DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Re posting
Posted by Chris Jones
Last Reply January 22, 2009 at 23:38
Started January 21, 2009 at 11:29

Morning forum.

I know i said i wouldnt be posting on here again but by reading some of the recent posts on i feel its now time to start once again.

I have read all the posts on here through the last 3 weeks and i am still at an end as to why some posts are been validated.

I did read one from an alleged young lady who was doing some kind of research into the DVT?PE for a school. The post then turned into the attack of the Vegan versus the DVT/PE. Then transpired onto a mental health issue as she felt it was.

Candace. Read very carefully.

As regards to your research go and ask the 22,000 peoples bereaved in the UK last year by DVT?PE and find out from them how they are now feeling with the loss, ask also how they are coping with a lost mother or father to children, i think they will be very pro active in thier respective statemtents for your research.

Go and also ask the 2 million families in the USA effected by the DVT/PE and i am sure they will also be forth com... read more

11 replies...

Posted by Jasmin
Last Reply January 22, 2009 at 12:53
Started January 20, 2009 at 06:44
9 years post a major DVT, my calf still swells quite considerably when it is not elevated. And in the dramatic heat, my ankle swells as well.

When I had the clot, my Doc told me that the vein was permanently damaged and would never restore therefore my leg will always swell up throughout my life.

Is there any type of surgery / other treatment that could eliminate the swelling in the leg permanently? I would love to get my leg back to how it was.


5 replies...

Pain in my Belly Button? serious or not?
Posted by Rachael Hall
Last Reply January 22, 2009 at 10:47
Started January 22, 2009 at 01:25
Hi, my name is Rachael for those of you who dont no me.
I was dignosed with a DVT from my belly button to behinde my left
knee in late september, I am also on wafiran and last INR was 2.4.
And today for some reason I seem to be haveing pain in my belly button
and just below.
I was wondering is this anything serious that should be checked right
away or will it pass as just abit of pain from the DVT? I would
reall appreciate some awnsers on this one it has got me pretty
Rachael C Hall.

1 replies...

Questionnaire Re: Compression Stockings
Posted by SophieB
Last Reply January 20, 2009 at 20:35
Started January 20, 2009 at 18:48
In another DVT group we have been discussing compression stockings and their ugliness, because I've been looking for ideas for my enterprise project. I've now made some market research surveys to look further into this.

Could anybody who wears compression stockings please fill these in?

Part 1: http://www.surveymonkey.com/s.aspx?sm=IjaXRp4y5w3EQgsoEPB_2bag_3d_3d

Part 2: http://www.surveymonkey.com/s.aspx?sm=Q4DacsLlKUmbuLCT8ifE9A_3d_3d

(They are both aimed at people who wear compression stockings, and the second is mainly aimed at women)

3 replies...

12yr old son w/ reocurring bilateral dtv's
Posted by Terri
Last Reply January 19, 2009 at 09:41
Started January 18, 2009 at 19:41
I can't believe it took me so long to find this site. I'm looking for someone else out there who has a child who has had multiple DVT's due to Factor V Leiden and elevated levels of Factor VIII. When my son was 11 in Sept '07 during football season he was diagnosed w/ his first DVT in his Rt leg/groin area. After being in the PICU for 5 days and having 3 Thrombolysis procedures they removed most of the clot and was sent home. He was on Lovenox, then coumadin for a total of 5 months. His Hematologist then released him with no restrictions. He played baseball as well as non-checking ice hockey in the spring. Remained fine until 2 weeks into football season(Aug '08). He then developed another DVT only this time in his left leg/groin. Went through the same ordeal as above. His Hematologist just took him off Coumadin after 5 months, but is still restricting activites for the time being. There just seemed to be so many questions that our Hematologist could not answer because t... read more

3 replies...

One week in
Posted by Radarschik
Last Reply January 18, 2009 at 09:37
Started January 4, 2009 at 08:31
I just turned 31. I had been having knee pain for years. I had a partial meniscus removal 12/18 to my left knee. Doc says everything is good on 22. Start PT on 23 by 25 I can stand. I had my husband take me to the ER. I thought to my self I bet its a DVT not letting my hubby know the extent of how much pain i really had. The ER doc said most likely muscle strain, I requested they preform an ultrasound. Ultrasound of my left leg showed venous occlusion from my mid-thigh to calf. Lovenox 90 mg am/pm X one week and Coumadin 10 mg po x 1 day than to 7.5 mg qd. I spent one night in "lock down" unable to even pull myself up in bed with out my nurses ok. And was sent home the next day on home health. Daily blood draws and the four walls of my bed room....OMG I am going crazy. I have no date of when bed rest will end. BTW no swelling since day 3 and no pain as of Thursday, except my now my post- op knee is getting stiff. As of today I am at therapeutic level and can get finger sticks in ste... read more

4 replies...

