DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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My story with questions-young with PE
Posted by Amy
Last Reply February 9, 2009 at 02:38
Started January 15, 2009 at 02:17
I took Chantix to stop smoking for about 1 mon. in 12/07 to prep for baby making.Last cigaretter was 12/24/07!

Married 5/24/08 and developed PE on way home from honeymoon on a 3 hr flight. Was on birth control pills.

Stopped birth control pills, did a 6 month course of coumadin - was on lovenox until INR became therpeutic.

Last coumadin was 12/10/08. Had bllod work to test for clotting disorders. All are negative!

Must assume PE was from birth control pills, flight, and obesity. I am overweight and have been since early childhood - ugh!

I want to get pregnant and saw Ob/gyn today. I live in a rural area in NY and doctor is calling high risk ob specialist in city 2.5 hrs away to see if lovenox is needed while trying to get pregnant and/or while pregnant or if greenfield filter is necessary. Any opinions or experiences? Do I want a removable filter or permanent on?

Also, while on coumadin developed:

Rash all over body - it moves to a new area on body every few day... read more

4 replies...

diet?
Posted by sally
Last Reply February 7, 2009 at 18:13
Started January 28, 2009 at 16:56
my GP seems to think that my extensive DVT is nothing to do with me taking the BC pill as i have taken the same one for 12 years with no ill effects.she says its more likely to be cos i eat a lot of chips,cakes etc.im not overweight and am actually very fit and healthy until now.can it be caused by diet?

48 replies...

Specialist
Posted by Joy
Last Reply February 6, 2009 at 17:40
Started February 5, 2009 at 15:01
My husband had a DVT 2.5 weeks ago. In the hospital he was seen by PCP, cardiologist, hematologist, and vascular surgeon. Who should be responsible for follow-up care? No one is taking ownership!

3 replies...

Recent DVT Cardiolipin AB
Posted by Scott Long Island NY
Last Reply February 6, 2009 at 11:54
Started February 5, 2009 at 15:32
Hi,
Im a 46 yr old married male w/ 3 kids, fairly active {weights, Biking}
My DVT came out of no where, 6 mos. earlier after running I had calf pain and shortness of breath. I attributed it to exercise. A few weeks later I had a Doppler study which showed a DVT from behind the left knee to the groin , also cat scan revealed I had a PE!.I have minimal pain or swelling in the leg.The fear, grief and anxiety are overwhelming! I am afraid to do anything for fear of 2nd DVT.I am on Warafin 8mgs and my INRs are 2.3. There are a lot of restrictions for these meds, I asked my Vascular Dr. about "adult beverages" he said 4
or less Beers should be OK. I just got my blood tests back and I have a Cardiolipin anti-body causing the clots. The Hemotologist said it was not hereditary and sometimes the body stops making this protein.I will be tested in 3mos .Has anyone ever gotten this diagnosis? Has anyones ever gone away? Also, Even though my leg is not that swollen how long do people wear the... read more

6 replies...

DVT story on CBS
Posted by Alan
Last Reply February 5, 2009 at 19:08
Started February 5, 2009 at 19:08
Has anyone else seen this segment shown on CBS stations last night?

http://wcbstv.com/video/?id=123712@wcbs.dayport.com

0 replies...

How do you explain this?
Posted by N
Last Reply February 4, 2009 at 07:58
Started January 27, 2009 at 14:14
"Flying business class reduced the risk by about 30 per cent, the study found. But preventative methods such as drinking water, made no difference, while 'the use of elastic stockings was associated with an increased risk of DVT, which is difficult to explain', the report in the British Journal of Haematology said.

Having one alcoholic drink appeared to protect against clots, according to the study, which compared 80 DVT sufferers with 108 'healthy' travellers."

Why choosing a window seat on your next flight could be fatal
http://www.dailymail.co.uk/news/article-1128602/Why-choosing-window-seat-flight-fatal.html



4 replies...

Boiling my blood cured my painful varicose vei
Posted by N
Last Reply February 3, 2009 at 19:05
Started February 3, 2009 at 13:27
'Boiling my blood cured my painful varicose veins'
By Isla Whitcroft
Last updated at 7:23 PM on 02nd February 2009

Millions of Britons suffer from varicose veins. Conventional laser treatment can be painful and cause major bruising, but Mark Lewis, 31, a writer from London, was one of the first to have a new improved procedure. He tells ISLA WHITCROFT his story and his surgeon explains what was involved.

