DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Winter Tied to Increased Blood Clot Risk
Posted by N
Last Reply October 24, 2008 at 18:20
Started October 3, 2008 at 05:11
Blood clot formation in the leg veins, a condition known as deep vein thrombosis (DVT), is much more likely to develop during winter months than in the summer.

Similar seasonal variation in a related, potentially fatal condition known as pulmonary embolism, in which blood clots travel to the blood vessels of the lung, has already been well documented.

The researchers found a clear seasonal variation in hospitalizations for DVT and for pulmonary embolism. While hospitalizations for DVT were about 18% lower than average during the summer months, they were about 18% higher than average in the winter.

And for pulmonary embolisms, hospitalizations dropped below the average in the summer and climbed as much as 26% above average in the winter, the report indicates.

Although this was not part of the study, the researchers speculated that cold-induced narrowing of blood vessels and reduced physical activity during winter months may produce a reduction in blood flow in the lower l... read more

6 replies...

Free Drugs
Posted by Barak Nobama
Last Reply October 24, 2008 at 14:42
Started October 23, 2008 at 20:25
Don't worry about buying your DVT drugs. I will take them from those who have a lot and give to those who don't have enough. I can "spread the Health".

3 replies...

Referred for calf ultrasound, but...
Posted by Liyah00
Last Reply October 23, 2008 at 22:27
Started October 23, 2008 at 05:09
... I fear the DVT may actually be in my calf or groin. My doc wrote me a referral to have a calf ultra sound. I told her that I've also had some thigh/groin/lower abdominal pain, but she didn't write that on my referral. However, I've read that a thigh DVT can also cause calf pain, whereas a DVT that was just on the calf wouldn't cause thigh pain. If I make my concerns known, do you think they will test the thigh, too? This has been the most frightening week of my life, and I don't want to be told I'm in the clear only to suffer a PE from a place that wasn't even tested.

3 replies...

Recently diagnosed with Factor Five
Posted by Tonya
Last Reply October 23, 2008 at 13:02
Started October 18, 2008
I first posted in a reply section - Sorry.

I was recently diagnosed for having factor five with low protein S after having 3 miscarriages. The Dr. said the miscarriages were due to the factor five. She told me to take a baby aspirin daily and if I decided to get pregnant again she would put me on lovenox.

Three questions:

Instead of the aspirin I am taking fish oil because I researched that it was a natural blood thinner and better than the aspirin, does anyone know anything about this? If so, information would be appreciated.

For women out their who have factor five and have had healthy pregnancies, how do you make that final decision knowing you have to take a shot every day that is painful and how do you make it through?

My husband no longer wants to try to have a baby due to all of this and I'm not sure if I could handle another miscarriage or worse.

Would you recommend seeing a specialist or continuing with you primary physician?


8 replies...

Leg ache
Posted by ALbee
Last Reply October 23, 2008 at 02:59
Started October 23, 2008 at 02:59
I encountered calf pain a month ago during a flight to Australia,it subsided a bit but after 3 weeks I did some research and went to the ER to rule out DVT, they did a d-dimer and ultrasound...both showed No signs of a DVT.I was relieved of the diagnosis, but that was 11 days ago and I still encounter some ache in my calf and knee area.
Im begining to think I should request further testing , Im looking for feedback regarding other explanations and possibilities of the testing done in the ER not being so accurate,has anyone experienced initial tresting ( of the mentioned test ) Not to reveal a DVT when it turned out to actually be a DVT after further testing ?

Thanks

0 replies...

warfarin and ante deprtessants
Posted by helen
Last Reply October 23, 2008
Started October 21, 2008 at 16:02
Having had a dvt in calf in August it came as a shock. Doctor put me on ante depressants, has anyone been prescribed these while taking warfarin and have they made any difference to their inr. I would like to hear from anyone who has been in the same situation. Many thanks.

