DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 216 of 237
Warfarin/coumadin consistency?
Posted by Sue
Last Reply June 7, 2008 at 22:46
Started March 28, 2008 at 19:25
I've posted this on the end of a thread about nattokinase but just wanted some advice/comments about the consistency of warfarin in terms of difference between drugs companies. This week my prescription included two different brands of 3 mg tablets (taking 6 mg daily). I found with thyroid meds I struggled with anything other than the generic and don't want to make a fuss unecessarily but would prefer to stick with a brand from one drug company to avoid complications. any thoughts?

6 replies...

Interactions = Worry
Posted by James
Last Reply June 7, 2008 at 07:09
Started June 6, 2008 at 15:07

I was recently treated in hospital for a DVT in my leg and while I was in hospital I asked to be put on NiQuitin Clear patches to help me stop smoking as well. I was given warfarin to prevent clots, and allow my blood to not clot as much, and before I left I was given Niquitin clear patches.

I have been using the NiQuitin patches since I left hospital and also Fluoxetine (one 20mg tablet per day) to help me with depression, as well as Diazepam for anxiety, I have only been taking one 2mg tablet of diazepam per day, and not three as prescribed as I have found I don't need to take that many.

For the past five or so days, I wake up in the morning with a very strong taste of blood in my mouth, and I can spit up blood in my spittle. Initially I thought it may be due to my gums bleeding although the blood doesn't seem to occur as much during the day, I do not have any other symptoms that you may find with warfarin use or overuse, such as pink or dark blood in the urine, or stools.... read more

4 replies...

coumadin therapy confusion
Posted by Mtn gal
Last Reply June 7, 2008 at 01:09
Started June 3, 2008 at 01:18
Had DVT left leg Apr 20, started Lovenox x 1 wk and Coumadin. I have been on 4mg Coumadin since. I am on blood draws every 3 wks. How do I know if I am getting better? Doc says she is pleased but what exactly is MD looking for? If she reduces my coumadin, does that mean I am getting better?

Today after blood draw MD said to take Coumadin 2mg only on Tuesdays and 4 mg all other days. Why? It is all so confusing. I feel fine and my leg looks normal. I am active for 62 yo. Just trying to understand how this therapy works. Thanks

4 replies...

May Thurner's Syndrome
Posted by Hope
Last Reply June 6, 2008 at 19:54
Started June 6, 2008 at 14:11
My daughter has MT Syndrome and we live in the Mojave Desert, Southern CA. I need to find a vascular doc as the one we had moved. Anyone have any suggestions? Thank you

3 replies...

Watch this video about blood clots
Posted by Dazed
Last Reply June 6, 2008 at 02:33
Started June 5, 2008 at 04:18
http://videos.howstuffworks.com/multivu/1858-blood-clots-video.htm

New research in deep vein thrombosis (DVT) treatment shows that combining a clot-dissolving drug with a clot removal device helps to remove blood clots in the body faster and reduces patient risk for pulmonary embolism and disability. Two million Americans develop DVT each year, a condition widely publicized following the death of NBC correspondent David Bloom in Iraq in 2003. See how blood clots work in this video from MultiVu.

4 replies...

Rivaroxaban updates
Posted by Tom in Connecticut
Last Reply June 5, 2008 at 17:28
Started June 4, 2008 at 14:47
Bayer Pharma/Johnson & Johnson's will file an application to bring their new oral anticoagulant, Rivaroxaban, to the FDA for approval in third Quarter 2008.

The following press release explains more:

http://www.eurekalert.org/pub_releases/2008-05/epr-rpi053008.php

This places Rivaroxaban ahead of schedule since it was originally anticipated that trials would continue to 2010. I'm curious if Arixoban (BMS Pharma) and Dabigatran/Praxada (BI Pharma) will be able to conclude their trials early.

3 replies...

Genetic Non-Discrimination Act (GINA)
Posted by Tom in Connecticut
Last Reply June 5, 2008 at 16:02
Started June 5, 2008 at 16:02
The President signed a Bill prohibiting genetic discrimination in the workplace. The Genetic Information Nondiscrimination Act prohibits employers from discharging, refusing to hire, or otherwise discriminating against employees on the basis of genetic information. It applies to employment agencies and labor unions as well.

More information regarding this Act can be found at:

http://nattinfo.org/news.htm

One key note, members of the military who have a known thrombophilia, regardless if they have had an clotting incident, can be medically discharged from the service. Anything is waiverable in the military but I'm curious to see how DoD will revise their medical guidance concerning this. Will keep those interested posted on what I find out.


