DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Pain in leg
Posted by Dawn
Last Reply May 16, 2008 at 14:32
Started May 14, 2008 at 14:04
Ok so I have been treated for this clot in my leg for 2 weeks now. It was starting to feel better and then a couple of days ago it started hurting more. Is that normal? I am feeling a bit of burning and ocassionally my toes feel sort of numb. I hate to call my doctor again. I just don't know what to do. Please did anyone experiance this..Thanks

4 replies...

balloon angioplasty
Posted by LT
Last Reply May 16, 2008 at 09:24
Started May 14, 2008 at 22:05
Hi im new here. I had a DVT on my femoral vein and calf in november after surgery. My left leg has shrank a little since then but it is still alot bigger (2-3in) than my right leg. It's really making me depress. i read somewhere you can use a ballon angioplasty to improve circulation after the DVT. has anyone had any experience wit this?

2 replies...

swelling ?
Posted by char
Last Reply May 14, 2008 at 21:43
Started May 8, 2008 at 20:54
Before my DVT/PE was diagnosed, not very difficult because of the pulmonary embolisms, I had slight swelling of the right foot on the top for at least 8 months. Followed by severe right calf pain. Thought the slight swelling was from biking, stepper, walking activity, I did not injure my foot. My rt. leg/calf was never swollen, but I have the leg pain of a post DVT with no swelling. Does anyone else have no swelling of the involved DVT leg?

10 replies...

Posted by Sandy
Last Reply May 14, 2008 at 13:56
Started May 13, 2008 at 19:08
Is there any runners out there. I had a Dvt in my leg in may of 2007 now I am recovering from a PE and will be on coumadin for at least 6 months. I was wondering if anyone has any info on Running after a PE. I was able to run after the dvt and actually did a marathon, I'm concerned about running after the one in the lung. I have what they call deficient S Protien.

2 replies...

Who's Had Clot-Busters?
Posted by Sarah
Last Reply May 14, 2008 at 01:18
Started May 4, 2008 at 06:46
For those of you who check in regularly, I'd be interested in starting a thread regarding how many of us were treated with catheter-directed tPA or urokinase.

While I was in the hospital I remember my hemo coming in on day two and mentioning something about a "clot-buster" but grandly cautioning that a side effect was intracranial hemmorage and that being young I would not want to risk that happening. It was never really presented as an option to me and I have since come to find out through research on my own that it is a fairly common procedure, especially on larger clots (mine is groin to ankle). I'm very curious now how many people on here were treated with thrombolysis.


9 replies...

Posted by Laura
Last Reply May 13, 2008 at 21:32
Started May 13, 2008 at 21:32
Hi, I am a lady of 60+ and I recently had major surgery for arterial embolisms. There were 3 clots, one in each leg and one in my tummy on the what is called the saddle (the part where the artery splits to go down the legs) I woke up one morning with leg paralised and the other very cold, my foot and toes of the left leg were purple. Since surgery the wounds have taken a long time to heal. I am on Warfarin and have been told this does retard healing of wounds.

My question is: Can these clots come back even if I am on warfarin? Has anyone had this form of clot and what is the prognosis? I would appreciate any suggestions.
Many thanks


0 replies...

leg much better with weight loss
Posted by John in Dallas
Last Reply May 13, 2008 at 18:22
Started May 13, 2008 at 08:18
Has anybody lost a significant amount of weight and noticed a big improvement in how their dvt leg feels after the weight loss?

I know that if you exercise you are better off in all realms, but I want to know if someone has lost a bunch of weight and their dvt leg feels much better as a result of weight loss.

2 replies...

heart rate
Posted by chell
Last Reply May 13, 2008 at 17:49
Started May 9, 2008 at 14:01
I went running yesterday and my heart rate got up to 218bpm has anyone else had similar problems. I felt okay but I am used to running and did not notice anythink signigicant. If I did have the heart monitor on I wouldn't have noticed it.

5 replies...

someone please help!
Posted by heidi
Last Reply May 13, 2008 at 02:57
Started May 13, 2008 at 01:48
ive had issues for years with swelling of my left leg. My left ankle is where i first noticed it about 4 years ago. now its gone as far as my calf... up to my knee. I have asked dr after dr about this problem... for years ive heard the same thing. Its varicose veins.. dont worry about it. well... i AM worried. ive BEEN worried. but no one seems to do anything about it. they tell me .. wear support hose. well... last summer, while floating around in the pool, my leg started aching really bad... i pulled it out of the water and saw that a vein near my ankle had burst and i had a large raised green mass there where my ankle used to be.
i went to the ER.. they did a scan to see if blood was flowing normally near my groin etc... and all seemed fine.

well.. a month or so ago i noticed my leg swelling even worse, the swelling never ever goes away. and ive experienced pains ive never had. in my groin, down my entire leg, and it FEELS vascular. i dont know how else to describe it.. its... read more

2 replies...

side effects
Posted by char
Last Reply May 12, 2008 at 21:36
Started April 27, 2008 at 21:11
Now after taking Coumadin for 10 plus weeks I have some unwanted side effects. Mainly muscle and vein pain, shortness of breathe. But the good news is the PE's have dissolved or disappeared. Sure is tempting to reduce or go off the Coumadin.
I have not seen any posts about side effects in this forum, but have read about the possibilities at Drugs.com and other websites. Anybody on this forum with the same side effects?? What are you doing to reduce the side effects?

4 replies...

