DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Posted by Vanessa Bridgwater UK
Last Reply May 3, 2009 at 21:58
Started May 3, 2009 at 21:58
I acquired it thats the word my DVT in February, still my INR goes up and down 3.3 last reading. I have just felt a grizzly feeling lump in back of my other knee with a really black bruise around it, also my DVT leg back of knee is bruised badly too, and both legs have red rash from knee to ankle, is this usual, or does it mean I may have a DVT in my other leg too? I am not due to see INR Nurse till 12 May, she is always fully booked up. Advice please, or am i worrying uneccessarily.

0 replies...

Swelling in Arm
Posted by Sarah
Last Reply May 3, 2009 at 12:56
Started May 3, 2009 at 12:56
Hi, I wonder if you could give me some advice. My husand has DVT in his right arm and is now on warfarin. The DVT occured on 20 April, 2009 and the arm is still swollen. Does anyone know if the swelling is likely to reduce and the colour in his hand return to normal? He is on warfarin for 6 months but we have had no advice on how best to reduce the swelling. There is lots of advice on what to do if the clot is in the leg, but not the arm. Any advice welcome.

0 replies...

Burning Sensation in the tops of my arms???
Posted by Rachael Hall.
Last Reply April 30, 2009 at 12:38
Started April 30, 2009 at 12:38
Hey there, Im Rachael and I have a blood clot that goes from behinde my left knee to my belly button. I have had this for around 6months. In the last couple of months I have had a deep burning feeling in the tops of my arms!? I also have a headach that I have had for the last 5days??? Anyone have any idears? xo

0 replies...

Posted by Nicole
Last Reply April 29, 2009 at 14:51
Started April 29, 2009 at 12:04
Hi All,

I have seen a lot about leg DVT but I have a right arm DVT. I am 24 and the doctors were very shocked. It turns out I have Factor V and I was on the pill for three months before I got the clot so they are putting it down to that. Thing is, I have been on the pill before when I was younger and for a couple of years and never got a clot, so not sure how accurate this is.

Also, arm DVT seem to be associated with a 'first rib' issue - it has a medical term but I can not remember it. So I am worried as to why I got the arm clot and not one in the leg...

Has anyone else had an arm DVT and if so why? Also, were you taken off Warfarin whilst it was still there? Mine has gone down but is still there but they are taking me of warfarin next week and it has been 6 months.

1 replies...

Still worried.
Posted by Amanda
Last Reply April 28, 2009 at 20:42
Started April 27, 2009 at 16:39
Having developed a dvt 9 months ago following an injury, i was taking warfarin for 6 months. I had a scan, 1 month ago and there was no evidence of a clot and d-dimer blood test which was negative.So why am i still feeling anxious and depressed? I just dont seem to be able to get myself out of this black hole that im in. Please tell me that it does get better in time. Thanks.

2 replies...

Swollen Lower Leg?
Posted by Dave
Last Reply April 27, 2009 at 19:29
Started April 27, 2009 at 19:29
I had DVT and PE in 2005. As a result my legs are still painful and all the GP offers is Tremadol.
I now find that almost daily my lower leg (nearer to ankle than knee) swells and becomes very painful. Usually by the morning it has gone down a bit and the pain has eased.
Does anyone else get this post DVT and have they been given any treatment other than Tremadol for it?
Thanks for any replies.

0 replies...

Still worried.
Posted by Amanda
Last Reply April 27, 2009 at 16:38
Started April 27, 2009 at 16:38
Having developed a dvt 9 months ago following an injury, i was taking warfarin for 6 months. I had a scan, 1 month ago and there was no evidence of a clot and d-dimer blood test which was negative.So why am i still feeling anxious and depressed? I just dont seem to be able to get myself out of this black hole that im in. Please tell me that it does get better in time. Thanks.

0 replies...

Palmar Procedure
Posted by Lily Williams
Last Reply April 26, 2009 at 02:35
Started April 25, 2009 at 23:49
Hi everyone. I've been popping back and fore to this wonderful forum for about 2 years now. I have thoroughly enjoyed reading the posts and found most of them very informative. I've never posted before but I thought I'd tell you about the operation I have just had. About 2 years ago I developed a DVT in my left iliac vein. I was a fit 33 yr old with no reason for the dvt. I was told to take warfarin for 6 months and told that the blood clot would just dissolve with no long term complications. How wrong! During the first few months after diagnosis I felt the usual pain I think most people with a DVT experience and my leg was always slightly swollen especially around the ankle and behind the knee. I asked my GP if this was normal and he kept reassuring me that "yes it was and that the swelling would gradually go down as the clot dissolved". So I waited. The warfarin was stopped after the 6 months but the swelling and pain was still there. I again asked my GP if this was normal and aga... read more

1 replies...

Don't be fooled by drug statistics
Posted by Char
Last Reply April 24, 2009 at 17:43
Started April 24, 2009 at 12:29
Recent headlines heralded unexpected benefits of a cholesterol-lowering drug:

My Hematologist did not think Statins would be of any value to prevent blood clots. Who knows.

1 replies...

Posted by Sara
Last Reply April 24, 2009 at 10:24
Started April 19, 2009 at 03:15
Pictures of my arm: http://img186.imageshack.us/gal.php?g=89504687.jpg

The first image is my right arm, which is normal. The next three are of my left arm, which my family thinks looks weird. I agree, but I didn't think it was a big deal until I Googled some fear into myself. Anyway, the last image (4th in the gallery) is my arm Top to Bottom (i.e. my shoulder would be at the top of the picture). I think it's weird that my arm gets THICKER the closer it gets to my elbow, rather than shoulder.