1 replies...

scan gone but still pain
Posted by susie
Last Reply October 21, 2008 at 22:59
Started October 15, 2008 at 21:33
hi peeps

i have good news had a scan today on both my legs and my dvt i had in may has gone , yipeeeee, i am still on warfarin untill xmas if all stays well ,BUT the consultant can't answer why i still have pains and discomfort in my leg ,he didnt say anything about scaring or damaged viens i did ask him but he just said its ok and to lead a normal life after finishing warfarin ??? this is frustrating , i have read sarah's previous pts info , anybody else experienced these symptons, many thanks

7 replies...

Really concerned about a possible DVT.
Posted by Amanda
Last Reply October 21, 2008 at 21:56
Started October 19, 2008 at 01:16
I'm a 19-year-old sophomore in college who has sporadic leg pain from cerebral palsy. It's calf pain, and from what I read, similar to pain experienced by DVT sufferers. Though it's not constant. However, last night the pain concerned me. I didn't notice that my leg was swollen, however I did notice that my right calf is definitely larger than my left. According to my mother, that has always been the case, and she may be right, but I'm not sure. It's not sharp pain and it's not always noticeable. My heart rate is normal and I am able to walk, but should I be concerned? If I should see a doctor, what is the best course of action, given that I am sans insurance? Should I trust a walk-in clinic to be conpetant enough not to oversee such a serious condition? I am extra wary of DVT possibilities because my uncle (my marriage - I have no family history of it) died of PE after lung surgery when he was only 55-years-old, but it might also be the case that I am being a hypochondriac, given t... read more

1 replies...

Hey John in Dallas
Posted by DC
Last Reply October 20, 2008 at 07:57
Started October 18, 2008 at 13:56
It's hard to find replies to all the posts sometimes, can't sit that long....Did you see the one about my venogram, May Thurner, EKOS, stents, etc. My hospital in Fort Worth did not have the machine but called in a tech from Dallas that does nothing but travel around to different places, mostly Texas, carrying his machine and working with IV's. Great guy and he worked with your doc many times and spoke highly of him.
You had a better outcome than I did but I would do it again in a heartbeat.
I saw your gmail address somewhere and wrote it down so I could email you but it got misplaced, so I'll just yak at you this way.
One question for you, did your blood pressure dip really low? Like mine was 70/30 two days after the procedure and the ICU nurses were freaked out. Sometimes when I go to the doc it may be in the 90/50 range and they always ask if I have a history of low blood pressure but I never have before....Keep in touch as you always have good info for me and I a... read more

1 replies...

Another new pain
Posted by DC
Last Reply October 18, 2008 at 23:42
Started October 16, 2008 at 13:13
Lots of your guys are aware I had a venogram and attempted the clot buster (ekos) to no avail....diagnosed with MTS and had three stents placed in the left iliac vein. Today marks one week since the procedure was completed and I came home saturday. Now I have horrible pain in my good leg, my calf is cramped up like no other....should I get it checked or could I maybe have been compensating for the surgical leg which is feeling pretty good by now....any ideas????? I hate worrying about every little pain I have.....

4 replies...

New Drug
Posted by Thomas
Last Reply October 18, 2008 at 20:58
Started September 22, 2008 at 05:59
Hello, I was experiencing pain in my left calf for about a week which felt like a Charlie Horse. One night I felt my calf and it was very stiff as if I was flexing a muscle. The next morning I went for a sonogram and a large clot was discovered. I was admitted to the hospital next door and a CT Scan was done to see if it had moved to my lungs since I was having shortness of breath. The CT Scan did reveal that I have several clots in both lungs. I began Lovenox shots and one Caumadin pill.
I was offered to participate in a new drug trial that would replace the Caumadin. The drug is called Rivaroxaban and is approved in Europe but not yet in the USA. I will not have to get tested like I would with the Caumadin and interactions with food and other drugs is almost non existent. So far so good. I will report with updates as I check in with the trial clinic. Has anyone else been lucky enough to participate in this trial?