Skin care
Posted by mick c
Last Reply January 16, 2009 at 18:55
Started January 14, 2009 at 21:29
Its now been 21 months since the dvt in my leg was diagnosed and 15 months since Warfarin was stopped.
My concern now is how to deal with the discoloured and dry skin arround my ankle and foot.
I use various products but my skin seems still to be coming more dry and leathery.
Advice please

7 replies...

Chris Jones
Posted by ZACZAR
Last Reply January 16, 2009 at 13:43
Started January 15, 2009 at 10:20

Come back to the forum and post. Ignore what has happened with Vegan.
I read your posts when I was diagnosed and you helped me.

1 replies...

DVT, blood clot on initial mri ignored by doct
Posted by Mike S.
Last Reply January 14, 2009 at 23:28
Started January 14, 2009 at 21:07
I recently tore my acl and mcl. I day later I had an MRI that verfied that and also showed blood clot in that leg. I told the surgeons PA that the MRI report stated that and even gave him the number to call and get the report by phone himself. He looked at MRI and blew it off. Well now I have a very painful DVT. I was doing my PT religously and was in no way just lying around. I feel the DVT started small and built over time and that if they would have treated or at least done a dopplar after the MRI to verify then I would not be in this pain. Anybody else have any insights or thoughts

1 replies...

blood to thin :S ?
Posted by Rachael Hall!
Last Reply January 14, 2009 at 17:10
Started January 6, 2009 at 01:32
well, i started smokeing for some stupid reason i am on wafrian and
everything and because of the smokething they had to raise my
wafrian levels so that it would still be thin, anyways im scared
that now if i just completly stop smokeing my blood will be go to
thin to fast because theres nothing thickening it anymore??? next
blood test is on thursday and i smoked yesertay and today will
that still affect it if i stop by tomorrow? please help?

4 replies...

see you all.take care.
Posted by chris jones
Last Reply January 14, 2009 at 04:02
Started January 5, 2009 at 17:49

Owing to the fact this site has been ruined by someone. I will now only read the posts and not offer any advice.

I wish you all well in the future and i sincerely hope that you all can recover from the dreadful DVT/PE scenarios.

I have enough to do in my life other than argue with an arrogant fuck witted asshole who hasnt even had anything wrong with him and can come here and castigate people for not been vegans. He hasnt even got the bottle to say anything other than the diet. My comtempt for him will only grow if i stay on here.

Take care you lot and be safe.

Ellie,,Char,,,take no shit of no one. ellie you have my email.


31 replies...

ok,where do i sign and how much?
Posted by hectors house
Last Reply January 13, 2009 at 20:50
Started January 13, 2009 at 20:06

I want to join the vegan club/sect.

Willing to do it as i will be miracally cured and willing to sell my house and family on ebay to finance this.

hmm hmm hmm hmm beans hmm hmm hmm and other trance like sounds,,,,take me to the leader, take me to the leader,

yours in total brain washed submission


1 replies...

Posted by mauren O;Donovan
Last Reply January 13, 2009 at 18:06
Started January 12, 2009 at 16:45
I had blood clot which resulted in pulmonary embolism which went to my lungs and then through my heart and finally the surgeon took out the blood clot in my upper arm joint and said I was very lucky to be alive . But I would also like to knowwhat medication that you can take that would not interact with the wafrin is there a list of this.

2 replies...

Posted by ZACZAR
Last Reply January 12, 2009
Started January 10, 2009 at 11:00
Tom R Vegan

I never did hear in any post if you were ever afflicted with a dvt yourself. Until such a time happens, please come to terms that this is a forum with people afflicted with something who need support. There is no need to hear your opinions on diet and what might be or what might not be.

I was afflicted with a dvt one year ago and found this forum. I was finally able to communicate with people who had the same affliction as myself. We are dealing with a disease that most people do not even know about. I am quite a liberal person myself, and I have met many people who were vegans or vegetarians. I never once did anything to discredit their way of life but actually did listen to what they had to say. I didn't agree with all of it but they had some VERY valid points. I would politely suggest that you maybe back off just a wee bit because you are disrupting what the forum is about. Please show some humility and compassion and stop preaching and causing mayhem in... read more

9 replies...