0 replies...

not diagnosed yet
Posted by k
Last Reply June 5, 2008 at 14:07
Started June 3, 2008 at 15:32
Hi,
I came across this forum and hope you can help me.
I just turned 20 and am on oral contraceptives.
I flew home from Europe 3 days ago and since then have been experiencing a feeling of tightness in the back of my left calf. Being prone to worry I got myself to a walk in clinic this morning (the doctor saw no swelling or severe pain but wanted to make sure it wasn't DVT) had a blood test to see how thin or thick my blood is, and scheduled an ultrasound for tomorrow.
I was also prescribed low dose coumadin as a precaution.
My question is, since I was planning on celebrating my birthday on saturday and having maybe 4 drinks, is that safe?
I haven't taken the coumadin yet (I am meant to take it tonight), but I also am worried about taking a blood thinner when I am not sure I need it.
How soon do results usually come back from ultrasounds? and if they find out I don't have DVT and can stop taking the coumadin, will taking it maybe 3 days in a row and then getting to stop ha... read more

9 replies...

Painfull stocking
Posted by Mick C
Last Reply June 4, 2008 at 12:46
Started May 21, 2008 at 10:41
I broke my leg 16 months ago and had 2 operations to repair the fractures. 3 months later I got DVT in the same leg.
I am off Warfarin but still wear a type 2 stocking.
The problem I have now is that the stocking, which is made to measure, is putting too much pressure on the fracture site.
Can I stop wearing it or as a compromise could I reduce the compression to type 1

3 replies...

SHARON
Posted by Tom in Connecticut
Last Reply June 3, 2008 at 21:01
Started June 3, 2008 at 21:01
Sharon, check your mailbox over at Dero's http://lifeafterdvt.forumotion.com website.

Thanks!

0 replies...

general quiries
Posted by wendy
Last Reply June 3, 2008 at 18:02
Started June 3, 2008 at 15:56
My partner has (yesterday) been diagnosed with a blood clot in there leg (thigh) after having badly broken a bone in there foot (approx 7wks ago). They are now on heparin injections and warfarin, till the corrct level of warfarin takes effect.
There first pain started in the back of the leg (which we thought was a pulled muscle). Then there was a severe pain in their right side (same side as broken foot), which doctors guessed could be a kidney infection (even though their urine was CLEAR). Then that pain went and moved to the left side, beneath breast (again we thought it was a pulled muscle!) However, upon a routine check with a GP(which was really only to provide a water sample-as instructed from the GP who had guessed it could be a kidney infection), they were suspicious (and rightly so!) then instructed us to go home and wait for a phone call-to confirm an available bed, at the A&E assessment unit and something to do with a P.E (which we did not understand was initials for Pul... read more

1 replies...

DVD and Nutrition
Posted by Dazed
Last Reply June 3, 2008 at 02:16
Started June 3, 2008 at 01:02
A few interesting articles:

Six tomatoes can prevent you from getting DVT
http://www.dailymail.co.uk/health/article-390221/Six-tomatoes-prevent-getting-DVT.html

..researchers have found that the yellow fluid that surrounds the seeds in tomatoes has anti-clotting properties.

Aspirin can prevent them forming by thinning the blood - but doctors are wary because it can also cause bleeding in the stomach.

The research has shown, however, that tomatoes contain a unique chemical which similarly thins blood - without causing any harm.
----------------------
Tomato Juice to Prevent Blood Clots
http://www.nowfoods.com/?action=itemdetail&item_id=43840

Tomatoes reduce the tendency of blood platelets to clump together and form clots that can lead to strokes, heart attacks and ... read more

2 replies...

New therapy effectively treats deep vein throm
Posted by Dazed
Last Reply June 3, 2008
Started June 3, 2008
New therapy effectively treats deep vein thrombosis
Source:
Date: 29 January 2008
A novel treatment for blood clots in the legs appears to be safe and effective, according to a pilot study[1] published in the February issue of Radiology. The study found that injecting or 'lacing' the clot with a fiber-binding thrombolytic agent effectively treats deep vein thrombosis (DVT) and reduces the risk of subsequent recurrence or bleeding.

"This treatment regimen is able to clear blood clots rapidly and safely, restoring blood flow in the veins of the lower leg, and the results are durable," said lead author Richard Chang, M.D., chief of the interventional radiology section of the Department of Radiology, Clinical Center, National Institutes of Health (NIH), Bethesda, Md.

DVT is a common and serious health problem in which a blood clot, or thrombus, form in the deep veins, particularly in the lower leg or thigh. Complications occur when the clot breaks off and travels to the lungs, ... read more

0 replies...

General vein concern...!
Posted by Scarlet
Last Reply June 2, 2008 at 16:38
Started February 28, 2008 at 07:08
Hi all! I'm so pleased to have found this site... personal circulation/vein problems are almost non existant on the web, and there's so many horrific stories on here! It's unbelievable!

