DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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my hip and back
Posted by sheila edwards
Last Reply September 17, 2008 at 19:20
Started September 15, 2008 at 13:55
the plant i worked closed down so i lost my health insurance. I have been having alot of pain in my right hip and lower back. The pain is constant. I have trouble sleeping at night. I have to get up very slowly. It feels like it needs to be popped. On my left side i have pain also but it is not as severe as the right side. could you please tell me what this could be.

2 replies...

Doctors say leg pain can signal deadly blood c
Posted by ET
Last Reply September 17, 2008 at 14:00
Started September 17, 2008 at 13:54
Doctors say leg pain can signal deadly blood clot

WASHINGTON (AP) - Far too many Americans are dying of dangerous blood clots that can masquerade as simple leg pain, says a major new government effort to get both patients and their doctors to recognize the emergency in time.

``It's a silent killer. It's hard to diagnose,'' said acting Surgeon General Dr. Steven Galson, who announced the new campaign Monday. ``I don't think most people understand that this is a serious medical problem or what can be done to prevent it.''

At issue are clots with cumbersome names: A deep vein thrombosis, or DVT, forms in large veins, usually a leg or the groin. It can quickly kill if it moves up to the lungs, where it goes by the name pulmonary embolism, or PE.

These clots make headlines every few years when seemingly healthy people collapse after long airplane flights or being in similarly cramped quarters. Vice President Cheney suffered one after a long trip last year. NBC correspo... read more

1 replies...

Preferred BP meds interacting with coumadin
Posted by Mike L.
Last Reply September 16, 2008 at 07:03
Started September 14, 2008 at 21:59
Hello all,

I still am very lightheaded, worn out feeling, tight chested 23 days out after my 5 day hospital stay post PE. My dose was too high now I am instructed to be off coumadin for 3 days and take 2.5 instead of 7.5 starting tonight.

The previous 3 weeks the coumadin lowered my BP itself so I was taken off the micardis, 20mg (An angiotensin II inhibitor ). After 3 days off coumadin my BP is up and the DR. just told me to take 40mg. of micardis. So now we are looking forward to redoing my coumadin dose and BP meds to get me less anxious and light headed.

My questions:
- Has anyone else had bp meds decreased whle on coumadin?

- Has anybody discovered a more coumadin tolerated type of BP med
( Not An angiotensin II inhibitor)? Maybe a b blocker, direuretic or chanel blocker, instead?

Roller Coaster here I come!

2 replies...

Treatments and Success
Posted by Trudy
Last Reply September 16, 2008 at 06:25
Started September 13, 2008
I have been doing research on the treatments for DVT.

I am looking to hear about people's success/nonsuccess with EKOS or angiojet.

I see my vascular surgeon next tuesday and want to be armed and ready so to say.

Does anyone out there have a filter and had this proceedure?

I look forward to hearing from you -- Thanks in advance.

4 replies...

Were is everyone??
Posted by Char
Last Reply September 16, 2008 at 03:22
Started September 8, 2008 at 14:03
Seems to me some of the smartest people, like Sharon, Dero, Diane, Sarah, Linda, Feelgood and others have disappeared from this site. Were are you guys and can I join you??

18 replies...

Question, hopefully not TMI
Posted by Jenn
Last Reply September 15, 2008 at 22:55
Started September 15, 2008 at 03:15
Hi I'm a newby and had a question...I had a DVT in May 2005 been on coumadin ever since. Had a baby in Jan of this year (took Lovenox while preggo), started coumadin after birth. Had a physical done in June of this year & since July I've been having some bleeding prior to my cycle sometimes 6-11 before I actually start. My docs say it's because of the coumadin but I never had this problem before I had a baby or the first 5 months after I had had my little girl!! Has anybody else had this problem?

2 replies...

Posted by amanda
Last Reply September 15, 2008
Started September 15, 2008
how long does it take for a arterigram to be done?

0 replies...

