DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 200 of 237
WHY SO MANY YOUNG/FIT?
Posted by ellieuk
Last Reply November 21, 2008 at 18:36
Started November 21, 2008 at 18:36
Thanks SJ!!!!

Just got this thread! Initally went on due to concerns over flying in Aug and (perhaps I realise in retrospect - not being overly happy with professional advice)

I was told by GP that I was breathless/useless as I was too fat. Honest - I'm not fat - well a lovely rounded figure - I like to think!!

I find it dreadful the advice being given by professionals. I'm 43, was fit/active walked, swam, physical job, busy - Now had umpteem DVTs (they really dont know do they how many as scans give poor results?) & Multiple PEs both lungs). Told by GP when reported problems to get fitter and go to gym/swim/walk (which I do and did anyway). In retrospect it was my problems that were causing a lot of my inactivity - I couldnt walk more than a few 100 yards without gasping for air or walk stairs etc! Swimming (which requires a lot of oxygen) was a joke! Job got really hard to do! I believe I lost a lot of my fitness because of illness and not as a consequence!

S... read more

0 replies...

swelling
Posted by Susan
Last Reply November 21, 2008 at 15:41
Started November 20, 2008 at 15:44
Hi It has been 4 weeks since my DVT and 2 PE I am back to work now which is alot of standing. When I get home my leg is huge and gets very itchy and red. My INR is 2.5 and I have no pain is this normal, and will it eventually get better, or is there something I can do to help prevent this???

11 replies...

any UK experience DVT/PEs
Posted by ellieuk
Last Reply November 20, 2008 at 18:02
Started November 9, 2008 at 22:07
Will try again - most of you from US (good luck to you all) but UK experiences vary widely from US - anyone out there with experience of ITP/DVTs/PEs (multiple)? I just seem to know nothing (and get no answers when I ask). Dont know where to go!

11 replies...

do I need a new doctor ?
Posted by TLC
Last Reply November 20, 2008 at 05:57
Started November 19, 2008 at 15:46
Appreciate any comments -
I was diagnosed last tues (8 days ago) with dvt in calf (on sonogram). My dr. gave me arixtra injections to last thru sunday (6 days worth), put me on 10mg/day warfarin for 3 days, then 5mg/day afterward. Only tested my blood once and that was on day 4 (friday), didn't call me till yesterday (day 7) to tell me the results of the friday's test showed inr of 1.3, now they want me to up the warfarin back to 10mg and re-start the arixtra for 3 more days. Does this sound normal to anyone ? Thanks in advance for your comments.

3 replies...

New Nonsurgical Techniques for DVT
Posted by Khalid
Last Reply November 19, 2008 at 19:33
Started November 18, 2008 at 12:40
Hi

Has anyone heard about this technique? I came across this while looking for new development in DVT treatment if any.

New Nonsurgical Techniques Spray, Chew and Vacuum Away Damaging Deep
Vein Thrombosis (DVT) in the Leg

http://www.scvir.org/news/newsPDF/DVT_release.pdf


1 replies...

Flu shots
Posted by Char
Last Reply November 19, 2008 at 14:53
Started November 18, 2008 at 23:34
I have never had a Flu shot, never had the Flu, still not going for it. Article claims the Flu shot reduces the risk of VTE.

AHA 2008: Flu Shot Linked to Reduced Risk of VTE
from Heartwire a professional news service of WebMD

November 9, 2008 (New Orleans, Louisiana) Getting the flu shot may protect against venous thromboembolism (VTE), a new retrospective case-control study suggests. According to Dr Joseph Emmerich (University of Paris Descartes, France), who presented the results of the FARIVE study here at the American Heart Association 2008 Scientific Sessions, the findings appear additive to the known link between influenza vaccination and coronary disease and, if confirmed in further studies, may have "broad public-health significance for such a cost-effective intervention."

