DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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DVT after cerebral hemorrhage - advice wanted
Posted by csf97
Last Reply April 25, 2008 at 05:36
Started April 23, 2008 at 03:57
My mother was on Coumadin (Warfarin) because she had two DVT's in her left leg last year.

Three weeks ago, she suffered a cerebral hemorrhage. The neurosurgeon did an emergency craniotomy to remove a large subdural hematoma caused by her blood being so thin.

She has recovered remarkably well from the bleed and the surgery, but has developed clots in her right leg. The ultrasound shows that one vein is solid clots from her thigh to ankle.

The day after the brain surgery, the surgeons installed a vena cava filter since she will not be able to be on blood thinners due to the risk of another cerebral hemorrhage.

She is in horrible pain and the doctors only advice is that she must be as active as possible to help the clots dissipate.

Does anyone have any advice on any treatment that might be beneficial to help alleviate the pain and help with her overall recovery?

Thanks in advance for any advice!

4 replies...

diet and exercise
Posted by kat
Last Reply April 25, 2008
Started April 25, 2008
I had my first DVT 5 years ago when pregnant. Just got another. I believe it is due to poor living and sitting for long periods. I'm on coumadin now and understand I will need to be on it for a while. I don't however want to be medicated for life. Has anyone had success through diet and exercise. ie avoiding Vitamin K, increasing cranberry juice. That kind of stuff.

0 replies...

Factor V Leiden- UK Experiences
Posted by Claire
Last Reply April 24, 2008 at 22:31
Started April 22, 2008 at 13:10
Hi, after a dvt from my knee to my calf, multiple pe's and 6 months of Warfrin. I have now been told that I have factor v Leiden. I am being refered to a haemotologist, but I just wondered if any one on here in the UK has the same and their experiences of treatment. At the moment I dont know if it is from both parents or just one. Thanks

2 replies...

Posted by Char
Last Reply April 23, 2008 at 20:22
Started April 22, 2008 at 20:34
What brands of Nattokinase are most preferred by the users of this forum??
Does it interfere with the Coumadin? I take 10 mg 2 times a week and 7.5 the other days. DVT and PE occurred in Feb and my Mother and Grandmother had the same disorder.
I use a Coaguchek monitor at home.

4 replies...

Calf Dvt after muscle strain
Posted by Cathy
Last Reply April 22, 2008 at 05:46
Started April 21, 2008 at 17:32
Four weeks ago I strained a calf muscle and two after that had DVTs in my calf. Now I'm not sure if the pain is related to the calf or the DVTs. I'm on warafin and am trying to walk but my leg keeps cramping. I still feel a tingling sensation when my leg is not elevated. I am depressed and anxious. I want to resume walking but can't seem to get going. my email: talk2u9134@aol.com

1 replies...

Posted by compression stockings
Last Reply April 21, 2008 at 17:20
Started April 19, 2008 at 21:43
I have a DVT in my left leg from my pelvis to my ankle, probably from a flight from Hawaii combined with going on Birth control pills for 3 months so I wouldn't get my period while I was there..stupid I know now, but no one warned me about DVT. I am 50. My problem is I wear 20-30 compression stockings. At first I was given Medium thigh highs. They are really so tight around my thighs they leave really deep lines which last for hours when I take them off. This can not be good. I bought Larges, but they do not stay up and pool at my knee and ankle, which is not good either. Which is the lesser of the 2 evils? Any suggestions?

5 replies...

Posted by DIANE
Last Reply April 20, 2008 at 17:20
Started January 26, 2008
Hi all!

It is becoming difficult to keep up with the additions. I ask that anyone who wishes to be added to our list, please do so by copying & pasting the last page of the list and adding themselves onto the bottom of it. Those who have already done this have been tremendously helpful.

1.) Diane, Victoria, BC, Canada (ME) May-Thurner Syndrome
2.) Jo, Tasmania, Australia
3.) Terry, North Wales, UK
4.) Jackie, New York City, USA
5.) Donna, Washington, Pennsylvania, USA
6.) Donna #2, Scotland, UK
7.) Ann, Livingston in West Lothian, Scotland, UK
8.) Valerie, West Ireland, UK
9.) Sue, Skipton, North Yorks UK prothrombin 20210 mutation
10.) Crystal, Baton Rouge, Louisiana, USA, May-Thurner
11.) Kim, Aberdeen, Scotland, UK
12.) Gayle, Glascow, Scotland, UK
13.) Justin, Alaska, USA
14.) Sharon, Friendswood, Texas, USA (Factor V Leiden & Antiphospholipid Syndrome)
15.) Karen, Seattle, WA, USA
16.) Denis (Dero), Ottawa, Canada (Idiopathic DVT
www.lifeafterdvt.forumotio... read more

35 replies...

