DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Key to blood clotting discovered
Posted by N
Last Reply June 7, 2009 at 10:39
Started June 7, 2009 at 10:39
Saturday, 6 June 2009
BBC Health

Scientists have discovered a molecular mechanism that is key to regulating the way blood clots.

The team from Harvard University, writing in the journal Science, said the finding could help treat people who have blood-clotting disorders.

If blood clots too much, people can develop a potentially fatal thrombosis; too little and they can bleed to death.

UK experts said the research was important and could help develop new treatments for blood disorders.

A molecular messaging system has to maintain a balance between blood not clotting too much or too little.

The Harvard team identified an area on the von Willebrand factor (VWF) blood-clotting protein which contains a molecular sensor to regulate the size of the protein, important for it to work effectively.

VWF is vital to the body's circulation. It controls the balance between blood clotting and bleeding, and abnormalities affecting VWF can lead to health problems such as bleedin... read more

0 replies...

DVT Worries here. Looking for some insight
Posted by Freddie
Last Reply June 4, 2009 at 23:27
Started June 4, 2009 at 03:14
Hey. My 31 year old fiancee has a massive DVT in her left leg and a small one in her right from which we believe was caused by her lack of movement after a tummy tuck. We are home now, taking coudmadin, but would like to know, how soon should she try to walk or move? She has a filter in place as a result of this DVT. She feels pain and of course it swells after short trips to the bathroom, just interested to see when she should start to move around. She just wants to be normal and I know we have a long road ahead. Some inspirational words would be VERY welcomed. Thank you

4 replies...

Posted by Kath
Last Reply June 3, 2009 at 23:42
Started June 3, 2009 at 13:09

I have just been told I have a DVT in my left leg. I took a blow to the knee playing hocky approx 4 weeks ago. I am assuming the lack of movement and activity since this has caused it. I am going for my scan on friday. Me and my fiance are supposed to be flying to turkey on the 13th June..... Im guessing the chances are all but gone of this!! Any answers or ideas as to when would be safe to fly?

3 replies...

bloodworks for deep vein thrombosis
Posted by Lynette
Last Reply June 3, 2009 at 12:50
Started June 3, 2009 at 10:39
Hi my name is Lynette within our 2nd or 3rd year of residing in Australia we have discovered that my husband suffers from severe deep vein thrombosis.Anyway every blood test and scans has since been done to determine what was causing it. i would like some help or any information that could assist us in figuring out what we might have missed in causing him to be so prone to clotting.I should mention that he has been clot free for a year and just found out today that it has come back and is affecting the right leg and not both as before.I feel maybe something was missed doing the blood works.

1 replies...

Elevate or not?
Posted by Andrea
Last Reply June 2, 2009 at 22:21
Started June 1, 2009 at 21:15
I developed a dvt 10 months ago following an injury to my calf. I know that it was important to keep the leg elevated but after this time and following a recent scan which confirmed that there was no evidence of a clot should i still be doing this. I have been off the warfarin for 3 months and dont have any problems with my leg. Thanks.

3 replies...

Post DVT care
Posted by Jack
Last Reply June 1, 2009 at 22:46
Started May 31, 2009 at 21:42
I have been told that I have a DVT and have been given common treatment. It is now 5 days later and I still have pain in my leg and swelling. I have been wearing stockings but am unsure of how much excercise I should try to take can anyone help me? All I was told was to elevate my leg when sitting down.

2 replies...

New to DVT's
Posted by von
Last Reply May 31, 2009 at 20:16
Started May 29, 2009 at 15:18
I just got out of the hospital one week ago, with my 1st DVT. I was in for 10 days. I had my inr checked on Tuesday and it was 2.7. I am now experiencing a swollen foot and some pain in my calf. Is this normal or should I be going to the dr again. I have another appt. scheduled for this coming tuesday to ck my inr. I am not sure what to do. When I was in the hospital all they did was give me heprin till the coumiden level was at 2.0, and had me lay still. Should I just lay still or keep moving. They told me to make sure I got up and moved every hour and I do that except at night. Any help would be appreciated. I am trying not to overreact, but this is the first time I have been seriously scared for my health.

3 replies...

