DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Posted by Moira
Last Reply June 30, 2008 at 21:17
Started June 30, 2008 at 17:01
I posted before this one, just wondering how common upper body DVT actually is as I can't find much info on it? Has anyone else had one? Would be interested to learn more. Many thanks.

2 replies...

reply to joe
Posted by susie
Last Reply June 30, 2008 at 21:12
Started June 29, 2008 at 21:14
thanks for replt joe, have you had dvt for long ? did it make you feel like not yourself? or is the the warfarin

2 replies...

Posted by pauline
Last Reply June 29, 2008 at 22:31
Started June 28, 2008 at 07:39
Does anyone know whether you can get water rention when you have DVT's, I seem to have this. Can you taker water tablets at the same time as Warfarin? any info would be greatly appreciated.

6 replies...

Back Rubs/PE's/Fever
Posted by Shana
Last Reply June 29, 2008 at 19:54
Started June 29, 2008 at 14:06
Before I head to the doctor tomorrow, because I feel generally OK, I wanted to ask this question. I had a knot , it's my stress point,under my right shoulder blade, and usually when my husband rubs this out it goes away. Sometimes it radiates to the front of my chect (where the PE was), but that also goes away after the rub.

Well, this time, it made my back really sore, which is expected, my chest really sore, which OK I understand, it is getting better little by little (it's been about 3/4 days now) but I've had low/moderate fever ever since and feel kinda sick, thinking it was the flu or eating some bad carrots on Wednesday.

But then I was just reading that a fever can be from a PE or DVT, and I'm wondering, did rubbing my back cause another PE in my chest? I though maybe it just pulled the area the original PE was in, cause that does get sore sometimes if I carry anything heavy (I changed to a lighter purse this week too).

I can breathe OK, but I have to admit it's sor... read more

4 replies...

Posted by peter
Last Reply June 29, 2008 at 07:06
Started June 27, 2008 at 06:19
Has anybody heard of the EKos Ekosonic device for DVT..?

2 replies...

back pains
Posted by susie
Last Reply June 28, 2008 at 04:01
Started June 26, 2008 at 21:48
hi just a quick question had my dvt 4 weeks now and im on wafarin but im having more pains in calf now than when i first had dvt ? and also lower back pains ? anyone else going through same

3 replies...

DVT's & Amusement Park Rides
Posted by Donna
Last Reply June 27, 2008 at 23:37
Started May 2, 2007 at 17:19
Does anyone know if you are allowed to ride amusement park rides after suffering from a DVT? Does it increase your chances of getting another one?

8 replies...

Posted by Si
Last Reply June 26, 2008 at 23:22
Started June 26, 2008 at 22:58
Ok, so it's been over a year since my original DVT and PE's.

However, the last couple of days the same leg has been aching in reasonably the same place, but not the 'pulled' muscle behind the knee feeling I had when it was an actual DVT, but it is an uncomfortable ache. The calf area is looking swollen but it is always bigger than my other leg (since the DVT), kinda like it has fluid retention.

I had a milder aching version of this a few months ago and went to A&E with it. The calf was bigger than the other (and due to my history + other things ) I had to have the stomach injections over the weekend, plus a couple of days until the the ultra-sound peeps could fit me in. Turns out it was nothing, just a bit of Post Thrombotic Syndrome, no clot.

I'm hoping this is the same, but as I said above, my calf is still swollen and the aching is worse. There is also a vein on my foot of the effected leg that is looking rather angry (swollen).

I'm really... read more

2 replies...

Length of time to clear
Posted by Merv
Last Reply June 26, 2008 at 03:00
Started June 25, 2008 at 03:09
I have had DVT since May 1st and on cumidin. I had a dopler June 22nd was told only slightly better. How much time does it take be entirely clear?

5 replies...

DVT and surgery
Posted by Pat
Last Reply June 25, 2008 at 07:47
Started May 27, 2008 at 06:15
Hi everyone,

I'm new here, so I'll give a little background. I am a 48 year old female. I have Rheumatoid arthritis which affects my feet and ankles mostly. I am on Enbrel for my RA since about 1998. At one time, I was on Prednisone also, and due to my RA, I am very limited in cardio workouts, though I used to bike, hike and do strength training religiously. Between Prednisone and RA though, I gained a ton of weight. At 5'6", I am 250 lbs. :-(

I had a DVT/PE on 9/11/06, a day I won't soon forget. About a month earlier, I noticed a deep ache in my left leg. It wasn't red or swollen at all....just this incredible ache. I thought it was a pulled muscle. I knew nothing about DVTs. I actually had someone massaging my calf because it was so painful! After several weeks of pain, it finally dissapated and I felt pretty good. I had an appointment with my RA Dr and mentioned this to him and since I had read up on things, I wondered if it could be a DVT. He begrudgingly sent me for an ... read more

11 replies...

flying after DVT
Posted by edie
Last Reply June 24, 2008 at 16:43
Started April 16, 2007 at 17:58
I need help, was diagnosed 5 days ago with DVT and am supposed to take 2 1/2 hour flight 3 days from now while still on Lovenox, MD won't give clear answer if ok to fly or not.... any answers or positive experiences?

14 replies...