"Blood clot caused Via rider's death, police s
Posted by Chicolita
Last Reply May 12, 2008 at 19:41
Started May 12, 2008 at 19:41
"Blood clot caused Via rider's death, police say"

43-year-old South African tourist was travelling alone on a cross-Canada rail journey


0 replies...

what should i do/or not do?
Posted by carole
Last Reply May 11, 2008 at 20:30
Started May 10, 2008 at 22:41
Hi Everyone, perhaps one of you could help me know what i should or shouldnt be doing now i've been diagnosed with multiple clots in my lower left leg? It has all been such a whirl since last friday and after a life time of very good health in spite of being 53 and overweight, I dont seem to know what questions to ask etc.I have stopped taking the injections and now on 5 tablets of warfrin and seeing the nurse every 3 days. should I be at work (very stressful job), should i start exercising, etc etc

all suggestions will be gratefully received

5 replies...

off the warfarin
Posted by Natalie
Last Reply May 11, 2008 at 19:37
Started May 10, 2008 at 17:49
hi guys,when you's came of the warfin did you experience night sweats,i woke up at 3am sweating which isnt like me,ive no energy,but i feel okay,i was on the medication for 12months i reduced it to 2mg before just stoping it.

1 replies...

DVT at 18
Posted by Jenny
Last Reply May 10, 2008 at 01:45
Started February 28, 2008 at 22:58
Hi everyone. I feel so sad i got DVT and PE at just 18. It was so unusual. Last august, i had noticed over a few weeks my breathing was a little weird, i got out of breath a bit more than normal. Anyway, eventually my hip started to twinge a little, sort of in my groin. The weird thing was it didnt feel muscular, sort of a deeper pain. I didnt know about DVT at the time, so didnt think much of it, but then i had a sudden episode when i couldnt breathe properly, i kept trying to catch my breath. It was awful. It didnt last that long, but when i went to the doctors i was admitted to the hospital straght away and the CT scan showed i had bilateral PEs. As soon as i got into hospital i didnt have any more breathing problems, and not since. During the time i was in there my leg pain got worse. It travelled down my thigh, then into my calf over a few days. I was bed stricken in the end. I had an IVC filter put in and was started on warfarin. I have been on warfarin ever since.

Since th... read more

9 replies...

Coumadin leg pain
Posted by char
Last Reply May 9, 2008 at 11:26
Started May 9, 2008 at 11:26
Maybe some of our leg pain is because of the Coumadin??
At another Healthboard, Coumadin is mentioned for leg and other body pain.
One of my Doctors says Coumadin has no side effects, LOL

0 replies...

Right or Left
Posted by gwendolyn
Last Reply May 9, 2008 at 01:34
Started May 8, 2008 at 18:00
Does anyone no if it makes a difference what leg you get a dvt in? (Right or Left)

2 replies...

No DVT found
Posted by chell
Last Reply May 8, 2008 at 17:54
Started May 3, 2008 at 13:33
I had my scan yesterday but no DVT was found but my leg pain are still as bad as before. I have not injuried myslef what should I do now? I am frustrated.

3 replies...

Posted by Diane
Last Reply May 7, 2008 at 17:03
Started May 3, 2008 at 01:59
Are we interested in keeping this list going? It has been almost a year now (mid 2007) and we're up to 69 names.

Just a small request. Please be careful not to copy your name over top of the last person on the list. Add yourself after the last name.

1.) Diane, Victoria, BC, Canada (ME) May-Thurner Syndrome
2.) Jo, Tasmania, Australia
3.) Terry, North Wales, UK
4.) Jackie, New York City, USA
5.) Donna, Washington, Pennsylvania, USA (DVT, PCD, May-Thurner)
6.) Donna #2, Scotland, UK
7.) Ann, Livingston in West Lothian, Scotland, UK
8.) Valerie, West Ireland, UK
9.) Sue, Skipton, North Yorks UK prothrombin 20210 mutation
10.) Crystal, Baton Rouge, Louisiana, USA, May-Thurner
11.) Kim, Aberdeen, Scotland, UK
12.) Gayle, Glascow, Scotland, UK
13.) Justin, Alaska, USA
14.) Sharon, Friendswood, Texas, USA (Factor V Leiden & Antiphospholipid Syndrome)
15.) Karen, Seattle, WA, USA
16.) Denis (Dero), Ottawa, Canada (Idiopathic DVT
www.lifeafterdvt.forum... read more

8 replies...

Low Dose BCP After DVT
Posted by Maria
Last Reply May 7, 2008 at 14:58
Started April 14, 2008 at 10:35
I had a DVT four years ago I got it while I was flying with a cast on my leg. I was also taking the birth control pill at the time. After treating the DVT, I was tested for clotting problems and everything came back normal. I have no genetic predisposition for clotting problems. Since then, I have not had any problems. I had been taking the pill for medical reasons and sometimes think about resuming a low dose pill such as Loestrin. Has anyone ever resumed the pill. If so did you simultaneously take coumadin at the same time to mitigate the risk of another clot?

I tried the mini-pill but it made things worse. It seems like all of the treatments for heavy periods involve the BCP. I know some have recommended an IUD but I feel very uncomfortable about that--especially since some women experience prolonged bleeding with the IUD--and that is exactly what I would like to avoid.

If anyone has advice, I would welcome it. I am 31 and am tired of suffering from horrible period... read more

7 replies...

Should they have looked for PEs?
Posted by Cindy
Last Reply May 7, 2008 at 12:35
Started May 7, 2008 at 11:34
I was diagnosed with my DVT with an ultrasound. It is (was?) extensive - running from my abdomen to my ankle. However, there was no testing or ultrasound done to look for PEs. Should there have been? Would it make a difference and should I ask to have it done? In reading the forums, it looks as if most people were checked upon diagnosis and I am wondering why I was not. Thanks.

1 replies...

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