DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Heart Stress after PE
Posted by kaz
Last Reply April 11, 2008 at 14:22
Started April 4, 2008 at 20:53
Hi everyone,
I had multiple bilateral PEs at the beginning of February this year. I got my INR in range pretty quick and was feeling fairly good for most of Feb after I came out of hospital. But then the chest pain started and that hasn't gone. My GP has told me to slow things down and take things really easy but I am really only walking around the house nothing more. The last two weeks I've had my heart rate monitored and it seems that my body and specifically my heart is under pretty much constant stress and isn't recovering much at all when I sleep even. I just wondered if anyone has any ideas as to how the PEs can cause this stress on the heart and if
anyone else has had this what the treatment is. Thanks for all your help.

4 replies...

looking for someone with throm of smv
Posted by paul
Last Reply April 11, 2008 at 04:23
Started April 8, 2008
I'm only 28 and have thrombosis of the superior mesenteric vein to the level of the portal vein. That is beteen the liver and the intestence. Just looking to talk to someone with same problem.

2 replies...

General dvt advice pls
Posted by shaun
Last Reply April 10, 2008 at 22:35
Started March 10, 2008 at 23:02
hi, i have posted before but in diff threads so thought it might be easier for me to get the info back by posting my own thread...
i had a dvt in june 07 i was told at the time it was behind the knee. i have been back and forward to the hosp with bad pains in my leg and swelling, and my inr has never stabalised. each time im told go home there are no problems ur on warfarin!!
i went to the docs today because im constantly in pain. i have like a calf strain type pain constantly, an ache in my groin which is worse when i drive or seated for long, but standing hurts the calf!! ive had chest pains and what i can only describe as like a gurgling feeling in my chest..and when i get up i see stars quite often!!! i dont wanna keep going back to the docs as they just dont seem interested..are these symptons i should be expecting..the doc says the groin ache is now a groin strain!!!

i drive for a living long distnce and it worries me everytime i hit the road...

20 replies...

Compression Level
Posted by Lore
Last Reply April 8, 2008 at 23:43
Started March 30, 2008 at 12:43

I was wondering what level of compression you all use in your compression stockings. Mine are 15-20 mmHg or 20-27 hPa and thigh length. I have seen some postings on this site recommending higher compression numbers and I was wondering if I would benefit from stronger compression. I do get swelling and redness in my leg.


5 replies...

Do I have DVT?
Posted by lich663
Last Reply April 7, 2008 at 06:49
Started April 6, 2008 at 04:39
I've had blood clots on the lungs a few years ago because of birth control pills...after 6 months I stopped taking coumadin.

This past week, my lower front shin has been hurting constantly with some swelling in a few areas...I have not exercised..no injury...this was sudden.
It hurts just sitting here typing. I have applied ice and heat and nothing helps....I have considered shin splints but again..I have not done any form of exercise.
is there a possibility this could be a clot?

4 replies...

side reactions to anticoagulants
Posted by John
Last Reply April 4, 2008 at 03:34
Started March 27, 2008 at 18:17
Does anyone have any problems with anxiety or just feeling agitated at times while on coumadin or other anticoagulants?
It seems to be worse late at night and early in the morning. I have noticed this with both lovenox and coumadin.
These feelings come and go with me and I have trouble sleeping at times. Any info would be appreciated.

6 replies...

Continuous Pain in Right Leg
Posted by Kathy
Last Reply April 3, 2008 at 18:46
Started April 3, 2008 at 17:10
Can anyone tell me if there is any relief for a DVT. My husband still suffers from swelling and pain in right leg after 4 yrs. He has had vein surgery to try and put a stent in but it did not work as well as they thought it would. His blockage is up the main artery. We just would like relief from pain so it would be easier to walk. Can any of you give suggestions that helped you

Thank you - Kathy

2 replies...

