DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Hot toes and ball of foot
Posted by Don
Last Reply July 12, 2008 at 11:57
Started July 9, 2008 at 07:25
I have DVT in thigh to knee. I now have PTS in ankle/foot. It swells and is very uncomfortable and painful as the day passes. The most annoying is the very hot feeling in my toes and ball of my foot. Anyone else with this issue?


6 replies...

anybody got some good news
Posted by susie
Last Reply July 12, 2008 at 11:30
Started July 7, 2008 at 19:55
i would like to read something positive and good anybody have some good news today!! im feeling low inr shot up and pains getting me down i know feeling sorry for myself, i think ive lost my mojo!!!!!

hope your all feeling good today :-) xx

23 replies...

Pulmonary Embolism from long haul flight
Posted by GM
Last Reply July 12, 2008 at 07:33
Started May 12, 2007 at 18:18
I am 38, was fit (regular runner, slim, and had a Pulmonary Embolism at the end of January as a result of a long haul flight. In March I had some slight swelling in my leg and after a dopler scan it confirmed that had been the original source of the clot. I was unaware of the clot in the first place. However, when it all happened I could hardly breathe, had chest pain and a terrible cough. All signs of a PE but no-one picked it up. I had been to the GP 3 times and the hospital once before I finally got admitted. By which time it was too late and I had had an embolism. The consultant said I was lucky to be alive. Info afterwards is poor. I have to be on warfarin for 6 months and 3 months in my INR levels never seem to stabilise. I'm on 7-9mgs of warfarin but it still sits below 2. I have to get the blood tests you talk of when I come off for a month but I'm pretty scared about it all. I am wearing the tens support socks. But again feel no-one helps you deal with the psychological ele... read more

8 replies...

Wrist band ID
Posted by JoeR
Last Reply July 11, 2008 at 16:31
Started July 9, 2008 at 18:43
I just ordered an ID wrist band for cycling... Looks good and could be used to wear all the time... I plan too...

Mine reads:

E# 0123456789 0123457789

If you wear one , or have a better one in mind, please let me know! CHeers! :)


7 replies...

Should I worry? Superficial thrombophlebitis
Posted by MWOOD
Last Reply July 11, 2008 at 05:01
Started July 9, 2008 at 19:03
On the inside of my left thigh, down to my knee I have a hardened vein, which appears to be the great saphenous vein. When I stand, it is hard from my knee up about 8 inches. It is dark in color, but not red, and not swollen. It's also not hot and does not hurt. I am concerned however, because it feels like there is a cord beneath the skin. I understand this is not DVT, but should I be worried and should I see a doctor? Any help would be appreciated.

6 replies...

wait a minute...I thought this was a forum
Posted by John in Dallas
Last Reply July 11, 2008
Started July 10, 2008 at 02:42
Hi Everyone,

I haven't been posting lately but I have been reading the forum on a regular basis. It has come to my attention that some of the posts have nothing to do with what the forum is supposed to be about. I thought the forum was a place to help other people gain new information, provide emotional support and be a place where we can communicate with each other because we have a specific affliction not common to most of society.

All of the posts by Sad recently were completely inappropriate and the response by everyone concerning his posts pretty much sums it up. Then came along a post by Catherine (The student who predicted she would die) on July 9th. This like the posts by Sad was a 3rd party article. If we want to read 3rd party articles, the link is sufficient for those who are interested in reading it.

The posts I find really offending are by cnzappos on July 7th concerning nike air jordan fusion shoes and DLG’s post for different brands of compression stocki... read more

6 replies...

Natural Sup with warfarin update
Posted by Joe Reganato
Last Reply July 10, 2008 at 14:31
Started July 9, 2008 at 01:44
Disclaimer: The following is my personal experience and does not infer a recommendation. Please consult your Doctor for any changes you intend to make with your medical treatment of any condition...

WEEK 3: My INR has steadily increaded. the dose this past week was raised from 4.0 mg to 4.5 MG per day ...
week 3 INR 3.3

DR & I would like to step back to 4mg day (2mg X2)...

