DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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New blood-thinning stroke drug could save live
Posted by N
Last Reply August 31, 2009 at 06:48
Started August 31, 2009 at 01:09
New blood-thinning stroke drug could save lives and cut reliance on warfarin
By Jenny Hope
Last updated at 2:42 PM on 30th August 2009

A new blood-thinning drug to prevent strokes could replace a commonly used treatment based on rat poison for thousands of patients. The drug called Pradaxa is one-third more effective at reducing the risk of stroke and blood clots in at-risk patients than warfarin, and cuts deaths by 15 per cent.

Warfarin, which is still used in large doses to kill vermin, has been a routine medication for preventing strokes since the 1950s. But it is inconvenient for patients because careful monitoring and regular blood tests are needed to prevent excessive bleeding from cuts or stomach ulcers, requiring frequent clinic visits.

It can also interact badly with other drugs and certain foods, including green vegetables and grapefruit. The new drug, Pradaxa, works by reversing and inhibiting the effects of thrombin, which is the substance responsible for cl... read more

3 replies...

DVT after ankle fx and surgery
Posted by Lisa
Last Reply August 28, 2009 at 21:28
Started August 20, 2009 at 16:55
Hi my name is Lisa. I have had a horrible summer but I will just get to the main part of it...I broke my ankle July 30, had a plate with 6 screws placed on August 5 and now August 15 I went to the ER for my leg swelling and pain. I was admitted for a DVT from my ankle to my stomach (3 feet long) I went home on Lovenox and coumadin. Anyways my whole leg is still so swollen and my thigh pain is horrible, I live between Percocet and Diladuad....this really sucks bad...is this normal?? when will the pain and swelling start to diminish, I am a basketcase!!


4 replies...

dvt - pregnancy
Posted by natalie
Last Reply August 26, 2009 at 16:19
Started August 24, 2009 at 23:06
I had my first DVT in 2007, I was 18 years old. My son was 4weeks. I am now pregnant again,and, i have dvt again. I inject myself twice a day with treatment. I am only 20years old. Whats the chances of this eventually killing me?

1 replies...

DVT chemically raises anxiety
Posted by Karl
Last Reply August 26, 2009 at 13:26
Started August 25, 2009 at 05:42
My M.D. told me that since I had both a DVT and a few PEs my heart has to pump at and extra fast pace in order to circulate the blood in my body and as a result of this extra adrenaline will be pumped into my system making me anxious whether there is a reason or not. I have noticed just about all the people here have issues with anxiety.

1 replies...

coumadin level high
Posted by marcy
Last Reply August 24, 2009 at 21:29
Started August 24, 2009 at 21:29
I have a pe been on coumadin since jan. I went to have my inr checked last fri. It was 4.5 and that was high so doc said don't take meds fri and cut dosage down sat and sun. I did this its mon just left doc and I'm at 6.9. They don't know y I don't either no change diet or meds. I'm afraid that I could bleed inside. Is this level dangerous and if so how? I had ct scan last tues and was injected w dye twice cuz machine broke could this be messing me up? I asked doc he said most like not but I wonder. Please any info be great thanxs

0 replies...

coumadin is something wrong?
Posted by marcy
Last Reply August 22, 2009 at 21:51
Started August 22, 2009 at 20:38
I was hospitalized in jan for a pe. I left hospital on both coumadin and lovenox. My inr have neva been stable. I just had checked and it was 4.5. I am so tired throwing up diarhhea. Is it possible high inr is y? Doctors think I'm just talking to talk but I really am so tired. Not just a certain times day its all day. Could this be meds or something else. Past few days also can feel like pulling feeling on my left side. Anyone with info plz respond. Thxs

1 replies...

Controling Bleeding....
Posted by Joe Reganato
Last Reply August 22, 2009 at 19:58
Started July 8, 2008 at 14:20
Is any one prepared to control their bleeding if you are injured....
I am researching several products and would appreciate your experience...
Product 1: kytostat - package of band-aid strips
Product 2: woundstat - powder for larger area

I am a cyclist and continue to ride... But I am really leary about getting road rash and bleeding to death in the middle of no-where...