Painful DVT
Posted by Jahzmin
Last Reply May 30, 2009 at 17:01
Started May 28, 2009
Hi my name is Jahzmin I'm 16 years old.
I was in bed in the hospital for about 3 weeks with a sickle cell crisis and developed a blood clot in a deep vein in my groin.
I have been on blood thinners for 4 months and have not had any pain, just swelling in the leg when i walk for a long time.
Now at the 4th month of my treatment, I am beginning to have a sharp pain around the area of my bloodclot.
I'm not sure if this is just the after affects of having a clot for a long time or if i should be worried.
Somebody please get back to me asap, it would be much appreciated because I do not want to worry my mother if its nothing as my sister suffers from athsma and I have sickle cell and a blood clot and it is very stressful on her.
Thank you.

2 replies...

pain in non DVT leg
Posted by debbie
Last Reply May 30, 2009 at 15:58
Started May 30, 2009 at 15:00
Just wondering if anyone has experienced pain in the leg that doesn't have the DVT in it? Recently, more so at night when it is cooler,I have been experiencing a sharp pain either in my thigh or in my calf of the leg that was scanned a month ago and has no DVT's (left leg). It actually takes my breath away for a second or two! I have extensive DVT in my right leg. Does anyone else experience this - not sure if it is reacting to the cold? I am pretty new to it all and this definitely sounds pretty silly to me!

I am really interested in hearing people's responses

1 replies...

Pain in calf after DVT.
Posted by Kamran
Last Reply May 29, 2009 at 23:32
Started May 29, 2009 at 14:28
I am kamran 30 years old.I had PE 2 months ago after a long flight fron Pacific.I am on warfarine for 2 months.Is it usual to get slight pain in calf after DVT.My INR is stable and I am not missing any dose.
Can anybody help me in this regard

1 replies...

Posted by Quinn
Last Reply May 29, 2009 at 22:55
Started May 29, 2009 at 20:14

about 8 months ago I suffered from multiple DVTs in my leg, I am a very active person that does about 50 hours of exercise a month. Lat night after a long bike ride I had a shooting pain in my upper thigh. It was intense for about one min and felt like a charlie horse. Today it is still sore and tender. Am I just being paranoid or could this be another clot. My last INR was 3.1 and it goes up and down weekly. I Have my own tester and I test myself once a week.

1 replies...

Paid Research Study Delve - Chicago
Posted by Leslie Schmid
Last Reply May 29, 2009 at 16:10
Started May 29, 2009 at 16:10
Good Morning,

Delve, LLC in Oak Brook Illinois is looking for people diagnosed with Atrial Fibrillation (A-fib) Pulmonary Embolism (PE), and Deep Vein Thrombosis (DVT) who would be willing to participate in a market research study about the impact of living with A-fib, PE, and DVT. If you or anyone you know may be interested, please call 630-990-8300 and refer to study 9166. We look forward to your calls and referrals.

Please tell the operator you saw this message on the DVT forum. Thank you.

0 replies...

Repeat DVT on Coumadin
Posted by Christine
Last Reply May 29, 2009 at 15:15
Started April 21, 2008 at 11:23
In 2001 at age 35, I had a major DVT / PE event which I found out about 3 yrs later that I have Factor 5 deficiency. (I carry the full mutation from both parents). At the time I smoked and was on birth control for endometriosis so I was a walking time bomb to say the least. I've been on Coumadin since then with the occasional Lovenox injections prior to any sort of medical or dental procedures.
Last week I was experiencing symptoms that made me suspect another DVT so I went to the ER & they said I have a few clots in my left leg. Some were new, some were chronic & had been there for a while.The clots were below the knee & they weren't encompassing the deep vein like the initial ones had, but I guess more along the surface. (I'm not sure I understood that or explained it right). Other symptoms included redness, inflammation and I could feel a "knot" thru the skin which I later learned was actually a clot. They did a doppler to confirm the diagnosis, gave me an extra Coumadin 5mg, a... read more

13 replies...

Weather and INR Changes
Posted by Tom
Last Reply May 29, 2009 at 02:58
Started May 28, 2009 at 14:43
I have been on Coumading now for 1.5 years due to a DVT in the right calf and Factor V. They say I will be on this for the rest of my life (not if I can help it!). Has anyone else noticed that when the weather gets hot their INR increses. I have been really steady at 2.4 yet the last 3 weeks it has climbed and yesterday it was 3.8. I am one of the top amatuer golfers in my state and am out in the sunshine all summer. Has anyone experienced this and is there any method you have found like more water or whatever to cool your blood-body down?
PS I hate this stuff!