Interesting that the last increase was 1/2 mg per day... I guess DR is more in tune with the step up... But things seem to be stable....

I have increased the Natto to 200mg twice a day...

Something to note: My clot(s) are in the right leg... recently (week 3) my leg appears normal, with NO swelling... I have a dimple test... The leg actually looks normal, however if you press your thumb into the shin bone for 5 seconds, if there is swelling there will be a well formed dimple... As of today NO dimple remains after pressing with the thumb...

OLD POST ---------------

I am currently a st... read more

5 replies...

Posted by dero
Last Reply July 9, 2008 at 19:13
Started July 7, 2008 at 16:30
Dear SAD,
You don't have to preach about DVT on this site, we know first hand about it, most of us(99.9% of us) have had either DVT or PE or both to deal with...
We do not need to see a collection of articles collected by somebody that (I'm guessing here) probably does not have DVT.
As I read the first article, I realise that so much has to be corrected in people's way of talking about DVT.
The #1 misconception is that "BLOOD THINNERS" DO NOT make your blood thinner, it has NOTHING to do with the consitantsy of the blood. Anticoagulants is the proper term to use and what it does is actually lower your level of coagulation in your blood(in other words, it makes it LESS STICKY if you don't want to use the proper terminology)
Your blood does NOT get thinner if your INR is high(5.0 for example) nor does it get thicker if your INR is low (0.5 for example) it stays the same viscosity...
If people are going to go to court, they have to use the proper terminology...
Yes I agree, it's... read more

16 replies...

blood clot?
Posted by pattymary88
Last Reply July 9, 2008 at 18:51
Started July 8, 2008 at 18:51
Is this a blood clot? Sore spot on the thigh hurts in that spot while walking. Especially when pushing off my foot. I have MTHFR and factor v leiden. No heat or swelling. These blood disorders run in the family and so do dvt's and my grandmother died of a possible massive PE. This leg has been in a boot due to nerve problems in my foot it has been off for a month. I have also had a very long drive for my vacation 2 weeks ago. Any suggestions?

8 replies...

Posted by Shana
Last Reply July 9, 2008 at 17:22
Started July 8, 2008
Is anyone taking this new medication? I read up on it here:


and see it's already being used in patients. I wonder when it will come to the US?


8 replies...

For all those hungering for DVT info--
Posted by Sharon
Last Reply July 9, 2008 at 13:00
Started July 7, 2008 at 06:50
Check out this Powerpoint presentation that is rather technical, but very thorough in covering the etiology (causes) of DVT,treatments w/ pros n' cons, complications from DVT, blah, blah, on and on...... Really good overview all in one!


7 replies...

Effect of acidity on blood coagulation
Posted by JoeR
Last Reply July 9, 2008 at 02:09
Started July 9, 2008 at 02:09

There are implications of animal testing in this article.
Do not read if you are sensitive.

0 replies...

prPoblems from Botox injections
Posted by patti
Last Reply July 9, 2008 at 01:25
Started July 9, 2008 at 01:25
Has anyone had problems after Botox injections for stroke treatment?

0 replies...

is the one-way valve ...
Posted by mtn gal
Last Reply July 8, 2008 at 08:10
Started July 6, 2008 at 22:57
Is the one-way valve in vein always damaged with DVT?

3 replies...

Posted by Where is Dero?
Last Reply July 8, 2008 at 08:08
Started July 6, 2008 at 07:35
I hope all is okay w/ Dero. He sent me a private email and I wrote back about the pain I'd been having and even baited him to chew me out fo r not going to the ER. Not like him not to respond. He has been off the anticoag since hurting his leg. I hope all is well.

Best case scenario--in addition to a glass of wine and bowl of spinach, he is having himself a mountain bike ride! I hope that is what it is.

5 replies...

High Chloresterol and Coumadin
Posted by Shana
Last Reply July 8, 2008 at 03:33
Started July 8, 2008 at 03:33
I am having my cholesterol checked soon and of course scared, though I don't eat anything to make me have HC, but my mother has it, so I could have it by default....and I'm reading all the info on statins and taking Coumadin, and getting more scared.....so does anyone out there have HC and take Coumadin too? and what do you do? or take?