Dr Joseph Emmerich
Based in part on the 2003 FLUVACS study, the AHA and ACC recommends vaccination against seasonal influenza for secondary prevention in people with known coronary and oth... read more

1 replies...

cause of DVT
Posted by sam
Last Reply November 19, 2008 at 10:34
Started November 14, 2008 at 16:36
i just got off the phone to my consultant and im so upset.he insists the cause of my dvt is not the pill as i was on microgynon which is low eastrogen.he says its more likely to be a growth???the clot is in my groin.im terrified.i said i didnt want a scan as i dont want to start worrying about cancer but he insists i go for him to feel my tummy and leg??this is what he says.has anyone had dvt caused by microgynon?id really appreciate your advice

9 replies...

Cold legs, Shortness Breath
Posted by Lynnie
Last Reply November 18, 2008 at 02:12
Started February 8, 2007 at 06:32
Does anyone else experience their legs feel like they are freezing when sitting or standing? I'm also feeling light headed, dizzy, and have noticed shortness of breath when upright and sheer exhaustion after mild exercise. Anyone else having these types of symptoms?

6 replies...

YOU ARE AMAZING!
Posted by ellieuk
Last Reply November 17, 2008 at 17:30
Started November 17, 2008 at 17:30
Some of the stuff you people got planned and have done is just FAB! Am amazed at your resilience - GOOD FOR YOU - go for it!!!

0 replies...

How does Coumadin actually work??
Posted by me
Last Reply November 17, 2008 at 16:58
Started November 9, 2008 at 12:54
I have been on coumadin for 7 weeks. My clot in my leg has not decreased in size AT ALL. They say it will take 6 months. :(
My question is this: how does coumadin actually work? I cannot find anything on the internet to answer this question.

I have been told by different doctors:
1. coumadin helps it so you won't get a new clot but does nothing for the clot already there. your body has to dissolve the existing clot.
2. coumadin makes the existing blod clot turn into tiny dist particles so your body excretes it out.
3. coumadin helps dissolve the existing clot

How can all these doctors who all have MD's be giving such different answers? I cannot find anything on the net that talks about coumadin's affect on an EXISTING blood clot.

Thanks.

3 replies...

Yasmin - Birth Control
Posted by Cindy
Last Reply November 16, 2008 at 02:50
Started September 15, 2006 at 05:00
I am 26 and developed a DVT after returning from my honeymoon. They contributed the DVT to the long flight, dehydration and birth control. I have been reading a lot on this forum and have noticed that most people who have a DVT while on birth control were taking Yasmin, which is what I was taking. Does anyone know if you are at greater risk with Yasmin as opposed to other birth control pills?

33 replies...

Inefficient Valve Surgery
Posted by Ros
Last Reply November 15, 2008 at 11:31
Started November 15, 2008 at 11:31
I have recently suffered a DVT in my left leg. Not a lot they can do about it apparntly other than Warfarin and compression stockings. I have been to 2 Specialists last week, they both agreed. I am not impressed. I have been getting stomach cramps, I guess a reaction to the Warfarin. Anybody got any ideas on how to deal with them??
Also I have inefficient valves in my left groin, which means the blood doesn't pump out of my leg very well. This puts extra pressure on my leg and probably makes me more likely to have problems in the future. Does anyone know if there is any surgery available to tie off the valves in the main vein to allow them to only open one way, so it doesn't let the blood fall back down into my leg.

0 replies...

Hair loss
Posted by Alison
Last Reply November 15, 2008 at 10:33
Started November 14, 2008 at 20:56
I am 32 and I was in the hospital this summer with a large blood clot in my left leg that went into my stomach. I have now been on warfarin for three months now and am really struggling with the side effects. My hair is falling out so much that I am concerned that there won't be any left soon, there is already a bald spot. I am having harsh mood swings and feeling really sad a lot. I talked to my doctor about it and he suggested that I might be going through menapause. I think that is crazy, I am 32. Any thoughts?

2 replies...

Michelle in Canada
Posted by Amandajane
Last Reply November 15, 2008 at 08:37
Started November 15, 2008 at 08:37
So you have been on warfarin for 7 years is that right? I must admit I get really cold in winter but if I have a bit of weight on it is not as big of issue. So definatly coldness is a side effect. I get dizzy in the shower when I shut my eyes but didnt realise the link till I read your note. I have been on it for 5 years or so and am on it for life like you. I have inherited thrombophilia. Do you? (I think you all call it lfv on this site. I would love to know if you still worry about brain bleeds. I am 37 so you would think I would be a bit calmer about it by now but you just read all the bad stuff on the net. I hate the fact I am on it for life but just know that if I wasnt I would have had a bad clot by now. Would love to hear back from you seeing as we are in a similar boat of being on it for life. I am in Queensland aussie

0 replies...

