 2010 at 18:58
Started February 1, 2010 at 17:23
If I decided to take steroids without previously taken them before, what
effect's would I get?

1 replies...

Gunther Tulip & Pain?
Posted by Jeff
Last Reply February 1, 2010 at 14:12
Started January 31, 2010 at 15:02
and thank you for this forum. I was diagnosed with DVT-PE Dec 21 and received a gunther tulip on Dec 22 in my groin area. The pain from the blood clots has slowly gone away but I got severe pain in my back/hip directly behind the filter. Has anyone experienced any pain with the filter? I also have shooting pain through my groin and down the front of my thigh. I couldn't even walk for a week, went to the dr - he checked for bleeding and said there wasn't any. Still tremendous pain so I went to a Chiropracter, he seemed to help me some howerever wasn't happy about working on me. The pain remains but not as stabbing and I can get around. I feel funny in my groin area and back/hip. Any info from someone with a filter would be greatly appreciated. We have searched the net to no avail and found no helpful information.

2 replies...

DVT after major surgery prognosis
Posted by John
Last Reply January 30, 2010 at 22:42
Started January 30, 2010 at 22:42
This looks like a great source for info.
I had acetabular fracture repair on Dec 3; it's basically the hip socket. It was a cycling accident. I was non weight bearing for at least 8 weeks-after a little over 8 weeks, they haven't yet given me clearance to put weight on that leg.
They had me on anti-coagulants for 4 weeks post surgery. At 7 weeks, I noticed mild swelling a little redness in my calf. They found a clot from my thigh to my ankle and several in my lungs. Except for very minor swelling and the redness, I never have had any symptoms.
I'm now on my 6th day of hospitalization on heparin, waiting for coumadin levels to get where they want them.
My activity level was really high. I rode my bike about 5,000 miles a year and go to the gym a couple of times a week. The surgeon says my joint will be 100% and I should be able to do whatever I want. NOw, I have to deal with the clot.
Because of my very mild symptoms despite an extensive clot, the... read more

0 replies...

Help - Post Warfarin Symptoms
Posted by DianneH
Last Reply January 30, 2010 at 17:26
Started January 29, 2010 at 14:44
I hope some one can provide some insight as to what this new sensation, post right leg DVT and Warfarin could be.

When my DVT was discovered I had pain only in my calf, DVT was behind the knee. I had no swelling, redness or heat, did all the shots and Warfarin therapy for 6 months, only just stopped taking it three weeks ago. Have not used compressions stockings, since there has not been any swelling and all, at least not that I've noticed.

During the first month on Warfarin I had some slight tingling in my toes and shins, along with a few head aches. Tingling in toes and shins went away.

I've been off Warfarin now for almost three weeks. Last week I had a slight twinge/flicking in my calf, but has not amounted to anything more. However both legs have a heightened tingling sensation knees to toes, mostly on the shin side, that waxes and wanes while sitting and seems to be unnoticeable while walking and starts again when sitting.

I have not had a post Warfarin Ultra So... read more

2 replies...

just out of interest
Posted by Emma
Last Reply January 30, 2010 at 14:39
Started January 12, 2010 at 12:28
So far I've spent a few nights in hospital, had ultrasound x 2, Ct x 2, chest x-ray x 1, a few ecgs, pathology x 1,576,890, been reviewed by a surgeon, cardio guy and haem Dr, caught up with the GP x 7, and have spent a grand total of $57.35 on medication. Living in Australia, apart from my medication, its been free, just wondering how much has your DVT cost you?

11 replies...

PE Caused by Cancer
Posted by DianneH
Last Reply January 29, 2010 at 14:54
Started January 29, 2010 at 14:54
Father had PE in late August and now has been told that there is a tumour in with Bile Duct Cancer.

We see the gastrointestinal surgeon on Monday, he did and ERCP and inserted a stint in the duct as well. While doing the ERCP he did a brushing biopsy, which has come back positive for cancer, I think our GP said it was a Adnode type.

I know some cancer's cause blood thickening and lead to PE, can anyone provide some much needed information on this type of Cancer, weather it's treatable etc.

0 replies...

