DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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What time do you to take Coumdin/Warfarin?
Posted by Karl
Last Reply August 13, 2009 at 15:25
Started August 12, 2009 at 22:37
What time do you take you Coumadin/Warfarin? I usual take mine between 6:30 and 7p.m. because at first that was what I had to do since my doctor would call me between 3 and 6p.m. to adjust my ml level. But now I am only getting my blood test once a week and then once every other week I am wondering if it is a better idea to take Comedian/Wayfaring closer to my bedtime since I seem to feel the side effects (mood swings, fatigue, ,headache, fogginess and a slight tingly sensation all over)strongest within the first few hours of taking the med.

Second question: Do the side effects get lighter with time?

5 replies...

Can dvt cause varicose veins?
Posted by April
Last Reply August 13, 2009 at 15:23
Started August 12, 2009 at 22:56
I have always had little spider veins and very small varicose veins in myankles, but I assume that they are from years of working on my feet. When I finally returned to work at my retail job, about 1 month after my dvt experience things started appearing. One day I came home and on my ankle this big squiggly vein had poppped out on my ankle. It looks gross aan is really sore and tender. I was wondering if anyone else has had the same experience and how they treated it.I have also faithfully been wearing my compression hose, I thought that they were supposed to help prevent varicose veins?

2 replies...

self regulating inr?
Posted by valerie
Last Reply August 12, 2009 at 17:08
Started June 14, 2007 at 18:12

I am on warfrin for last 3 weeks and will be on it for life. In my gps I get my blood checked by a finger prick of blood on a test strip which gives instant result. I was wondering if people on long term warfarin, actually can buy this machine,to self test, and then ring doctor for correct dosage? It would be very reassuring to be able to check inr levels, and it would also give more freedom with certain food and drinks (according to my gp).

8 replies...

Mirena Coil
Posted by Michelle
Last Reply August 12, 2009 at 05:26
Started August 5, 2009 at 04:04
Is the Mirena coil a safe option for birth control post-DVT?

DVT caused by MTS, FVL and BC.

The mirena sounds so much nice than the copper coil, and even though there's no estrogen...the thought of any hormone at all not scares me.

:/ Birth control pills were so nice and easy and effective.

Anything else is just...not the same in comparison.


4 replies...

Is this a clotting problem?
Posted by Audrey
Last Reply August 12, 2009 at 03:49
Started August 11, 2009 at 23:13
I have DVT in my right leg and a history of surface vein thrombosis in my left leg.

Today I was walking down a city street in Connecticut and felt a needle like pain just at the cuff of my pants. I thought that I had been bitten by a bug. The entire inside of the top of my foot turned bright red from above the ankle to my toes within minutes. I took benadryl to prevent any further swelling.

It took at least 3 hours for the redness to subside and now it is limited to a small area. Six hours later, there is still the constant needle-like pain (all those blood draws!) and minor swelling. The pain is lower than where I thought that I might have been bitten and I can see absolutely no sign of a bug bite, nor did I see a bug when I felt the pain. There are a lot of red capillaries on the inside of my foot and the veins are definitely bulging.

When I google, I can't find anything about an insect in this area which would cause this kind of reaction. I have been stung by bees/wasps/... read more

1 replies...

Follow-up scans
Posted by Tim
Last Reply August 10, 2009 at 22:50
Started August 8, 2009 at 18:46
I was diagnosed with a DVT in my groin just a couple of weeks ago. It seems strange to me that, once diagnosed, you are expected to take warfarin for 6 months but no-one thinks that there is any value in scanning your leg again after, perhaps 3 months, and then 6 months see what progress you are making and whether or not the clot has disappeared.
What advice has anyone else been given? Has anyone had a follow-up scan and has it changed the treatment schedule at all?

6 replies...

Technical Questions- Tests
Posted by Audrey
Last Reply August 9, 2009 at 01:14
Started August 8, 2009 at 15:51
I'm 2 months into DVT treatment and have some technical questions regarding tests.