Vascular Docs in Fort Worth
Posted by DC
Last Reply September 14, 2008 at 23:15
Started September 11, 2008 at 23:12
Hello all, I'm new to posting but having been following the site since being diagnosed with DVT from my knee up to about an inch under my belly button. I did a week in the hospital with the two a day Lovenox injections and also started on Warfarin. I was discharged about 7 days later and am only being seen by a Doc of Internal Medicine. INR was 3.2 last week and he says okay, see you in 2 weeks. I'm not really comfortable with that and am wondering if I should be seeing a Vascular guy. Oh, and these Jobst hose make me crazy!!!!! Anyhow, any info in greatly appreciated. Anyone in Fort Worth sees this let me know of a good Vascular guy, thanks so much, DC

3 replies...

Accuracy of Doppler tests, new symptoms
Posted by Janet
Last Reply September 14, 2008 at 22:20
Started September 11, 2008 at 15:51
First, I have a couple of questions about the doppler ultrasound test.
I realize that the test is only as good as the technician interpreting it, but is it a (relatively) common occurence to get a false negative.
Also, from what I understand the doppler only tests for clots in the major veins. But what if I have a clot in some secondary vein in my leg -- not a tiny, superficial one, but one that is just not primary? (I asked my technician about this and she couldn't/wouldn't answer).

Second issue:
After the dopplar came back negative yesterday, my doc prescribed an antibiotic and told me to take 2 tylenol and 2 advil liquigels, then to apply a heat pack to my thigh. However, even with all these meds in my system the pain is still there. Worse, now I see a 2" rash running vertically (slightly diagonally) up my thigh, just where a vein seems to be.

Just looking for input for the moment, I suppose ....

3 replies...

Ultasound effectiveness
Posted by Patricia
Last Reply September 14, 2008 at 12:53
Started September 13, 2008 at 12:55

I have a dvt in my calf but have no idea of the size or location of the clot. The doc did an ultrasound but said he couldnt see any veins???
My question is, is this an unusual comment, I thought ultrasound was the standard way to see the size and location of the clot. I have asked for another untrasound Monday, and if I get the same response, will ask for a MRI Venography.
I am also going to ask about the thrombolysis treatment.
In peoples experience, is this the right thing to do?


3 replies...

3 weeks after PE, out of INR range
Posted by Mike L
Last Reply September 14, 2008 at 05:36
Started September 12, 2008 at 18:09
Hi All,
Today I had a real bad case of warm, lightheadness. My first blood draw in 14 days my INR was over 8. My Dr. didn't order enough INR tests. I'm only 21 days out of a massive PE with multiple clots. He subsequently instructed me to not take anymore until Sunday 2.5mg instead of the usual, 7.5.

Since my general Dr. thought I was stable and was wrong I now was wondering wether to join a Cardiologist administered Coumadin Clinic here in Santa Barbara. This way I can just go in once a week and get a finger stick.

Do you think I should go in twice a week?

Even after my recent, every other day, panic attacks I still am confident that once I get this medication in range I will be able to return to my life and work.

You and others are so right to follow your diet, exercise, and get the proper level of Coumadin.

3 replies...

My toes are numb!
Posted by Linda
Last Reply September 13, 2008
Started August 25, 2008 at 14:16
Hi Everyone,
We took a long car trip two weeks ago and I took all the necessary precautions. Three days ago I realized that there was numbness in the toes on my right foot. My DVT (2002) was in my right leg. Should I be concerned.

4 replies...

Posted by mojomin
Last Reply September 12, 2008 at 22:23
Started September 1, 2008 at 22:17
i wentfor my venogram it shows that there was a clot just above my right knee, it has been cleared by my anti-coag's but has left my vein has been left mis shaped, waiting for an appointment to see the doctor again to see what happens next. has anyone got any idea's i just raelly really hate waitng to find things out it is all just so long winded.

1 replies...

Is this DVT....
Posted by Joanna
Last Reply September 12, 2008 at 17:26
Started September 10, 2008 at 19:33
or am I being a hypocaondriac? OK, I am a 36 yr. old woman - healthy weight range. I am very active (I'm a runner and I teach yoga). I have had this mildly annoying pain in my right calf (upper calf just under back of knee) off and on for a few months now. I am not on the pill, but I do have a Mirena IUD. I had my last baby over 2 years ago. I have no history of DVT in family that I am aware.

Should I be concerned?

5 replies...

