DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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crystal meth
Posted by jo
Last Reply November 1, 2008 at 23:20
Started November 1, 2008 at 13:49
i have been diagnosed with a DVT in my groin bur extending to my calf.could it have been caused by crystal meth?the month before i used it quite heavily at a lot of parties?i have no other reason for the clot apparently.thanks

4 replies...

Travel post-DVT
Posted by Stan
Last Reply November 1, 2008 at 13:45
Started October 3, 2008 at 12:22
Hi there

I'm attempting to put together some information regarding DVT and air travel but I'm finding it increasingly difficult. A lot of sites talk about the prevention of first-time DVT as a result of flights and long journeys but I'm interested in the experience of air travel after people have been diagnosed and/or treated for a thrombosis. Do different airlines dispense different advice? Is there a standard clinical response given to patients intending to travel? Are any medications changed in the run-up to a long journey? I don't know an awful lot about the practicalities of treating DVT aside from Warfarin and associated medications so any help or a link to information about Travel Post-DVT would be gratefully accepted.

2 replies...

No classic symptoms?
Posted by andrea
Last Reply November 1, 2008 at 09:29
Started October 27, 2008 at 10:52
9th August i had a injury to my right calf, throbbing pain and badly bruised, could not walk on it. Went back and for the docs for 10 days, saw 4 different doctors all saying that it wasnt a dvt and probably the muscle was badly bruised and it could take weeks to recover. On the 10th day went back to docs still in pain and he said he would sent me for a dvt scan just to "put my mind at rest". Went to hosp next morning had bloods done and nurse said that the d-dimer level was up a bit. Had a scan and i had a small dvt.I nearly passed out. Doctors were really suprised too as they said i had no classic symptoms of a dvt. Everyday has been a struggle mentally and i am still scared that "something is going to happen" even though they all try to reassure me that i am going to be fine, that dvts are common and to get on and enjoy your life. I have asked for a scan but they said that theres no point and if i want one at the end of the 6 months i may be able to have one then, probably if i ... read more

11 replies...

scan gone but still pain
Posted by susie
Last Reply November 1, 2008 at 08:05
Started October 15, 2008 at 21:27
hi peeps

i have good news had a scan today on both my legs and my dvt i had in may has gone , yipeeeee, i am still on warfarin untill xmas if all stays well ,BUT the consultant can't answer why i still have pains and discomfort in my leg ,he didnt say anything about scaring or damaged viens i did ask him but he just said its ok and to lead a normal life after finishing warfarin ??? this is frustrating , i have read sarah's previous pts info , anybody else experienced these symptons, many thanks

2 replies...

Posted by Diane
Last Reply November 1, 2008 at 07:59
Started December 10, 2007 at 07:20
I think it would be very interesting to keep the list of where we're all from going. I will try to keep it updated. List is growing as we speak, so I've started a new string:

1.) Diane, Victoria, BC, Canada (me)
2.) Jo, Tasmania, Australia
3.) Terry, North Wales, UK
4.) Jackie, New York City, USA
5.) Donna, Washington, Pennsylvania, USA
6.) Donna #2, Scotland, UK
7.) Ann, Livingston in West Lothian, Scotland, UK
8.) Valerie, West Ireland, UK
9.) Sue, Skipton, North Yorkshire, UK
10.) Crystal, Baton Rouge, Louisiana, USA
11.) Kim, Aberdeen, Scotland, UK
12.) Gayle, Glascow, Scotland, UK
13.) Justin, Alaska, USA
14.) Sharon, Friendswood, Texas, USA
15.) Karen, Seattle, WA, USA
16.) Denis (Dero), Ottawa, Canada
17.) Pamela, Milton Keynes, UK
18.) Cate, Surrey, England, UK
19.) Donna #3, Wakefield, West Yorkshire, England, UK
20.) PJ, Denver, Colorado, USA
21.) Frances, Florida, USA
22.) Ray, Providence Plantation, Rhode Island, USA
23.) Chris, Scotland, UK (tha... read more

63 replies...

DVT diagnosis leaves me paniced
Posted by zben1
Last Reply November 1, 2008
Started October 30, 2008 at 11:45
I was diagnosed last night with DVT in my left calf....I am an absolute wreck. Ifeel like I am going to die in the next couple of days. I took ativan and slept ok last night, but I can't stop these worries in my head. It sounds like you guys have all been dealing with this for a while. So I guess this is not just a get rid of it and move on kind of illness? I see my doctor this morning. Can you give me any kind of reassurance that this is not going to travel to my heart, head or lungs before it is gone?

6 replies...

After a DVT
Posted by Hol
Last Reply October 31, 2008 at 18:23
Started October 30, 2008 at 14:32
At the age of 21 I was diagnosed with a DVT in my right leg, after warfarin treatment I am now fine. That was 2 years ago. But every now and again I get the same feeling in my calve as I experienced before being diagnosed with a DVT. On a few occasions I have taken myself to the doctors for blood tests just to check but I was always fine, no DVT. At what point do I just accept my leg may ache from time to time from the trauma caused to the vein from the DVT. Where do I draw the line and decide whether its just another ache or another DVT? Has anyone experienced this?

3 replies...

Posted by Cyndee
Last Reply October 31, 2008 at 16:37
Started April 6, 2008 at 18:51
I have DVT in right leg. I was searching the internet and found a website selling Thrombitab which they claim will disolve your DVT in 2 months- guarenteed. Has anyone tried this and does it really work or is it too good to be true?

15 replies...

