DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 18 of 237
Pycnogenol
Posted by Louise
Last Reply October 19, 2016 at 08:58
Started September 3, 2009 at 16:33
Hi
I am a warfarin 'lifer' after suffering an extensive DVT whilst pregnant a year ago.
I take 7mg warfarin/day to keep my INR around 2.3-2.5.
I'd like to use other supplements to keep my INR up whilst reducing my warfarin. I'm aware that both Pycnogenol and Glucosamine are reported as raising INR 'naturally'. Has anyone out there experimented with taking either of these whilst on warfarin? If so, I would love to hear how you got on; what effects it had on your INR; if you had to reduce your warfarin dose etc.

I am self-monitoring and would ideally like to get to a position where I could take less warfarin and still keep my INR within the right range.

Take care everyone
Louise (UK)


11 replies...

Vein stent for chronic dvt
Posted by Lisa
Last Reply October 16, 2016 at 15:49
Started September 24, 2016 at 11:20
I recently had a spinal fusion in May of 2016. Two weeks later I developed a DVT
from my thigh to ankle. I was treated with Eloquis and compression stockings.
After 2 months the clots from the knee down dissolved, however from the knee
up the DVT remained partially occluded. I had severe swelling and pain and was
told by my Dr. that it would never dissolve and I would have to live with it. I
researched continuously and I found a group in Darien, Connecticut called the
Vascular Experts. After an extensive ultrasound it was discovered my clot
actually extended from my mid thigh to my abdomen. The. Dr. said it is
ABSOLUTELY TREATABLE! The Dr. recommended a VEIN STENT that could be
placed through A minimally invasive procedure. It has been 2 weeks since I had it
done and my swelling has reduced considerably and the pain has subsided. My
reason for posting this stems from reading about people who have been told they
must live with the chronic pain and possible PT... read more

1 replies...

High altitude climbing/hiking
Posted by Derek
Last Reply October 11, 2016 at 18:20
Started January 17, 2010 at 07:37
Was wondering if anybody out there has done any hiking/climbing at high altitude 12,000 feet or more while being on coumadin/warfarin. If so did you experience any difficulties with circulation or did you sense any clotting symptoms. I have been on Warfarin for close to two years because of a left leg DVT and multiple PEs in the lungs. Before all of this I was an avid mountain climber/hiker - but since have done absolutely no climbing above 3,000 feet. Been a basket case and a nervous wreck to even think about getting back into climbing anything significant. Any feedback on this would be greatly appreciated.
Thank you

18 replies...

DVT - Recovery time?
Posted by Colleen
Last Reply October 9, 2016 at 09:26
Started February 4, 2010 at 01:34
I was wondering how long it takes to completely recover (if possible) from DVT? I had ankle reconstruction surgery on 12/1/09 and by 1/15/10, my PT sent me directly to the ER due to extreme swelling (rock solid hard), redness in the calf, warm to the touch. The ultrasound indicated a clot from the bottom of my calf to above my groin close to my lung. I had to self-inject Lovenox 2x a day and started immediately on Coumadin. My PT/ INR levels are finally good at 2.4. But my leg isn't really improving. I know it hasn't been long but will I have permanent damage to the veins? I realize that a PE is still possible at this stage. Are there specialists out there other than a GP that can be consulted? Lots and lots of questions here... Just looking for some insight. Thank you.

28 replies...

Femoral vein bypass surgery
Posted by Don
Last Reply October 9, 2016 at 03:30
Started August 2, 2008
What does anyone know about using your Saphenous vein, cadaver or a synthetic to bypass the bad portion of vein that the clot is in and/or the valves are destroyed?
Anyone had this done, thinking about it or have any info on it?

12 replies...

Multiple PEs (DVT), Coumadin Side Effects!!!
Posted by Jonathan A
Last Reply October 7, 2016 at 18:39
Started November 11, 2009 at 17:04
Hi,

I'm a 23 year old male recently released from the hospital with multiple bilateral pulmonary emboli. Doctors said there was major blockage with infarction in both lungs. Massive clots.
Ultrasound revealed no additional clots in the legs which is good news.

Tests revealed genetic pre-disposals (Protein C deficient) so I'm a lifer for coumadin.

Started dose at 10mg per day, then slowly dropped to 7.5, then 5 and now at 2.5 after a week at my INR being over 4. I'm in the low 3s and have my next blood test here in about an hour. While I was in the hospital I was taking 2 lovenox injections per day. After 7 days of Lovenox they took me off and now I only take the coumadin. I've been on coumadin since Oct 21, its now Nov 11.

I started noticing some side effects, but after reading here and other sites I'm very concerned that nothing is going to help.

I have extreme lower back pain. Headaches every single day. Frontal lobe headaches that hurt worse when I cough. I have ... read more

22 replies...

