DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Long term use of clexane injection
Posted by Kellie Green
Last Reply September 10, 2017 at 09:56
Started May 18, 2008 at 18:49
Hi everyone
I have had 2 dvt's and a few years ago multiple clots in both lungs.
Warfarin was not agreeing with me and made me feel really ill - they were putting my dose higher and higher and my inr was not coming down.
I have now been on clexane for nearly 3 years with a 40mg injection daily - I just wondered if anyone else out there is on clexane injections long term as my haematologist does not know of anyone else in the same situation as me.
I am also on a high dose of calcium as one of the possible long term side effects (although they do not have enough research yet to benchmark) is osteophorosis - as im only 38 and have three kids needless to say I am quite concerned about the future - would be really grateful for anyones advice.
Incidentally, I have sporadic episodes of positive anitcardio lipins blood tests ?
Thanks - Kellie :-) x

108 replies...

Dvt overian cyst
Posted by Tora
Last Reply September 10, 2017 at 07:00
Started September 10, 2017 at 07:00
Hi, I was diagnosed with a DVT on Friday night / Saturday morning and currently
having 2 injections of tinsaparin daily.

My blood pressure was also raised at 152/78 (feeling pretty crappy, all out of sorts
cannot concentrate)

I was found too have an overian cyst 3 ish months ago and was woubdering if
there is a link? My cancer marker was raised but no one has diagnosed this as of
yet .

Thanks Victoria



0 replies...

Portal Vein Thrombosis
Posted by Dana
Last Reply September 10, 2017 at 06:52
Started September 25, 2006 at 18:10
In July of this year I was diagnosed with a blood clot blocking my portal vein (to the liver) My symptoms were pain and extreme nausea. The ER docs misdiagnosed this as gallstones, but 2 days later my GP ordered a CT with contrast, which found the clot. I still have pain, although not as severe or as often. I'll be on blood thinners for 6 months I'm told. My only risk factor was the birth control pill. Since this is so rare, I feel as though none of the doctors really know what to expect so far as a prognosis or complications. A repeat scan 5 weeks later showed no change in the clot. Does anyone here have this condition? I would be interested in hearing your experience.

110 replies...

PERIODS ON BLOOD THINNERS
Posted by DANIELLE
Last Reply September 9, 2017 at 17:35
Started February 23, 2011 at 18:05
Can anyone tell me if your periods have been so haevy while on blood thinners. I am going on day 4 and going threw super tampons every 2 hours plus noticing large clots. I know they told me my period would be heaver but my i cant take it!!!!

389 replies...

Recovery after a PE
Posted by Liz
Last Reply September 9, 2017 at 13:13
Started April 4, 2008 at 04:54
I had a DVT that resulted in a Pulmonary Embolism six months ago at the age of 32. Prior to this clot I had no health issues, so they tested me and found that I'm hetero for Factor V Leiden.

I was in the hospital for 9 days (an extra 4-5 days were because I had a reaction to the Heparin... turns out I'm allergic). I'm on lifetime coumadin therapy. My doctor's think I'm recovering well, but I'm still very tired most of the time. I'm just wondering how long it usually takes to recover from a PE. I know I'm lucky just to have survived, and am looking for other PE survivor's to hear about their recoveries.

I've read that being tired can be a side effect of coumadin, but I'm blaming my lack of energy on the stress my body went through and the fact that I'm still recovering. I can't blame the coumadin... because if it is the coumadin, I can't imagine feeling this tired for the rest of my life (since I'm allergic to Heparin & Lovenox, Coumadin is my only option). Any advice?... read more

16 replies...

Tattooing
Posted by Daniel Webb
Last Reply September 9, 2017 at 11:49
Started June 20, 2008
Hi my name is Daniel im 21 and was diagnosed with a dvt at christmas, it was in my femoral artery in my left leg and it sucks ( a lot)i spent christmas in my bed and it has been the worst year of my life.But life goes on, im not the type to dwell on the past but im also interested in tattoos and tattooing (myself) i was just wondering if anyone on here has had any experience being tattooed on anticoagulants and if there is any advice anyone can give me, Thanx

9 replies...