THE PATIENT

Five years ago when I was teaching English abroad, I was on my feet for several hours a day.

One day, as I was getting dressed, I spotted a prominent vein about two inches long down the front of my thigh. I was pretty certain it hadn't been there before.

Over the next few months the vein increased in length. It also began to throb when I was standing up or exerting myself, such as when I was out running. As soon as I sat down and put my feet up, the pain would stop.
Relief: Mark Lewis tried the 'wonderful' new technique for curing varicose veins

Rel... read more

1 replies...

bleeding gums?
Posted by Andrea
Last Reply February 3, 2009 at 04:26
Started January 21, 2009 at 19:30
Has anyone else had a problem with having blood in their mouth? This mostly happens when i wake in the morning also when i clean my teeth, thats not too worrying but i also had it when i was just sat watching telly. Its not much but enough for me to ask all of you that take or have taken warfarin. My inr is therapeutic. I am very anxious so i could be grinding my teeth with out knowing it. Thanks all.

9 replies...

Docs & Complications..
Posted by Emma
Last Reply January 31, 2009 at 11:22
Started January 23, 2009 at 09:14
Hi all... I've been reading this forum for a while although haven't really posted before. I'm 27 and was diagnosed with a dvt in my left arm back in October (so over 13wks ago). Apparently it's only a small one and I'm halfway through my 6 month course of Warfarin. The doctors I've seen were a bit baffled as to what might have caused it although the general consensus has been that I'm just extremely unlucky and it's probably down to something as innocuous as sleeping in a funny position or the fact that I was scuba diving the weekend before diagnosis and either my suit or equipment could have been "cutting in". Anyway... I was completely freaked out at first - I have always been a serious hypochondriac so being in this situation lead to a number of panic/anxiety attacks and I was in a constant state of dread for the first few weeks. This wasn't improved by the fact that I was also booked in for a breast scan so I had to wait a few weeks to find out if it wasn't something more s... read more

4 replies...

is it normal?
Posted by suzanne
Last Reply January 29, 2009 at 18:02
Started December 30, 2008 at 15:06
lastnight when i took my stocking off,my foot on dvt leg went a red colour and felt hot,i didnt even have to touch it.was ok this morning.has anyone experienced same thing?

10 replies...

Living with a plugged arm.
Posted by Glenn Gray
Last Reply January 29, 2009 at 12:29
Started January 26, 2009 at 13:05
In Oct.2007 I was diagnosed with a subclavian vein thrombosis in my right arm.I presented to my family doc, and he mis-diagnosed me as having a blood infection.A month later, a vascular surgeon finally sees the problem, and after a week of tkp drip to the affected area, she could make no progress, and sheduled me for a by-pass surgery in May 2007.Once inside, she determined that the vein was too far gone,an not repairable.It is plugged from my neck area down to at least my right elbow, perhaps down to my hand.During follow-up, she tells me to get used to the pain, and discomfort, and hope for the collateral flow to return some quality of life to me.I am on Coumadin 6.5mg a day. Any physical activity, however light causes my blood pressure in the affected arm to rise,making life difficult at best.
My question is: What are the long term effects of living with a plugged arm?Are there any other options?Surgery?Should I find another Vascular surgeon?Any advice from long term sufferers w... read more

3 replies...

spotty skin
Posted by suzanne
Last Reply January 28, 2009 at 21:00
Started January 24, 2009 at 19:58
has anyone noticed they have got spotty skin while on warfarin?my skin on my face used to be clear but now keep getting spots,but not sure if its the warfarin or the fact i had to come off the pill.

3 replies...

Clot from broken pelvis
Posted by Ashley
Last Reply January 28, 2009 at 16:34
Started January 6, 2009 at 05:18
Hi all,

I m very scared about getting another blood clot. Two years ago i got a clot in my leg
from fracturing my pelvis in 5 places from a car accident. the clot then went to my
lungs which was very scary. I am writing this to see what your doctors say to you
about getting clots again? My doctors tell me i shouldnt get another one....i dont have
any bleeding disorders and i am up walking around a lot....i am just scared because
my leg hurts a lot....and i had a ddimer done today which was negative.....what do you
guys think???
Thanks

6 replies...