3 replies...

Could my husband have DVT?
Posted by Mary
Last Reply May 28, 2009 at 23:01
Started May 27, 2009 at 17:33
My husband (age 43) has had swelling in his right calf for over a year now. The swelling gets worse if he's in one position for a long time. When the swelling first got noticeable, he saw a dr., who suspected DVT and ordered an ultrasound. The ultrasound did not detect any clot, and there was no follow-up from the dr. However, the swelling continues and is sometimes very noticeable relative to the other leg. It is not very red compared to the other leg, but does bruise easily. I am very worried, but am having trouble getting my husband to go back to the dr.! One thing I can't figure out is how long someone can have DVT? Can it be on the order of years? I would GREATLY appreciate any feedback anyone can give me!!

2 replies...

a long wait
Posted by suzanne
Last Reply May 27, 2009 at 15:05
Started May 23, 2009 at 10:10
im 27 got a blood clot in my leg,i had blood tests yesterday to check for blood clotting disorders,going back to the hospital in 3 months for results,talk about a long wait!!im just feeling really down and scared about the fact if it is a disorder that i be on warfarin for life,and i love going out and having a good drink but obviously wont be able to drink much.Just wondering how any of you on warfarin for life have coped!

5 replies...

Leg Swelling
Posted by kb
Last Reply May 26, 2009 at 16:21
Started May 26, 2009 at 16:21
There have been a few threads on this topic. I would be interested in any success stories on the leg swelling going back to normal over time.

My brief story (39, male, active)...
I am finishing my 6 months of treatment...I had DVT in the left calf and in turn PE in each lung. I found the DVT through a calf muscle pull last December. The PE wasn't as noticable (ie. no chest pain)...it was shortness of breath when working out - but that was only found when they scanned me at the hospital once the DVT was diagnosed. I have no blood disorders. The cause of my DVT was a torn MCL in my left knee combined with extensive air travel (5 overseas trips - some in coach class). So now I am on my last month of treatment. I am looking forward to being off coumadin, but a bit anxious on not having a return clot.

I know the clot in the lungs are gone as my normal activities that I was having issues breathing are not there any more...

My affected leg is slightly larger than the other at ... read more

0 replies...

Posted by Bill
Last Reply May 26, 2009 at 14:19
Started May 22, 2009 at 20:04
About three weeks I was admitted to the hospital with two blood clots in my right leg and numerous PEs in my lungs. I was suffering with shortness of breath for about two weeks prior to this as wells as having cramps in my calves at night. I just figured I needed more potassium in my diet…….wrong it was the first signs of blood clots. I haven’t had any recent surgeries or been on a long plane ride so the sources of the clots are still a mystery.

I am on Coumadin and I do wear a support-compression stocking and yes it does make the leg feel much better. I'm still working on getting my breath back, I have several PEs and I continue getting chest pain. I will slowly get back into walking three miles/day, but right now the leg hurts too much for that. I'm going to a hematologist in two weeks; I am hoping to find out why the blood clots formed. My identical twin brother was tested last week for Factor V and came up positive, so I'm sure I have it as well.

I can still ride my... read more

3 replies...

Posted by Dennis Collazo
Last Reply May 24, 2009 at 06:18
Started March 10, 2008 at 07:36
My doc just told me to go to the SSI office and apply because i was going to be suffering from DVT's for the rest of my life because it runs in my family.I have not heard from anyone getting SSI for having DVT here in NYC.Does anyone know about this,or know someone that has DVT and has gotten SSI to accept it as disability? Please feel free to reply here or eMail me at : davecollazo1@aol.com,Thank you all and good luck with your health problems.

3 replies...

Lovenox after Surgery Question
Posted by DHY
Last Reply May 22, 2009 at 13:48
Started May 22, 2009 at 03:40
I am having an outpatient knee surgery this summer and have been prescribed 10 days of Lovenox shots (2x per day) starting one day after my surgery. I had a DVT last year, brought about by trauma to the affected leg. I was on Coumadin for six months, but am now off.

I am wondering if others who are off Coumadin have had similar post-surgery steps taken and what was your experience with it?

Also, I am very curious as to why the shots are started one day after surgery and not the night of the surgery?? Doesn't that leave one more vulnerable to forming a clot the first night?

Thanks very much!

1 replies...

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