Posted by Darek
Last Reply January 11, 2009 at 17:42
Started January 11, 2009 at 17:27
Hello Everybody,
my Wife - Roma have had clots since april 2008. She had a strong legs ache/pain (especially left leg), so our doc decided to make a doppler test. Diagnosis: clots in both legs in main veins near shank bone. After 4 months of heparin shots/injections, doppler test was negative (no clots). Pain dissapeared.
After next 4 months of heparin shots Roma changed injections to pills and everything was quite all right. Our next move: another consultation in DVT clinic. Doc said that heparin isnt necessery no longer so She stopped taking it.
Every phisical of blood etc. was ok so we still dont know what coused the clots. Is it thrombosis or something else? Theres no doctor who can tell us whats the reason of clots. Apart from it tomography shows 10mm node on thyroid (is it connected?)
Now the pain is strong again (especially left leg).

Were looking for clinic/hospital which specialize in DVTs treatment, preferably in Europe. Can you recomend some?

Roma & Darek ... read more

1 replies...

TV Doctors
Posted by Char
Last Reply January 10, 2009 at 06:44
Started January 9, 2009 at 23:41
This was one of the highlights today on the TV Doctor show. It was worth watching and now millions of people are aware.

Ticking Time Bomb

Every year, nearly 100,000 people die from pulmonary embolisms -- blood clots in the lungs. Steve, 54, came close to being one of those fatalities.
Though he has always been active, playing golf and skiing regularly, one day Steve had trouble breathing while simply walking up the stairs. I thought I was having an asthma attack, he says in a video. I could not catch my breath. I felt like somebody was holding a towel over my face.
Even the most basic tasks, such as doing the laundry or dishes and cleaning the house, became difficult for Steve. Doctors determined he had a blood clot which had begun developing scar tissue. After undergoing several tests and procedures and taking medicine, Steve was told he would need surgery.
The mortality risk is tremendously high, says Dr. William Auger, a pulmonologist at University of California... read more

1 replies...

A Positive Post, Invite Yours as Well
Posted by Sarah
Last Reply January 8, 2009 at 15:32
Started January 7, 2009 at 18:10
Hi All,
I used to post quite regularly but have fallen off a bit. When I first got my dvt, back in Feb 08, this site was a god-send to find. I had so many questions and was completely overwhelmed with the news that I had a groin to calf blood clot. Finding others with similar experiences helped my anxietly immensely. Let's not lose sight of what this forum is for and the purpose it serves to others who have found themselves searching for information here. I invite you all to simply ignore posts which you disagree with, or find offensive, since there is no censoring here of ideas. I believe the "back-and-forth" pushing of buttons is the goal for some. It can not occur if it is only one-sided. This site is a valuable resource for the newly-diagnosed and I hope that the many dedicated to the cause will not turn their backs due to the postings of a few. Lets get back to what we came here for... sharing information, reassurances, and experiences.

On another note, because of the rece... read more

3 replies...

Posted by ellieuk
Last Reply January 7, 2009 at 17:55
Started December 24, 2008 at 13:34
Thanks Tom for your postings - your apology accepted. Whether or not you bring MY intelligence into the equation I truly DONT CARE!

There you go - you very own thread. Merry Xmas to you and yours. Enjoy your sprouts!

56 replies...

Do we want maintenance or do we want health?
Posted by Frank
Last Reply January 7, 2009 at 17:27
Started January 7, 2009 at 04:44
- Part 1 -

I have been reading this forum for some time and cannot fathom how
some people will become defensive in the face of potential good news
in how they can eliminate their health problems, drug dependencies,
and interventional ill-health management.

The attitude displayed on this forum against those who may have
answers to help people in need is astounding. Those I know who have
had DVTs and other vascular health problems would do almost anything
to take care of the problem for good, if they thought it was possible.

Instead, what I see is that people offering suggestions that a change
in diet and other lifestyle issues may not only help their problems,
but eliminate them, are routinely mocked, verbally attacked, and even

Grow up, people. These health conditions are serious, and if they
are lifestyle related, don't you think you had better accept that?
So that your next step can be to DO SOMETHING about it. By removing
the cause... read more

14 replies...

clexaine injections
Posted by suzanne
Last Reply January 6, 2009 at 07:13
Started January 1, 2009 at 17:59
has anyone had to give themselves clexaine injections at home?i had two done at the clinic but did it at home today and i bled a bit afterwards but it soon stopped,3 hours later noticed it was bleeding a bit again,but again soon stopped,im wondering if i had knocked the area its only bled a bit each time.last two i had at clinic i didnt bleed at all.anyone else experienced it

5 replies...

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