DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 210 of 237
Skin discolouration
Posted by EllieUK
Last Reply August 7, 2008 at 23:31
Started August 6, 2008 at 12:28
Tried to find info but not successful so far (new at this).

Skin on and around my ankles is very purply/black in colour. Is this 'normal' with dvt. Also quite severe ezcema. Anyone with advice/experience please?

7 replies...

just found site!
Posted by ellie uk
Last Reply August 7, 2008 at 22:32
Started August 5, 2008 at 12:22
Was diagnosed DVT r. leg last May - completed Warfarin at Xmas. Would like to know of others experiences. Having trouble with stockings due to severe excema. Also L. leg now showing symptoms - losing use of L. hand! Had my spleen out approx 10 years ago due to lack of platelets. Pains at night in legs awful so dont sleep - breathing poor. Work has become impossible (drive disability bus) so am off sick. Am trawling through site slowly. Dr doesnt seem sympathetic! Feel like am skivving work consequently feeling vulnerable! Am I a sad case or what?

25 replies...

inr dont understand why?
Posted by susie
Last Reply August 7, 2008 at 21:51
Started August 6, 2008 at 19:04
hi everyone

want to ask a question i have been having reg checks like everyone else on this site inr levels? i just can not get the same level been having weekly checks since may, now the last 2 weeks i tried really hard to be consistant no vit k foods no wine ,gentle excercise no pain killers, regular food i have dne everything text book i think, but my inr went right down to 1.4 which was where i was when i was first diagnosed, why is this ??? can anyone help

4 replies...

Vitamin D for clots
Posted by Khalid
Last Reply August 7, 2008 at 12:03
Started August 7, 2008 at 12:03
Vitamin D Targets Thrombosis In Cancer Patients; Clinical Trial Demonstrates Unanticipated Benefit.


0 replies...

Posted by EllieUK
Last Reply August 7, 2008 at 11:15
Started August 6, 2008 at 21:48


1 replies...

deep pain in front left calf
Posted by Wendy
Last Reply August 7, 2008 at 11:14
Started August 6, 2008 at 06:42
Hi all, I'm really making myself nervous. I started feeling this sharp deep pain in my lower calf around 2:00 this afternoon. I figured I was just wiped out from all the stress I have been under lately. So I decided to lay down and put my feet up. The pain still hasn't stopped it starts in the lower calf and then kinda moves up a little way up my leg. I guess it starts out like an ache but then kinda stings. All I know is its about 11:30 at night and now I'm afraid if it is a blood clot and will break loose before I can call a doctor in the morning. Does anyone know if this could happen that fast or does it usually not all happen that fast? I'm not sure if I'm short of breath do the whats going on in my leg or if I'm just getting anxious worrying I may not make it through the night!

7 replies...

Posted by Diane
Last Reply August 6, 2008 at 23:25
Started June 6, 2008 at 05:53

Are we interested in keeping this list going? If so, copy the list, paste it into a reply, and add your number & name at the bottom.

1.) Diane, Victoria, BC, Canada (ME) May-Thurner Syndrome
2.) Jo, Tasmania, Australia
3.) Terry, North Wales, UK
4.) Jackie, New York City, USA
5.) Donna, Washington, Pennsylvania, USA (DVT, PCD, May-Thurner)
6.) Donna #2, Scotland, UK
7.) Ann, Livingston in West Lothian, Scotland, UK
8.) Valerie, West Ireland, UK
9.) Sue, Skipton, North Yorks UK prothrombin 20210 mutation
10.) Crystal, Baton Rouge, Louisiana, USA, May-Thurner
11.) Kim, Aberdeen, Scotland, UK
12.) Gayle, Glascow, Scotland, UK
13.) Justin, Alaska, USA
14.) Sharon, Friendswood, Texas, USA (Factor V Leiden & Antiphospholipid Syndrome)
15.) Karen, Seattle, WA, USA
16.) Denis (Dero), Ottawa, Canada (Idiopathic DVT
17.) Pamela, Milton Keynes, UK
18.) Cate, Surrey, England, UK
19.) Donna #3, Wakefield, West Yorkshire, Engla... read more

32 replies...

Posted by Rosalin
Last Reply August 6, 2008 at 06:17
Started August 5, 2008 at 03:57
I've been on this forum but have yet posted anything but this is my story. I went to a local ER on a Sunday in June with pain in my lower calf. The ER doctor said I "think" you have blood clot...your left left is about 1 to 2 inches bigger than your right. Ordered blood work, and said again your blood work seems to show that you may have a blood clot. I was sent home with a RX for Lovenox injection (80 mg) and come back to the hospital tomorrow to have Ultra Sound (Doppler).

Results of Doppler, negative. Went to my general physician and since the results were negative. I was told that I was suffering from Achilles Tedonitis. I was put on Loratab for pain and inflammatory meds. Next week I wasn't getting any better, back to the GP again. Okay now he prescribed something stronger for the swelling. Next week still no better sent me to physical therapy to help since I could barely walk, they thought maybe I was suffering from Bursitis...new meds again getting worse. The GP... read more

3 replies...

22 months later...
Posted by Rui
Last Reply August 3, 2008 at 14:24
Started July 31, 2008 at 01:54
my DVT is finally gone, but leg still somewhat larger than before,especially late in PM! I went several UtraSounds with little progress and, lo and behold, it's gone! There is hope folks!