10 replies...

weight loss
Posted by Char
Last Reply October 18, 2008 at 19:26
Started October 17, 2008 at 13:55
First 3 months on Warfarin I gained weight, 10 pounds, now have lost about 6 pounds. My activity level is almost back to normal, but less biking.
Anyone else noticed weight loss??

5 replies...

Infections 'can double DVT risk'
Posted by BBC News Health
Last Reply October 17, 2008 at 13:07
Started October 17, 2008 at 13:07
The risk of developing deep vein thrombosis or blood clots in the lung doubles after infections, a study says.

The Lancet study of 3 million GPs' records found 7,278 people had suffered DVT and 3,755 a clot on the lung.

The London team found those who had suffered either respiratory or urinary infections were nearly twice as likely to develop blood clots two weeks later.

They suggested the clots could have been caused by inflammation in the blood vessel linked with infection.

Fatality risk

DVT contributes to around 10% of deaths among hospital patients each year.

They occur in the leg veins but can also break off and lodge in the small vessels in the lung.

If this occurs the condition is called a pulmonary embolism, which is fatal in about a third of cases without treatment.

The team led by Dr Liam Smeeth, from the London School of Hygiene and Tropical Medicine, said there was already evidence to suggest infection increases the risk of heart problems.

They... read more

0 replies...

Natural Treatment for Diabetes with Vitamins
Posted by jessiejiang
Last Reply October 17, 2008 at 11:30
Started October 17, 2008 at 08:03
Hey ,as i know taking natural herbs like Chromium, Vitamin C, Vitamin E, Taurine, Zinc, Copper and so on, is good for relieving Diabetes in an effective and natural way.

Chromium helps to regulate blood sugar levels and indirectly affects the level of fats in the blood. Alpha-Lipoic Acid may relieve symptoms of nerve damage in people with diabetes and may improve the glucose-lowering action of insulin. Vitamin B Complex helps produce enzymes that convert glucose to energy and may also aid in preventing diabetic nerve damage. Flaxseed contains essential fatty acids that protect against nerve damage and keep the blood supply of the arteries consistent. Flaxseed also works to lower cholesterol, thereby protecting against heart disease. Antioxidants, including Vitamin C, Vitamin E and phytonutrients in Bilberry, prevent damage to the nerves, eyes, and heart. Gymnema may increase insulin production or increase insulin release. Taurine may improve insulin sensitivity and decrease chole... read more

1 replies...

Treatment for DVT: Does it always work?
Posted by Kristen
Last Reply October 17, 2008 at 08:54
Started October 17, 2008 at 08:22
Hi. I was diagnosed last month with 2 clots in my left forearm and 3 clots in my shoulder from a picc line I had. I was hospitalized for 4 days starting Coumadin (5 mg a day) and Lovanox (2 injections a day) immediately in the hospital. I stayed on Lovanox for 5 days. 2 weeks after I came home from the hospital they started my back on injections but this time it was Arixtra once a day. My INR has never gotten higher then 1.7. Since my hospital stay, my Coumadin has been increased to 12 mg a day and I'm on my 14th day of Arixtra injections. Too complicate matters 14 days ago I started having severe pain in my arm and shoulders again. Accompanied by some numbness in the fingers, and sudden gushes of heat going down my arm. My question are these; What happens if my levels never get into the therapeutic range? What would be the next course of action? And I'm on disability at work right now b/c I just had a baby but do people go back to work having UEDVTs and being on these types... read more

1 replies...

The surprising ways climate can affect you
Posted by Off Topic
Last Reply October 17, 2008 at 07:08
Started October 17, 2008 at 07:08
The surprising ways our climate can affect your health

'Winter thickens the blood' is just one of the many sayings about the weather that most of us would dismiss as old wives' tales. In fact, scientists and medics are coming round to the idea that the weather really can have an effect on our physical and mental health, as Angela Epstein reports...