Pycogenol for DVT Prevention
Posted by Arrow
Last Reply June 24, 2008 at 03:11
Started June 24, 2008 at 03:11


More Studies:

read more

0 replies...

lower back pain and coumadine
Posted by reyomj
Last Reply June 23, 2008 at 16:25
Started June 21, 2008 at 02:22
My 31 year old daughter (mother of 4) was just put on coumadine 3 weeks ago after being released from the hospital with blood clots in both lungs and in the leg that had been broken. She was taking lovenox injections for 2 weeks, then they stopped those when her levels came back fine last week. Today her level was at 4 and they are changing her med level again. She just called and is complaining of lower back pain. Is this a normal side affect?

3 replies...

my son had dvt in R arm many complications
Posted by kim
Last Reply June 23, 2008 at 15:18
Started June 11, 2008 at 18:41
Last June my son had a blood clot in his right arm.He was in the hospital a week on heparin drip.The Dr. tried 3 attempts to remove it.There was no success.He was discharged on coumadin.This past Nov they removed part of the right upper rib.After two days at home back on coumadin and levenox he had bleeds and his lung collapsed.He went into ER surgery where they place drain tubes to remove all the blood.Right after that he had blood clots form in his chest.Then he had another surgery and more drain tubes.He was released and cannot have coumadin.There was a clot remaining in his chest and Drs. said his body would take care of it.Last check up 5 mos. ago the clot had shrunk 50%.Now in the last two weeks he has had high blood pressure.The left arm veins have been swollen on and off.The right arm veins have been bulging ever since.The veins in his chest are also protruding.We called the Dr last Fri. He said for him to go to ER.HE was sent right home saying one high reading of his blood ... read more

4 replies...

Low dose warfarin NE JM
Posted by Joe REganato
Last Reply June 23, 2008 at 12:43
Started June 21, 2008 at 20:33

good reading, if your considering it...


3 replies...

Home monitors
Posted by joe reganato
Last Reply June 21, 2008 at 16:09
Started June 19, 2008 at 18:53
Is any one doing their own testing at home... I am looking at the Roche Coagucheck monitor...

4 replies...

Will this ever go away???
Posted by Sarah
Last Reply June 20, 2008 at 19:07
Started June 19, 2008 at 16:10
I am a 27 year old female who was recently diagnosed with DVT. It nearly killed me before the doctors properly diagnosed me. I was in so much pain that I couldn't even walk and they kept telling me it was a sciatic nerve in my back. About a week later I couldn't take it any more and I went to the ER for a second opinion and that is where they found the clot. It went from my ankle to my kidney. They put an IVC filter in that night and by the next morning the filter was full of broken pieces of clot. (So I would have been dead by morning had I not gone to the ER)

It has been about 7 months now, I take 10mg of Warfarin a day. I guess there is something in my blood that causes it to clot and I will have to take thinners for the rest of my days. :( The worse part is I hate needles and I have to get blood drawn like once a week at least.

My questions are: Could this go away if I got skinny again? Does the pain in my leg ever go away??? And has anyone else had the IVC filter??? I we... read more

7 replies...

What Hurts The Most
Posted by Dazed
Last Reply June 20, 2008 at 07:18
Started June 20, 2008 at 07:18
I can take the rain on the roof of this empty house
That donít bother me
I can take a few tears now and then and just let them out
Iím not afraid to cry every once in a while
Even though going on with you gone still upsets me
There are days every now and again I pretend Iím ok
But thatís not what gets me

What hurts the most
Was being so close
And having so much to say
And watching you walk away
And never knowing
What could have been
And not seeing that loving you
Is what I was tryiní to do

Itís hard to deal with the pain of losing you everywhere I go
But Iím doiní It
Itís hard to force that smile when I see our old friends and Iím alone
Still Harder
Getting up, getting dressed, liviní with this regret
But I know if I could do it over
I would trade give away all the words that I saved in my heart
That I left unspoken

What hurts the most
Is being so close
And having so much to say
And watching you walk away
And never knowing
What could have been
And ... read more

0 replies...

New clot appeared while on warfarin for 6 mths
Posted by Leah OZ
Last Reply June 20, 2008 at 05:58
Started June 17, 2008 at 23:45
Hi my name is Leah and I am a 32 year old female. I was diagnosed with a clot in my left leg in Jan this year and have been on warfarin ever since. I had a fall on the 14th May and dislocated my shoulder and I need surgery to repair some of the damage. My surgeon, like many here where I live will not operate while i'm on warfarin, so he sent me for an ultrasound yesterday to see if the clot had dissolved...It hasn't and I now have another clot as well. I cried for hours when I found out, and I am terrified. I am about to see a haemotologist for the first time as up until now I have been under the care of my general practitioner. I am getting married in January and I am so worried as to what has caused another clot to form while I am already on warfarin...why do they tell you it won't happen? I am depressed and this morning suffered an anxiety attack. Like Jackie I am keen to start a family in the near future. The fear of what is causing these clots is overwhelming.


3 replies...

Sharon, where are you?
Posted by Diane
Last Reply June 20, 2008 at 05:16
Started June 4, 2008 at 04:09
Hi Sharon, we haven't seen you on this forum all day (June 3rd) and we know you aren't very active yet, so where are you? We tend to worry a bit since you were on the computer every day during your hospital stay. Hope everything is okay.

23 replies...

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