DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Stinging sensation
Posted by Gwyneth
Last Reply December 9, 2008 at 18:02
Started October 7, 2008 at 22:17
I broke my foot and now since having the cast off I have DVT in my left calf. My ankle is swollen and I am not sure if this is due to the break or the DVT.
The problem I have is that my leg between my knee and hip is always freezing down the side. I have to have heat from a water bottle or heater to ease it. The sensation is like it is stinging through being cold. Someone said this was a side effect from Warfarin. Does anyone know

5 replies...

How to deal?
Posted by Rachael Hall
Last Reply December 9, 2008 at 14:33
Started December 8, 2008 at 07:50
when everything in your life is going wrong?
1, alcoholic father.
2, cheating mother.
3, DVT

5 replies...

for Rob, Our Moderator
Posted by Diane
Last Reply December 9, 2008 at 02:34
Started December 9, 2008 at 02:34
Hi Rob, could you please delete this entire thread that I started (WHERE ARE WE FROM (NEW THREAD NOVEMBER 1-2008). I've copied the data so it won't be lost. The spammers have corrupted it.

0 replies...

Recovery or Lifelong Condition?
Posted by me
Last Reply December 9, 2008 at 01:20
Started December 6, 2008 at 13:37
I am 2 months post DVT onset. My DVT is about 1.5 feet long in my right leg. It runs from the thigh, around the back of knee and into calf. The specialist said there is no way to tell if it will dissolve or if it will just turn to scar tissue. He said due to it's size he thinks it will turn to scar tissue but only time will tell.

This is my question: will I recover (no pain, back to normal life) from this (even if it takes time) or is this a lifelong condition I have to live with?I have pain (as many of us do) and I don't know if it will ever leave. I am scared. This is a serious question and not a whinning "will i ever get better" thing. I don't know if this is something we recover from.

2nd question: I will probably have to wear support stockings a long time. in the summer i like to wear capris and low heels. does nayone know of a compression "stocking" that just goes on your leg and leave your ankle and foot exposed?

4 replies...

Flu shots
Posted by Char
Last Reply December 8, 2008 at 10:58
Started November 28, 2008 at 12:20
After reading this article I am not sure about the value of Flu Shots, I have never had a Flu shot and never had the Flu. My Doctors are pushing Flu shots.

Value of Flu Vaccine Questioned
Newspaper Columns, Editorial September 29, 2008

Here we go again. As flu season approaches, everyone will be urged to get a shot. Vaccinations against influenza are supposed to keep us from getting sick and protect us from potentially lethal complications.
That’s the promise. What’s the reality?

Last year’s flu vaccine was a big bust.

Every year the flu shot is supposed to protect against three different strains of influenza virus. Public health officials have to guess eight months in advance which flu viruses are likely to be causing trouble.

Last year they guessed wrong. Two out of three strains did not match the bugs that made people sick. Perhaps that is why a Harris Poll found that people who got the shot last year were just as likely to have suffered flu as those who skipp... read more

11 replies...

Posted by el
Last Reply December 7, 2008 at 18:15
Started December 7, 2008 at 18:15
Am going to see Haematologist shortly and trying to learn as much as possible! Was advised to do this by hospital Dr. Warfarin nurse/Gp agree appropriate next course of action! Of course am doing research.

I was diagnosed in 1991 with ITP (Idiopathic thombocytopenic purpura) and had splenectomay in 1992 to rectify this. Was a "walking bruise" at the time and fears were my blood was so thin of internal bleeding. Now over past 18 months had DVTs/PEs. Also diabetic.

In retrospect since splenectomy have had symptoms which have indicated clots over the years - but ignored them as usual aches and pains. This was til DVTs 18 months ago then (long history!) multiple PEs diagnosed 4 weeks ago.

I think Leiden V can go one of two ways - clotting too much or too little! Is this correct? Been reading as much as possible but can't understand a lot of it!

Have posted before on this subject but can anyone help explain if there is a relationship between symptoms? Does having n... read more

0 replies...

christmas decorations and warfarin?
Posted by chris jones
Last Reply December 6, 2008 at 22:17
Started December 4, 2008 at 18:34

Dear forum.