Anti-Embolism Versus Compression Stockins
Posted by Emily
Last Reply April 20, 2008 at 13:04
Started April 20, 2008 at 05:21
I ended up in the hospital in January, diagnosed with severe pneumonia. I thought it was the flu (having always been healthy prior to this). Ended up with bi-lateral PE. Two weeks later, back in with a DVT from my upper thigh to my ankle. I am doing much better now, on coumadin - and was wearing a full-length stocking "anti-embolism" stocking .I went to a medical supply store and the lady there told me I should be wearing a compression stocking. So, now, I am afraid to put on the anti-embolism stocking until I see my internist next week. Is there any danger in not wearing the stocking?

2 replies...

post phlebitic
Posted by greg
Last Reply April 20, 2008 at 05:35
Started April 9, 2008 at 19:32
is anyone of cures both orthodox and alternative for Post Phlebitic Syndrome. i am amazed this has not generated any comments so far when i did a subject search. i am desperate and would welcome any comments.

4 replies...

Pregnancy & DVT
Posted by Caroline from UK
Last Reply April 17, 2008 at 12:59
Started April 16, 2008 at 21:53
I've just come out of hospital following a DVT in my calf and bilateral PE's. We think that it was probably caused by my being on the Pill followed by a long flight, plus I have a son who is 8 months old. We were hoping to get him a brother or a sister in the near future (although I think I'd now better wait until I'm off the medication in 6 months' time) - does anyone know anything about pregnancy and DVT?

1 replies...

Bayer Einstein VTE study
Posted by Emmab
Last Reply April 16, 2008 at 22:02
Started April 15, 2008 at 02:14
OK< I think this is what they started my husband on today.
He has an active clot.
It got bigger since last week, and is just below but not low enough to be of less concern, his knee.
Anyone know much about this?
He got on the last arm of the study, which the doctor said was a very good place to be.

2 replies...

dvt and pe
Posted by wendy
Last Reply April 16, 2008 at 03:38
Started April 15, 2008 at 16:27
hiya as i read every 1s questions i dont feel so alone any more i had a dvt and a massive pe i was 24 i had my dvt and pe on the 28/04/07 it was miss 8 times gp AnE out of hours gp untill i callopsed in the city centre with my 3 yer old little boy i was so scared that id never see him again i cd i really didnt know what to do im so glad that the questions your worried about im scared about like having anther coming off warffin etc

1 replies...

general questions
Posted by Michelle
Last Reply April 15, 2008 at 06:12
Started April 15, 2008 at 02:28
My nephew had his 1st dvt at age 19 yrs which led to a
pulmonary embolism. On warfarin for 1 yr went off for 1 mth.
during that time to be cleared medically had another dvt.
It seems to me the only doctor that really cares is his Int.
Med Dr. the Hematologist blows off my sister and acts like she is overbearing. My nephew is suppose to get some type of filter, but INR levels not stable. Can any one tell me should he be seeing a vascular doctor and if they know of any good Dr's in the Detroit, MI area. Thank You Michelle

1 replies...

DVT and Factor 5
Posted by Sabrina
Last Reply April 15, 2008 at 01:53
Started March 1, 2008 at 17:52
Hi all---I'm so glad I found this forum because even though I am a 4th year medical student, it's so hard to get answers and understanding out of my own doctors! I tore my calf muscle about 2 months ago and about 5 wks ago, was diagnosed with an extensive DVT from my left calf vein all the way up to my groin vein. I stayed in the hospital for 5 days on Heparin and have been on Coumadin since then, too. I found out that I have the Factor 5 Leiden deficiency....I have been wearing the compression stockings and they REALLY HELP! The first 2 weeks I was in alot of pain and could hardly walk 5 feet without my calf and thigh swelling up and hurting really bad. I felt like I was walking with a 100 pound leg all the time. I was just wondering if anyone has any advice or information regarding a similar experience...I am 27 years-old and a very healthy person up until this DVT diagnosis...My pain has improved significantly but it still bothers me in my groin area and there's not much you ... read more

13 replies...