6 replies...

Clots in Leg (Left or right) ..
Posted by INFO
Last Reply August 2, 2008 at 20:15
Started August 1, 2008 at 23:02
When you ( all of you) have had an episode of a clot in your leg(s)... Has it USUALLY been one leg that gets inflamed or both... Mine has been usually in one leg.
First in the left leg last year and this year in the right leg...

2 replies...

Posted by renee
Last Reply August 2, 2008 at 07:07
Started August 1, 2008 at 10:55
hi my name is renee and im 30yrs old
i got my 1st clot when i was 19 and my baby was just 8 months... was put on warfrin for 12 months but my right leg still appears 7cms bigger then my left leg!
i then developed 2 clots in my left lung when i was 24yrs old 3 days after giving birth to my 3rd child

1 replies...

Natokinase max dose
Posted by info
Last Reply July 30, 2008 at 11:55
Started July 29, 2008 at 01:54
For those taking natokinase what dosage are you taking...

I am taking 300 mg 2X...

1 replies...

Need Help Please
Posted by Xavier
Last Reply July 28, 2008 at 20:44
Started July 28, 2008 at 19:08
My name is Xavier I am 32 7ft tall and about 480lbs now. A few years back I had gotten up close to 600 lbs. I had been diagnosed with DVT from having a clot in my leg. Just like Rob's picture on the front page my leg swelled up nicely. The clott brought Cellulitos with it, and from then on a host of all these new and strange ailments. Now about four years later. I am 100 lbs down and basically living the Warafin life.

I do not have a doctor per say I go to a Clinic. I have no insurance and the kicker I take about 13mg a day to keep me correct.

My question is an odd one, and more a blood thinner question than a clotting one. My wisdom teeth became impacted last month and I have been hunting for dental help. I was wondering how long one should be off the blood thinners before you have dental work done ?

Hope that was not a dumb question no one will give me a straight answer, they say refer to your doctor and sadly at the moment I do not have one.

Any help would be apprecia... read more

2 replies...

Post DVT....likely scenarios
Posted by Alan B
Last Reply July 26, 2008 at 12:17
Started July 26, 2008 at 08:51
I've come across this abstract from a paper outlining a study of 355 patients post DVT. I will warn you that it makes for a grim read in places but for those of you that want to know what the future MAY have in stall read:



1 replies...

Where are the replies?
Posted by John in Dallas
Last Reply July 24, 2008 at 15:19
Started July 24, 2008
Some of these threads were started 2 or 3 years ago and pop up with a hundred or so replies and the most current replies are not there. Where are these posts that they can't be accessed beyond the third page of about 50 or so?

6 replies...

Rivaroxaban study done
Posted by Emmab
Last Reply July 23, 2008 at 21:33
Started July 23, 2008 at 04:25
My hubby completed the study, and the rather large clot in his leg and knee area is just about all gone. I would say the major problem with the drug was nausea. Apparently that is what it gave him, every morning and sometimes during the day. He was on Phase III, three month treatment.
I guess it worked well enough, though we are still not supposed to schedule the surgery to fix his knee because it isnt quite gone yet.

2 replies...

helpful site
Posted by susie
Last Reply July 22, 2008 at 23:37
Started July 22, 2008 at 23:37
hi all

i found this site very helpfull and answers a lot of questions asked on thid forum ,it might help a few peeps

0 replies...

flying with a clot
Posted by Graeme Tomkins
Last Reply July 22, 2008 at 18:40
Started July 20, 2008 at 10:47
My girlfriend may have a clot on her lung, and may have to go on warfarin. If this is right will we be able to flight long and short haul?

5 replies...

Posted by Jackie
Last Reply July 21, 2008 at 18:05
Started July 14, 2008 at 19:45
Can anyone help? I've been off my coumadin treatment for DVT of my left leg for a while now (had a doppler U/S less than a month ago, confirmed DVT is gone), but my leg is so painful today!!!

I got excited with the nice weather yesterday and went for a short hike (2 hours, including resting my leg every 15 minutes or so). I was told that as long as I wear my knee brace, there's no reason why I can't do something like go to the gym, or go for a short hike. I've been back at the gym for about 3 months now slowly building back the muscle and stamina I've lost over the past year and a half, and haven't had many problems with pain.....but today, my leg is just so painful that I can't wear my comp. stockings, and I can't even wear my knee brace!
I have a desk job where I sit at a computer all day (still have another 4 hours to go!)....I have my leg elevated at my desk and have gone for a couple walks around our parking lot, but it's just not doing anything to take care of the pai... read more

6 replies...

mum leg length clot
Posted by dave
Last Reply July 19, 2008 at 21:34
Started July 15, 2008 at 23:08
hi, my eldely mum was rushed into hospital four days ago, has a clot apparently up the whole leg, her leg is really swollen and very painfull, they gave her warfarin 10mg three days, now 5mg, they investigated for lung cancer today and i dont think she has that. no idea what her inr is yet but her o2 sat was 93% on admission and is now 96%.

just have a few questions, hope someone can help?

1. how long does the leg remain painfull and swollen?

2. should her leg be elivated at this stage because it isnt.

3. shes on her bed a lot, shouldn't she bave some of those special socks on?

4. how long is the average stay in hospital?

5. with a leg length clot, how does it get better without surgical procedure?

any help appreciated....

6 replies...

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