I was wondering what the forums thoughts were with regards to the erecting and decorating the Christmas tree and relevant areas of the house with the tinsel etc whilst on warfarin?

i will be also looking for advice on the height of christmas trees and what people think is the correct hieght of a tree for the fairy to go on top and how i should do this when on warfarin and post DVT.

Should i erect scaffold or use step ladders to gain the access to the fairy placing?

Also been carefull with the replacement of the wee fiddly bulbs we have on the lights as i dont want to cut myself when i am changing bulbs, dont you just hate the fact that they always worked well the year before and they never seem to when it comes around again. I have learnt to actually try and turn them on to see if they are all working as i find it madeening that i have to strip the lights off the tree and start again.!

I look forward to your guidance in this matter as its only 21 days t... read more

4 replies...

Posted by me
Last Reply December 6, 2008 at 22:15
Started December 4, 2008 at 01:06
I am 2 MONTHS onto my DVT. I still have it and it is about 1.5-2 feet in length. I am on coumadin. I saw a vein specialist. He told me to start getting on the treadmill to walk. I was shocked b/c my leg hurts just from everyday walking (I walk some, elevate some, etc). He told me to wear a 20-30 stocking and start lightly on the treadmill and slowly increase. He thinks I will have the DVT for 4 more months OR due it's size it will just turn into scar tissue (never dissolve).He said that to get the blood circulating in my leg, the calf muscle has to work (makes sense but I am scared and in pain).


8 replies...

Possible for New Clots to Form?
Posted by CB
Last Reply December 6, 2008 at 15:44
Started December 6, 2008
Hi All and thanks for reading.
First a quick background: July 18th I was diagnosed with a pulmonary embolism. I had been in and out of the doctor with a pain in my leg and sometimes a lump on the side of my leg. Since I'm an avid marathoner, it was always assumed that this was some sort of running injury. I've been on Warfarin since and resumed running with my drs blessing. (Very slow and very light mileage.)

Out of nowhere, I've got a pain in my groin that hurts only when I walk. Actually on each step I take. My calf is a little stiff, and my ankle looks swollen.

Is it possible to form a clot while on Warfarin?

8 replies...

Sauna and DVT
Posted by Linda
Last Reply December 6, 2008 at 11:11
Started December 4, 2008 at 20:15
Does anybody know if you can use the sauna after diagnozed with DVT. I have mine for almost 4 month. Read in the internet that the sauna makes your vessels bigger.So i just want to ask for the advice before going there.

2 replies...

legs size after DVT
Posted by Sarah
Last Reply December 6, 2008 at 10:11
Started December 4, 2008 at 05:01
Hi everyone! I had diagnosed with DVT 4 months ago and still have a little swollen leg. Does anybody know how long usually it takes for the leg to become the same size like it was before DVT?

5 replies...

Posted by ellieuk
Last Reply December 5, 2008 at 20:48
Started December 5, 2008 at 19:21
Someone posted this subject as an aside (see menstruation)! Yeah - loss of balance happens regularly to me - wish it could be blamed on booze but sadly not! :-)
What happens with me - I just feel a bit fuzzy and sort of miss my step. Who knows if due effects to Warfarin? Am still getting my head round all this! Sometimes i can be sitting and it feels like im moving (or things about me are). Realy weird sensation!

1 replies...

Chest pain
Posted by Karen
Last Reply December 5, 2008 at 18:16
Started March 9, 2008 at 10:27
Just wanted to ask those of you out there who have had PEs and had chest pain on breathing how long this takes to subside. I had bilateral PEs the beginning of Feb and for a few weeks the chest pain seemed to ease off but has increased last few days. I have been doing a bit more walking this week so perhaps it is just a reflection of my increased activity. That really leads me into another questions especially for those people who generally take part in sports activities. How do you know whether the breathlessness is down to the PEs or whether it is because you're really unfit due to weeks of relative low activity? Has anyone else been thinking along the same lines?