From my last post on taking vitamin k2 for bleeding, I received NO responses... I take it that no one is prepared to control their own bleeding, besides going to the hospital...

11 replies...

Posted by Tanya
Last Reply August 22, 2009 at 17:09
Started August 22, 2009 at 04:09
After having a C-Section 7/9/09, I developed DVT/PE. I'm currently have tingly feelings in my legs and feet has anyone had this problem and should this be a concern?

1 replies...

DVT and IVC filter
Posted by Mitko
Last Reply August 21, 2009 at 13:44
Started August 21, 2009 at 13:44
I live in USA and I'm 41 years old.
I was injured at my work and in result of that I have a DVT in my right leg and I had a PE. The doctors inserted a IVC vena cava filter to prevent more blood clots going to my lungs.The doctor said that the filter should stay permanently. Is there anybody with the same type of experience?
I'm concern how this thing will reflect me on a long run.
I will appreciate any advices or suggestions.
Thank you.

0 replies...

DVT/PE Awareness
Posted by Tom in Connecticut
Last Reply August 21, 2009 at 13:08
Started August 21, 2009 at 13:08
Here is a video news story from Healthy Body Healthy Mind which discuss the dangers of DVT and PE. For those in the U.S., several of my NATT (National Alliance for Thrombosis and Thrombophilia; www.stoptheclot.org) Colleagues discuss blood clots and their own personal story.


The news story is HBHM 1301

NATT members include:

Dr. Stephan Moll - NATT's Medical Director

Dr. Jack Answell - NATT's Chairman of the Medical and Scientific Advisory Board (MASAB)

Traci Wilkes - NATT Board Member

Beth Waldron - NATT NC Chapter President

Steve Rodner - NATT Board Member

0 replies...

BBC Radio programme on DVTs
Posted by Richard
Last Reply August 20, 2009 at 23:59
Started August 20, 2009 at 23:59
I don't know whether people outside the UK will be able to listen to this, but here's an interesting programme in the "Case Notes" series, about DVTs and PEs, especially with reference to preventing them in patients having surgical operations in hospital:


Even if you can't listen to it, there are links to external sites and also a transcript.

WARNING FOR US LISTENERS: This recording contains interviews with staff from the UK's National Health Service, which I believe has been branded "evil" in your country.

0 replies...

Self Checking INR
Posted by Darell
Last Reply August 20, 2009
Started August 20, 2009
I have been monitoring my own INR using Roche Coaguchek S for 3 years now as i didn't trust the readings i was getting from my clinic and i also travel alot so i felt it important to make sure my INR was stable! I once had a reading from the coag clinic saying i had an INR of 1.4 and they advised me to take a loading dose of 10mg Warfrin! I went home and took a test with my own monitor and it was reading INR 4.7 "a big difference" so a loading dose could have been very dangerous! on another occasion i was given a reading of 5 and when i rechecked it it was less so now i have more trust in my own reading then the clinics! I still go to the doctors for blood tests but this is a 6 weekly check and i feel that this is way to long to go with out some sort of check so i check every sunday before i take my warfrin and then adjust the dose accordingly. I also take my own INR reading before i go for the blood test at the doc's to see if my machine corresponds to the doc's machine and g... read more

0 replies...

Posted by Sue
Last Reply August 19, 2009 at 23:24
Started August 19, 2009 at 09:34
Does anyone else out there wonder WHY, that with all the technology that is about these days that the humble DVT that causes so much pain and grief for years in many people is not treatable quickly. There seems to be tablets for this that and the other,major organ transplants, but DVT sufferers can only have warfarin that doesnt treat the clot but prevents others from forming.Are we keeping the pharmacutical companies in business?

