DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Lets buy Rob a Beer!
Posted by Joe
Last Reply November 2, 2009 at 23:46
Started October 25, 2008 at 17:30
In all the time Ive been on this forum, I never bought ROB (OUR administrator) a beer.... So I did the other day, in fact I bought him two beer's....

Sadly He told me I am the FIRST to do so....

SO if you use this forum, how about pony up to the PUB and buy Rob a Pint... Its easy and thru PAYPAL...

Please show your appreciation... AND if you dont have Paypal , SIGNUP!

NO EXCUSES!

15 replies...

On going pain
Posted by Dane
Last Reply November 2, 2009 at 20:26
Started October 30, 2009
I was 23 years old when i had my first DVT, and was on blood thinners for 6 months. I have seen many doctors due to my little sister also getting a DVT the same year. They did the blood tests and showed that everything is normal in our blood for clotting factors. which is hard to believe due to us being so young. The biggest question i have is since they took me off the thinners about a year and half ago i have had on going pain in my groin where the clot was. i have had many ultra sounds and there is no clots forming again, and the doctors are not to worried. The pain is bad when i am sitting, or laying on that leg. standing and laying on the other side is alright. The pain can go from my groin a bit into my stomache and down my leg. Just wondering if anyone else has had these side afects after being taken off the thinners, and what you were told why these pains are there? Its just hard for me to get my mind off wondering if the pain is something i should be paying attenti... read more

1 replies...

Ski-ing while on Anticoagulants
Posted by Louise
Last Reply November 2, 2009 at 11:52
Started October 30, 2009 at 11:04
I was just diagnosed 3 days ago with a subclavical thrombosis. I am on Marcoumar (Coumarin)for the next 6 months. I live in Switzerland so winter sports are a big part of our families life. We have our first ski weekend booked for the begining of December. Is it safe to ski or I probably should say to fall? I am not an expert skier more of an intermediate & do wipe out on occasion.

Thanks, Louise

4 replies...

New DVT behind old DVT?
Posted by Natalie
Last Reply November 2, 2009 at 11:14
Started November 2, 2009 at 10:43
Hi, need advice please although I am pretty sure I know what the answer might be??

I suffered extensive DVT just shy of 6 months ago from Ankle to Groin in my Left Leg. Ever since, I have worn compression stockings to my Groin - religiously! I am on Warfarin although my INR has never been consistent. Theraputic level should be between 2 and 3 like most of us and it's always been up and down. Last test was 1.7 and taking 5 1/2 mgs a day.

The last couple of days my leg has been swollen (more than usual) and I am having pains in different places of the left leg all the time. Today I moved my leg kind of suddenly and it felt like I it broke my shin! Of course I didn't but that was how sharp the pain was.

I can't see the rest of my leg course of the stocking - but my toes are swollen and are a patchy red.

Any suggestions - has anyone else had this?

1 replies...

worried
Posted by Tara
Last Reply November 1, 2009 at 22:21
Started September 9, 2009 at 15:16
Hi there,
I have recently returned from a long haul trip- 14 hours, when I arrived at my
destination I had very swollen and sore legs which subsided after 3/4 days. I have now
returned home and 1 week on am suffering from pain in 1 leg. The pain is in the calf
mainly and occasionally the lower thigh. I have no other symptoms other than a weird
'cold' sensation that comes and goes. I have no redness, swelling or tenderness to the
touch but I am lying awake worrying about the pain, thinking it is DVT.
I have visited the GP who pooh poohed it, but I am concerned as I had minor surgery
due to failed pregnancy 1 week before the trip. Should I return to the doctor yet or
wait a while and see what happens- very worried and confused :(

15 replies...

Rehab
Posted by Sue (Ont)
Last Reply October 31, 2009 at 21:13
Started October 24, 2008 at 16:02
I recently Mon. had DVT and a Pull. embil.They have started me on waffarin and hepperin shots and told me the only time I can get up is to go to the washroom, then right back with my leg up. My chest relly hurts when I ly down to sleep and my leg throbs. How long do I have to do this and will the pain go away.

2 replies...

Pain in leg
Posted by Alex
Last Reply October 29, 2009 at 11:33
Started October 28, 2009 at 17:46
Hi,

For a while now (a year or so) I have been having intense periodic pain in my right leg. This usually happens once a month or so. The pain feels like it is near the knee/calf region of the leg. Throughout the day when the leg does hurt, the pain gets worse to the point where it hurts a lot to walk on that leg.