Keeping your teeth clean could save your life
Posted by N
Last Reply September 12, 2008 at 15:34
Started September 12, 2008 at 15:34
Keeping your teeth clean could save you from a heart attack, scientists say.

Researchers have found that poor dental hygiene and bleeding gums could allow up to 700 different types of bacteria to enter the bloodstream.

This increases your risk of a heart attack regardless of how fit and healthy you are, they believe. ...

Professor Jenkinson added: 'The mouth is an easy entry for nasty bacteria. Once inside the bloodstream, the platelets, which help the blood clot, latch on to the bacteria.

'This can cause a blood clot, which can detach and travel to the heart. This is more worrying if the blood clot actually form on the heart's ventricle.'

The link was proven when scientists found that platelets, which aid repair, attach themselves to harmful bacteria in the mouth, wrongly thinking there is damage to a vein or capillary.

http://www.dailymail.co.u... read more

0 replies...

Anxiety shallow breathing post PE
Posted by Mike L.
Last Reply September 12, 2008 at 06:36
Started September 9, 2008
Thanks for the website. 16 days post PE and I experiance this a-word which can be pretty severe. This is a new condition for me, although to be honest I have caught myself shallow breathing at work with anxious thoughts and emotions. SO now I am having periodic anxiety especially when in public or driving?

My large PE luckilly has no lung or heart damage. My Dr. says my valves and lining can be inflamed, cumadin sensitivities, Or the PE healing itself???

My questions are concerning Zanex (small 25mg. pill.) Dr. perscribed these 3 days ago(I have only taken it once -real bad episode. It worked real well):

- To get back to work should I take it in the morning?

- Is anyone else on this or similar anti-anxiety meds daily? Can one use it for a few weeks/months just to get passed the acute healing stage? For getting back in the flow of job and life?

- Is there another type thats better for daily use?

5 replies...

Just two aspirin a day huh?
Posted by Chris
Last Reply September 11, 2008 at 20:09
Started September 9, 2008 at 04:23
My doctor is treating me with two aspirin a day. I developed an arm clot three weeks ago. At first they were all saying it was superficial clot but then my Vascular Surgeon said more like deep vein clot.

Anyway, he says it's like cement and he is only treating me with two aspirin a day.


5 replies...

new domain name
Posted by Rob - moderator
Last Reply September 11, 2008 at 05:55
Started September 11, 2008 at 05:42
I've been busy the last few days trying to block as much of the automated spam that's been plaguing this forum recently. Hopefully a large part of it will no longer get through with my lasted anti-spam measures. I've also moved the forum to its own domain www.dvtforum.com so hopefully this move will help also. If anyone has setup any links to this forum, now would be a good time to update them to the new domain name.

1 replies...

always double check !!!
Posted by susie
Last Reply September 10, 2008 at 23:16
Started September 8, 2008 at 17:57
hi all
just wanted to let you know something that happened to me today , i asked at my local chemist (the pharmasist) if it was safe to take glucosamine whilst taking warafin she said in a condesending manner "of course you can" i asked again your absolutely sure "yes " she said , i didnt like her tone so i visited another pharmacy and the same answer, i also asked about the flu jab they said no to flu jab but yes to glucosamine,
so i thought i would double check with my doc and he advised that NO WAY was i to take glucosamine with warfarin
but can have flu jab once i have stablised my inr ,

just wanted to say always check with your own doctor as these chemists could give you seriously wrong information guys .its like russian roulette out there lol

7 replies...

17yrs old dvt and massive PE
Posted by Alice murrell
Last Reply September 10, 2008 at 22:48
Started August 6, 2007 at 14:40
Hi im 17 yrs old and i have got a dvt in my left leg and it broke off and travelled to my left lung and blocked it and a small 1 in my right its been a yr and a half and its still swallon and purple plus very vainy.i have a blood problem that i have just found out that my dad has as well called factor v leiden and prothrombim.It has been very hard for me as i am still very young and i would love to talk to some one with the same kind of problem as i get very upset bout it and wish there is some one else who is goin through the same thing.

this is my email address if there is any one who would like to talk about there problem

thanks for reading
luv alice xxxxx

26 replies...

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