What FVL test should be asked for?
Posted by Si
Last Reply April 15, 2008 at 01:41
Started April 14, 2008 at 16:44

I suffered a DVT and PE last year and have since been diagnosed with the Factor V Leiden mutation. Having read that it's heriditry I suggested my parents get tested as well, as they do a lot of flying.

They've both now had the test but both came back negative. Now at this time I would be a little worried about who my real parents were, but my Dad thinks they cocked up his test.

When I was tested, three tubes of blood were taken. When my Mum was tested, three tubes of blood were taken. When my Dad was tested, they only took one tube. Also, when he told the healthworker what he wanted testing for (FVL), they looked confused and had to ask a Doctor. Apparently the Doctor hadn't heard of it either. Worrying! So he's getting re-tested.

Anyway, does FVL definitely have to come from one of your parents or can it skip a generation? Or can it even spontaneously occur?

I guess that if my Dad comes back negative again, I'll get re-tested and if still come back pos... read more

3 replies...

Recovery from PE and DVT
Posted by Richelle
Last Reply April 14, 2008 at 21:15
Started April 14, 2008 at 14:24
A year ago this week, I spent 8 days in the hospital with bilateral Pulmonary embolisms. I had a DVT in my calf that broke off. I was pregnant and miscarried. The doctors think that the pregnancy along with fertility drugs I used caused the DVT and PE. My Hematologists did a bunch of tests to see if I have any clotting disorders but they all came back negative. He still thinks I may have a clotting disorder but there's just not a test to detect it yet. I am scheduled to come off coumadin at the end of this month. For those of you who have had PEs, did you have any follow-up tests once you came off the coumadin? Any follow-up blood tests or lung function tests? I had a follow-up CT scan a couple months ago. All the clots are gone and there's no scar tissue. I'm just a little freaked out about coming off the coumadin because it was my safety net. I am going to check into Nattokinase...have heard alot of good things about it on this forum and others.

5 replies...

Coumadin Pill?
Posted by Emmab
Last Reply April 14, 2008 at 20:43
Started April 14, 2008 at 18:56
Hi All: Well, my husband's blood clot got worse. They are doing blood work asap and gave him literature on a new pill study.
Does anyone know how effective this is?
Is it risky?
We've been hit with a lot today, because now it looks like he will be living with a torn knee for awhile while they treat this other mess.
Prayers are welcome and if you know about this pill, please reply.

1 replies...

Weight an issue
Posted by Kaweah
Last Reply April 14, 2008 at 20:32
Started April 7, 2008 at 23:09
Does anyone know if being over weight increases the changes of getting another DVT, I have 3 already, with no known cause of them.

10 replies...

Managing Risk of DVT and PE Recurrence
Posted by Jeannette
Last Reply April 14, 2008 at 20:07
Started April 7, 2008 at 19:53
I am a 36 year old woman, diagnosed at the beginning of March 2008 with DVT in my left calf and also in the left iliac vein. I also had multiple small PEs. Symptoms of the DVT began in late January, but took some time for accurate diagnosis (clots in leg showed up on MRI, but not on several leg doppler ultrasounds). I was hospitalized 5 days on strict bed rest with leg elevation, to reduce the extreme swelling from foot to groin in my left leg. I have been on bed rest at home for past 3 weeks, and am wearing compression pantyhose 30-40 strength. I have been on Fragmin injections daily as I did not respond well to Lovenox and Coumadin initially. My condition is "idiopathic"... no known reason for my blood clots. My sister has had 2 previous episodes of massive PE, although both of hers were immediately post partum. I've tested negative for all screening of genetic conditions. My concern is that I have read that there is a fairly high probability of recurrence, even higher wh... read more

9 replies...

Is This Normal?
Posted by Emmab
Last Reply April 11, 2008 at 19:01
Started April 9, 2008 at 01:28
My husband fell and tore his knee up and is awaiting surgery.
Had a dopplar today, and has a very very small clot.
They didnt do anything at all for him but will recheck on Monday next week.
Is this ok???????
Is it normal not to do anything but suggest compresses only? His surgery is May 2, so I know they dont want to complicate that but.....it's kind of scary.

5 replies...

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