2 replies...

treatment of DVT
Posted by pawan
Last Reply August 19, 2009 at 17:02
Started August 14, 2009 at 14:48
On 20th July I had sudden pain in my left leg with swelling. Initially Doc thought it was cramp ...I was diagonosed with DVT on 23rd july and was given Haparin(Clexane)for about three weeks, which doc has stopped. I have been given tab acitrom 3mg per day. I am a lil worried as nobody has mentioned abt acitrom so far in any of the posts. Is acitrom same as warfarin which was mentioned in so many posts.
Also my INR was 1.3 in first test and 1.5 in 2nd. Next INR test is due tommorow. What s the safe level of INR? Will it gradually increase with the treatment? How long does it usually take to be normal again?
Thank you

4 replies...

YAZ/Yasmin Updates~
Posted by Michelle
Last Reply August 19, 2009 at 14:12
Started July 18, 2009 at 18:29
I know MOST people on here probably are not still taking birth control after suffering clots etc...

However, here's an update on suits against Bayer for YAZ/Yasmin birth control products



Just for interest

5 replies...

The Patients Voice invites you to take part in
Posted by Belinda Shale
Last Reply August 17, 2009 at 13:21
Started August 17, 2009 at 13:21
The Patients Voice invites you to take part in a blog about Thrombosis
Dear Friends
I would like to take this opportunity to invite you to the latest research blog from The Patients Voice.
In this research blog we are finding out the opinions of people with thrombosis in particular post thrombotic syndrome and how it affects you. It would be really great if you could have a look at the blog and add your experiences and opinions
To go to the blog please click here
Your help will be really valuable in helping us frame some long term research with people with DVT and similar. It would be great if you could share the blog with anyone you think might be interested.
Please do not hesitate to get in touch if you have any questions
Thanks in advance for your assistance
Best wishes

Moderator –The Patients Voice

0 replies...

Posted by Flying to LA
Last Reply August 17, 2009 at 02:38
Started August 17, 2009 at 02:38
hey all.

i am needing to fl out to LA tomorrow. i have an appointment on tuesday to apply for my student visa...it's something i can't really postpone. well. i can, but then, i won't be able to go on my study abroad trip.

i got my INR result today. it's a little low t 1.8. NOrmally I should be between 2-3.

I can't talk to anyone because the anti-coag clinic is closed.

does my level pose a threat to my flying?

or should i just continue my plans and take all the necessary precautions of getting up, drinking water, wearing the compression stockings etc.

it's not a long flight, i know. but, it's the first time i'll be on a plane since my dvt in may...so i'm nervous.

0 replies...

Atrial Fibrillation
Posted by Gay - Melbourne
Last Reply August 16, 2009
Started July 19, 2009 at 08:04
Most people on this site are taking Warfarin for DVT. Does anyone else take it for life for atrial fibrillation? I'd be interested to know how long you have been on it any any side effects you may be suffering.
Take care, good health

2 replies...

What does it feel like when a clot moves?
Posted by Audrey
Last Reply August 15, 2009 at 22:46
Started August 14, 2009 at 15:02
Some have posted that they have felt a clot move or break off.

Can you tell the rest of us what this felt like and give details in terms of what vein and any other symptoms?

2 replies...

Should I get checked again?
Posted by Lauz
Last Reply August 15, 2009 at 13:04
Started July 29, 2009 at 12:56
I went out for my hen night on Saturday night, got in around 2.30am and flopped
onto friends sofa with legs over the side. Went home about 9am, got some food
then slept pretty much all day. Sunday my right calf was a bit achey, Monday a bit
more, enough for me to complain about it. Tuesday morning got up at 5am for the
bathroom and couldn't walk properly, hobbled about all day and called in sick as
I'm a cook on my feet for 11 hours normally. Got a doc's appt and she had a look,
measured my legs, same size, no heat or redness.

Today feels worse, can't stand for long as heavy ache in calf unbearable, elevating
it is the only way to relieve it. I've been on the pill yasmin for 9 years and am 26,
should I be worried about it being a dvt? My granny recently had one. I'm getting a
bit worried as there's no reason for it, surely the pain wouldn't increase from
nothing if I'd pulled it?

Thank you in advance!

24 replies...

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