4 replies...

Posted by ellieuk
Last Reply December 5, 2008 at 18:04
Started December 5, 2008 at 17:23
Who's got back to work/got back to their personal idea of "normal". Some of this site gets depressing - we've all had a hard time.
It's really informative (AND THANK YOU ALL - I NEEDED THAT). I just feel it would help to have some more positive input. Anyone?

2 replies...

Posted by suzanne
Last Reply December 5, 2008 at 15:47
Started December 5, 2008 at 15:47
hiya,i was fitted for my stocking this morning,but got it home and i cant get it over my foot as it is still swollen,rang clinic and they told me they would measure me again when next go for blood test next week.are these stockings really tight when you are wearing them?really not looking forward to having them on.

0 replies...

Scientists link 'placebo effect' to genes
Posted by N
Last Reply December 5, 2008
Started December 5, 2008
Scientists link miraculous 'placebo effect' to a gene

It's not just the power of suggestion: 'Placebo effect' is in the genes
04 December 2008

Why some people miraculously get better when given a placebo has baffled doctors for years.

But scientists have now linked the mysterious phenomenon to a gene.

Placebos are usually sugar-coated pills that doctors give patients in clinical studies to compare the response to the actual drug and sham treatment.

Until now, most people put the surprise effect down to the power of suggestion.

But Tomas Furmark, of Uppsala University in Sweden, has now pinned the placebo effect of people with an exaggerated fear of public humiliation to the gene for tryptophan hydroxylase-2, which makes the brain chemical, serotonin.

They studied 25 people with the condition, known as social anxiety disorder.

Volunteers had to challenge their fear by giving two speeches, before and after a ‘treatment’ period of eight weeks.

Participants ... read more

0 replies...

Dad in hospital with blood clots
Posted by Worrie Daughter
Last Reply December 4, 2008 at 16:50
Started December 3, 2008 at 11:46
My Dad has now been in hospital for 3 weeks for major surgery he appeared to be doing really well and hoped to come last week. Over the weekend his leg swelled up and he was told he had a blood clot in it. Since he has had chest and stomache x rays which revealed blood clots in both lungs one in his pelvis and another in his stomache. Also he has a chest infection. Yesterday they drained his lungs via ultrasound. His mouth is really sore and lips and he is unable to eat at the moment so that is another worry.

Can anyone share any positive outcomes please? I'm worried sick.

2 replies...

Depresstion from a DVT
Posted by Rachael Hall
Last Reply December 4, 2008 at 15:30
Started November 25, 2008 at 12:05
hey, im rachael. and well i wouldent say im fully depressed but
anyways im only 16 and was told i had a DVT just over a month ago
and for some reason ever since then everythings just been falling
apart and noone seems to get it becasue they dont no what its
like the go throw it all and have all these scans and tests and its
scary and idk, just was wondering if i was the only one who felt
lost and upset because of it, and how long does it take before things
get better?

13 replies...

Facebook anyone?
Posted by Michelle
Last Reply December 4, 2008 at 12:37
Started November 28, 2008 at 13:14
Just thought I'd ask if any of you are on Facebook? I'm always looking to increase my "Friends" list - so if any of you want to look me up, I'm Michelle LaBrosse Purcell. It says I'm in Calgary - but I'm really in Ottawa. I just have so many friends in Calgary (that's the area I grew up) - that I decided that's the network I wanted to be in. I hope to see some of you!!!

3 replies...

A new device help improve circulation for RLS
Posted by N
Last Reply December 4, 2008 at 10:19
Started December 4, 2008 at 10:19
Non-drug treatment: How a tight squeeze with a new device can cure restless legs syndrome
By Roger Dobson
Last updated at 9:54 PM on 01st December 2008

A device which improves circulation by applying pressure is being tested as a treatment for restless legs.

The device, which fits over the legs and is inflated and deflated in quick succession, compresses the veins, pushing the blood back to the heart.

In a recent study, one in three patients who wore the device had complete relief of symptoms. They also slept better, were less fatigued and had an improved quality of life..


0 replies...

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