DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Posted by Jilly
Last Reply July 30, 2009 at 15:21
Started July 28, 2009 at 12:54
My husband has just been diagnosed with a DVT in his right leg, he has no risk factors, no recent lomg haul flight. Im really worried about what may have been the cause of this. We haven't really been given any explanation or anything, just sent home with daily enoxaparin injections and warfarin tablets. Can anyone advise on this, has anyone else out there developed a DVT for no apparant reason?

4 replies...

My DVT experience
Posted by Paul
Last Reply July 30, 2009 at 08:45
Started July 29, 2009
OMG where do you start, considering this is now my third experience of a DVT,
my first was in 2001, my second was 2006, and now my third was on the 1st July
2009. The thing is I have been casing this with my doctor for the last 12 months,
yeah it must be at least... I was first told it was not a DVT? Who is the expert
here! I was advised it was cramp which is plausable considering a DVT can be
mistaken for cramp, a Bakers Cyst can also be misdiagnosed.

On the last visit to the doctor, he asked if it had Bern like this before, bearing in
mind it was he same doctor I seen before with th same problem. I wad refered to
a specialsed clinic which deal with thrombosis, I had a D-dimer Blood Test and
this red flagged a possible blood clot which could then only be confirmed by a
Doppler Scan.

The scan did show a large blood clot at the back of the knee which is also down
the calf towards the ankle. How to explain the feeing of a DVT well... It's like
wearing a bal... read more

3 replies...

Back pain?
Posted by Donna
Last Reply July 29, 2009
Started October 24, 2006 at 03:41
I am taking Coumadin and Prilosec. I am experiencing terrible pain in my back and tops of my legs. I feel like I am as stiff as a board and it doesn't seem to be going away. Has anyone else experienced pain like this and do you have any suggestions on how to treat it or what causes it?

1 replies...

cherche l'information
Posted by Anna
Last Reply July 28, 2009 at 19:44
Started July 28, 2009 at 18:14
bonjour,je m'appelle Anna.Je suis docteur tres jeunesse e je m'interesse DVT ez les geunes gens!aidez-moi,stp a qqn informations

1 replies...

Posted by nyc
Last Reply July 28, 2009 at 03:56
Started July 27, 2009 at 01:19
? for stocking wearers out there. Is it necessary to wear the stockings on both legs? I had DVT primarily in my left, it looped into my right, but it is def. gone in the right leg, and that leg experiences zero pain and zero swelling (it never did have either). Do I have to wear the stocking on that leg? Especially with the heat and with jeans..it gets toasty, and I feel like it's making that leg smaller?

Anyone know?

6 replies...

Catheter-Directed Thombolysis: Yes or No?
Posted by Chris M
Last Reply July 27, 2009 at 18:38
Started July 25, 2009 at 01:28

Question to all those with experience with Cathether-Directed Thrombolysis.

I'm a early 40's, healthy, active male in my first week of a calf and mid-thigh DVT.
The pain is only in the calf, very little swelling, but painful enough that I hobble when
I walk. When I'm off my feet, the pain largely subsides. The doc said he expects that
from what he can see so far, he expects I'll recover from this without any significant
post thrombotic swelling or pain. He's very firm that any catheter-directed
thombolysis (CDT) treatment could cause more damage than good and I shouldn't do

That said, there are discussion threads here from people who have found such
treatments immensely helpful in the short term. Are there more folks who can sound
off on their experience with this treatment. For certain, I feel I need to decide soon as
most research seems to indicate that outside two weeks, the efficacy of the treatment
starts to fall quickly.

3 replies...

standard for stockings and meds post DVT
Posted by Jill
Last Reply July 27, 2009 at 08:29
Started July 21, 2009 at 17:07
Hi all:

So, I had a DVT experience in June, and was relaased from the hospital about a month ago. I had clots in my left leg that extended through the groin and into right leg. I'm 22, female, healthy otherwise. They took an ultrasound after the operation and they said all clots were gone except in my left calf, which they can't do anything about. I'm on warafin and I'm wearing the stockings and such. I can walk fine, and bike, swim, and running is possible but only for short distances. My left calf swells a little during the day, but always returns to normal when I sleep.

How long do most have to wear compression stockings? And if the clot doesn't completely dissolve and my body just learns to work around it, how long will I be on the medication? Also, any runners out there know how long it takes to be able to run normal distances again without calf pain?

6 replies...

