DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 217 of 237
Posted by Tom in Connecticut
Last Reply May 29, 2008 at 18:42
Started May 29, 2008 at 18:07
In the U.S, The Centers for Medicare and Medicaid Service (CMS) has proposed to stop paying for nine hospital associated conditions which it feels can be prevented. Both DVT and PE are listed as conditions where CMS will no longer pay hospitals if either condition happens as a result of the hospital stay. Read more about this ruling at:


Basically according to Medicare/Medicaid, a DVT or PE "should never" happen to a patient during their hospitalizing (provided that's what the patient is there for to start with). Hospitals would not be allowed to charge treatments as a "complication condition".

Here is the April press release from CMS. Please note Venous Thromboembolism (VTE- blood clots in veins) is also listed as a "should never happen" event:


What's you... read more

3 replies...

To Sharon
Posted by John in Dallas
Last Reply May 29, 2008 at 14:06
Started May 23, 2008 at 09:24
Hi Sharon,

I know you've been involved with the forum for a long time. Has anyone ever met or talked to anyone outside the forum and if so how do you do it?

Sometimes I would like to talk to someone rather than go through the posting routine. Would it be acceptable to give out an e mail or a real phone number to contact someone?

14 replies...

Hey ya'll--I'm in the hospital
Posted by Sharon
Last Reply May 28, 2008 at 02:28
Started May 26, 2008 at 04:33
I'm going to keep this brief so I don't lose it again. I'm in Methodist Hospital in Houston--only 2 days past last year's anniversary of entering w/ DVT. This time, I shattered my ankle. I blacked out on my stairs, was aware of falling, but couldn't see anything. I sprained my left ankle, but shattered the right. I have to have pins. screws and plates put in it to hold it together. The doc says there is no support of the weight below my ankle--meaning only flesh is holding my foot onto my leg. YES, IT IS THE DVT LEG. Anyway--they will do surgery on Tues or Thur. next week once they have permission from the hemo and my PCP. I have the best orthopedic surgeon w/ an ankle specialty in the med center. I'll write more explanation tomorrow, but want to send while I'm still connected. Pray I do not clot, please. I trust that whatever God allows in my life is for a purpose and believe it or not, I have peace. I would be lying if I said I was not perplexed about the purpose at this point, bu... read more

19 replies...

A very funny story
Posted by Dawn
Last Reply May 28, 2008 at 02:23
Started May 17, 2008 at 01:38
Hello everyone,
I was diagnosed with a clot in my leg after surgery 3 weeks ago. I have done the lovenox shots and now coumadin. When I was told that I had a dvt in my thigh I was very scared and very very upset. I have been going through such anxiety. I'm sure all of you know the things that go through your head on a daily if not hourly basis. Yesterday I woke up and my leg was killing me. The pain was much more than it had been so far. I got even more scared. My gp who has been handling my treatment was not in the office so I decided to contact the cardiologist who did my surgery and he was more than agreeable to send me for another doppler to make sure it hadn't gotten worse.
I went for the doppler and explained to the tech what was going on. She pulled my prior doppler and I asked her if she saw the clot in my leg.(My gp was actually feeling for the clot in my leg right above the knee). She said "well if thats what you want to call it. It is so small that I had a hard time f... read more

10 replies...

Not All Veins Dissolve
Posted by PJ
Last Reply May 27, 2008 at 19:14
Started May 27, 2008 at 14:53
Unfortunately, this is something I've finally had to accept. I went for my second opinion and with the exception of about a 2" clot in the popliteal vein behind the knee, the DVT is completely dissolved and I have an otherwise completely healthy leg (thankfully). I guess at this point (19 months after first being diagnosed with a DVT, knee to ankle, right leg), the clot is like cement behind my knee so there is no risk of it breaking off.

This vascular surgeon agreed w/my GP and doesn't feel the low dose coumadin therapy gains me anything and that I'd be better off doing an aspirin a day at this point (the vascualr surgeon who treated me recommended I stay on a low dose coumadin w/no INR to maintain). He also recommended that my GP write me a prescription for Lovenox (or another new blood thinner which I can't remember the name - I think it starts with an A) to take before long flights. That put my mind at ease because I do have to travel for work on occassion.

So, compre... read more

1 replies...

Does this sound like a clot?
Posted by Kristin
Last Reply May 27, 2008 at 08:22
Started May 27, 2008 at 02:37
Hello everyone -
I'm probably worried over nothing, but better safe than sorry. I have had a very mild leg "cramp" for about the last 5 days, which I don't even really feel unless I flex my foot. It is right around the base of the calf muscle. I can't think of what I might have done to have caused it, though. Other than that, I don't have any symptoms (no swelling, no heat, no redness). However, the fact that it's been hanging around for a week now kind of concerns me.