Question
Posted by Matt
Last Reply November 13, 2008 at 02:11
Started November 8, 2008 at 02:00
Havent been here for quite sometime now,anyways i have a question.

I was on warfarin for 9 months for DVT in my calf due to an accident,after 7 months ultrasound found their was no blood clot in my calf.At 9 months the Hematologist took me off of blood thinners,which was 2 months ago.And last month he sent me for a truckload of blood tests,which i will find out the results on monday.Anyways my question is lately i have been putting in long days at work,and the weather here and started to change(Snow etc).I have noticed that my calf has been bothering me alot in the past couple days,would cold weather have an affect on this.Has this happened to anyone else?

Thanks

Matt

2 replies...

PE, Food do's & dont's with Warfarin
Posted by Lisa
Last Reply November 12, 2008 at 20:20
Started November 12, 2008 at 20:20
Hi
My 80yr mum just had a PE & is doing well but we are all having probelms with what she can eat/limit. I have found a few things but has anyone a list or a good site I can visit to try and make things easier for her. This week her INR has shot up to 5.1 and we cannot see what she is doing to increase it from 3.36 last week.

0 replies...

If you Cut Youself
Posted by Susan
Last Reply November 12, 2008 at 18:51
Started November 12, 2008 at 18:00
Hi DVT 2PE Oct.20,2008 Everyone has been saying to me because I am on Warfarin " Oh be so careful not to cut yourself " Well if you do is there a way to get it to stop bleeding if its small enough that you don't have to go to the hospital???? I'm getting really nervous

2 replies...

Alternative approach
Posted by Perry Ambrose
Last Reply November 12, 2008 at 09:37
Started November 11, 2008 at 20:51
This is my first post on the forum though I have often scanned it for help. I recently was hospitalized for extensive DVTs in my thigh. Nothing extraordinary there. It is a common experience in our society. My response, however, was very different. Some of you will react with interest and some of you will react with horror. Here goes.
On November 8th I was hospitalized for DVTs and put on blood thinners. I am a nutritionist, own a health food store and for all practical purposes practice orthomolecular medicine. I help people with health problems whose prefer to use natural substances instead or pharmaceuticals. I believe drugs for the most part are very dangerous, especially if used long term.
I believe that the primary cause of DVTs is too much estrogen. In a male like myself (65 years old) we produce on the average more estrogen that women our age. Possible symptoms of estrogen dominance in males includes, prostate problems and low libido. The hormone cascade ... read more

2 replies...

Leg Pain DVT?
Posted by Dana
Last Reply November 11, 2008 at 17:58
Started November 11, 2008 at 16:32
I am on coumadin for Lupus Anti-Coagulant found after MI. I am having my second problem with pain in hamstring area of left leg. I am active but have done nothing to strain it. It has a fairly localized tender spot. It makes walking painful and difficult. I measured my leg L & R and if anything the L is smaller. Does this sound like something to be looked at?

Thanks

1 replies...

Off coumadin..............
Posted by Rick
Last Reply November 11, 2008 at 15:50
Started November 10, 2008 at 23:09
Taken off coumadin today by a hematologist today at University of
Michigan and put on Lovenox for the next 4-6 weeks.
Then I'll be put back on low dosages of coumadin for a couple months
and be monitored through their coumadin clinic.
He seems to think I was not given very good medical advice when I was
first diagnosed with a blood clot in my upper calf. He advised that I
should have been placed on Lovenox initially for 10-12 days and then
be placed on coumadin.
My small town hospital put me on Lovenox(3 days) and coumadin together
shortly after my ultrasound confirmed the clot in my calf. He said
that was not handled properly and could have put me in a hypercoagulative state.
Well two weeks after my initial diagnosis I went for a second ultrasound. I suggested to the tech that in the past week I was not feeling better....but worse. The tech began the scan and checked the
upper calf clot...then when he checked my thigh there was a new clot
that was NOT there two weeks p... read more

1 replies...

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