Low grade fever persists
Posted by Audrey
Last Reply July 27, 2009 at 08:12
Started July 26, 2009 at 14:39
It's now five weeks into treatment for DVT, yet I am still running a low grade fever on a daily basis. My normal temperature is 97.6, but for the past five weeks my temperature ranges from 99.2 to 99.6. This leaves me with burning eyes, feeling either hot or clammy and adds to fatigue.

Three weeks ago, the hematoogist did not know what to make of it. I saw my PCP the same day and she said to contact her if it goes over 100.

Has anyone else experienced this? How long did it last and was anything identified that explained the elevated temperature?

2 replies...

Natural Supplement for Cardiovascular Disease
Posted by Jessie Jiang
Last Reply July 27, 2009 at 02:22
Started October 22, 2008 at 03:17
Hey ,as i know taking natural herbs like Magnesium, CoQ10, N-Acetyl L-Cysteine, L-Glutathione Reduced, Vitamin C, Selenium and so on, is good for relieving Cardiovascular Disease in an effective and natural way.

Garlic has been proven to lower atherosclerosis as well as lower cholesterol levels and excessive platelet adhesion. Magnesium may regulate heart rhythm and reduce blood clots. CoQ10 is an antioxidant that has been shown to support heart health and lower blood pressure. The Vitamin B Complex promotes energy metabolism. Cayenne increases blood circulation. N-Acetyl L-Cysteine, L-Glutathione Reduced, Vitamin C and Selenium work together in absorbing free radicals from the system. Hawthorn is beneficial for the heart system. The roots of American Ginseng contain several saponins named ginsenosides that have potential in the prevention and natural treatment of diseases of the heart and circulatory system.

I got this info. from one of the famous nutritional consultant whos... read more

3 replies...

Pain after DVT
Posted by Miriam
Last Reply July 25, 2009 at 17:48
Started July 25, 2009 at 12:36
Just a quick question- Its been 2 weeks since I developed a DVT in my 26th week of pregnancy. I could barely walk for the first few days but thankfully the pain is almost gone and walking is a lot easier now. The fact that the pain is subsiding, does that mean the clot is getting smaller? I'm taking a daily injection of low molecular weight heparin and wearing my compression stockings religiously even though I HATE them! Most of the swelling has gone down too. So what is the average length of time it takes for a clot to dissolve or is every case different?

1 replies...

Aspirin for flight?
Posted by Brittany
Last Reply July 24, 2009 at 19:05
Started July 23, 2009 at 18:17
Hi all-

Granted my situation stays the same, I am leaving for Spain in September. I will be on Coumadin for the flight there, will go off of it in December in Spain, and will fly home without it.

I have been told by my doctor to start taking aspirin a week before my return home trip (July 2010)

Can someone explain, why aspirin? I know it is great for arterial clots since those clots are caused by blood platelets sticking together and asprin works to make those...slicker? Why is aspirin recommended for venous clot precaution, since I thought venous clots were caused by a build-up of the blood clot protein fibrin and not blood platelets...

Am i totally backwards on this?


4 replies...

Warfarin & appetite
Posted by Marķa
Last Reply July 24, 2009 at 06:27
Started July 15, 2007 at 16:16
I've been on Warfarin for about two months now and these last few days I've been feeling slightly nauseous and I've lost my appetite. Whereas before I used to think about food a lot (possibly too much) now I don't at all although I still get hunger pangs. Is it the Warfarin? And, if it is, why is it kicking in after two months?


5 replies...

Posted by Carrie
Last Reply July 24, 2009 at 06:17
Started April 13, 2007 at 01:14
Hi all,

I am currently on Warfarin as I have just found out that I have my second DVT.

I have been a little paranoid about getting a PE asnd wondered if any of you could tell me your experiences so if (god forbid) something went wrong, I would know staright away.

Thank you

11 replies...

MTS? FVL? BCP? Which caused my clot!
Posted by Brittany
Last Reply July 23, 2009 at 18:50
Started July 22, 2009 at 17:23
Hey all-

Quick question. I was diagnosed with DVT at the end of May. Originally, it was discovered I have May-Thurner...however, I just recently discovered that I have Leiden Factor V (hetero). My doctor this morning sais that the FVL is what caused the clot and not the May Thurner. From reading I've done, it seemed like FVL (hetero) on puts a person at a slight increased risk to clot...I would think it was a combo of MTS, FVL and the BCP I was taking. Any ideas on what the culprit is? Or the largest culprit, I know all played a role. I am due off the Coumadin in December and will get further testing done. Hope everything comes back normal, negative etc...

