DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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DVT therapy article
Posted by Char
Last Reply March 29, 2009 at 11:52
Started March 29, 2009 at 11:52
This was in my local newspaper today. Hope everyone can open it.

http://www.theledger.com/article/20090328/NEWS/903285047/1134?Title=Therapies-Go-Beyond-Blood-Thinners

0 replies...

Will your holiday flight poison you?
Posted by N
Last Reply March 28, 2009 at 10:03
Started March 28, 2009 at 10:00
As many as 200,000 air passengers could be similarly damaged every year.

Will your holiday flight poison you? The toxic fumes leaking onto planes and the people who have suffered their effects

By Tom Rawstorne
Last updated at 1:38 AM on 28th March 2009

Sitting in the cabin of the jumbo jet as it headed across the Atlantic, Emily Graeme and her family were looking forward to a fortnight in Florida. Little did they know that their holiday would be wrecked before the plane had even touched down.

'We were halfway through the flight when my six-year-old daughter complained of a funny smell and was then violently sick,' says Emily, 37. Over the next few days, other family members became ill. Emily suffered severe flu-like symptoms and breathing problems.

'I couldn't move. I was wheezing and had lots of crackling in my chest,' she says. 'It was just awful. I really thought something serious was wrong.'....read the whole article

read more

1 replies...

swelling in knees?
Posted by LisaJoy
Last Reply March 28, 2009 at 09:45
Started March 28, 2009 at 06:13
Posted here maybe a month ago about having a concern for blood clots, although it could be something neurological or something else. Anyway, this evening I was asking my mother if I could see the back of her knees because mine seemed like they might be a little bit swollen, but I had not looked at the back of my knees in such a long time that I wasn't ever sure. Mine looked slightly larger than normal, but while I was comparing my mother pointed out to me that the front of my knees were quite swollen. I looked down and sure enough my knees look like they have been divided into two separate sections, each of which appears as a bulge,as if there were a ball or water retention under each section. When I sit in bed with my legs stretched out straight my knees don't appear to be too swollen, but it's obvious when I stand up and last time I stood on my legs for a few minutes it swelled up more, but only in the front of the knees. For about two hours I was having severe pain in my left leg... read more

1 replies...

Bad veins
Posted by DVTgirl
Last Reply March 27, 2009 at 12:49
Started March 25, 2009 at 18:21
I have a DVT caused by a PICC line IV. This is the second time this has happened. The last time, my hospital (diff state) had a Coumadin Clinic, which just finger-stuck me and gave me instant results.

Where I live now, no one does this. I have to get my blood drawn (10 times in the past 16 days - 6 as an inpatient and 4 as an outpatient) and they won't use my arm that the clot is in (my dominant arm, which has better veins). They are having problems getting my INR results to be in the right range.

The arm they use has spider veins; they have to use my wrist or the top of my hand to draw, even using a small butterfly needle. It takes at least 2 sticks to get a draw. I am running out of places on my arm to stick; it's severely painful to go through, and I am obviously bruised all over.

Does anyone know of Coumadin Clinic in CT? I can't get anyone to rent me a finger stick device (they only do that for certain conditions, if you are on coumadin for 6+ months, and test only onc... read more

4 replies...

Apples reduce the risks of taking aspirin
Posted by N (off topic)
Last Reply March 27, 2009 at 05:29
Started March 27, 2009 at 05:29
Apples reduce the risks of taking aspirin

Apples could hold the secret to protecting the stomach against damage from aspirin.

Research shows the fruit contains chemicals which seem to reduce the risk of the painkiller causing ulcers and bleeding.

The findings, published in the British Journal of Nutrition, are so far confined to experiments on rats.

Aspirin is often described as a wonder drug - but there have long been concerns about the risk of potentially fatal gastric bleeding among patients regularly taking large doses.

Scientists at the University of Naples fed apple extract to rats before they were given a dose of aspirin.

The results showed a 50 per cent drop in lesions - the early stages of a stomach ulcer - after rats were fed the extract.

0 replies...

Acai and Coumadin
Posted by Shana
Last Reply March 26, 2009 at 23:12
Started March 23, 2009 at 18:12
Anybody read or found information regarding drinking Acai juice (I don't want to take to pills) and Coumadin? I can't seem to find anything but there must be something out there.

I had a higher than normal INR 3.5 (I should be in the 2-3 range) and have started drinking Acai juice, not much just 8oz a day, and wondered if that was the cause?

Also I have a cold which for some reason always raises my INRs, so it could have been that too.