Painkillers take the pain away as well as rest (if I have the pain at night and go to bed, its gone the next day).

Recently, when sitting down, I am noticing either a pulse or muscle twitching in the right leg but I am not sure if that's due to the leg problems are just anxiety thinking about it. Also, sometimes the foot feels warm (actually both feet feel warm) but again, I'm not sure if this is due to the leg problem or just my anxiety.

What could this be? I can't get to a doctor until Thanksgiving time so I'm wondering if this is something that I need to address sooner. Does this sound like a possible DVT?

Thanks!

1 replies...

The pair or just one stocking
Posted by Karl
Last Reply October 28, 2009 at 22:18
Started October 28, 2009
I have a DVT in my left leg and my calf is still a bit bigger than the other and have a lot of vicarious veins. I bought some stockings today but don't know if I should wear the pair or just one for the dvt leg.

please help

9 replies...

Arthritus Rubs - Warfarin Interaction
Posted by DianneH
Last Reply October 28, 2009 at 13:23
Started October 28, 2009 at 13:17
"People who use arthritis rubs containing methyl salicylate (oil of wintergreen) may also be at risk for this interaction. Products such as Arthritis Formula BenGay, Icy Hot Cream, Mentholatum Deep Heating and Thera-Gesic all contain methyl salicylate."

Salicylate is an "aspirin-like drug", which is also found in Pepto-bismal.

1 replies...

Has this happened to anybody else?
Posted by Rita
Last Reply October 27, 2009 at 17:47
Started October 26, 2009 at 13:49
Ok. So I developed a DVT in my left leg- mostly in the calf area and behind my knee in late June 2009. I got the usual treatment with heparin/warfarin and compression stockings as well as bedrest.

I was a perfect patient, did exactly what my doctor said. After 90 days, the pain had subsided but I noticed cirulation issues in both of my legs, not just my left leg, but the doctor said this was normal.

They did an ultrasound in September, and the clot was gone and my doctor took me off of warfarin. She only advised continued compression stockings/support hose as therapy for my circulation issues. I have added a 81 mg of Asprin per day, hoping this would also help with my circulation- and my doctor said that would be fine.

However, I am curious to know if anybody else has had this happen in BOTH legs.... sometimes it is so bad that I am in the bed, resting, all over again. Of course it gets better at night, but then with work or just being up and around- even with compression ... read more

4 replies...

DVT and SSI?
Posted by eddy209
Last Reply October 27, 2009 at 09:58
Started October 26, 2009 at 07:49
i was wondering if individual Can get ssi disability for deep vein thrombosis?

1 replies...

Is it time to stop taking the Pill?
Posted by N
Last Reply October 27, 2009 at 01:59
Started August 29, 2009
Loss of sex drive, weight gain, tantrums, depression, breast cancer and blood clots. A new book asks whether the tide of risks has gone too far.

http://www.dailymail.co.uk/femail/article-1208519/Is-time-stop-taking-Pill-A-new-book-asks-tide-risks-gone-far.html

3 replies...

ankle pain
Posted by karen anderson
Last Reply October 26, 2009 at 09:58
Started August 10, 2009 at 08:52
I have a DVT in the calf area and 3 veins are totally blocked, had this for 3 months now. About a month ago the area around the ankle was swelling and became very painful to walk on, after another scan the DVT is still there and also a Baker's cyst. Has anyone else experienced swelling around the ankle joints and makes walking hell.

6 replies...

still worried
Posted by amanda
Last Reply October 26, 2009 at 02:58
Started October 8, 2009 at 22:21
Aug 08 i developed a small dvt below my knee after an injury. On warfarin for 6 months, and been off them since feb 09. Leg is back to normal, head isnt!! Still worrying, though better than i was, i know the clot has gone, had scan and negative d dimer blood tests. So why cant i get on with "normal" things? Anyone help? When does this worry go?

5 replies...

What to tell Mom?
Posted by Audrey
Last Reply October 25, 2009 at 19:08
Started October 25, 2009 at 16:07
I was diagnosed with DVT in June and blood tests came back positive for Factor V Leiden heterozygous. Both parents got tested and my mother came back positive for Factor V Leiden heterozygous. Her hematologist said that it was no big deal and many people carry this defect without getting a clot.