Scar tissue and Serrapeptase
Posted by Laszlo
Last Reply September 9, 2017 at 11:41
Started September 9, 2017 at 11:41
Hi, I'm on lifetime Warfarin since 2016 May. I'm only 34 years old, I
have a small scar tissue in my lung (after a blood clot) . I read that
Serrapeptase can dissolve scar tissues, and I could take it with
Warfarin, but can it dissolve scar tissue from blood vessels? I want to
take Serrapeptase but I don't know how to start, which dosage, etc and
maybe later if the scar tissue gone, get off from Warfarin. If anyone
can help it would be brilliant. Thank you for your help!

0 replies...

Nattokinase
Posted by Lisa
Last Reply September 9, 2017 at 11:20
Started August 23, 2007 at 20:38
Is anyone taking Nattokinase or know of any side effects of taking it. I just want to hear straight from a person whose taking Nattokinase what it's like. I found this site
http://www.thehealthierlife.co.uk/article/3574/deepveinthrombosis.html

about it and I can't seem to find anything bad about it. I just want to know anyone whose currently taking it, what you think about it and what kind of side effects you have had from it?

167 replies...

Gout in knee and now painful swelling calf.
Posted by Paula
Last Reply September 8, 2017 at 17:11
Started July 31, 2009 at 20:09
Can an attack of gout cause a DVT or phlebitis. Had gout for a few days and now my calf of the affected leg is swollen and painful. Has anyone ever heard of this.

15 replies...

Weird head numbness
Posted by Bk
Last Reply September 8, 2017 at 12:34
Started January 11, 2009 at 06:57
About 5 weeks into my DVT treatment (left calf DVT/mid thigh and 2 PE's). 40 and active male. I am on warfarin of dosage rotation of 5mg and 7.5mg every other day. My INR is roughly 2.4-2.5 and has been roughly stable the last couple of weeks which put me on a weekly check.
I just came back from my first airplane trip. I was nervous going out of course...but had my stockings on and did my stretches...all was good. About 2-3 days into my business trip, I was getting a weird numbness in my head. More surface level, like you get when you hand falls asleep. No pins and needles, but definitely felt like the skin on my head (under my hair - still have that) was a bit numb. Not 100%.

I don't know if this is a side affect of coumadin or maybe my INR spiked or something as my diet was irratic. I was on business, out late, and had a glass or two of wine (no more than that knowing my risks on coumadin).

I am back home now and it doesn't seem to be there, but I will be watching it. Be... read more

9 replies...

DVT and hot tubs
Posted by Michelle
Last Reply September 8, 2017 at 10:42
Started August 5, 2008 at 17:55
I just wanted to check with everyone to see if anyone else got the same advice I did. I was told never to use a hot tub - as the heat will cause the veins to dialate - which could widen the vein enough to allow the clot to move / dislodge. The theory makes sense. Has everyone else been told the same thing?
Does this also apply to any heat source - saunas, hot bath tub, hot summer days, etc??? Should I be packing my bags and moving to the Yukon? I'm already in Canada, but we do have some pretty steamy days here in the summer.

15 replies...

rodnesrnold@outlook.com
Posted by rodnes rnold
Last Reply September 8, 2017 at 03:09
Started September 8, 2017 at 03:09
A fool and her Max Test Ultra are soon parted. Sometimes we forget that which is actually critical when therein lies the real main point of this installment. This isn't the public opinion. What I am going to do in this article is cover those pros and cons of Max Test Ultra. Look, I'm not that elderly. We're about to get a glimpse of a few of the most popular Max Test Ultra types. I might not use Max Test Ultra that often. That's been a slow adjustment. This keeps me going, "Vini, Vidi, Visa. I came, I saw, I shopped." That is questionable. I'm as pure as the driven snow. I went to grad school with kids who had Max Test Ultra. This is their position, naturally.

0 replies...

Warfarin and Niacin
Posted by Derek Miller
Last Reply September 8, 2017 at 01:48
Started March 1, 2010 at 18:05
Hello Everyone,
I have been on Warfarin for over a year and a half now and what a roller coast ride it has been. Just recently my Doctor prescribed Niacin to help lower my cholesterol (which is very high). I was wondering if anyone out there has been on or is taking both the warfarin and the niacin. And if so did you experince any complications or any type of interactions that you could share.
Thank you very much

4 replies...

dvt what next
Posted by Starr88
Last Reply September 7, 2017 at 18:48
Started September 7, 2017 at 18:48
I was just told I have a dvt in my left leg about a week ago. My insurance wouldn't allow Xeralto so they put me on Warfarin. I no longer have insurance (trying to get it back) I have a lot of swelling in my left thigh and side of my knee. That whole area is red and hard and very painful to even touch it. I really do not want to go back to the ER but I might have to soon. my Dr never gave me any at home after care and im wondering if the pain, hardness and swelling is normal after a dvt? Ive been trying to ice it when ever I can to get the swelling down and I elevate it when ever possible.