Any thoughts?

2 replies...

Coumadin for life?
Posted by Michael L
Last Reply March 26, 2009 at 13:41
Started March 25, 2009 at 23:20
I am a 28 year old male. I was diagnosed with a left leg DVT in April 2004...presumably after a 5 hour flight back from Vancouver in which I slept from before takeoff until after landing. I was diagnosed with Factor V Leiden a few months later and stayed on Coumadin for 6 months then discontinued.

Fast forward two years and I got another clot. This time a superficial clot in my ankle after blocking a shot in hockey. The doctor I was reporting to at the time put me on coumadin and said to take it for life.

I have recently visited a haematologist and he told me I don't need to be on Coumadin for life and I am very torn now. Having this condition has made me very afraid to get off the medicine. Also, I hate taking Coumadin. Hair all over my body is thin, I always feel tired, can't play contact sports, bleed like a bast*rd.

I am terrified to stop taking it and am also scared to keep taking as I don't know the long term effects. I am taking a 20 hour flight in a month ... read more

1 replies...

Warfarin Alternative
Posted by Gay - Australia
Last Reply March 26, 2009 at 12:10
Started March 21, 2009 at 02:17
I've heard that clinical trials are underway at Dandenong Hospital on an alternative to Warfarin that is not a derivative of rat poison but is clinically manufactured (like all other drugs). Apparently it does not have any of the side effects that Warfarin does. Anyone know about it or taking part in the trials?
Cheers to you all, keep well
Gay

10 replies...

Awareness
Posted by Char
Last Reply March 25, 2009 at 16:47
Started March 24, 2009 at 19:55
Very good article by a Cardiologist who had PE's

http://www.medscape.com/viewarticle/589297?src=mp&spon=24&uac=107666BT

10 replies...

Quick Question
Posted by Louise
Last Reply March 25, 2009 at 15:11
Started March 25, 2009 at 13:01
If your clot never dissolves but just sets in the vein, does this mean you need to stay on warfarin for life? If anyone knows can you let me know?

4 replies...

Worried about my longhaul flight in 2 days tim
Posted by Izz
Last Reply March 25, 2009 at 08:29
Started March 25, 2009 at 08:29
Re: flying while still having dvt
Reply #20 by Izz Posted: March 24, 2009 at 08:48

I have just been diagnosed with protein s defiency and still waiting further blood test results. I am supposed to be travelling to Capetown in 3 days time (friday). My doctor has prescribed claxene injection and I will use them for the first time on friday an hour before my flight (12 hour flight). I am so worried about any side effects and dont know whether to go or not. My husband and the kids are so looking forward to the break and I dont want to ruin it though I am so worried.Is it safe for me to travel? please help!!



0 replies...

Need to lose weight...9 monts since DVT
Posted by Joanne
Last Reply March 24, 2009 at 08:53
Started March 23, 2009 at 17:33
I just returned home from my doctor's appt. and was told that I need to lose a significant amount of weight to prevent another clot. I have been on warfarin for almost nine months, my leg is still swollen but pain free and I still need to wear my compression stockings. I was told that my veins are recanyonizing (not sure of spelling as I can not find this term on the computer) which means the veins are forming other routes to get around the clot. It seems like this clot has now attached itself to the inside of my veins and the blood is trying to find it's way through.
I have to lose over 100 pounds....I have been very inactive since my dvt because I was afraid to disrupt it in any way!

Does any of this sound familiar to others or have you had any similar experiences? Just looking to see if this sounds like the norm for some people.

2 replies...

Mammogram / Birth Control
Posted by Samantha
Last Reply March 24, 2009 at 03:54
Started March 12, 2009 at 01:58
Hey all. I have a two questions.
My doctor doesn't know why I have a blood clot, so they are doing a lot of tests on me. Tomorrow I have a mammogram and I don't know why. I don't see how that is related to a DVT in my calf. Has anyone else had to go through this?

Also, obviously when I found out about the clot I stopped taking the birth control pill (my dr. said she doesn't think the pill is the reason for the clot, seeing as I have been on it for 6 years with no problems). However, I was wondering if any of you ladies went back on the pill after your clot went away. And if that caused any problems.

Thanks so much!!

