DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Post thrombotic syndrome,
Posted by jamie
Last Reply July 7, 2009 at 10:20
Started June 16, 2009 at 11:30
Has anyone got or ever had post thrombotic syndrome??
Im 21 and had a really annoying DVT that didnt go away for about 2 years, recently my leg swells to 3-4 times the size every time i stand, it normally takes about 15mins to swell, but sometimes takes less or more time. Im really scared because i cant work, cant party or get drunk anymore, i cant really do much except for lie down and "rest" my leg. Is there anyone else out there with the same problem??

i used to be so active and sociable, but those days are long and gone and im praying for some sort of miracle cure to rid myself of this burden, but the doctors are useless, and the DVT clinic suprisingly doesnt know anything about surgery or how to help it along. Is there anyone out there who has severe pts and has got rid of the swelling for most of the month? thanks all

6 replies...

MTS,Iliac vein stents, and left leg swelling
Posted by Jassmin
Last Reply July 6, 2009 at 20:35
Started July 6, 2009 at 20:35
Hello all of you lovely people,

Okay I just had a question regarding stents as some of you may
know I am having a stent placed in late August and I have quite a bit
of swelling my left leg is almost twice the size of my right leg and I
have been wearing compression stockings since I was diagnosed with MTS
when I was seven and I am now almost 15 so for almost 8 years I ahve
been wearing compression stockings.I wear compression stockings
throughout the day and then I use a pump and I sleep in a reid sleeve
so I was just curious as to wether your swelling went down alot after
surgery and what helps keep your swelling down.I know we are all
different and different things work for different people but I was
just curious


Thanks!


~Jassmin






0 replies...

Woman died of DVT after taking contraceptive
Posted by N
Last Reply July 6, 2009 at 17:57
Started June 25, 2009 at 19:15
Woman died of DVT after taking contraceptive pill
By James Tozer
Last updated on 25th June 2009

A woman collapsed and died from a blood clot just three months after she started taking a new contraceptive pill.

Helen Schofield was not told of the risk of deep vein thrombosis, or DVT, when her GP prescribed Dianette for her heavy periods.

Because the drug also works as a contraceptive, the 33-year-old stopped taking her existing pill, Celeste.

But three months later, Miss Schofield collapsed as she was walking with her mother, Kay, shortly after putting down a deposit for her first home.

Tests after her death in February found a blood clot had developed in one of her legs before moving to her lungs where it blocked a key artery, and now an inquest has ruled there was a 'pronounced' link with the drug she was taking.

Today her mother criticised the GP for failing to give her a proper warning and said clearer advice should be given to women taking it.

Dianette, wh... read more

2 replies...

Cocaine use with exhisting DVT condition
Posted by Paul
Last Reply July 6, 2009 at 02:48
Started August 19, 2006 at 10:45
History: My wife suffers from an on going DVT condition which started 5 years ago after her 1st pregnancy. Her condition has improved and the 2nd pregnancy went well using Heprin injections.

She does not now use any medication as the condition is ok and she does not want to use Warfrin.

Question: My wife is under going some personal issues at the moment and is planning to try cocaine for the 1st time when on holiday with her friend, as she feels she was a bit of a "square" in her youth. She is 35 yo now.

I am obvoiusly worried about the risky involved. Does anyone know how risky this is? She only plans to try it, but I am very concerned of the risks. I have personal experience of Cocaine use in my past, but not with a medical condition. I know the drug restricts blood vessels and hence increase blood pressure which can't be a good thing.

Thanks,

Pawl.

5 replies...

dvt in left leg,
Posted by angie
Last Reply July 4, 2009 at 18:51
Started July 4, 2009 at 06:10
i was diagnosed with a dvt in left leg, since i have been on the warfarin leg has not improved, still swollen and angry red. I am also getting a bit confused, upping my dose of warfarin, decreasing my dose. I was on 2mgs daily, irn dropped from 3.3 to 2.1, was told to increase to 3 daily. can anyone tell me why this may of dropped, i am begginning to feel like a pin cushion, bruising badly,

2 replies...

DVT Treatment in China
Posted by Steve
Last Reply July 4, 2009 at 08:52
Started May 8, 2009 at 14:51
You all may be interested in my experience. I was diagnosed with DVT in late January 2009 and had to postpone my return to China by a month (my doctor wanted me to wait three months so I got a second opinion saying it was ok to go). When I came back in March, I went to a hospital and they immediately ordered an ultrasound for both legs. The ultrasounds cost about $40 compared with $1500 in America plus another $250 to read them. The person who conducted the ultrasound also made the report. I don't know how much the government subsidizes medical treatment. I check in at reception and pay my 45 cents registration fee and then see the doctor who gives me an order for the blood draw. I then go and pay the $3 charge and take that paper (stamped twice with a red chop) to the lab. I stick my arm through a gap in a window and a technician draws the blood and puts a Q-tip on the entry point and instructs me to hold it there for 10 minutes. No wasting of band-aides here. I then carry th... read more

3 replies...