DVT questions and predictions...
Posted by David
Last Reply April 2, 2008 at 06:43
Started March 30, 2008 at 21:31
Hello, all, I just discovered this website and looking forward to going through all the information. I would like to ask some questions, though. Just to give you a little background on my story, I had a DVT in my lower left leg that did have a PE in April 2005 when I was 31. They couldn't give me a definite cause, but I was morbidly obese and as you can imagine, my lifestyle wasn't one of great activity. My father also had had a DVT in his early 40s. I did have several genetic tests done, all of which came back normal. There was no indication that there was a genetic factor. For the next 2 years, I battled with my weight and finially decided that gastric bypass was an option I wanted to explore further. The surgeon wanted to place a filter in since I still had a "chronic clot" from 2005 and I did have a PE. The surgery was wonderful. Was only in the hospital for two days and I felt fine for the week after. On the 8th day, I had awoken very dehydrated and with some back di... read more

2 replies...

Blocked iliac vein
Posted by Claudine (Australia)
Last Reply April 2, 2008 at 06:23
Started January 23, 2008 at 23:49
Hello All,
I am from Australia and to cut a long story very short, I got a dvt in my iliac vein when I was 3 months pregnant, was put on daily clexane injections, bub was born naturally, I was placed on 12 mg Warfarin therapy. I have been on Warfarin for 3 months and am due for a check up in 2 weeks to see how the clot is going. Ohh and I have a prothombin gene.
I have a few questions for the more experienced?
1. Does the iliac vein ever unblock?
2. Does the pain in the leg ever subside?
3. Is a stent an option?


1 replies...

how long between testing?
Posted by Steve
Last Reply March 31, 2008 at 21:37
Started March 30, 2008 at 17:06
may need to be on coumadin lifelong - how long is the avearge time between visits for INR check once stabilised?
thanks guys

1 replies...

new to this site about DVT
Posted by Lisa
Last Reply March 28, 2008 at 20:19
Started March 28, 2008 at 20:19
I have been through it all. I started with ACL tear which turned into a PE and the DVT's from the waist down in 2001. I was 32 years old at the time. I thought my life was over. The coumadin made me bleed out after the PE and then it caused the DVT's to be off the coumadin. I have a Greenfield Filter in my inferior vena cava. I am back on warafrin and have litterly bleed out from it through my bowels. I have had more than 20 blood transfussions. It is so important to stay on top of your INR and not let it get to thin. I have terible swelling to my legs and ankles that I have had to start on Lasix. I am just glad to find someone with some experence of what I have been through and to let everyone know life does go on.

0 replies...

left vertebral basilar artery dissection
Posted by Johanna Kabir
Last Reply March 28, 2008 at 05:59
Started March 27, 2008 at 11:58
I have recently had life turned upside down with this just like to speak to others

1 replies...

2008 book mentions Nattokinase
Posted by Shana
Last Reply March 26, 2008 at 16:23
Started March 24, 2008 at 05:12
I found this today on the internet:

Reverse Heart Disease Now: Stop Deadly Cardiovascular Plaque Before It's Too Late
By Sinatra, James C., M.D. Roberts
January 2008

Editorial Reviews

From the Back Cover

"Drs. Sinatra and Roberts have taken preventive cardiology to an entirely new level. . . . I highly recommend this important and groundbreaking new book."
—Nicholas Perricone, M.D., bestselling author of The Perricone Prescription and Dr. Perricone's 7 Secrets to Beauty, Health, and Longevity

"A must-read for anyone interested in stopping heart disease in its tracks. If you want to live a long and healthy life, this is the book for you."
—Dharma Singh Khalsa, M.D., bestselling author of Brain Longevity

Leading cardiologists Dr. Stephen Sinatra and Dr. James Roberts draw on their collective fifty years of clinical cardiology research to show you how to combine the benefits of modern medicine, over-the-counter vitamins and supplements, and simple lifestyle change... read more

4 replies...

Diet for your blood type
Posted by Shana
Last Reply March 26, 2008 at 15:54
Started March 26, 2008 at 02:56
Has anyone else read this series of books? and what do you think?