While I understand normal ranges and therapeutic ranges for INR levels, I cannot find technical information on what the levels truly mean. Yes, I understand it is a measure of how long it takes blood to clot and it is derived from a formula using PT and PPT results. Are INR levels a straight line measure, or are they algoramithic? To put it another way, does a 2.4 INR level mean that it takes the blood half the time to clot versus an INR level of 1.2?

Twelve tests run so far, with 5 being in the normal range, one over the therapeutic range (I skewed the test by skipping my daily salad between tests), 2 just above the therapuetic range and 4 between normal and therapeutic.

After 6 months on Coumadin, the plan is to have a d-dimer test done 2 weeks after discontinuing Coumadin and to have another ultrasound done. It is my understanding that a positive d-dimer test indicates active clotting. I w... read more

1 replies...

Factor VIII
Posted by ChrisM
Last Reply August 9, 2009 at 01:10
Started August 9, 2009 at 01:10
Got my blood work from the hematologist's office (except for FVL,
which I am waiting for. All of it is normal except for F8, which is
220. I was tested two weeks out from diagnosis of multiple bilateral
clots (i.e., still in the acute phase). From some reading I've done,
it indicates that the acute phase can raise F8, and that later testing
the F8 may drop.

Anyone else tested high for F8 and then it dropped on a retest?

There's a lot of academia about F8, but doesn't seem to be much
anecdotal info (search here reveals all of two threads).

Pending the FVL, this seems to be the only test that's leaning towards
long term coumadin, which I do not want to do.....



0 replies...

Safe to work in retail after a dvt?
Posted by April
Last Reply August 7, 2009 at 01:02
Started August 4, 2009 at 18:09
At 30 I suffered from my first dvt and I also have factor 5. As a ballet techer/retail girl my life has been greatly affected.I work in retail and spend many hours on my feet during my shifts. I try not to stand still and keep walking. In addition I also wear compression hose while working, but is it safe to continue in this line of work? Would a desk job be safer with just making sure I walk around every hour or so? This dvt had caused so much frustration, but I still need to make a living. When teching I am able to sit whenever I feel like it to rest, but retail is different, no mercy from the boss. Does anyone else spen all day on their feet?

2 replies...

DVT symptom while traveling an emergency?
Posted by paul
Last Reply August 6, 2009 at 03:08
Started August 3, 2009 at 20:36
HI all, my girl and I are traveling and she is exhibiting symptoms of DVT and we are wondering what level of emergency is this? should she go to clinic emergency or can we take it easy and get home to treat?

She seems to fit all symptoms and it is in her lower calf, mild pain, sensitive to touch, some swelling, increasing sensitivity the past couple days...

any help would be appreciated....

7 replies...

Could I have another blood clot?
Posted by April
Last Reply August 5, 2009 at 19:45
Started August 4, 2009 at 18:01
I was diagnosed with a dvt in my right leg about 2 months ago. After a 3 day hospital stay, I was sent home with lovenox shots and warfarin. It has been very difficult for me to keep my levels above a 2. My last pro time came back at 1.7, so could I have developed another clot while my numbers were so low?

5 replies...

Posted by Jessica
Last Reply August 4, 2009 at 18:46
Started July 28, 2009 at 22:27
I was just wondering if guys could have MTS too. i was just told yesterday that I have it, and i'm just trying to find out a little more information on it. I'm still kinda new to this.

3 replies...

Finding a good consultant with PSD expertise
Posted by Jon Wiggins
Last Reply August 4, 2009 at 14:09
Started August 4, 2009 at 14:09
I was diagnosed with PSD appoximately 2 years ago and gave up smoking immediately after being diagnosed. My job has recently changed and requires me to potentially travel med to long haul and I ma now seeking to identify a good conultant who can give me clear guidance on what medication and precautions I need to take if travelling.

Can anyone help and recommend good consultands with PSD exxpertise please - anywhere in the UK i ok as I am prepared to travel but I am based out of the midlands (Leicestershire)

0 replies...