HEART ATTACK AND STROKE: Around 20,000 people die each year in the UK as a result of strokes and heart attacks linked to a dramatic drop in temperature.

Though no single theory can explain this, it is believed cold temperatures cause the arteries to narrow, restricting blood flow and reducing oxygen supply to the heart.
Cloud

Cold weather also makes the heart work harder because more oxygen is needed to maintain body heat. This could lead to a heart attack in vulnerable people such as the elderly.

However, earlier this year a study of adults with a history of heart attack, by the German Research Centre for Environmental He... read more

0 replies...

Getting Family Tested
Posted by Kim
Last Reply October 16, 2008 at 14:09
Started October 15, 2008 at 04:55
I was told I have the gene to blood clot and that my children should be tested. Has anyone done this and if your children were positive , is there something that they could do to prevent it. My sister was tested and positive. They told her to take aspirin everyday and discontinue the pill. She is worried and wants to know if she should be tested in the future to see if she has one, Since when I was rushed to the hospital I had only one day of feeling like something was wrong.

2 replies...

PE question/concern
Posted by john
Last Reply October 15, 2008 at 03:39
Started October 10, 2008 at 03:05
The day before I found out that I had a DVT from my knee to my ankle, I had an experience that seems to point to a PE. I was playing hide and seek with my niece and after running around, I sat down and could not even count to ten due to not having any breath. After a little while my heart rate went down and I could breathe fine. The next day I was diagnosed with DVT and spent five days in the hospital on heparin. This was two weeks ago, and I am now on coumadin every day, inr is about 2.2. My doctor said that there was no need for a ct scan because even if there was a PE he would treat it the same way. Does this sound right? He has also said that I dont need to see a hemotologist until my 6 month coumadin regimen ends because the blood tests will not be accurate. Should I follow his advice? Any help would be much appreciated.

7 replies...

Had the venogram, got May-Thurner
Posted by DC
Last Reply October 15, 2008 at 01:30
Started October 14, 2008 at 16:08
Last Wednesday Oct 8th, I had the venogram, followed by 22 hours hooked up to the EKOS machine. According to my doc, the EKOS had little or no effect on the clot. He called it chronic and said it appeared to him it had been there for several years. Kind of freaky, right?
Anyhow, he did say it's a textbook case of May-Thurner and proceeded to place 3 stents in the left iliac vein. I promptly spiked a temp, had chills and pain, prompting the doc to come back and do an ultrasound to make sure the stent in my groin was still open. He placed it pretty much in the bend of my leg saying he really didn't like doing that but thought it was necessary.
After 3 days in ICU and plenty of bloodwork to rule out infection, they moved me to the regular floor and I came home Saturday. They just assumed all the manipulation caused the pain and fever, as the only thing my bloodwork showed was low potassium.
So I guess I'm on the mend, feel a little better everyday and hope the pain goes ... read more

7 replies...

Just Hello from a new, no new info
Posted by Kevin
Last Reply October 14, 2008 at 09:12
Started October 11, 2008 at 15:05
Had sever shortness of breath some time in August. ON 8/27 I went to my doc complaining about my shortness of breath and asked for a stress test. He is a cardio and he insisted that I come Saturday for heart tests. He makes a ton of money from nuclear tests, etc. Next day, Thursday, at 9:00 AM I felt tightness in leg, it felt strange. Around 1:00 PM I measured the circumference of the leg at the widest point, it was 18", the left leg was 17". I called the Doc and I said this is emergency. I went...office...hospital...Doppler...Clot in leg above the knee. Admitted to hospital about 6:00 PM. I had no pain. I insisted to leave the hospital on Monday (5 days). In the hospital my INR was below 2. After a few days adjusting the Warfarin, the handheld Doc gadget in his office, read 3 with 10 mgm of warfarin.

On 9/18, at 11:05, I was sure that I had another clot in the leg below the knee, changed Doc, changed hospital... Doppler...clots in 4 veins from the calf to upper leg. ... read more

3 replies...

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