I'm wondering if this research is something to should take seriously and change our diets, or just another doctor writing a book that scares us to death.

Anyone's thoughts are appreciated.

2 replies...

Natural Therapies
Posted by Julia - 39, NSW Australia
Last Reply March 26, 2008 at 12:41
Started March 8, 2008 at 04:01
Has anyone had any breakthrough using natural therapies to assist with their health post DVT/PE? I was one who would never even take a headache pill so being on medication for the rest of my life has been hard for me to get use to. I was always fit and healthy before my DVT/PE 8 months ago, but since then have had all sorts of health problems, I'm constantly tired, my skin is always breaking out, my hair is awful, I have anxiety attacks and I've put on about 12 kilo's and yet my diet is pretty well all natural foods and hasn't changed, although I don't run and swim anymore because of the fatigue and diminished lung capacity from the PE's. I have just started seeing a naturopath and had Mora Therapy which is fascinating. I have yet to receive a diagnosis from my Docotors as to why I got the clots in the first place, but this little biofeedback machine was able to pinpoint it to my endocrine system, which at the moment is all totally compromised. We still have further testing to g... read more

23 replies...

DVT Symptoms?
Posted by Tim
Last Reply March 23, 2008 at 05:39
Started March 10, 2008 at 02:04
I have been experiencing leg fatigue and mild cramping in both calves. Currently have isolated pain and tenderness in right calf but no evidence of redness or swelling. I am a runner and cyclist so I have had intermittent soreness in my legs in the past from hard training, etc. What I am experiencing now is not the same sensation. I travel extensively for work including multiple weekly flights and long trips in motor vehicles. Given the brief amount of information is it reasonable to suspect DVT? What is the best way to approach my doctor so I can rule this out? Thanks for any help you may be able to offer.

6 replies...

Gingko Biloba/Warfarin
Posted by Shana
Last Reply March 22, 2008 at 21:59
Started March 21, 2008 at 17:51
An important read - also mentions nattokinase.


7 replies...

Question about swelling
Posted by Anne
Last Reply March 22, 2008 at 16:02
Started March 21, 2008 at 23:42
Hi, I have a question and have been reading the posts on this site for awhile, it's great to hear so many of you coping so well.

My DVT (post surgical + factor V) was diagnosed Feb 14th of this year, and after 3 weeks of heparin and now on warfarin, I have just this past week returned to a more active lifestyle -- I was a runner and am now swimming and using stationary bike.

My question: In the last two days, I have noticed that my healthy leg is swelling, especially around the ankle and calf at the end of the day. Why would this be? Of course I notice it now after hours at the doctor so I'll call on Monday, but it has me worried. I've been wearing a compression stocking on the DVT leg (extensive DVT) but not on the other one and don't understand why that might be swelling. Is this common?

Any repsonses would be helpful. Thank you.

3 replies...

At Last Finished
Posted by Donna -Edinburgh Scotland
Last Reply March 21, 2008 at 13:46
Started March 20, 2008 at 19:11
Well I have just swallowed my last warfrin tablets tonight so I now start with another journey and hopefully a lot happier and healthy one than I have had over the last 6 months, I feel great not having to take that stuff anymore and I am just praying I dont have a clotting disorder (will find out in May) or I have any other DVT's, so really I am just wishing all you guys the best of luck and hope you all live a happy healthy life. Thanks for all your support through this daunting time. Donna

4 replies...

Anti-coagulation in Practise conference (UK)
Posted by NB
Last Reply March 20, 2008 at 16:37
Started March 12, 2008 at 14:15
Just wanted to post details of this conference which is coming up on 17th/18th April.

Its only £12 for patients to attend. I attended last year and found it very interesting. It covers areas other than DVT (as lots of people are on anti-coags for other reasons) but its still useful. It was also an opportunity to meet NHS staff (anti-coag clinic staff, GPs, researchers) and convey what its like for patients.

I can't make the conference this year, but if anyone goes and gets hold of the slide pack, please post details and feedback on the conf. thanks

1 replies...

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