Posted by CLAIRE
Last Reply January 28, 2010 at 15:16
Started January 28, 2010 at 15:16
I saw my hema Dr today for a follow up and was told I tested borderline for the Lupus anticoagulant,he wants to test it again in August and do another ultrasound as my one done last week showed the clots still there,but with good blood flow ,there is a possibility I may have to stay on Coumadin for life,which is ok,I have come to terms with this,in my opinion its no different to a diabetic taking insulin every day, the alternative doesn't appeal to me.

Does anyone else have this Lupus anticoagulant thingy ??

0 replies...

Areas where DVT develop?
Posted by Kate
Last Reply January 27, 2010 at 23:16
Started January 27, 2010 at 08:01
Hi there
Is it possible to get DVT in the groin area, where the lymph nodes are?

2 replies...

checking for blood clot after 3 months
Posted by george
Last Reply January 27, 2010 at 11:24
Started January 5, 2010 at 05:55
i was just wondering, i had a blood clot 3 months ago after a broken ankle and have been taking warfarin. I have just returned to my doctor who says i can now stop taking warfarin he said i needed no ultasound to check if it is gone. i have no symptoms but would just like to have piece of mind. Is this the proper procedure or should i be having a ultrascan to check.

7 replies...

canadian people
Posted by woohoo!
Last Reply January 25, 2010 at 19:05
Started June 29, 2009 at 23:48
Do canadian people have accents? just wondering.

7 replies...

Walking with blood clots
Posted by Dave Salzlein
Last Reply January 25, 2010 at 10:23
Started January 17, 2010 at 22:47
I can't seem to get a straight answer from my doctor. I had blood clots in both lungs, and in my left leg. They put a filter in and I'm home and walking pretty slow. I also have parkison's so that doesn't make things better. I walk slow about 1/4 mile and my legs hurt. My left leg is 3 1/2 " bigger than my right leg. This has been that way for over 2 months. Will it be good for me to force myself to walk even though my legs hurt? I just want to get better. I can't drive because my parkison's has my right leg shaking and my left arm and hand. I'd just like to be able to walk and know it won't hurt me. Going Wednesday to have an ultra sound to see how the blood clots are doing.

1 replies...

What could happen?
Posted by Sherry
Last Reply January 25, 2010 at 06:29
Started January 22, 2010 at 12:00
I was diagnosed with dvt along my thigh in July 2009, was taking warfarin and now about to be taken off it. Obviously I am a little apprehensive about stopping the warfarin in that I am scared about getting another clot.

I have been told that I won't have a repeat scan (to see if there is still any blockage in my vein, be it the clot or scar damage) but I still suffer with some pain, slight swelling and discolouration.

The medial professionals have not been too forthcoming with answers to my questions to date but I would really like to know what could happen after I stop taking the warfarin?

7 replies...

Posted by i
Last Reply January 23, 2010 at 17:49
Started January 11, 2010 at 16:58
i just wondered what foods can raise your inr

17 replies...

H1N1 vaccine and INR
Posted by pamela
Last Reply January 23, 2010 at 02:55
Started January 23, 2010 at 02:55
FYI: H1N1 now available for adults through my HMO, I am around children so I got it
yesterday when I got my last INR. The clinic called today to let me know that the H1N1
has for other patients led to a spike in INR (though they were thrilled that I got it). My
INR came back at 1.7 (eep! It was 2.5 last time and the only thing I changed is that I've
been exercising now 6 days a week -moderately- instead of 3) but they said they aren't
changing anything and I have to go back for another test Thurs... they anticipate if tested
before they I could be pretty high. Just FYI, those of you who were thinking of the
vaccine yourself.... the vaccine clinic did not explain why they were so worried about INR
when the reg flu shot line was not so much last fall... but I get it now.

0 replies...