Compression for sport
Posted by Alice
Last Reply July 4, 2009 at 08:39
Started March 2, 2009 at 13:41
Hi, 2 1/2 years ago I had two DVT, one in my Iliac vein in my groin on my left leg, approx 10 cm long and one in my femoral vein approx 6cm long.

I was 27 at the time and did alot of sport, no blood disorders, I don't smoke and not overweight but on teh pill!

I am back into sport because I'm stubborn! I still have the clots and wore compression stockings all the time for 2 years and now only when I do sport.

I ran my first marathon in october and am doing a half iron man at the end of may. I'm slower than I was and it does hurt but that's not going to stop me!

My problem is that my medical stockings aren't really up to scratch any more. Does anyone know anything about any reseacrh into post DVT compression for sport. No one appears to know much as from what I'm told being under 30 and suffering major DVT is fairly rare.

Can anyone help? Thank you,

Alice

4 replies...

Compression Stockings after surgery?
Posted by Sally T.
Last Reply July 4, 2009 at 08:33
Started May 31, 2009 at 01:29
Hi, I'm wondering whether any of you that have had surgery wore these afterwards in bed? I have read that normally they are only worn during the daytime (not to sleep in). But, what about after a surgical procedure? Is it ok to wear these to sleep in and if so, what strength did you use?

I have seen some stockings online that say "surgical" or 18-20 strength, but these look a bit flimsy?? Would tighter be dangerous?

Anyone with experiences after surgery with their stockings would be of great interest.

Thank You.
Sally :)

6 replies...

Is dvt likely after all this time?
Posted by Bellgirl
Last Reply July 3, 2009 at 03:28
Started July 2, 2009 at 17:16
Thanks for this great forum...I have read many of the posts here but haven't come across an answer to my question!! I am 46 years old, smoke (starting Champix for that soon) and am about 20 lbs overweight. About 12 weeks ago I experienced discomfort/stiffness behind my left knee and down into my calf the day after a 12-hour airplane flight. There was some swelling behind my knee and calf and an area on my calf about two inches across where the skin looked discoloured. The next day I went to urgent care where the doctor took a quick look at the back of my knee, said I had a Baker's cyst and sent me home with anti- inflammatories and a recommendation to see my GP.

The discomfort/pain continued over the next couple of weeks...moved into the front and inner part of of my thigh and sometimes down into my ankle. Sometimes felt like shocks or cold water running down my leg. The intensity varied...got worse the longer i remained in one position, moving helped but sometimes it hurt to... read more

3 replies...

Leg ache at night
Posted by Amanda
Last Reply July 2, 2009 at 23:03
Started June 12, 2009 at 11:13
I had a DVT nearly 6 years ago in my left calf - solved after 3 months of therapy and no repeat.

Since giving birth to my son 10 months ago however (I took aspirin through pregnancy and heparin afterwards) my calf aches in bed at night, enough to keep me awake. Occasionally during the day too, although I don't notice it so much and rarely sit down with a 10-month old!

Does anyone know if this aching is normal / part & parcel due to the damaged vein or should I consult a doctor?

Thanks!

2 replies...

knot in calf where previous dvt occured
Posted by C.G. Kyles
Last Reply July 2, 2009 at 21:38
Started July 2, 2009 at 17:56
Over the past few days I've noticed a soreness in my right calf muscle area..its hard feeling & very tender to the touch. No bruising on it. I haven't hurt it doing anthing.
Noticed when i was walkin & thougth maybe a pulled muscle of some sort. I had DVT in same area in 2003 follwing a surgery that required me to be immobile.
There is no redness but can feel it when i walk and very tender if u put any pressure on it. Its about the size of a 50cent piece. You can't see it just lookin at it but can definately feel it.
Should I give it a few days before going to Doctor or is this prob nothing? I have no clue

1 replies...

Guidence needed please
Posted by Claudette
Last Reply July 2, 2009 at 19:37
Started June 16, 2009 at 02:13
I put this in the wrong spot, I hope you don't mind me posting again. Sorry


Hello all
First let me thank you all for having this site and using it. I was just wondering if you could guide me in regards to what I should be asking, doing or insisting on with my docs.

This past Thursday I was told I have a DVT in my left calf just below my knee. This past Friday, after having a phone chat with the doc about an episode of shortness of breath, rapid heart rate and very slight fever which started after I had been in hospital for a D&C this past April(I had a miscarriage) he confirmed that I likely had a pulmonary embolism then. I just thought it was because of the blood loss I went thru. No one told me to look out for anything and no one called me back for 2 weeks to explain and no, foolish me didn't go to the hospital to check it out either. I thought it was from blood loss. After 2 weeks it started to get better. I understand it could have been quite bad but I am a very... read more

6 replies...