Anyway, if anyone has had DVT in their arm, please let me know if this looks anything like what you have.

5 replies...

Warfarin and BP
Posted by Char
Last Reply April 21, 2009 at 10:45
Started March 20, 2009 at 12:36
Does anyone take a BP medication along with Warfarin. Several of my Doctors have been reluctant to prescribe an antihypertensive. State I do not need it with Warfarin.
BP's average 135/85 to 145/90, I do not consider those BP's within normal range. Lately seldom below the 120/80, see both Doctors the end of April.

12 replies...

100 Views Natto is Great for Heart Health
Posted by N
Last Reply April 20, 2009 at 20:38
Started April 20, 2009 at 17:07
Natto enzyme may boost heart health in at-risk people
By Stephen Daniells, 16-Apr-2009

Nattokinase, an enzyme extracted from fermented soy, may reduce levels of compounds linked to blood clotting, and cut the risk of heart disease in people at-risk of the disease, suggests new research from Taiwan.

The enzyme was found to be able to reduce levels of blood clotting (coagulation) factors such as fibrinogen, factor VII, and factor VIII in 45 men and women, according to results of a study published in the Nutrition Research.

“These results, namely, the observed reduction of the coagulation factors of fibrinogen, factor VII, and factor VIII, suggest that nattokinase administration can be considered as a CVD nutraceutical,” wrote the authors, led by Chien-Hsun Hsia from Changhua Christian Hospital.

“To our knowledge, this study is the first clinical trial reported in the literature to investigate the effects of nattokinase on the CVD-associated coagulation factors.”

The ri... read more

3 replies...

blood clot in groin
Posted by rodney wilson
Last Reply April 20, 2009 at 13:14
Started April 19, 2009 at 02:38
hi everybody ,need your help.about 19months ago i was rushed to the hospital with dvt from calf to groin the bad thing is i was not injured and they still dont know what caused it.the only thing that i can think of was .i do alot of walking on my job and i used to get bad leg cramps in right leg for about 3 years and never had it checked.but where i need your help is the clot in my groin is killing me i cannot squat at all.i am on a redbull route and i work 40stores a day lifting and jumping up and down in a big van and i just cant do it anymore.does anyone have severe pain in the groin like this im just wandering if im going to kill my self out there trying to do this with that kind of pain ..thanks so much rodney..

3 replies...

Are varicose veins normal after a blood clot?
Posted by Troy
Last Reply April 20, 2009 at 01:16
Started April 19, 2009 at 18:00
Hi. I'm 25 and had/have a rather extensive clot in my upper right thigh. I am on medication but have noticed that I have developed some small varicose veins on my right side from my thigh to about the height of my belly button.

Is this normal?

Thanks in advance.

2 replies...

New site
Posted by Zsa Zsa
Last Reply April 19, 2009 at 11:07
Started April 19, 2009 at 11:07
Another support site, even for DVT problems


0 replies...

Flying - short distance is it ok?
Posted by Vanessa - Bridgwater UK
Last Reply April 18, 2009 at 21:49
Started April 17, 2009 at 23:59
I am hoping to be able to fly to Ireland which is only an hrs flight, does anyone know if that would be ok for me to do? any advice would be appreciated. Thank you

2 replies...

mechanical removal of
Posted by Pamela H.
Last Reply April 17, 2009 at 21:39
Started April 7, 2009 at 20:12
Hi - so glad I found this site. I had a huge DVT in my left arm. I'm 44 and they don't know the cause. The only suspect is a very old broken clavical on the left side that was a nonunion. I will be following up with a vascular surgeon and orthopedic surgeon. I had the clot mechanically removed by an angiojet machine (link below). I am so grateful for that machine. They got all of it out. I then had to have angioplasty to help the vein and a stent. I am still in shock that I had such a severe problem. I am normally totally healthy, no birth control, smoking, heredity problems, nothing to cause this. I'm currently on warfarin and lovenox. I hate taking this bloodthinner. I'm scared everyday I'm going to fall and hit my head or something. I'm grateful though for the treatment. I guess the specialists will try and figure out why this happened and what to do like maybe repair the collarbone area that they think was cutting off circulation in the vein. Thanks for listening everyone. Any t... read more

4 replies...

Pins & Needles
Posted by Townsville
Last Reply April 14, 2009 at 22:20
Started April 14, 2009 at 11:29
Have a DVT near groin, detected in November 08 still getting pins and needles in left
foot actually toes, does anyone else experience this

1 replies...

May Thurner Syndrome Forum-
Posted by Jeanne
Last Reply April 14, 2009 at 05:56
Started April 14, 2009 at 05:56
I have created an open forum to discuss May Thurner Syndrome.


0 replies...

Knee Surgery & Warfarin Treatment
Posted by kb
Last Reply April 14, 2009 at 05:09
Started April 13, 2009 at 16:47
Hey all...I have a question...I am 4 months into my 6 month treatment of DVT and subsequent bilateral PE's. No blood deficiencies, 39, male, I do travel overseas a lot.
Last summer I hurt my knee...didn't work out as I waited for it to heal...I did travel overseas a few times. So it is my thinking now after all my research that I developed my DVT as a combination of my knee injury and overseas travel. When I got back exercising after the knee felt better (autumn), I was extremely winded (this was also after an overseas trip). Looking back now that being winded was not from being out of shape, but the PE's. I still shake my head at how lucky I am that my asymtematic DVT became symtematic...or I might not be writing this note.
Anyway, long story short...the knee never really healed 100%...felt better as I could run, and do activities, but would always get sore if I over did it. Turns out and I just got this confirmed through an MRI last week(better late than never)...but I have a t... read more

3 replies...

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