Trellis v AngioJet
Posted by James
Last Reply October 31, 2008 at 15:50
Started October 29, 2008 at 18:52
Please can guide me:

1. What is the difference between "Trellis & AngioJet"
2. Advantages/Disadvantages
3. Who is the most experienced/best doctors in your view who can preform

2 replies...

Message for SHAWN - Really Important!
Posted by Michelle
Last Reply October 31, 2008 at 15:40
Started October 31, 2008 at 15:40
Shawn... please be sure to read the information I found on Thrombitab before you start taking it. It's pretty incredible!

0 replies...

glycation of the blood?
Posted by kay
Last Reply October 30, 2008 at 20:57
Started October 30, 2008 at 20:57
Someone on this forum mentioned to watch out for this as it apparantly is related to sugar levels in the blood.. Has anyone ran into having this problem?
Tks, K

0 replies...

Worried about my brother - suspected DVT
Posted by Hol
Last Reply October 30, 2008 at 14:18
Started October 30, 2008 at 14:18
At the age of 21 I was diagnosed with a DVT in my right leg, after warfarin treatment I am now fine. That was 2 years ago. A week ago my brother showed the same symptoms I experienced. Aching right calve, chest pains and anxiety. Our GP took a blood test from him and was admitted to hospital the same day with suspected DVT, his D Dimer result was higher than mine ever was. After scans, further blood tests and CT scan they can not find anything. So why does he have a high D Dimer, aching leg and chest pains. We have been left without an explanation and feeling very anxious. Especially as I experienced all his symptoms and was quite ill with the DVT. Has anyone had this before? Please help

0 replies...

raise INR?
Posted by A. Miller
Last Reply October 30, 2008 at 10:53
Started October 30, 2008 at 01:40
What foods or what will raise my INR other than coumadin or warfrin?

1 replies...

Posted by Jona
Last Reply October 30, 2008 at 07:08
Started October 29, 2008 at 17:44
Hi its comforting to know i'm not alone ---DVT. I'm confused though--my INR first went really low to about 1.44 (was on warfarin 5mg) then a week later it rose to 2.9 when my dosage of warfarin was increased to 7.5mg . However within a week it began to drop and now is at 2.4. Anyone have answers to this? I dont have the pain i initially had in my left thigh but my INR is worrying me.

2 replies...

Cost of drugs
Posted by Michelle
Last Reply October 28, 2008 at 15:29
Started October 24, 2008 at 13:03
I have been having issues with my warfarin (after 7 years - I must be getting old or something). My INRs have been up in the 6.9 range - way above the 2-3 I should be at. I talked with my Dr. yesterday about switching to Arista or Lovonox (I think that's the spelling - I'm too lazy to look them up properly). He said it's a very expensive thing to do.
So, here's the question. Warfarin is dirt cheap, but causes some side effects (intolorance to cold, hair loss, tiredness, high INRs) - so how much do these other drugs cost? Just the idea of having to inject myself every day already has me thinking these would be a bad idea. Finding out I'll go bankrupt too doesn't make me feel better.
We DO have medical coverage - but I pay 20%. If I remember correctly, Lovonox 2 week supply was several hundred dollars. What is everyone else paying?

8 replies...

Wow.....rough night
Posted by Rick
Last Reply October 28, 2008 at 10:25
Started October 27, 2008 at 16:21
My dvt's always seem to bother me more at night.
I might be overdoing it during the day and paying for it at
night. But during the day I feel better when I keep moving.
Last night the burning and stinging sensation along the inside
of my thigh was the worst I've experienced thus far.
Could not get comfortable and finally drifted off sometime after

1 replies...

Posted by Susan
Last Reply October 27, 2008 at 22:18
Started October 27, 2008 at 13:48
last week I had a DVT and PE I am on warfarrin and my inr level is 2.5 my lungs feel much better and I am not having as much breathing problems now. My leg gets very sore when I stand on it after about 10 minutes. Can I start to get my strength back by walking a little more or am I trying to rush it. I have been off work a week now and would like to know how long it takes to get somewhat back to normal?? Am I hoping for too much to early??? Need help

2 replies...

very high inr
Posted by carrie
Last Reply October 25, 2008 at 10:48
Started June 3, 2008 at 15:21
Hello everyone,

The dr. contacted me Saturday morning. My inr level was 8. Dr. advised me to seek medical attention as soon as possible. My inr was at 9 the raised to 10. I was given 2 treatment of frozen plasma. I had my pt and inr check around 2pm Friday. the Lab contacted the dr. I was release from the hospital on Sunday. I just feel really tired and depressed now. I was doing so good up until a few months ago. I am still on warfrin. Has anyone else experienced this?

3 replies...

Resolution of pulmonary emboli
Posted by Joe
Last Reply October 25, 2008 at 07:12
Started October 24, 2008 at 01:02
Im on my first week of having multiple pulmonary emboli diagnosed... I am on a theraputic level inr with warfarin...

In general, for those who have had a PE, how long did it take to reolve the PE?
Was it reolved completely?
Was warfarin or lovenox the only med used for your treatment?
Did you use Nattokinase? ( Im using it, but doubt its effectiveness)
did you have a repeat episode?

7 replies...

On coumadin for life
Posted by Amandajane
Last Reply October 24, 2008 at 19:49
Started October 17, 2008 at 07:31
Hi all,
This is my first time at the forum. I am in Australia and was searching for some information and came across it.
I had a dvt in my chest 5 years ago and am on warfarin for the rest of my days . I am now 37. Has anybody out there been on warfarin for a long time and have you had any problems?
I find even after all this time I still get pain where it was. I am leidon factor 5 positive. It is inherited.

4 replies...

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