Hi John from Dallas
Posted by Rick
Last Reply July 2, 2009 at 12:59
Started October 23, 2008 at 16:10
Your situation sounds very familiar to mine....right down to the
intolerence of coumadin.
Strange part for me was initially I only had pain in my upper calf
after a very lengthy car ride. I had an utrasound and they found the
clot in my upper calf. They started me on Lovenox and Coumadin. I only
took the Lovenox for 5 days but of course I'm continuing the Coumadin
for the next 3-6 months. After two weeks they did another ultrasound
and I told the technician that I recently starting having some disfomfort in my inner thigh. Sure enough....another blood clot about
4-5 inches long. I'm positive during the first ultrasound I didn't
have any pain in my thigh. Hematologist thinks that I had a small clot
in my thigh that increased in size while waiting for my blood to become therapeutic.
My calf feels like it's healing great....but the one in my thigh has
not shown any improvement. All night it gave me fits. Burning, tingling, pin prick, stinging, twitching. Sure makes for a ... read more

3 replies...

PE's gone
Posted by Bill
Last Reply June 30, 2009 at 13:31
Started June 30, 2009 at 13:31
On April 24, 2009 it was discovered that I had two blood clots in my right leg and numerous PE’s. I asked the doctors how many numerous was and his response was “too many to count”. Two weeks ago I had another CT, ultra sound of the right leg and an Echo Cardio Gram (spelling??). Good news is that all my PE’s are gone. I knew I was getting better because I could breathe better and my heart did not hurt as often. The clots are still I my right leg :( and the echo cardio should that both sides of my heart muscles were weaken by the PE’s. My next stop is to see a Cardio specialist. I was also told that I would be a lifer on coumadin. Well, at least there was some good news.

Take care.

bill


0 replies...

Coumadin Levels
Posted by Me
Last Reply June 30, 2009 at 04:57
Started June 29, 2009 at 18:49
Okay I am a 14 year old female on coumdain and I take 9 mrs. daily my lucky number my inr should be between 2.5 and 3 so I have been on 9 mgs. daily of coumadin for 2 months yay! is this a high dose for my age oh and if body size has anything to do with it I am 5'9 and 135 pounds.Do you think this is a high dose of coumadin? what is your current dose?

6 replies...

please help
Posted by amanda
Last Reply June 29, 2009 at 23:14
Started June 15, 2009 at 23:01
its nearly a year since i was diagnosed with a small dvt below the knee, following an injury. Did the 6 months warfarin treatment, I have had scans and d-dimer test which confirm that the clot has gone so why am i still so worried? I spoke to my gp who has tried to reassure me that this was prob a one off and i hadnt had any problems until this happened, but im so scared that im going to get another. If there is anyone who can give me some words of encouragement i would be so grateful.

5 replies...

New support group
Posted by HI
Last Reply June 29, 2009 at 22:50
Started June 29, 2009 at 22:50
Please feel free to join this brand new support group it is for may thurner syndrome it currently has 0 users but we can change that if you join the group here is the link http://may-thurnersyndrome.forumotion.com/index.htm

Thanks!

0 replies...

How many people here have stents?!?!
Posted by WoW
Last Reply June 29, 2009 at 19:21
Started June 29, 2009 at 19:21
Okay I am a 14 year old female and I have May Thurner Syndrome and I have a vascular surgeon Dr.Franz he is awesome! Well I have had 2 angioplastys and he is was not planning on putting a stent in until I was about 23 and stopped growing.Well he found a stenosis that might be growing and getting progressively worst.So he said that he will be putting the stent in in august after I go back for my regular 3 month appointment and testing as usual I will have a venous duplex(ultra sound)and an mrv.I currently have a dvt and have been on coumadin for 7 months when I go back to him in august I will come off the coumadin yay! I am worried about having the stent placed because I might grow and then I don't know what will hapopen and he said that once the stent is in there he can't move it. So yeah I am kind of scared.How was your or is your experience with the stent?!?

0 replies...

Compression Stockings
Posted by Jassmin
Last Reply June 29, 2009 at 18:27
Started June 29, 2009 at 18:27
Okay it is summer here in ohio the buckeye ste WooHoo! GO BUCKS! Okay well it is warm and I wear thigh high compression hoses they have to be special made becasue the strenght is higher than the highest strenght I have may thurner syndrome and quite a bit of swelling in my leg so I wear stockings all through out the day then I use a pump and sleep in a reid sleeve but anyways Is it just me or when you go out in public in shorts with your stocking on do people give you crazy looks or what? I'm just wondering but after awhile it is kinda funny :)

0 replies...

Pregnancy after stent
Posted by Jassmin Robinson
Last Reply June 27, 2009 at 20:37
Started June 27, 2009 at 20:37
I saw this on the internet is it true that you are very very highly adviced not to get pregnant after stent because it could result in death of you or the baby?!

0 replies...

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