I am 33, female, quit smoking 8 years ago, and unfortunately gained quite a bit of weight about a year and a half ago. (At 5'5", I weigh 210 pounds right now).

Does what I've described sound like cause for concern to those of you with experience here? I don't have health insurance, so I'm hesitant to visit an ER for such a mild (albeit, nagging) pain...

Thank you!

8 replies...

pregnancy after dvt
Posted by lyndsey
Last Reply May 25, 2008 at 22:44
Started May 24, 2008 at 22:47
3yrs ago i had an emergancy c-section after 2days of being started off.a week later i couldnt breath.i had dvt/pe.i nearly died.i now want to get pregnant again but im worried it will happen again,maybe be even worse second time.can anyone tell me the procedures and is it safe to take medication for dvt while being regnant.thanx

2 replies...

Age groups
Posted by Char
Last Reply May 25, 2008 at 22:24
Started May 22, 2008 at 12:33
Seems like there are many young people posting at this awesome active site, like to find out how many of you are in the over 60 group. That is were I am and had a later onset of DVT/PE than my Mother and Grandmother (late 40ís, eary 50's). Therefore at what age groups are all you people at this site??

21 replies...

bad treatment or is it normal?
Posted by shaz uk
Last Reply May 24, 2008 at 22:25
Started May 4, 2008 at 19:52
hi was diagnosed with possible dvt 10 weeks ago when i was 3 weeks pregnant, no scan or proper exam just given high strength fragmin to inject daily. given a scan 2 weeks later which revealed dvt in femoral artery going from groin to ankle (worst pain i have ever ever had). very next day same pain and symptoms in other leg told docs but it was dismissed. as from 3 weeks ago i am no longer pregnant and now have to wait another 2 weeks before being seen at the warfarin clinic for the first time. in the 10 weeks i have had dvt i have been offered no blood tests, do you need blood tests while on fragmin? i went to GP to get a repeat prescription for fragmin and was told the PCT will no longer allow GP to prescribe fragmin, has anyone else come across this? been told to contact hospital for more medication but as i have not been seen at the clinic yet they do not want to know and referred me back to my GP who i will be seeing on Tuesday, i only have enough jabs left for 3 more days sure... read more

13 replies...

Posted by sue c
Last Reply May 23, 2008 at 17:40
Started May 22, 2008 at 21:14
Hi Everyone

can anybody clear something up for me, i keep reading what seem like conflicting comments im really starting to think it depends who your dr is.

Some people are being allowed to fly because of various reasons ie finished course of warfarin,or on warfarin so should be ok etc.


The reason im asking is because i had my dvt 12 months ago and am still taking warfarin , i have a scan every 3 months and just like in january i have been told that 3 out of the 4 veins in my calf are still totally blocked ,i see my consultant next week and i suppose i am going to get the same reply as i did in january NO you cannot fly but after reading some of the posts im sure some of you must still have blockages and are being allowed to fly can anybody give me some suggestions on questions i should be asking the dr next week

Many Thanks

11 replies...

not sure
Posted by delia
Last Reply May 21, 2008 at 07:40
Started May 20, 2008 at 18:39
heya the pain in my leg seems to now also be in my thigh i am going to see my docter on friday i saw him before and he said i was fine and he said i have no risk factors for dVT but it just doesnt feel right. I just wandered if anyone could tell me what there pain felt like when they had a DVT.And if the DVT is bigger are the symptoms generally worse? Can you live with an untreated DVT?

1 replies...

Spider Veins
Posted by Missy B
Last Reply May 20, 2008 at 21:53
Started May 10, 2008 at 01:36
My name is Missy, I am 18 years old and found out that I had May-Thurner Syndrome in March of 07, when I was 17. I had pains in my lower left back/upper left butt for about 2 he clots in both legs. I was admitted and put on heprine rightaway. I had a CAT scan done that night where they found the blood clots in each lung and then saw how my vein was over lapping my artery. I had a dvt in my left leg from my belly button to my foot, a blood clot in my upper right groin and a PE in each lung. I was treated with Heprin, Lovenox and Coumadin and sent home 3 days later. After a week of no improvement AT ALL, my doctor told me of a new procedure being done to remove blood clots. It was done threw interventional radiology and I just found out from my interventional radiologist(Dr. Sewall) that he told them as soon as I got to the hospital that I needed this procedure done, but they said no that coumadin is the way to treat it. They had to call a huge meeting at my hospital with... read more

8 replies...

not sure
Posted by delia
Last Reply May 20, 2008 at 16:24
Started May 20, 2008 at 16:24
My pain seems to be now in my thigh to however it is still not severe i am going docter on friday because i am not sure what it it is ,he said he thought i was fine and he said i have none of the risk factors of a Dvt? I know everyone is different but I just wandered if anyone could tell me the pain they experienced with Dvt and if that pain got really bad as the clott spread. Are symptoms more severe with a bigger clott? And can you live without treatmentm, doed you body break it down?