6 replies...

abdominal DVT?
Posted by riben
Last Reply March 23, 2009
Started March 23, 2009
Hi all,
Been here in November when I was first diagnosed with DVT in calf and Factor V Leiden.... warfarin since and will be for life... I am worried about the occasional chest pain that I have. A doctor told me not to ignore if it continues because clots in the big veins of the adbdomen often do not present symptoms like my leg did... how common are DVTs in the veins of the abdomen area? I feel funny pains kind of under my rib area...but have to wonder if it's my imagination... my INR has been running high lately due to some changes in other medications so they seriously decreased my dose of warfarin to bring it down...i guess Im just wondering if it's likely that it went so low after the correction that I could have a clot in my abdomen?

0 replies...

Warfarin
Posted by Gay
Last Reply March 21, 2009 at 22:08
Started March 21, 2009 at 01:52
Hi Char, thanks for your reply. I'll check out the website you recommend. One thing I have found helpful is fish oil tablets which apparently thin the blood. My Warfarin does went from 6mg to 5mg after starting 3 fish oil tablets a day (doctor gave the OK to do this). Also a fuzzy brain is experienced by many of you also on Warfarin so it just ain't me going loopy! AS the saying goes: 'We're all in this together".
Love to you all
Gay

2 replies...

inherited clotting factors
Posted by Mary
Last Reply March 21, 2009 at 21:21
Started February 6, 2009 at 05:06
My daughters have inherited clotting factors such as prothrombin mutation. Neither of them has ever had a clot. They are 27 and 21. Their Obgyn says no hormones or birth control ever. Problem is they have irregular cycles. Youngest one gets her period every other week. She's frustrated as she can't take anything to make them regular. I'm worried she'll become anemic. Anyone have this problem?
Thanks, Mary

9 replies...

Protein C Deficency in pregnancy
Posted by Rachel
Last Reply March 21, 2009 at 17:16
Started March 21, 2009 at 15:44
Hi,
I'm new to the site and came accross it trying to find infomation about protein c deficency in pregnancy. as i write my 3rd pregnancy in 6 months is failing. I am now told that the protin c dif i was diagnosed with in 2007 could be the cause, my GP knows very little of the condition and has now put me on the waiting list to see a specialist. I am desperate for advise, and would be greatful if anyone with the condition who is pregnant or has had a pregnancy could offer me adice. I am not currently on medication for the dificency.

1 replies...

swelling
Posted by debbie
Last Reply March 21, 2009 at 01:16
Started March 21, 2009 at 01:16
Hi, I have been diagnosed with "extensive DVT's" from my thigh to my ankle and was started on clexane and warfarin. Still trying to get levels stable but my question to everyone is about the swelling in the leg - what are people's experiences with the swelling decreasing and in what time frame? I know it is only about 3 weeks but my leg is still very swollen, despite wearing a compression stocking, and if I am on my feet for more than 30 minutes my leg is like a rock!

please let me know what your experiences are with the swelling.

Thanks!

0 replies...

anyone like me
Posted by carlie
Last Reply March 20, 2009 at 19:21
Started March 7, 2009 at 22:40
hi everyone ive just found this site and it seems really useful.im 27 and have had blood clots in my left leg for 3 1/2 years now and just doesnt seem to be going(due to its size).ive had all the scans and tests.ive only just found out that my blood clots are due to having the pill injection and my blood wont stabalise because i have a folic acid deficiancy.i have to be on warfarin and occasionally clexane injections for life which im a bit worried about because i just had a review and was told that for every year your on warfarin your blood levels are reduced by one per cent so i already have 3 per cent less blood than someone not on warfarin.i have had so many problems with my inr levels and have recently been told that eating to much veg and salad can reduce your levels,has anyone else heard this? is there anyone who is like me and has a folic acid deficiency which is causing their clots?

14 replies...

DVT and tingling below inside ankle and in toe
Posted by Michele
Last Reply March 20, 2009 at 01:57
Started March 4, 2008 at 22:42
Hello-
it's so good to find a forum like this where so many stories are similar to mine. I was diagnosed with a DVT in my right femoral artery (in the thigh) when I was pregnant with my daughter 5-1/2 years ago. I have a duplicate venuous system in that area of the leg, and the blood has rerouted to the duplicate vein right below it. The clotted area is still visible on an ultrasound and also on an MRI. I was kept on Coumadin, 10 mg. a day, to keep at a 1.5 - 2.0 INR for over 3 years. (yes, 10 mg. a day to keep at that INR level). I stopped taking the Coumadin in September of 2006, or almost a year and a half ago. I have had tingling below my right ankle and in 2 of my toes of that same right leg. The tingling in the toes is brought on by exercise. Has anyone ever experienced that?? Could it be a result of decreased blood flow in that leg???
thank you.

7 replies...

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