Also, knowing that I have this FVL...I am going to Spain and my doctor does not trust Spain with my full hema-stat work up. I feel totally comfortable with them...but if she wwon't accept the results...that means I will have to wait until AFTER I get back from Spain in July 2010. Which would be 6 months after going off the C... read more

6 replies...

Posted by There is Hope!
Last Reply July 23, 2009 at 16:59
Started July 23, 2009 at 16:59
Hey all,

I just wanted to write a post now that I am done with my treatment. This forum and the people that contribute positively to help others or themselves is immensely important to those just starting the scary road of the unknown. I hope more find this site as it helped me through a very scary chapter in my life.
I was diagnosed Dec.10 last year. I had DVT in my left calf and a clot found in each lung. For a 39 year old active male, married with 4 kids...you tend to get shocked into another world when you are one minute thinking you pulled a muscle really bad, to having your wife and children around you while you are sitting in a hospital bed in a critical care area...wondering...What just happened!!!
So finding this site and doing my own research has helped in the healing process. Fortunately for me, I didn't have any blood conditions...I have traveled extensively to Asia and between that and a torn MCL in my knee, I believe I formed the clot months before diagnosis. I l... read more

0 replies...

Posted by andrea
Last Reply July 23, 2009 at 11:51
Started July 17, 2009 at 14:08
has anyone had or heard of an aneursym caused by damaged veins after a DVT?

4 replies...

Deep Vein thrombosis
Posted by Sheila Webb
Last Reply July 22, 2009 at 19:24
Started June 20, 2009 at 09:46
My Daughter Rebecca has just passed away at the age of 26yrs following a clot in her leg, she was one of the unlucky ones although she did seek advice from a drop in centre. They just said her pain and swelling was just a sprain. She died two day later. The whole family are in total shock and grief for a beautiful young person who was fit and healthy and had a wonderful husband and career. What criteria do these medical personal base their decision on and why wasnt she offered a further examination as she could easily have been saved. heartbroken mum.

12 replies...

do I have DVT?
Posted by Shane
Last Reply July 21, 2009 at 17:12
Started July 13, 2009 at 02:45
I'm 34 and had ankle surgery 3 weeks ago. I recently started feeling a slow oncoming
cramp in my calf. When I stand up I can feel it throb in my calf but I don't have any
discoloration in my calf (I do in my foot of course) and also no swelling. When I elevate it I
don't feel any pain...

Everything I've read says that it could be DVT. Do I need to bolt to the ER?

4 replies...

DVT during pregnancy
Posted by Miriam
Last Reply July 21, 2009 at 13:58
Started July 20, 2009 at 18:42
I put a post up on this forum a few days ago and got no replies. So I am going to try again.
I am 27 weeks pregnant and was just diagnosed with a significant clot in my upper left leg. I have never known pain like it. I take a daily innohep injection and am wearing the thigh length stockings. The pain does seem to be easing but I really need some reassurance. I dont know anyone else who has been through this and I dont think people in general realise just how awful it is.
Are there any women out there who developed a DVT during pregnancy or are there any men whose partners did? What were the lasting effects of the DVT and did any of you go on to have more children at a later date?
My blood will be tested extensively after the baby is born to find out if it was purely pregnancy related or was there another reason for it. It really gets me down. I was just about to start buying baby things and was enjoying the pregnancy so much up until now. It was extra special as we miscarried la... read more

2 replies...

PTS after 1 year+
Posted by Marty
Last Reply July 20, 2009 at 19:20
Started July 20, 2009 at 17:57
I had severe DVT in my right leg and groin last June. I was in the hospital for 21 days and had interventional radiology with clot busting drugs. A scan now shows all of the clots are gone except one in my IVC that they tell me will never be gone. Up until now I had minor swelling after being on my feet for awhile that would go away if I laid down and put my feet up. Over the past 2 weeks I have had this dull ache and my leg seems to be swelling more and more. I went to the doctor when it first started and have been back twice fearing it was another clot. I had an ultra-sound and CT scan which hasn't shown any clots. Is it possible that I have just now over a year later started to develop PTS? Anyone else with a similar experience.

And I also want to than everyone for this site. I have been reading through the site for a couple of months but haven't posted anything until now because my questions have been answered by all of the awesome people on here until now!!

1 replies...

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