0 replies...

Flight that cost a woman her life
Posted by Sad
Last Reply July 7, 2008 at 19:45
Started July 7, 2008 at 13:26
Flight that cost a woman her life
by RICHARD PRICE, Daily Mail

A keen horsewoman died from a massive haemorrhage after falling victim to DVT on a long-haul flight.

Shirley Henderson, a fit and healthy 46-year- old housewife, collapsed in agony seconds after arriving to visit her husband in Singapore.

Despite coming back to Britain and seeming to recover, she was again taken ill and died last Thursday in hospital.

Her husband Alistair, who works in the Far East as a senior engineer, said: 'The airlines are not prepared to admit that there is a link between deep vein thrombosis and long-haul flights.

'But why did my wife - an extremely fit, healthy woman - suddenly collapse when she came off an airplane?

'Shirley had never been ill before in her life. I am utterly convinced economy class syndrome killed her and I want to know why.

'She effectively bled to death. I still haven't come to terms with it. We were together for 30 years and in all that time she was a fi... read more

1 replies...

How chocolate could save your life
Posted by Sad
Last Reply July 7, 2008 at 13:11
Started July 7, 2008 at 13:11
How chocolate could save your life on long-haul flights

A bar of chocolate could protect against deadly blood clots such as those suffered by airline passengers, say scientists.

They have discovered that chocolate can thin the blood in the same way as aspirin and suggest travellers consider eating it before they embark on a long-haul flight.

Researchers have also found further evidence about the way chocolate protects against heart disease.

Eating it as part of a balanced diet could help maintain a healthy heart and circulation into old age, they claim.

The secret of the beneficial effect is chocolate's richness in healthy chemicals called flavonoids, also found in red wine, fruit and tea.

Airline passengers can suffer from large blood clots or deep vein thrombosis (DVT) because these sometimes form in the leg after long periods of immobility. If the clot travels to the heart or lungs, it can prove fatal.

The study showing that eating chocolate... read more

0 replies...

DVT in first class
Posted by Sad
Last Reply July 7, 2008 at 13:03
Started July 7, 2008 at 13:03
DVT in first class
by NILUFER ATIK, Daily Mail

As John Price organised a holiday in America to celebrate his wedding anniversary he was well aware of the danger of deep vein thrombosis.

He booked first-class seats for him and his wife Ann as a precaution against what has become known as 'economy-class syndrome'.

But last night the printing firm boss was in mourning. Despite travelling in luxury, Ann, his wife of 38 years, fell victim to DVT on the return trip.

After arriving home she suffered an attack of breathlessness and collapsed. Doctors were unable to revive her.

The mother-of-three had suffered a blood clot which is believed to have moved from her leg to her lungs.

DVT has become closely associated with long-distance travel in cramped economy seats, which is thought to curtail blood circulation.

But some experts are now warning-that it could be just as likely to occur among first-class passengers, or perhaps even more so because the extra comfort reduces... read more

0 replies...

Jesus died of blood clot, says researcher!
Posted by Sad
Last Reply July 7, 2008 at 12:56
Started July 7, 2008 at 12:56
An Israeli researcher has challenged the popular belief that Jesus died of blood loss on the cross, saying he probably succumbed to a sometimes fatal disorder now associated with long-haul air travel.

Professor Benjamin Brenner wrote in The Journal of Thrombosis and Haemostasis that Jesus's death, traditionally believed to have occurred 3-6 hours after crucifixion began, was probably caused by a blood clot that reached his lungs.

Such pulmonary embolisms, leading to sudden death, can stem from immobilisation, multiple trauma and dehydration, said Brenner, a researcher at Rambam Medical Center in Haifa.

"This fits well with Jesus's condition and actually was in all likelihood the major cause of death by crucifixion," he wrote in the article, based on religious and medical texts.

A 1986 study in the Journal of the American Medical Association mentioned the possibility that Jesus suffered a blood clot but concluded that he died of blood loss.

But Brenner said research in... read more

0 replies...

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