Anyway just to give some background info about me - I'm 18 years old, live in the UK, and I'm a pre-op transsexual (male-female).

My concern is that I've had visible thread veins all down the outer sides of my calves since I was 12, and in the last couple of years all the superficial veins in my calves STICK OUT, I don't think they're varicose, but they bulge out and are blue - they ache and feel heavy and painful after long periods of time standing.

There's no history of blood clots in my family, but an aunt has varicose veins, and one of my grandmother's did too before she died. My mother also developed prominent leg veins after her 2nd child.

My concerns become greater because of how much worse my legs have become in the past couple of years - my legs have never swelled (only the veins... read more

7 replies...

I thought I was having a PE...
Posted by dero
Last Reply June 2, 2008 at 08:12
Started May 31, 2008 at 02:19
For the last few days, I have been having these chest pains and shortness of breath (yes the PE alarm were on in my head)
But today was my 9 month anniversary check up, I mentioned it(chest pain) to my hemaetologist and she took no chances, booked me an appt for a CT-scan and d-dimer test. 4 hours later, they all came back NEGATIVE!!!!
I still need to get an apt with my GP to find out what those pains are...
But PE is out of the radar scope, YAYYYYYY!!!!

13 replies...

Where's Sharon today?
Posted by dero
Last Reply June 1, 2008 at 05:58
Started May 29, 2008 at 15:54
Hmmm, she has not been present on site today, hope things are ok...

15 replies...

Compression sox
Posted by Char
Last Reply May 31, 2008 at 12:41
Started May 29, 2008 at 18:45
I will be going to a Vein Clinic June 3, for Compression hose and a foot varicose vein. I am wondering about the support hose pressure in mm. I am thinking 15-20 mm Hg; as if they are too tight I would not wear them. I see there is even a smaller pressure size at 8-15mm. Anyone have any experience with compression sox? Is sizing done my calf size? Ankle to knee or ankle to groin support hose?

5 replies...

She's doing well,.
Posted by Mike, Sharon's Husband
Last Reply May 30, 2008 at 22:31
Started May 28, 2008 at 06:00
Hi All--

I'm not the writer Sharon is and am very tired, but she asked me to let you guys know how she's doing. She's in pain of course, but doctor said it all went very well. She is back on Arixtra an hour after surgery so is protected. She can fill in more detail tomorrow. She's actively pressing the button on the morphine pump. Hopefully, she'll be able to sleep. Thanks for all the support, I know she really values all of you and the opportunity to participate in this forum. Keep praying for no clots! Thanks, Mike

14 replies...

PowerPlates
Posted by Katie
Last Reply May 30, 2008 at 14:52
Started May 20, 2008 at 17:35
Hi
I got a large DVT in Dec 2007 - clotted from knee to just above groin. I am on Warfarin for six months so am coming off next month. Before I got a DVT I always wanted to try out PowerPlates, I went to a local place a couple of weeks ago and explained that I had had a DVT but they reassured me about the benefits to the circulation and how in fact lots of studies have shown it really helps vein problems etc and I did six classes and felt absolutely fine doing them. I then told my boss that I was doing them and he said was I 100% sure it was OK for me to be doing them... I then discovered on the internet it does say that it could be a problem. I called the place where I was meant to have them and spoke to the owner - she has now advised me to ask my doctor, (change of attitude, prob freaking about law suits!) which I will do but was just wondering if anyone else had used them?
Thanks
Katie

4 replies...

PATIENT ASSISTANCE PROGRAMS FOR ANTICOAGULANTS
Posted by Tom in Connecticut
Last Reply May 30, 2008 at 04:01
Started May 29, 2008 at 19:25
Here is a list of Patient Assistance and/or Reimbursement Services for some of the Anticoagulant Medications available. Just wanted to share this list with you.

LOVENOX® Patient Assistance and Reimbursement Services Hotlines
Monday – Friday, 7:30 AM – 9:00 PM (EST)*
On call Saturday – Sunday, 9:00 AM – 5:00 PM (EST)*
Phone: 1-888-632-8607
Fax: 1-888-875-9951
* Except holidays.
Website: http://www.lovenox.com/consumer/resources/reimbursementServices.aspx

FRAGMIN® Patient Assistance and Reimbursement Services
Eisai's Pilar Penaloza, District manager; critical care/oncology. Eastern Region. pilar_penaloza@eisai.com. tel: 919-219-5569.
Website: http://www.fragmin.com (currently under reconstruction)

ARIXTRA® Patient Assistance and Reimbursement Services
Monday - Friday, 8am - 8pm Eastern Time.
Phone Numbers: Fo... read more

3 replies...

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