Posted by Rach
Last Reply January 22, 2010 at 17:36
Started January 21, 2010 at 12:53
It's good to find this forum. I was diagnosed with a DVT in my left calf (extending to popliteal vein) just before xmas 09. There is no obvious cause (but i do smoke, shame on me). I am now of warfarin for 6 months.
Curious to find out why I got this. About 2 years ago (!) I went to GP with some pain in my hips and also my left leg (where the DVT now is). It was hard to describe those pains, they were sort of 'electric' and only at night. I am using the past tense because they seemed to go away. Anyway, my GP tested me for rheumatism and gout, which came back negative and i never followed it up. Do you think that was the start of something that led to the DVT?
I am also experiencing occasional pain in my groin area, on that left side. I haven't mentioned this to the docs. Although when I was diagnosed they did ultrasound that area and it was clear. Does warfarin prevent new DVTs?
Any help, interest, support would be appreciated. I am usually a very calm person but since diagnosis... read more

1 replies...

DVT\PE and lot of pain
Posted by Jeff
Last Reply January 22, 2010 at 08:49
Started December 25, 2009
Greetings and thanks for this forum. I was diagnosed last monday with 2 blood clots that blocked my veins, dvt. Tues morn I went for surgery to remove the clots. The doc noticed I was short of breath and prescribed a CT. The results came back that I had a clot there also, pe. The surgery plans changed and I received a tulip filter in my groin area. Then a lovenox injection before leaving the hospital. Today I have had my 3rd injection (1xday) and I still hurt, hurt so bad. I can barely walk, my shoulder hurts, my ribs hurt, my stomach is upset, I am not hungry, I have night sweats and so on. Any others with reactions like this? When will the pain stop? I also started warfin (sp) last night 5mg. Is it normal for the pain and it will slowly subside?

3 replies...

How long for clots to dissolve ??
Posted by Claire
Last Reply January 22, 2010
Started January 20, 2010 at 16:46
well I was diagnosed in August 09 with a clot from knee to groin in my right leg, following 2 long haul flights to UK & back to US.

I thought i'd pulled a muscle & ignored it for about 3 weeks until I could hardly walk it was sooo painful & my leg swelled up, went to ER, on Lovenox for a week plus coumadin, 6 weeks later when all pain & swelling had gone, my left thigh started to bother me, back to ER, small clot on left groin.

My hematologist thinks they were both caused by flights, but left leg never was scanned at 1st ER visit, so no way of knowing.

Anyway, one hematologist tells me I need to be on Coumadin for life, the other says 6 months, also my GP says 6 months, so I go to another hematologist who looks at my blood test results, no clotting factors, sends me for another doppler, which I had done this morning, clots are still there, but he was unable to tell me if there had been any improvement as he didn't have previous doppler report.

I have another appt wit... read more

2 replies...

Posted by t
Last Reply January 20, 2010 at 14:43
Started January 19, 2010 at 20:37
i was just wondering i have been on warfrin since november and my inr has never been stable. when i went 4 a test yesterday on monday and my inr was 5.8 since then my ear has started bleeding and bringing a little off blood up in my mouth.
just wanted to no if this is normal. and if any1 else has had any of these problems. my dvt is in my right carf.

3 replies...

pain in kidney area after dvt
Posted by Angela
Last Reply January 20, 2010 at 14:08
Started January 20, 2010 at 10:07
Hi my husband had a dvt and PE in December 07 and was put on warfarin for the usual 6 months. He had another dvt in the back of his knee in October 09 and has now been put on warfarin for life (he has since found out he has 2 blood disorders)He is in really bad pain in his leg, groin and heal but for the past 2 months is getting alot of pain in his back - kidney area - like a constant stitch and also a pain in his stomache and hip area (he is dropping to bits!) A scan has shown nothing but he is obviously worried sick and his doctor is useless. Has anyone else had any problems like this? He also brings up really dark blood in his mouth on a morning and had clots out of his nose the other day!

1 replies...

Dx'd with Factor V Leiden!
Posted by imateacherofmusic
Last Reply January 19, 2010 at 18:55
Started December 12, 2009 at 21:46
So far, that is my diagnosis, but the hematologist office REFUSES to return phone calls. I've been calling for the remainder of the test results and they never call back. (They are really rude and unpleasant. The doc is very kind, but I just don't know if he is being proactive enough for my very broken body...this is getting off topic, I'll save that issue for later).

Okay, so I have Factor V. I had severe toxemia, I had gallbladder issues, I seem to fit the description.

What do I need to know about this?

8 replies...

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