I have recently found out that my 76 year old mother's health is failing. I had a long talk with her yesterday, where she shared more information than usual. Test results also show that the has hyperhomocysteimia (B12 deficiency). She has been dealing with COPD for many years now and was recently diagnosed with congestive heart failure. So now she has many risks factors for DVT, especially because the COPD and CHF are limiting her activity and blood circulation. Just the Factor V and B12 deficiency increase her risk to 20; on top of that she is deficient in folic acid, which further reduces the absorption of B12.

She's currently on inhalers for the COPD, blood pressure medication, baby... read more

1 replies...

Can we take vitamins?
Posted by Audrey
Last Reply October 24, 2009 at 22:30
Started October 24, 2009 at 19:11
I've been on Coumadim for 4 1/2 months now, with a constant dose level for 12 weeks. My INR levels still bounce all over the map (from 1.7 to 6.4), so I have tried to keep my lifestyle and diet stable. This means I am not eating enough fresh vegetables and I am starting to be concerned about good nutrition.

Are there any multivitamins out there that would be safe to take? It looks like Flinstone's Childrens Vitamins do not have any vitamin K, so is that an option? If anyone has doctor recommended vitamins, I'd be happy to know what I can take.

2 replies...

Just went to the ER for exam but found nothing
Posted by Gary
Last Reply October 24, 2009 at 19:23
Started October 23, 2009 at 18:07
I wanted to get some info because I went into the ER because my leg has been hurting for 4 days and the pain cam unexpectedly. The pain comes in waves and can be quite bad at times...throbbing. My friend told me it looked a little swollen last night which is why I decided to go to the ER but then I got there... they took blood and tested it and said there is nothing wrong. I thought they were going to do an ultrasound, but I guess they determined by the blood they took that there is no clot.

Is that enough to determine? I mean, I don't understand why I would have this pain in my leg for no reason to the point of limping, and there is a vein on my leg which seems to have popped out and you can see it from the outside. So I don't know what to think.I felt better once they told me that, but I still don't know what to make of it. They said to just take Advils until it gets better.

4 replies...

Why high heart rate
Posted by Claire
Last Reply October 24, 2009 at 11:59
Started October 20, 2009 at 13:31
Since I had my dvt my heart rate is always high, never really paid much attention
to what it was before, but even doing the simplest of things can make it race. I
went to see my hematogist & walking from the parking lot to the office, it was
121, by the time I left it was 102.
It's worrying. Does anyone else have this problem?
I had a cat scan after my dvt & that was clear.

7 replies...

Blood Clots In Lungs Might Not Always...
Posted by N
Last Reply October 24, 2009
Started October 24, 2009
Blood Clots In Lungs Might Not Always Originate In Deep Veins Of Legs And Pelvis In Trauma Patients

ScienceDaily (Oct. 21, 2009) ó Few trauma patients who develop potentially deadly blood clots in the lungs (pulmonary embolism) also have clots in the deep veins of their pelvis and legs (deep venous thrombosis), challenging commonly held beliefs about the association between the two conditions, according to a report in the October issue of Archives of Surgery, one of the JAMA/Archives journals.

"For decades, it has been taught that pulmonary embolism is a sequel of deep venous thrombosis," the authors write as background information in the article. "Forming in the lower extremity or pelvic veins, clots break off and travel to the pulmonary circulation. Therefore, deep venous thrombosis and pulmonary embolism should coexist in most patients, because part of the clot embolizes [lodges] in the lung, and part remains attached to the vein."

George C. Velmahos, M.D., Ph.D., and co... read more

0 replies...

diet pills vs INR
Posted by Bill
Last Reply October 23, 2009 at 23:36
Started October 23, 2009 at 14:14
I have been on Coumadin for six months after discovering a blood clot (which is still there) in my right leg and having several PEs.

I understand that maintaining a proper and consistent diet is extremely important when taking Coumadin. I, like many of you taking Coumadin had weight gain. In my effort to reduce my weight I have started taking diet pills that increase my metabolism while reducing my food intake. The label on the diet pills does not mention anything about vitamin K. The problem is my INR, which was always steady between 2.5 and 3.0 has now dropped to 1.7. The dilemma is, do I stay with the diet (I lost 7 pounds in two weeks) and increase the Coumadin or go back to not using the diet pills?

Iím having my INR checked again next week and if it is still low Iím sure the Dr. will increase my Coumadin. I just donít like the fluctuation the INR.

Thanks and be well.


2 replies...

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