Factor VIII
Posted by Kathleen
Last Reply January 28, 2009 at 16:23
Started October 26, 2007 at 07:17
Has anyone heard of Factor VIII? I have looked it up in several places and still don't know what a high number means. I guess it has to do with clotting, but don't even know if that's correct.
I have a high reading and the Dr says I'll be on warfarin for the rest of my life. Ugh


3 replies...

How soon after DVT to wear compression hosiery
Posted by Caroline;UK
Last Reply January 27, 2009 at 17:44
Started January 27, 2009 at 17:16
My husband had bilateral above knee DVTs diagnosed 3 weeks ago a couple of weeks after having a brain tumour removed. On the Left side his leg is clotted all the way from the external iliac down, and that leg is pretty hard and swollen although improving slightly after clexane and now warfarin.We have been told that he needs to wear grade 3 below knee compression stockings for 2 years, but are getting conflicting advise whether to start asap or whether to wait until the swelling goes down (which looks like it might be quite some time!). We are pretty confused...he wants to walk as much as the pain will allow, but is worried that doing so without support stockings might actually make things worse rather than better.I would be grateful to hear anyone elses experience of when to start to wear the stockings. thanks

1 replies...

Symptoms of DVT
Posted by Rebecca
Last Reply January 27, 2009 at 10:25
Started November 5, 2007 at 04:41
Can the symptoms of DVT come and go or are they ongoing at all times? Please share your story with me. Thanks a lot

5 replies...

Swelling and leg pain
Posted by Teresa
Last Reply January 26, 2009 at 13:20
Started January 26, 2009 at 13:20
I had a DVT in my left leg about 9 months ago. Also bilateral PEs. My Pulmonary doctor placed a Tulip IVC Filter to save my life. I am on Coumadin for life. Now I am having pain and swelling in my right leg. In the past when my INR is low, this leg has had the same symptoms but they have never been so intense. My INR was high then low last week. Just wondering if anyone has any experiences like this.

0 replies...

forever anxious
Posted by andrea
Last Reply January 25, 2009 at 21:16
Started January 22, 2009 at 21:44
Hi everyone. Anyone help? Im just getting really stressed about coming off the warfarin in 5 weeks time. These last 5 months have been the worst time ever. When do you start feeling better and stop worrying about everything. Just dont seem to be able to get back to normal. Never used to be this grumpy in Normal Life! (NOT QUITE ANYWAY) I apologise to all you "newbies" just having a BAD day, so glad for this Forum, theres always someone there to reassure when you need it.

7 replies...

Discovery could block blood clots
Posted by N
Last Reply January 25, 2009 at 20:15
Started January 25, 2009 at 12:15
BBC Health
Sunday, 25 January 2009

Scientists have found a potential way to prevent blood clots which can cause heart attacks.

They believe the discovery could aid the development of better heart attack prevention and treatment.

The key is to remove a particular protein - PKC alpha - from specialist blood cells called platelets which play a key role in the formation of clots.

The University of Bristol study, carried out in mice, appears in the Journal of Clinical Investigation.

Blood clots perform an essential function, limiting blood loss from a wound.

However, when they form in diseased arteries feeding the heart they can be life-threatening, causing a heart attack in 146,000 people in the UK every year.

Current anti-clotting medicines, such as aspirin, reduce the risk of heart attack - but in some people can also cause excessive and dangerous bleeding.

Platelets are small cells in the blood that sense when a blood vessel has been damaged.

They rapidly... read more

1 replies...

bruising
Posted by gaynor
Last Reply January 23, 2009 at 23:16
Started January 23, 2009 at 18:55
Coming to the end of 6 month warfarin treatment(1 month to go) for a dvt behind my knee and today a gate jumped out in front of me!! and now i have a nice pinky purple bruise on my thigh (not painful but sore to touch) Just wondered if i should be concerned about it. My inr is between 2 and 3. Any advice appreciated.

3 replies...

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