Norethisterone
Posted by Lia
Last Reply October 7, 2016 at 17:35
Started September 30, 2011 at 17:19
Hi
I was diagnosed with DVT last week, shortly after a gyne op. I saw a Gyne consultant today, to get results but also to discuss complications of the DVT.
I have now been prescribed Norethisterone (a progestogen) to relieve heavy periods; they were really heavy before, so likely to worsen with the Warfarin. I checked with the consultant that it was OK to take the Norethisterone with the Clexane and Warfarin, but the first thing I got to on the patient information leaflet was 'not to be taken if you have a history of DVT'.
He was the third Doctor to reccomend norethisterone, and I have double checked with my GP this afternoon, who confirmed it was OK to take, but it all seems extremely odd.
I wondered if anyone here with DVT was taking it?

3 replies...

Pains getting worse
Posted by shaun
Last Reply October 6, 2016 at 20:37
Started September 22, 2008 at 22:14
Hi again,
I havent posted for a while but seem to be getting no help from doctors and the hospital so thought id see what you guys think....
i had a dvt in june 07 and then they said a pe within a few days(but i dont remember them scanning me for that just continued injections for a month) because i drive for a living and id only been on a 2hr flight they decided i would stay on warfarin for life. Ive been in constant pain in my legs since...ive had another scan in january and they didnt find anything but they said the other clot was in the groin. i was back last week cos my leg 4cm bigger and i was in agony, more when i walked. they doc was useless, saying my inr was 2,5 so im safe but that ie prob got another clot but not worth scanning as im in the safe inr range. Ive now got a letter sayig the pain is due to extensive valvedamage due tot he clot... my problem now is im working but the driving is making it worse all the time but i need to earn as i have kids.. but i also wanna... read more

11 replies...

how long will i be out of work
Posted by beki
Last Reply October 5, 2016
Started June 9, 2009
i have been having problems for over 2 months with my left leg. we finally know after an ultra sound that i have a dvt in my upper leg / groin. the pain is finally starting to go away but i'm still not allowed to go back to work.(it's only been a week since we found the blood clot) can anyone tell me how long it's gonna take? i'm afraid i'm going to lose my jobs and i'm through my savings. i could lose my job, my home, and everything else.

18 replies...

UEDVT
Posted by Kyle
Last Reply October 3, 2016 at 18:45
Started October 2, 2016
Hello All,

I'm very new to this forum but recently while weightlifting I started to feel tingling
in my arm and noticed some discoloration (to the point where it turned purple
once while using heavy ropes) as well as swelling to where my right arm was
noticeably bigger than my left. I'm a 20 year old Male college wrestler. Long story
short I went to a doctor, a sports medicine specialist & had two MRIs before they
had me do an ultra sound and found out that I had a clot that was almost
completely occluded in my axillery vein (I believe) from my wrist all the way to
just under my clavicle. They found the clot approximately 38ish hours ago and I
have been on blood thinners ever since. I meet with a cardiologist next week to
follow up. Does anyone have any tips or help for me? As far as how long I will
need to be on blood thinners, if I'll ever wrestle again, etc... thank you!

3 replies...

Cinnamon
Posted by B Mitchell
Last Reply October 3, 2016 at 05:35
Started October 3, 2016 at 05:35
Hi, I'm ancient! I'll be 79 years of age later on this month, however I do keep well. Over the years I've followed a healthy diet, lots of salads, vegetables, fruit, fish, chicken, however my energy levels have always been low. But I've attempted to combat this by taking various supplements, and the one that is working for me at the moment is cinnamon. I take two small tablets a day (500 mgs each) of cinnamomum cassia, which contains Coumadin, and this, I have read, can damage the liver. I am torn, because taking the cinnamon gives me the energy to live an active life. Can such a small dose cause any damage? The cinnamon from Sri Lanki, the most healthy form, does not give me the energy I desire. Any thoughts on this?

0 replies...

Worried about PE
Posted by WorriedOne
Last Reply October 2, 2016 at 04:29
Started October 1, 2016 at 17:00
So I had provoked DVT 2 years ago from
surgery, Earlier this year the same calf was
hurting so I had an ultrasound and it was all
clear. 1 month ago I was getting severe chest
pain so I went to the hospital and had a d-
dimer test which came up with no evidence of
clotting. A week ago my other calf was hurting
so I had an ultrasound there and it was all
good. I just can't get past the anxiety of
thinking I have a reccurence and that I may
have PE. I just can't get my brain around it.
Does anyone have any advice?

1 replies...

anyone heard of the new drug pradaxa??
Posted by sara
Last Reply October 1, 2016 at 12:30
Started April 8, 2010 at 12:43
been doing some resurch into alternatives to warfarin as i am so fed up with all the side effects that the doctors choose to tell us dont exist!! like tiredness, hair loss, feeling cold all the time e.t.c....im not talking about herbs and stuff i know that we all have to take warfarin, as the alternative is risking having another clot. but last year a new drug called pradaxa was cleared for use and is allready used in some cases in the uk but only for people who have had knee and hip operations. ive looked at all the studies and trails and none have the same side effects as warfarin exept the usual bleeding bruising etc as with any blood thinner; also there are no daily/weekly blood tests as the way it thins the blood is so diffrent. would really lie to know if any one else has heard of it or has used it??
thanx. x

241 replies...