6 yr old on lovenox
Posted by Stephanie
Last Reply August 4, 2009 at 14:05
Started August 3, 2009 at 15:27
My 6 yr old daughter was sent to the hospital with a very large blood clot in her arm that goes from her elbow to her shoulder. She is on 30mg 2x daily and is going to be on them for 3 months as of right now. She has been on the shots for 8 days now. The last couple of days she has started to get really sleeping. Sleeping in till 9 or 10 am. The nurses say that it is just b/c of all the stress from the last week or so, but now sure. Can anyone else relate or have any other ideas?

2 replies...

Sara Thompson 18, developed Deep Vein Thrombos
Posted by N
Last Reply August 3, 2009 at 10:23
Started August 3, 2009 at 10:23
'I sat so long revising for exams I suffered a DVT that almost killed me': Pupil reveals her horrifying ordeal

Sara Thompson, 18, developed Deep Vein Thrombosis - a blood clot in a vein - and could barely walk after hours of sitting in the exam hall for her A-levels. By the time she took her English literature exam her right leg was swollen and was three inches bigger than her left. Doctors told her that had she battled on a day longer she could have lost her leg or even died. ...read


0 replies...

Red Wine
Posted by N
Last Reply August 2, 2009 at 22:14
Started August 2, 2009 at 22:14
It can prevent cancer and blood clots - now red wine could stop inflammation too

New research shows that the drink blocks two key proteins in the body to prevent inflammation, a chief cause of chronic disease.


0 replies...

Red Wine
Posted by N
Last Reply August 2, 2009 at 22:14
Started August 2, 2009 at 22:14
It can prevent cancer and blood clots - now red wine could stop inflammation too

New research shows that the drink blocks two key proteins in the body to prevent inflammation, a chief cause of chronic disease.


0 replies...

Coumdin Side Effects
Posted by DianneH
Last Reply August 2, 2009 at 17:13
Started August 1, 2009 at 23:06
Just wondering if anyone else has experienced numbness, an overall feeling, not anything like if you squatted on your legs for awhile, but an off and on tingling sensation in their feet, radiating up the shine?

Since I've been taking coumadin(three weeks now)I've experienced nausea off and on, and once the pain in my leg had stopped, I noticed that I had some numbness/tingling in my toes, and now I also feel it in my left leg.

I went in to see my GP about it because I thought that maybe I had another clot. I've read on many sites that this is a side effect, but when I asked my GP about it he said "in the 50 yrs of Coumadin there has never been a report of it causing numbness." However, he thinks it could be caused by my Hypothyroid, which has been acting up for the past year. He give it some time to see if it goes away, and in the mean time he sent me for more blood tests for, Potassium, B12 etc. If nothing shows up from them he's sending me to a neurologist!

God that's a... read more

2 replies...

Hema Appointment
Posted by Brittany
Last Reply August 1, 2009 at 22:38
Started July 31, 2009 at 16:18
Hey all!

A little background:
DVT of left leg May 27 2009, had thrombectomy
Dignosed with MTS, stent placed
Diagnosed with Factor V Leiden
On Coumadin until at least December, after that I will do further blood testing.

I have an appointment coming up with a Hematologist. We really pushed for this appointment, and now that we finally got a referral from my internist I have no idea why we are even meeting with a hematologist...

I want to get my genetic panel of blood testing done as I am supposed to be abroad when I go off the coumadin and it would give me some peace of mind knowing as much information as possible to assess risk. Is this something I should bring up? Or should I bring it up to my Internist now? As my Hema appointment is not until August 11 and I am due to leave for Spain as early as August 20th.

Does anyone have any suggestions of things I should ask or what to expect?


4 replies...

How long is sitting too long?
Posted by Mila
Last Reply July 31, 2009 at 11:34
Started July 31, 2009 at 04:49
I was wondering how long you can sit in one position before the risk for DVT is there? 1 hour? 2 hours? Half an hour? Does it matter if you're sitting on a cushioned chair? What if your leg has been pushing on the seat because of your weight? DO you have to worry about any tenderness on the part of your leg that has been pushing onto the seat?

1 replies...

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