0 replies...

Greater Clotting Potential on Low-Carb Diet
Posted by Tom
Last Reply September 7, 2017 at 07:04
Started January 12, 2009 at 02:39
Low-fat diets are more effective in preserving and promoting a healthy cardiovascular system than low-carbohydrate, Atkins'-like diets, according to a new study by researchers at the Medical College of Wisconsin.

The study, published in the February edition of the scientific journal Hypertension, was led by David Gutterman, MD, Northwestern Mutual Professor of Cardiology, Professor of Medicine and Physiology, and Senior Associate Dean of Research at the Medical College

"The higher fat content of a low-carbohydrate diet may put dieters at an increased risk of atherosclerosis (hardening of the arteries) because low-carbohydrate diets often reduce protection of the endothelium, the thin layer of cells that line the blood vessels of the circulatory system," said Dr. Gutterman. "The reduced production from the endothelium of nitric oxide, a specific chemical, puts the vessel at higher risk of abnormal thickening, greater clotting potential, and cholesterol deposition, all part of... read more

8 replies...

Trading Warfarin for natural anticoagulants?
Posted by Ken
Last Reply September 6, 2017 at 19:04
Started June 27, 2011 at 14:11
Has anyone here had the courage to substitute their Warfarin prescription with fish oil or nattokinase, or any other natural blood anticoagulants with success? The only way to see if you don't get another blood clot is to actually quit taking the Warfarin and start on the natural thinners. And I suppose that if your calf starts to swell or hurt you can have 5 days worth of Lovenox immediately available by your side for your rescue. My hemotologist says "that's like playing Russian Roulette". I've tried going off Warfarin once albeit with no change in lifestyle and no blood thinners and I got a new blood clot in about 10 days. My calf started to swell and hurt, but I noticed it right away, verified it with the Ultrasound and immediately went to Lovenox and Warfarin. Now I'm thinking about quitting the Warfarin again, this time with lifestyle changes (more exercise and moving) and natural blood thinners. It didn't seem particulary risky last time I quit taking the Warfarin. Doe... read more

32 replies...

lump at lovenox injection site
Posted by Claire
Last Reply September 5, 2017 at 17:57
Started April 3, 2010 at 23:04
I've still got a small hard lump at one of the injection sites that Ive had since
November . ocassionally it goes red ( about the size of a quater), it's not hot or
painful, I'm just wondering if anyone else has had this ??, I've still got some very
faint bruises aswell.

18 replies...

Iron while menstruating on Xarelto
Posted by Miranda
Last Reply September 5, 2017 at 17:41
Started September 2, 2017 at 16:23
I started Xarelto Wednesday for a large DVT in my left tibial vein. I had to abruptly
stop taking my birth control pills, so my period started. It's beyond heavy, and I
was already anemic before this happened. Can anyone tell me how much iron
they've taken in this situation? I'll call my doctor on Tuesday, but am going to
start the iron today to try to prevent an emergency. Of course I'll seek medical
attention if I get dizzy, etc. I'm just hoping to prevent that. Thanks!

1 replies...

sex
Posted by E Roberts
Last Reply September 5, 2017 at 13:19
Started September 5, 2017 at 13:19
Does having occasional sex alter I N R levels

0 replies...

Axerlto
Posted by Chris jones
Last Reply September 4, 2017 at 22:51
Started August 29, 2017 at 13:26
Good afternoon forum. First post on here for ages. I was and still am a life long
anti coagulation user !

Was on warfarin for nine years . As of today I am on a new drug Axerlto.

Any advice, side effects, and others stories with reference to this would be
greatly appreciated as it's strange. One tablet of 20mg daily dosage.

Many thanks

Chris in bonnie Scotland

1 replies...

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