"What Symptoms Should Prompt Me & My Doctor To
Posted by Sharon
Last Reply September 29, 2016 at 21:32
Started June 2, 2008 at 04:46
The most common question from those who have not been diagnosed, is in one form or fashion, one wording or another--"Does this pain I have mean that I have DVT or should be tested for DVT? The next question is, "What tests should I have?" The most common question for all of us w/ confirmed DVT is, in one form or another--"Am I clotting again or is this new pain a result of Post Thrombotic Syndrome" (damaged valves in the vein from past DVT).

I wrote the following in response to someone wondering why their doctor refused to test them for DVT when they had symptoms. Thought I would post it under its own topic so everyone can chime in. I ask specific questions of those who have been diagnosed w/ confrimed DVT/PE at the end. I have not had a PE, so I think it might be good to have a similar article on that topic if someone w/ experience and good doctors as advisors can write that one. I hope this info helps others:

You are wondering why the doctor did not test youwith a Dopplar U... read more

32 replies...

tingling in finger tips after dvt in arm
Posted by Lillian
Last Reply September 29, 2016 at 13:51
Started September 29, 2016 at 13:51
my husband says he feels tingling in his finger tips after just coming home from hospital . he is on Lovenox injections daily

0 replies...

just diagnosed
Posted by john
Last Reply September 28, 2016 at 23:29
Started September 27, 2008 at 05:05
I had pain in my right calf for about ten days, and when it got too intense, I visited my physician. On monday 9/22, he sent me to the hospital where I was given an ultrasound. They found a clot in my calf, diagnosed it as DVT, and I was immediately put on a heparin drip. I was released yesterday (thursday) with an inr of 2.0. I am on 5mg coumadin daily. My question is this, i have HORRIBLE pain still in my calf, when will this go away? Should I look for more help beyond my GP, or trust his judgement? I feel very scared and lost about this and my future as i am only 28, exercise vigorously, and am not overweight. Any advice as to how to proceed would be GREATLY appreciated.

5 replies...

Illiac stenosis and femoral vein occlusion
Posted by Imy
Last Reply September 28, 2016 at 21:41
Started September 25, 2016 at 12:07
Hi guys and girls, am am imy 40 yrs old,male..2014 I
had a dvt with swelling in2012/13, now after tests
in 2014 the vein is occluded..what dies not make
sense it that swelling on sitting on chair now not
just upon walking..although not edema...I get an
awful pressure building in the calf and thigh cant
walk fr more than 20 minutes...cant sleep ..the
symptoms are worse when leg is warmer..ie in Morocco
the pain is worse...its excruciating at time achy,
restless, burning pressure pain, dull pain
afterwards lasts fr hours...again no edema but leg
certainty wobt let me move around ...it just swells
up with the symptoms mentioned. ..cant cope with the
pain need to lie down. ..life enjoyment are
gone...anyone simular pls I would be grateful if you
can share your experiences

3 replies...

charlie horse in DVT leg
Posted by chriskura
Last Reply September 27, 2016 at 10:33
Started June 1, 2007
I had a charlie horse lastnight in the leg where my DVT occured (9 months ago). I still have swelling and am still on warfarin. Has anyone experienced a charlie horse or do any of you know if it is a warning sign?


46 replies...

size of DVT
Posted by Tracy
Last Reply September 26, 2016 at 09:28
Started September 23, 2007 at 03:40
Hello,
My husband recently developed a DVT, and I have a couple of questions that I am hoping some of you would be willing to answer.

My husband had a DVT that was about 15 inches long when it was diagnosed about 6 weeks ago, it is now about 4 inches long. He thought he had one several weeks before it was diagnosed, but the Dr. said it was a pinched nerve. Is it unusual to have a DVT of this size? and also, does a DVT of this size have to form over a period of time?

20 replies...

Foot and ankle symptoms
Posted by Sandy
Last Reply September 26, 2016 at 02:24
Started September 26, 2016 at 02:24
I have had a swollen discolored foot and
ankle for four months now. It started as a
pinching feeling behind the ankle and
strong cramping in the calf. The affected
for is often cold. All tests done show
nothing wrong expect mild inflammation in
the ankle joint. I have a lot of pain that
prevents me from walking so I use the
assistance of crutches. Every doctor is
left scratching his head. Physical therapy
hasn't helped. I did have an ultrasound
for dvt, done by two technicians which
came back normal. Does this sound familiar
to anyone? Any suggestions?

0 replies...

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