0 replies...

2nd DVT- Leg Damage and SSI
Posted by Randy Schneider
Last Reply May 19, 2008 at 11:29
Started March 22, 2008 at 17:08
This is my first time posting anything about this to anyone so bear with me if it seems a bit convuluted. I am a 24 year old man in Wisconsin and, as of a couple months ago was diagnosed with DVT for the second time. In addition to the clots, which I am now on Warfarin (again) for, I have several of the other symptoms constantly: swelling/brusing, leg pain, etc. I've all but lost feeling in my foot and have started to get to the point where the skin on said foot is deteriorating. The doctor I have been seeing, who I am now switching away from, continually sent me back to work despite the fact that my legs are swollen, I often need a cane to get around, etc... and did so without any sort of weight restriction (I move furtniture for a living... thankfully the bosses have been giving me time off). DVT runs in my family (though according to initial tests, I do not have Factor V Leiden), I know about the increased risks and the pain and other side effects are getting me to the point wher... read more

6 replies...

Was just diagnosed- now what? Help!
Posted by Erin
Last Reply May 19, 2008 at 06:37
Started April 5, 2007 at 13:42
I fractured my ankle on Mar 24th. A week later, my calf began aching. On Apr 3rd the Orthopedic Dr. sent me to the ER to check for a blood clot. I have a DVT in my injured leg right above the knee. ER drs put me on Warfarin & shots of Lovenox, and ordered me to stay off my feet all day until I meet with a GP (Apr 6th). After reading posts from this site I'm extremely worried. How long will my calf have severe pain when standing/walking? Is it true no pain meds work (so far Vicadin, and Tylenol don't work - only Advil does and I can't take that due to the blood thinners). How will I heal my ankle if I can't walk because of the calf pain? How long will I be on bedrest? This is my first DVT- cause was assumed to be from Birth Control pills and my ankle injury (though I was only off my feet for 4 days from the ankle fracture). I'm also very worried the GP won't let me fly to Vegas in two weeks, and even if they do I won't be able to walk at all. Does anyone have any positive ex... read more

8 replies...

cold leg
Posted by Sally
Last Reply May 17, 2008 at 22:51
Started May 17, 2008 at 15:08
Is one leg being colder then the other a sighn of Dvt one of nmy legs seems to be always colder then the other, i have had some slight pains too but no swelling or hot skin or any other symptoms

1 replies...

leg ulceration.
Posted by nebil
Last Reply May 17, 2008 at 22:16
Started March 30, 2007 at 21:39
17 of february 2006 i was diagnosed with dvt.i am still on warfarin because of protein s deficiency in combination with factor 5 leiden heterozigot mutation.anyway, somedays my pains are getting worse. for example last 5 month i haven 't have any swollen or pain but for 5 days my pain has really made me angry.walking is ok., runing could be some time hard but i can run 3 days in a week app. 5 km. swimming is the best you can forget all of your pain in the water.The main thing is listen your body and dont worry, if you want to run you can do it.

my question is, what is going to be happen when we get older? are we going to developt LEG ULCERATION? This think really make me angry because when you write LEG ULCERATION on google , all the pictures that you see are not good....
i m 30 years old.....

3 replies...

Not as serious-stuffy big nose
Posted by Char
Last Reply May 17, 2008 at 19:48
Started May 17, 2008 at 19:48
When I moved from Wisconsin I had a stuffy big nose, here in Florida it improved. Now since on Coumadin my stuffy big nose is much worse, with the Coumadin shortness of breath there are times when I feel like I am suffocating. Who else has those symptoms?
Today is a especially bad day as it is hot and muggy. I took all the Mothers Day flowers out of the house because of sneezing. Turned on the air cleaner, still a stuffy nose.

0 replies...

question about Dvt
Posted by Delia
Last Reply May 17, 2008
Started May 16, 2008 at 21:13
i only have slight pains in my leg but my calf feels tight all the time and i am having muscle spasms that feel like they are in a knott in it i am worried it is a Dvt, my docter thinks it isnt and therefore will not run tests can stress cause the same symptoms?

3 replies...

pain in leg
Posted by Delia
Last Reply May 16, 2008 at 16:05
Started May 15, 2008 at 18:05
i have a pain in my leg not severe just a sharp pain sometimes in my calf or to the side of my calf and sometimes it is an ache there is no swelling or tenderness had it for about a month on and off. I have seen my docter he said it was nothing, but i am worried i do feel like funney movement twitches in my calf and i have these sharp pains and slight aches. Any advice i dont want to risk anything and i am scared it is A dvt.

3 replies...

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